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-ME Global Chronicle #51

-Updated Research Lists

-View from the Trenches of ME Table of Contents

-ME-ICC Info Table of Contents

#MyalgicEncephalomyelitis
#MEcfs
#Longcovid

open.substack.com/pub/colleens...

It is excellent. An important part of that educational video is it includes the ME International Consensus Primer.

For those not familiar with that, it is listed here in multiple languages. drive.google.com/file/d/1OLvC...

ME used to be G93.3 and CFS was R53.82.

ME advocates fought it being lumped together but CDC overrode it & created G93.32.

EPIC, one of the largest health record companies, expanded G93.32 to include even more conditions.

So G93.32 was a step backwards.

See pic for all the G93.32 conditions

May 12, 2024 is awareness day for Complex Immunological & Neurological Diseases (CIND) which includes #MyalgicEncephalomyelitis.

"We mark this date remembering those who have advocated for myalgic encephalomyelitis and other marginalized diseases."

www.meadvocacy.org/may_12_2024_...

I prefer myalgic encephalomyelitis because my experience matches the name & my symptoms match the ICC criteria for ME.

This isn't the experience for everyone who fits the SEID (aka me/cfs) criteria.

It is important for research that we accurately stratify patients.

See graphic for ME: