Cleft Collective
@cleftcollective.bsky.social
The Cleft Collective is one of the largest cleft lip and palate research programmes. Based at the University of Bristol.
Pinned
Leading the way in cleft research for better lives and futures
YouTube video by University of Bristol
www.youtube.com
Together we can investigate the causes of cleft, best treatments of cleft and better understand what it's like to be an adult living with a cleft.
Watch our 4 minute film to find out more about this valuable research:
🎥 www.youtube.com/watch?v=imyJ...
Watch our 4 minute film to find out more about this valuable research:
🎥 www.youtube.com/watch?v=imyJ...
🎉Our Autumn newsletter is here!🎉
Click the link to read our latest research findings and more:
www.bristol.ac.uk/dental/cleft...
Click the link to read our latest research findings and more:
www.bristol.ac.uk/dental/cleft...
November 7, 2025 at 9:37 AM
🎉Our Autumn newsletter is here!🎉
Click the link to read our latest research findings and more:
www.bristol.ac.uk/dental/cleft...
Click the link to read our latest research findings and more:
www.bristol.ac.uk/dental/cleft...
All week we have been in Kyoto at the International Congress on Cleft Lip/Palate #cleftcongress2025 and it’s been inspiring to see all the presentations and posters from everyone representing @cleftcollective.bsky.social and @bristoluni.bsky.social Dental School.
@yvonnewren.bsky.social
@yvonnewren.bsky.social
October 23, 2025 at 11:09 AM
All week we have been in Kyoto at the International Congress on Cleft Lip/Palate #cleftcongress2025 and it’s been inspiring to see all the presentations and posters from everyone representing @cleftcollective.bsky.social and @bristoluni.bsky.social Dental School.
@yvonnewren.bsky.social
@yvonnewren.bsky.social
Latest research using Cleft Collective data looking at psychological well-being in caregivers of young children with cleft lip and/or palate. More info here: academic.oup.com/jpepsy/advan...
#cleftlip #cleftpalate #cleftawareness
#cleftlip #cleftpalate #cleftawareness
Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate
AbstractObjective. Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip a
academic.oup.com
September 17, 2025 at 2:22 PM
Latest research using Cleft Collective data looking at psychological well-being in caregivers of young children with cleft lip and/or palate. More info here: academic.oup.com/jpepsy/advan...
#cleftlip #cleftpalate #cleftawareness
#cleftlip #cleftpalate #cleftawareness
⭐️New research alert⭐️
We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-...
#cleftlip #cleftpalate #cleftawareness
We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-...
#cleftlip #cleftpalate #cleftawareness
Copy number variants and their implications for developmental and behavioural problems in cleft lip and/or palate
Abstract. Cleft lip and/or palate (CL/P) is the most common craniofacial congenital anomaly and has been associated with higher risk of neurodevelopmental
academic.oup.com
September 4, 2025 at 1:48 PM
⭐️New research alert⭐️
We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-...
#cleftlip #cleftpalate #cleftawareness
We examined genetic information from children in the Cleft Collective study to look for specific rare genetic changes called copy number variants or CNVs. Read more: academic.oup.com/hmg/advance-...
#cleftlip #cleftpalate #cleftawareness
Reposted by Cleft Collective
Answered yes?✅
Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.
They are currently recruiting young adults to attend one of their research clinics.
🔗 To find out more: buff.ly/C2qDBiV
Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.
They are currently recruiting young adults to attend one of their research clinics.
🔗 To find out more: buff.ly/C2qDBiV
July 26, 2025 at 11:03 AM
Answered yes?✅
Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.
They are currently recruiting young adults to attend one of their research clinics.
🔗 To find out more: buff.ly/C2qDBiV
Cleft@18-23 is a research programme investigating outcomes at the end of routine care for young adults born with a cleft.
They are currently recruiting young adults to attend one of their research clinics.
🔗 To find out more: buff.ly/C2qDBiV
💥 New research using Cleft Collective data💥
How cleft-related speech errors affect children's communication.
✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social
Read more: pubmed.ncbi.nlm.nih.gov/40408135/
#CleftPalate #SpeechTherapy #ChildDevelopment
How cleft-related speech errors affect children's communication.
✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social
Read more: pubmed.ncbi.nlm.nih.gov/40408135/
#CleftPalate #SpeechTherapy #ChildDevelopment
Relationship Between Intelligibility in Context Scale and Cleft-Related Speech Sound Errors in 3-Year-Olds With Nonsyndromic Cleft (Lip and) Palate - PubMed
The presence of anterior oral errors and passive errors reduced speech intelligibility across different communication partners. Non-oral errors did not show as strong an impact, although specific subt...
pubmed.ncbi.nlm.nih.gov
July 17, 2025 at 10:42 AM
💥 New research using Cleft Collective data💥
How cleft-related speech errors affect children's communication.
✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social
Read more: pubmed.ncbi.nlm.nih.gov/40408135/
#CleftPalate #SpeechTherapy #ChildDevelopment
How cleft-related speech errors affect children's communication.
✴️ Findings show the need for targeted, individualized speech therapy. @yvonnewren.bsky.social
Read more: pubmed.ncbi.nlm.nih.gov/40408135/
#CleftPalate #SpeechTherapy #ChildDevelopment
Reposted by Cleft Collective
@yvonnewren.bsky.social presents work work on #SpeechIntelligibility from @cleftcollective.bsky.social at @icpla2025.bsky.social
@bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies
@bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies
June 25, 2025 at 7:47 AM
@yvonnewren.bsky.social presents work work on #SpeechIntelligibility from @cleftcollective.bsky.social at @icpla2025.bsky.social
@bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies
@bristoluni.bsky.social @bristol-sltru.bsky.social @sharynnemcleod.bsky.social Amy Davies
Professor Evie Stergiakouli also presented her own work on 'Copy Number Variants Linked to Neurodevelopmental Disorders and their Implications for Cleft Lip and/or Palate' #CFSGBI2025
May 2, 2025 at 2:22 PM
Professor Evie Stergiakouli also presented her own work on 'Copy Number Variants Linked to Neurodevelopmental Disorders and their Implications for Cleft Lip and/or Palate' #CFSGBI2025
An informative talk from Professor Evie Stergiakouli on behalf of Professor Sarah Lewis: 'Findings from genome wide association analyses in the Cleft Collective'. #CFSGBI2025
May 2, 2025 at 12:47 PM
An informative talk from Professor Evie Stergiakouli on behalf of Professor Sarah Lewis: 'Findings from genome wide association analyses in the Cleft Collective'. #CFSGBI2025
We are enjoying another day in Newcastle at the #CFSGBI2025 conference 🤩 with a poster from our Research Coordinator, Amy Davies, 'Making sense of speech intelligibility outcome data: Findings from the Cleft Collective'.
@yvonnewren.bsky.social
@yvonnewren.bsky.social
May 2, 2025 at 11:14 AM
We are enjoying another day in Newcastle at the #CFSGBI2025 conference 🤩 with a poster from our Research Coordinator, Amy Davies, 'Making sense of speech intelligibility outcome data: Findings from the Cleft Collective'.
@yvonnewren.bsky.social
@yvonnewren.bsky.social
A brilliant presentation from Sonya Gholami on her research using Cleft Collective data:
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
May 1, 2025 at 1:42 PM
A brilliant presentation from Sonya Gholami on her research using Cleft Collective data:
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
'Effect of Tensor Aponeurosis Management on Eustachian Tube Function' at #cfsgbi2025
Great to be in Newcastle for the annual Craniofacial Society of Great Britain and Ireland Conference #cfsgbi2025😀
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social
May 1, 2025 at 1:11 PM
Great to be in Newcastle for the annual Craniofacial Society of Great Britain and Ireland Conference #cfsgbi2025😀
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social
A fantastic talk from @stephvanee-slt.bsky.social 'Exploring sleep and language outcomes in children with cleft lip/palate using Cleft Collective data'.
@yvonnewren.bsky.social
Reposted by Cleft Collective
We are now recruiting study participants in Salisbury and surrounding areas!
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
April 16, 2025 at 5:06 PM
We are now recruiting study participants in Salisbury and surrounding areas!
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Register your interest here: www.bristol.ac.uk/cleft18-23-get-involved and help us shape the future of cleft care in the UK.
Reposted by Cleft Collective
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.
We are now recruiting study participants in Oxford and surrounding areas!
#cleft #cleftresearch
Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.
We are now recruiting study participants in Oxford and surrounding areas!
#cleft #cleftresearch
April 11, 2025 at 5:37 PM
If you are a young adult aged 18-23 years and were born with a cleft, we want to hear from you.
Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.
We are now recruiting study participants in Oxford and surrounding areas!
#cleft #cleftresearch
Head to the link in bio to register your interest and help us shape the future of cleft care in the UK.
We are now recruiting study participants in Oxford and surrounding areas!
#cleft #cleftresearch
HRH The Duchess of Edinburgh visited @bristoluni.bsky.social to learn more about world-leading research funded by Scar Free Foundation. HRH visited the Cleft Collective as one of the studies funded by Scar Free for over 10 years.
Read more: www.bristol.ac.uk/news/2025/ma...
Image credit: James Allan
Read more: www.bristol.ac.uk/news/2025/ma...
Image credit: James Allan
April 8, 2025 at 1:01 PM
HRH The Duchess of Edinburgh visited @bristoluni.bsky.social to learn more about world-leading research funded by Scar Free Foundation. HRH visited the Cleft Collective as one of the studies funded by Scar Free for over 10 years.
Read more: www.bristol.ac.uk/news/2025/ma...
Image credit: James Allan
Read more: www.bristol.ac.uk/news/2025/ma...
Image credit: James Allan
Reposted by Cleft Collective
Cleft@18-23 study is now recruiting participants across the UK! @cleft1823study.bsky.social
#cleft #cleft18-23 #cleftresearch #cleftlipandpalate
#cleft #cleft18-23 #cleftresearch #cleftlipandpalate
March 21, 2025 at 7:27 PM
Cleft@18-23 study is now recruiting participants across the UK! @cleft1823study.bsky.social
#cleft #cleft18-23 #cleftresearch #cleftlipandpalate
#cleft #cleft18-23 #cleftresearch #cleftlipandpalate
Reposted by Cleft Collective
If you’re aged between 18-23 and want to get involved with important cleft research, see below! 👇
Cleft@18-23 are looking to recruit participants to take part in our research study at the South West Clinic! Please scan the QR code for more info
February 26, 2025 at 9:33 AM
If you’re aged between 18-23 and want to get involved with important cleft research, see below! 👇
Our Winter newsletter is here!
Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...
Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...
February 25, 2025 at 2:13 PM
Our Winter newsletter is here!
Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...
Click the link to read what we've been up to: www.bristol.ac.uk/dental/cleft...
If you’re aged between 18-23 and have a cleft, this study is for you! More details coming soon…
January 31, 2025 at 8:44 AM
If you’re aged between 18-23 and have a cleft, this study is for you! More details coming soon…
10 Facts about The Cleft Collective. We are so proud of these numbers and we are so grateful to all of our participants for contributing so much to our research! Head to our website to find out how to access the data: www.bristol.ac.uk/dental/cleft...
December 17, 2024 at 11:17 AM
10 Facts about The Cleft Collective. We are so proud of these numbers and we are so grateful to all of our participants for contributing so much to our research! Head to our website to find out how to access the data: www.bristol.ac.uk/dental/cleft...
Latest research from cleftcollective.bsky.social concludes that children born with a cleft and two or more anomalies are more likely to have a syndrome than those with fewer anomalies and should be prioritised for assessment by Clinical Genetics services. www.mdpi.com/2077-0383/13...
Predicting Syndromic Status Based on Longitudinal Data from Parental Reports of the Presence of Additional Structural and Functional Anomalies in Children Born with an Orofacial Cleft
Background: Orofacial clefts are the most common craniofacial congenital malformation in humans. Approximately 30% of clefts arise as part of a syndrome or sequence, characterised by co-existing struc...
www.mdpi.com
December 4, 2024 at 10:49 AM
Latest research from cleftcollective.bsky.social concludes that children born with a cleft and two or more anomalies are more likely to have a syndrome than those with fewer anomalies and should be prioritised for assessment by Clinical Genetics services. www.mdpi.com/2077-0383/13...
Reposted by Cleft Collective
Interested in a PhD looking at identifying early indicators of persistent speech sound disorder in children born with cleft? Check this link for a funded PhD opportunity working with the Cleft Collective www.findaphd.com/phds/project...
Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol on FindAPhD.com
PhD Project - Reducing inequality through early identification of risk of persistent speech disorder in children born with cleft palate at University of Bristol, listed on FindAPhD.com
www.findaphd.com
December 1, 2024 at 9:49 AM
Interested in a PhD looking at identifying early indicators of persistent speech sound disorder in children born with cleft? Check this link for a funded PhD opportunity working with the Cleft Collective www.findaphd.com/phds/project...
Reposted by Cleft Collective
Finding out that your baby will be born with a cleft can be overwhelming.
CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: https://buff.ly/4bnJem0
CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: https://buff.ly/4bnJem0
November 27, 2024 at 4:39 PM
Finding out that your baby will be born with a cleft can be overwhelming.
CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: https://buff.ly/4bnJem0
CLAPA's free Counselling Service can help you to make sense of your feelings and work with you to help you feel better about what the future will bring: https://buff.ly/4bnJem0
Reposted by Cleft Collective
Funded PhD opportunity with @cleftcollective.bsky.social at University of Bristol and @stephvanee-slt.bsky.social. Great opportunity to work that has impact for health providers and those affected by cleft lip/palate. More info at
www.findaphd.com/phds/project...
www.findaphd.com/phds/project...
Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol on FindAPhD.com
PhD Project - Timing and technique of primary surgery for children born with cleft lip and/or palate and associations with childhood outcomes at University of Bristol, listed on FindAPhD.com
www.findaphd.com
November 15, 2024 at 5:19 PM
Funded PhD opportunity with @cleftcollective.bsky.social at University of Bristol and @stephvanee-slt.bsky.social. Great opportunity to work that has impact for health providers and those affected by cleft lip/palate. More info at
www.findaphd.com/phds/project...
www.findaphd.com/phds/project...