Courageous Parents Network
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courageousparentsnetwork.org
Courageous Parents Network
@courageousparentsnetwork.org
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CPN is a nonprofit org established to help caregivers & others caring for children with serious medical conditions navigate the journey with support.
https://courageousparentsnetwork.org/
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courageousparentsnetwork.org
Sometimes the lessons caregivers learn in hospital rooms follow them far beyond. In Bud's piece, he shares a simple pulmonary-positioning technique that became a metaphor for holding grief, exhaustion, and tenderness.

Read: courageousparentsnetwork.org/blog/good-lu...
November 25, 2025 at 3:45 PM
courageousparentsnetwork.org
Courageous Provider Award Nominations are OPEN!

This award recognizes clinicians providing exceptional family-centered care in circumstances of serious childhood illness. For more information, visit: courageousparentsnetwork.org/courageous-p...

Due by Friday, January 30, 2026, at 5 pm ET
November 17, 2025 at 3:35 PM
courageousparentsnetwork.org
Join CPN tonight at 8:00 PM ET!
October 9, 2025 at 4:46 PM
courageousparentsnetwork.org
Join CPN next Thursday In The Room!

Learn more and register: courageousparentsnetwork.org/events/you-c...
Upcoming: You Can Never Be Too Prepared: Pediatric Disaster and Emergency Preparedness – Courageous Parents Network
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October 3, 2025 at 2:51 PM
courageousparentsnetwork.org
After years of listening and learning from rare families and clinicians, Courageous Parents Network is excited to announce the launch of an updated digital presence!!

Take a look around and let us know what you think! Email us at Connect@CourageousParentsNetwork.org
#pedpc #pedatrics #raredisease
September 25, 2025 at 3:13 PM
courageousparentsnetwork.org
Pediatric Palliative Care can make all the difference in families affected by #childhoodcancer. @courageousparentsnetwork.org has developed a guide on this topic to help educate families & providers. Click the link below & share!
English & Spanish
courageousparentsnetwork.org/guides/impro...
Improving the Pediatric Cancer Care Experience with Palliative Support
Palliative care offers invaluable support to children and their families, regardless of the prognosis, by focusing on enhancing quality of life while managing a
courageousparentsnetwork.org
September 10, 2025 at 12:56 PM
courageousparentsnetwork.org
Are you a clinician attending Nexus Summit 2025?
CPN's @drchrissysalley.bsky.social, Eddie Day, & Naomi Williams will be presenting on how to incorporate CPN resources into communications & care. Join us for this virtual presentation on Sept 16th, 12:00 CDT.
summit2025.nexusipe.org/sessions/int...
Integrating Palliative Aware Care for Caregivers of Children Living with Serious Medical Conditions | Nexus Summit 2025
This session focuses on supporting families of children with serious medical conditions through palliative medicine principles. Participants will engage with Courageous Parents Network's digital tools...
summit2025.nexusipe.org
September 8, 2025 at 2:53 PM
courageousparentsnetwork.org
Join #ParentChampions Amy Graver and Aisling Melton with @drchrissysalley.bsky.social for a meaningful conversation about how palliative care can play an invaluable role in the care of a child with cancer. This event is hosted by CAC2 on September 11th. Register below.

www.cac2.org/cac2c-events...
CAC2 Webinar: Improving the Pediatric Cancer Care Experience with Palliative Support - CAC2
In this webinar, join pediatric psychologist, Chrissy Salley, Ph.D., with parents Amy Graver and Aisling Melton, to learn how palliative care can help your child and family and also demystify common m...
https://www.cac2.org/cac2c-events/cac2-webinar-improving-the-pediatric-cancer-care-experience-with-palliative-support/"
September 3, 2025 at 3:38 PM
courageousparentsnetwork.org
Where the CPN team will be this month!
#pedpc #NeuroJourney #Caregiver
September 2, 2025 at 4:46 PM
courageousparentsnetwork.org
NEW! @Courageous Parents Network is now offering #continuingmedicaleducation hours for eligible #InTheRoom events--at no cost through June 2026. Check out the CPN #InTheRoom page for details and to register!
CPN | Events
Empowering parents and families of children living with serious illness. You are not alone.
buff.ly
August 9, 2025 at 1:01 PM
Reposted by Courageous Parents Network
capcpalliative.bsky.social
We are excited to announce that the 2025 CAPC Innovation Award will be presented to Blyth Lord, EdM, Founder & Executive Director of @courageousparentsnetwork.org, in recognition of her work driving transformative change in the care of infants, children, & adolescents living w/ a serious illness.
August 4, 2025 at 2:02 PM
courageousparentsnetwork.org
70% of stress related to a well-planned trip occurs in the preparation phase, so let us help guide you along.
courageousparentsnetwork.org/guides/trave...
Travel Guide
Traveling with a child with medical complexity can be challenging but with extra planning, a family vacation can be a memorable and enjoyable experience. Planni
courageousparentsnetwork.org
June 25, 2025 at 2:30 PM
courageousparentsnetwork.org
Announcing the 2025 CPN Courageous Provider Award recipient Camara van Breemen, MN, NP at Canuck Place Children’s Hospice, Vancouver, CA! We celebrate you along with colleagues who reached out to recognize you.

Learn about Camara van Breemen & the Award: courageousparentsnetwork.org/pages/the-co...
June 24, 2025 at 4:42 PM
courageousparentsnetwork.org
Support CPN while also running the ICONIC Falmouth Road Race on Cape Cod!

If you are interested in joining Team CPN or would like more details, please contact Team Captain Sarah Casey at sarah@courageousparentsnetwork.org

We look forward to hearing from you!
June 16, 2025 at 2:21 PM
courageousparentsnetwork.org
Making major decisions about interventions such as feeding tubes or tracheostomies is one of the greatest responsibilities caregivers face. Join a panel of experienced parents as they share valuable insights into their decision-making journeys.

courageousparentsnetwork.org/events/paren...
Parent Perspectives: Insights into Medical Decision-Making
<p>Making major decisions about interventions such as feeding tubes or tracheostomies is one of the
courageousparentsnetwork.org
June 11, 2025 at 2:28 PM
courageousparentsnetwork.org
Every parent wants to help their child be their best, regardless of their abilities. However, the education system and the process of setting #IEP goals can feel defeating when a child is #medicallycomplex.

courageousparentsnetwork.org/blog/please-...
Please Presume Competency
Every parent wants to help their child, regardless of their abilities be their best. However at times the education system and IEP goals do not presume competency.
courageousparentsnetwork.org
May 21, 2025 at 2:05 PM
courageousparentsnetwork.org
Dr. Goldstein was one of the founding inspirations for CPN & our conviction of what is possible between a child's physician & parents who share the privilege and responsibility of their care. Help honor #ThisSharedJourney with a gift to our anniversary campaign. Visit buff.ly/I8xPjDh
April 6, 2025 at 2:00 PM
courageousparentsnetwork.org
At CPN, we know that hearing from others with similar experiences helps build a vocabulary that strengthens caregivers' confidence.
Celebrate #ThisSharedJourney and honor the ongoing support we provide to our network by sharing the lived experiences of families and clinicians.
Give: buff.ly/RJj9adu
April 5, 2025 at 2:02 PM
courageousparentsnetwork.org
CPN's mission has always been to help those caring for children with serious medical conditions feel less alone. #ThisSharedJourney celebrates how families and clinicians can positively impact each other when we share our stories and build community.

Support CPN: www.every.org/courageous-p...
April 3, 2025 at 2:36 PM
courageousparentsnetwork.org
In this webinar from @pedpalcc.bsky.social, the presenter will discuss their experience with their clinic’s 6-year history of using medical cannabis for children with palliative care needs.
tfaforms.com/4842636
If you wish to participate in any of our upcoming webinars, please complete the registration form below.  Those registering for 4 or more webinars will receive a 25% discount. Discounts are also available for groups of 5 or more.
tfaforms.com
March 13, 2025 at 4:23 PM
courageousparentsnetwork.org
Healthcare advance directives can support a family's goals and wishes. Join Founders of Advance Conversations IN THE ROOM on 3/24 at 8 p.m. ET
Register: courageousparentsnetwork.org/events/suppo...
#advancedirective #pedpc
March 11, 2025 at 2:25 PM
courageousparentsnetwork.org
Today we recognize the strength and love of #caregivers.
February 21, 2025 at 7:12 PM
courageousparentsnetwork.org
NOMINATIONS FOR THE CPN COURAGEOUS PROVIDER AWARD 2025 ARE NOW OPEN!

The deadline for submissions is Wednesday, April 30, 2025 at 5 pm ET. You can find instructions and a simple form to complete here: courageousparentsnetwork.org/pages/the-co...
#pedpc
The 2025 Courageous Provider Award: Nominations are OPEN!
The Courageous Provider Award annually recognizes clinicians providing exceptional family-centered care in circumstances of serious childhood illness. Nominees
courageousparentsnetwork.org
February 20, 2025 at 3:28 PM
Reposted by Courageous Parents Network
umasschan.bsky.social
🎧 Now streaming: Rare Diseases, Real Stories, a podcast that shines a spotlight on families affected by rare diseases: direc.to/msP4

#RareDiseasesRealStories #RareDiseases #podcast #RareDiseaseMonth @courageousparentsnetwork.org @blugenesfdn.bsky.social @globalgenes.bsky.social
Graphic says Rare Diseases, Real Stories, a UMass Chan Medical School podcast. All episodes streaming now on umassmed.edu and wherever you get your podcasts
February 10, 2025 at 8:36 PM
courageousparentsnetwork.org
We know the impact caring for a child with a serious illness can have on relationships.

So we want to know...
How do you tend to your relationships? What works? What doesn't work? What do you worry about? How do you keep it going?

Tell us in ONE word.
#pedpc #rare #caregiver
February 13, 2025 at 2:39 PM