Cinnamon Rolling Along
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne
#CovidisNotOver #CovidisAirborne
Mind you, that would just give an excuse to make successfully claiming even more difficult.
March 28, 2025 at 10:04 AM
Mind you, that would just give an excuse to make successfully claiming even more difficult.
I assume the descriptors were set many years ago.
They really aren’t great even before anyone starts setting arbitrary cut offs.
The whole assessment process needs a big shakeup.
They really aren’t great even before anyone starts setting arbitrary cut offs.
The whole assessment process needs a big shakeup.
March 28, 2025 at 10:03 AM
I assume the descriptors were set many years ago.
They really aren’t great even before anyone starts setting arbitrary cut offs.
The whole assessment process needs a big shakeup.
They really aren’t great even before anyone starts setting arbitrary cut offs.
The whole assessment process needs a big shakeup.
The 4 point PIP cut off is so arbitrary.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
March 28, 2025 at 8:02 AM
The 4 point PIP cut off is so arbitrary.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
I struggle with the same.
January 27, 2025 at 4:46 PM
I struggle with the same.
Well done. I had 3 letters correct in row 2 but still failed today.
January 9, 2025 at 12:14 PM
Well done. I had 3 letters correct in row 2 but still failed today.
That wouldn’t be surprising would it? In this case, no it wasn’t him.
January 7, 2025 at 5:39 PM
That wouldn’t be surprising would it? In this case, no it wasn’t him.
Lizzy you have a lot on your plate. Please don’t let this be pressure to do more. I wouldn’t have suggested your name if I realised it has to be an account mainly about the poetry etc.
December 21, 2024 at 8:15 PM
Lizzy you have a lot on your plate. Please don’t let this be pressure to do more. I wouldn’t have suggested your name if I realised it has to be an account mainly about the poetry etc.