Some interesting findings. Subjects were screened using CFS- Fukuda definition and were able to travel for the MRI, so results may not apply to ME or the more severe patients.

For those not familiar with her theory about treating dysfunctional mitochondria -Targeting mitochondrial dysfunction in the treatment of ME/CFS pmc.ncbi.nlm.nih.gov/articles/PMC...

I do best on a diet high in meat protein & low on carbs. Fatigue isn't my main issue anymore but still very sick.

Sheesh. In Time Magazine. No wonder their work got so widely known.

I think you already know I don't think CFS and ME are synonymous. From what I have learned of her, I consider her an above average CFS Dr.

See here.

I don't think her approach is adequate for ME as per the International Consensus Criteria or Severe ME.

From afar (in the US) I was appalled she had to defend her work.

Exercise - the right sort in Chronic Fatigue Syndrome - DoctorMyhill share.google/Nzb4nxwVFmjc...

I think Myhill has an approach that is good for some under the ME/CFS umbrella. She has info drs could use to give better care. She states to not exercise unless feel okay doing nothing. In my experience maximizing mitochondria is valid but even with that I have never been okay to exercise.

I think there is an incredible amount of pressure within medical community. It's rare for a doctor to buck the system. In some places bucking the system can lose their ability to work. What Myhill has been through is a good example.

Would like to see this study repeated using patients who have ME as defined by the International Consensus Criteria (ICC).

I think many of us in the ME-ICC group deal with MCAS.

Important to note the patients in this study were selected using the IOM. That is a clinical criteria to cast a wide net that captures many who do not have ME.
"The patients with ME/CFS were between the ages of 25 and 60 years and met the 2015 IOM case definition."

The math doesn't add up! Each American will have to lose 393 pounds... 0_o
www.facebook.com/share/r/1TKq...

If it works for a subset of 'ME/CFS' it is worth knowing who it helps. I doubt I would consider trying it...

Thank you for covering the conference!

The headline is a bit misleading. Test not quite ready for public use. I clarify here: open.substack.com/pub/colleens...

Feel free to message me if I can help you find specific info.

There is nothing easy about any of this. Managing the physical, mental and emotional toll takes a while to adapt to and is an ongoing process. For me understanding the biological processes helped me cope and manage better. I write about ME here (free to subscribe): open.substack.com/pub/colleens...

I agree that is likely but there are a lot of findings that could apply to some mistakenly given an ME diagnosis. If they had followed up, we wouldn't all be lumped together in a way that helps no one.

Wow! Love that! Hope you and your family are doing as well as possible!

I concur about the smoke alarm going off. I try to ignore it but do so at my own peril.

This might help clarify. See the section on epigenetics.

open.substack.com/pub/colleens...