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citizen-health.bsky.social
Citizen Health
@citizen-health.bsky.social
11 followers 28 following 26 posts
Hello BlueSky! 🦋 10,000+ rare diseases. 350M+ affected. 1 mission: unite patients & science for breakthroughs. Your stories spark hope. Your data stays yours. 🧬💜
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citizen-health.bsky.social
Kelsey, RN & AES award honoree, presents MECP2 findings at #AES2025. DM or email partnerships@citizenhealth.com.

#EpilepsyResearch #MECP2 #RealWorldEvidence
December 5, 2025 at 12:09 AM
citizen-health.bsky.social
Steph turns complex MECP2 data into insight at #AES2025. DM or email partnerships@citizenhealth.com to learn more.

#EpilepsyResearch #MECP2 #RealWorldEvidence
@stepheaneff.bsky.social
December 4, 2025 at 5:15 PM
citizen-health.bsky.social
Ashley brings clinical expertise into MECP2 research at #AES2025. DM or email partnerships@citizenhealth.com.

#EpilepsyResearch #MECP2 #RealWorldEvidence
December 4, 2025 at 12:11 AM
citizen-health.bsky.social
Emily shares MECP2 real-world evidence at #AES2025. DM us or email partnerships@citizenhealth.com to connect.

#EpilepsyResearch #MECP2 #RealWorldEvidence
December 3, 2025 at 4:47 PM
citizen-health.bsky.social
A new Citizen Health × UCB partnership is opening clearer paths for families to take part in epilepsy and rare-disease research across the full journey.

#AES2025 #Epilepsy #RareDisease #CitizenHealth #PatientDriven
December 2, 2025 at 9:21 PM
citizen-health.bsky.social
Final day: join Citizen Health by 11:59 PM and be entered into the $5,000 Caregiver Recharge Giveaway.

👉 Join here: www.citizen.health/unlock

#ShareForRare #RareDiseaseCommunity #CaregiverSupport #Neurodevelopmental #Neuromuscular #AccelerateCures
November 30, 2025 at 8:40 PM
citizen-health.bsky.social
Join Citizen Health by Nov 30 + be entered into the $5,000 giveaway. Centralize your medical records + get clearer answers in seconds. 👉 [www.citizen.health/unlock]

#ShareForRare #TheGreatUnlock #RareDisease #RareCommunity #AccelerateCures #Neurodev #Neuromuscular #BlackFriday
November 28, 2025 at 6:12 PM
citizen-health.bsky.social
Grateful for the families + caregivers at the heart of this work: for the love, the unpredictability, and the honesty you bring. 💛🦃💜
#NationalFamilyCaregiversMonth #Gratitude #RareDisease #Thanksgiving
November 26, 2025 at 3:51 PM
citizen-health.bsky.social
TODAY, 7pm ET / 4pm PT:
Learn how families use AI Advocate for reports, IEP prep & provider notes. Sign up: ciitizen.zoom.us/webinar/regi...

#RareDisease #RareParents #Caregiver #Genetics101 #IEP #SchoolSupport #PatientEmpowerment #HealthLiteracy #AIforGood #AccelerateCures
November 19, 2025 at 4:32 PM
citizen-health.bsky.social
Heading to #NSGC25 in Seattle? Visit Booth 523 to meet Geo + Todd from Citizen Health + learn about our new #GeneticCounselor Ambassador Program 💜

#RareDisease #AccelerateCures
November 5, 2025 at 7:26 PM
citizen-health.bsky.social
Penelope is using Citizen Health's AI Advocate to generate IEP goals, summarize a hospital stay for a new PCP, and pull lists of past medications they’ve tried. It makes caring for her son with #OCNDS easier.

“You’ve Got to Check It Out!”

#CSNK2A1 #TheGreatUnlock #RareDisease #AccelerateCures
October 31, 2025 at 9:58 PM
citizen-health.bsky.social
OMG this makes parenting so much easier! 💜🦊 -Nicole, #raredisease mom. Answers. Organization. Peace of mind.

👉 Try it yourself at www.citizen.health/unlock

#ShareForRare #Caregivers #AccelerateCures #Neurodev #specialneeds #FOXG1 #ParentingWins
October 23, 2025 at 2:40 PM
citizen-health.bsky.social
HIPAA. State laws. AI. Trust. Deven McGraw, Tina Grande (Healthcare Trust Institute), Lucia Savage (Omada Health), and Robin Strongin (Health Dame) break down what protecting health data looks like + how AI is redefining control and consent: healthdame.com/shaping-the-... @healthprivacy.bsky.social
October 17, 2025 at 11:16 PM
citizen-health.bsky.social
Families power research! New #SYNGAP1 surgical study shows how your medical journeys can drive discovery 🧬💙 @curesyngap1.bsky.social #DEE #Epilepsy #Neurodevelopment #Seizures #RareDisease #AccelerateCures www.sciencedirect.com/science/arti...
September 30, 2025 at 10:20 PM
citizen-health.bsky.social
For #Leukodystrophy Awareness Month: Grateful for #AicardiGoutieresSyndrome families who show what love in action looks like 💙 No one has to make this journey alone #AGS #Rare #AGSAA
September 26, 2025 at 4:38 PM
citizen-health.bsky.social
#InteropChat Ep 2 🎥 @healthprivacy.bsky.social + experts on CMS’s new framework, 2026 deadlines & ending “portalitis.” Watch: youtu.be/yf4Ou0uVgw8?...

#Interoperability #PatientAccess #DataPrivacy #CMS
September 8, 2025 at 9:02 PM
citizen-health.bsky.social
We've secured $30M in funding from 8VC, Transformation Capital, & Headline to use AI to transform consumer healthcare, starting in rare disease. www.citizen.health/citizen-heal...

📊 Centralized records 🧠 Personalized AI Advocate 🔬 Research participation

Build with us: www.citizen.health/careers
August 14, 2025 at 3:44 PM