catrionaltaylor.bsky.social
@catrionaltaylor.bsky.social
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Thinking about returning to cleft treatment?

Join us for an informal evening on the topic of 'Returning to treatment' for adults born with a cleft lip and/or palate.

📆 Tuesday 23rd September, 7.30pm (Zoom)
🎫 Book your place: buff.ly/vM6RNE6
August 3, 2025 at 11:03 AM
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🫧🧸It only seems right on #NationalDayofPlay that we announce our popular event, Babble Play Skills, is back on Tuesday, 16th September.

🔗 Book your free place: buff.ly/OJTOk5y
August 6, 2025 at 2:03 PM
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Answered yes?✅

Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.

They are currently recruiting young adults to attend one of their research clinics.

🔗 To find out more: buff.ly/C2qDBiV
July 26, 2025 at 11:03 AM
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Cleft@18-23 study team with the Salisbury Cleft team at our first research clinic today!
June 11, 2025 at 4:57 PM
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Great to have @clapacommunity.bsky.social support with our study. 🙂
Earlier this month, our Chief Executive, Claire Cunniffe, and CLAPA staff and volunteers attended the Craniofacial Society of Great Britain and Ireland Conference.

They shared updates about CLAPA’s services, policy and campaigning work and plans for the future. #CFSGBI2025
May 13, 2025 at 3:40 PM
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We've been to the Craniofacial society meeting this week. We enjoyed presenting and talking to people about experience of living with cleft lip and palate. The Cleft@18-23 study was presented. If you are aged 18-23 and born with a cleft lip and/or palate you too can take part and share your voice
May 6, 2025 at 1:05 PM
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Are you aged 18+ born with a cleft lip and palate or cleft palate only?

Researchers at the University of Newcastle are seeking 10 adults to take part in a new research project entitled ‘Understanding Language Outcomes in Cleft’.

🔗 Find out more: buff.ly/OdkAzko
May 17, 2025 at 11:03 AM
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#MentalHealthAwarenessWeek this year takes place from 12th - 18th May 2025.💙

CLAPA offers a number of free services to support your mental health and well-being such as counselling, Peer Support and Cleft++ Mentoring: buff.ly/3XzQxCb
May 13, 2025 at 11:03 AM
The Welsh Centre for Cleft Lip and Palate ‘Wearing Blue’ for #CLAPA
May 9, 2025 at 12:39 PM
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Great to be in Newcastle for the annual Craniofacial Society of Great Britain and Ireland Conference #cfsgbi2025😀
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social
May 1, 2025 at 1:11 PM
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A brilliant presentation from Sonya Gholami on her research using Cleft Collective data:
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
May 1, 2025 at 1:42 PM
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We are enjoying another day in Newcastle at the #CFSGBI2025 conference 🤩 with a poster from our Research Coordinator, Amy Davies, 'Making sense of speech intelligibility outcome data: Findings from the Cleft Collective'.
@yvonnewren.bsky.social
May 2, 2025 at 11:14 AM
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An informative talk from Professor Evie Stergiakouli on behalf of Professor Sarah Lewis: 'Findings from genome wide association analyses in the Cleft Collective'. #CFSGBI2025
May 2, 2025 at 12:47 PM
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Professor Evie Stergiakouli also presented her own work on 'Copy Number Variants Linked to Neurodevelopmental Disorders and their Implications for Cleft Lip and/or Palate' #CFSGBI2025
May 2, 2025 at 2:22 PM
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🎉May 3th-11th is Cleft Lip and Palate Awareness Week!🎉

Join CLAPA in busting myths, sharing stories and raising awareness to help make the world a kinder place for people affected by cleft.

🔗 Visit the Awareness Week Hub: buff.ly/EprzVWH

#CleftAware
May 3, 2025 at 8:01 AM
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Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.

Sign up today by clicking the link in bio!
#cleft #cleftresearch #cleftcare #cleftlipandpalate #cleftstrong #cleftcommunity #cleftproud #cleftlip #cleftpalate #bornwithcleft
March 28, 2025 at 11:24 PM
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If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.

Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.

We are now recruiting study participants in Oxford and surrounding areas!

#cleft #cleftresearch
April 11, 2025 at 5:37 PM
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We are now recruiting study participants in Salisbury and surrounding areas!

If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.

Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
April 16, 2025 at 5:06 PM
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Our first Live Q&A of 2025 will be looking at The Treatment Pathway for ages 18-25.

Pre-submit your questions now to be answered by our panel of experts live on the evening.

🎟️ Submit your questions: buff.ly/mLMWBF3
📆 Facebook Live, Monday 19th May
April 28, 2025 at 11:03 AM
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“This year, as well as lived experience presentations, all of the sessions will have someone with a direct involvement of the lived experience – as a service user or parent/carer - talking about their life challenges and successes.

📰 Read the full story: buff.ly/S9DCumz
Society president talks to CLAPA ahead of ground-breaking conference
Cleft Lip and Palate Association UK
buff.ly
April 30, 2025 at 3:39 PM
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We spoke to the society’s president, and this year’s conference chair, consultant orthodontist Rye Mattick, ahead of the event.

She said: “Usually, there’s a presentation at conference on a life journey with cleft, which always causes quite a stir in the audience. [2/3]
April 30, 2025 at 3:39 PM
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NHS Cleft teams and specialists from around the UK are in Newcastle today for the start the #CFGBI Conference.

The conference will have a very different feel this year – with more than 30 people with lived experience of cleft involved in the programme. [1/3]
April 30, 2025 at 3:39 PM
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Save the date for Cleft Lip and Palate Awareness Week 2025!

📆 Saturday 3rd to Sunday 11th May 2025

We’ll be raising awareness for cleft lip and palate, sharing resources, and busting myths. We’ll also be asking you to pledge your support for CLAPA.

🔗 buff.ly/vt6iBGR
March 11, 2025 at 4:39 PM
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March 6, 2025 at 3:28 PM