Sometimes the lessons caregivers learn in hospital rooms follow them far beyond. In Bud's piece, he shares a simple pulmonary-positioning technique that became a metaphor for holding grief, exhaustion, and tenderness.

Read: courageousparentsnetwork.org/blog/good-lu...

Courageous Provider Award Nominations are OPEN!

This award recognizes clinicians providing exceptional family-centered care in circumstances of serious childhood illness. For more information, visit: courageousparentsnetwork.org/courageous-p...

Due by Friday, January 30, 2026, at 5 pm ET

After years of listening and learning from rare families and clinicians, Courageous Parents Network is excited to announce the launch of an updated digital presence!!

Take a look around and let us know what you think! Email us at Connect@CourageousParentsNetwork.org
#pedpc #pedatrics #raredisease

Where the CPN team will be this month!
#pedpc #NeuroJourney #Caregiver

Announcing the 2025 CPN Courageous Provider Award recipient Camara van Breemen, MN, NP at Canuck Place Children’s Hospice, Vancouver, CA! We celebrate you along with colleagues who reached out to recognize you.

Learn about Camara van Breemen & the Award: courageousparentsnetwork.org/pages/the-co...

Support CPN while also running the ICONIC Falmouth Road Race on Cape Cod!

If you are interested in joining Team CPN or would like more details, please contact Team Captain Sarah Casey at sarah@courageousparentsnetwork.org

We look forward to hearing from you!

Dr. Goldstein was one of the founding inspirations for CPN & our conviction of what is possible between a child's physician & parents who share the privilege and responsibility of their care. Help honor #ThisSharedJourney with a gift to our anniversary campaign. Visit buff.ly/I8xPjDh

At CPN, we know that hearing from others with similar experiences helps build a vocabulary that strengthens caregivers' confidence.
Celebrate #ThisSharedJourney and honor the ongoing support we provide to our network by sharing the lived experiences of families and clinicians.
Give: buff.ly/RJj9adu

CPN's mission has always been to help those caring for children with serious medical conditions feel less alone. #ThisSharedJourney celebrates how families and clinicians can positively impact each other when we share our stories and build community.

Support CPN: www.every.org/courageous-p...

Healthcare advance directives can support a family's goals and wishes. Join Founders of Advance Conversations IN THE ROOM on 3/24 at 8 p.m. ET
Register: courageousparentsnetwork.org/events/suppo...
#advancedirective #pedpc

Today we recognize the strength and love of #caregivers.

We know the impact caring for a child with a serious illness can have on relationships.

So we want to know...
How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going?

Tell us in ONE word.
#pedpc #rare #caregiver

CPN is proud to be an official liaison to the American Academy of Pediatrics Section for Hospice & Palliative Medicine. Bringing peds experts & caregivers together is an essential part of improving the pediatric healthcare experience & fostering an understanding of clinician & caregiver perspectives

Kicking off 2025 strong!

In 2024, CPN staff presented 106 times. Most of these presentations are done at no cost to organizations or professional groups. Your gift makes them possible.

Donate: www.every.org/courageous-p...

#pedpc #neurojourney