Cinnamon Rolling Along
cinnamonrollalong.bsky.social
Cinnamon Rolling Along
@cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne
The 4 point PIP cut off is so arbitrary.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
March 28, 2025 at 8:02 AM
November 26, 2024 at 1:30 PM
Thank you. Can I only do this with my own post? This is the one I would like to pin because it has lots of helpful info for people new to BlueSky. There isn’t a pin option.
November 13, 2024 at 9:22 AM