Kelsey, RN & AES award honoree, presents MECP2 findings at #AES2025. DM or email partnerships@citizenhealth.com.

#EpilepsyResearch #MECP2 #RealWorldEvidence

Steph turns complex MECP2 data into insight at #AES2025. DM or email partnerships@citizenhealth.com to learn more.

#EpilepsyResearch #MECP2 #RealWorldEvidence
@stepheaneff.bsky.social

Ashley brings clinical expertise into MECP2 research at #AES2025. DM or email partnerships@citizenhealth.com.

#EpilepsyResearch #MECP2 #RealWorldEvidence

Emily shares MECP2 real-world evidence at #AES2025. DM us or email partnerships@citizenhealth.com to connect.

#EpilepsyResearch #MECP2 #RealWorldEvidence

A new Citizen Health × UCB partnership is opening clearer paths for families to take part in epilepsy and rare-disease research across the full journey.

#AES2025 #Epilepsy #RareDisease #CitizenHealth #PatientDriven

Join Citizen Health by Nov 30 + be entered into the $5,000 giveaway. Centralize your medical records + get clearer answers in seconds. 👉 [www.citizen.health/unlock]

#ShareForRare #TheGreatUnlock #RareDisease #RareCommunity #AccelerateCures #Neurodev #Neuromuscular #BlackFriday

Grateful for the families + caregivers at the heart of this work: for the love, the unpredictability, and the honesty you bring. 💛🦃💜
#NationalFamilyCaregiversMonth #Gratitude #RareDisease #Thanksgiving

TODAY, 7pm ET / 4pm PT:
Learn how families use AI Advocate for reports, IEP prep & provider notes. Sign up: ciitizen.zoom.us/webinar/regi...

#RareDisease #RareParents #Caregiver #Genetics101 #IEP #SchoolSupport #PatientEmpowerment #HealthLiteracy #AIforGood #AccelerateCures

Heading to #NSGC25 in Seattle? Visit Booth 523 to meet Geo + Todd from Citizen Health + learn about our new #GeneticCounselor Ambassador Program 💜

#RareDisease #AccelerateCures

Penelope is using Citizen Health's AI Advocate to generate IEP goals, summarize a hospital stay for a new PCP, and pull lists of past medications they’ve tried. It makes caring for her son with #OCNDS easier.

“You’ve Got to Check It Out!”

#CSNK2A1 #TheGreatUnlock #RareDisease #AccelerateCures

OMG this makes parenting so much easier! 💜🦊 -Nicole, #raredisease mom. Answers. Organization. Peace of mind.

👉 Try it yourself at www.citizen.health/unlock

#ShareForRare #Caregivers #AccelerateCures #Neurodev #specialneeds #FOXG1 #ParentingWins

HIPAA. State laws. AI. Trust. Deven McGraw, Tina Grande (Healthcare Trust Institute), Lucia Savage (Omada Health), and Robin Strongin (Health Dame) break down what protecting health data looks like + how AI is redefining control and consent: healthdame.com/shaping-the-... @healthprivacy.bsky.social

Families power research! New #SYNGAP1 surgical study shows how your medical journeys can drive discovery 🧬💙 @curesyngap1.bsky.social #DEE #Epilepsy #Neurodevelopment #Seizures #RareDisease #AccelerateCures www.sciencedirect.com/science/arti...

For #Leukodystrophy Awareness Month: Grateful for #AicardiGoutieresSyndrome families who show what love in action looks like 💙 No one has to make this journey alone #AGS #Rare #AGSAA