📍Brussels was the meeting point today for our Heritable Thoracic Aortic Diseases (HTAD) WG #spring meeting!

Across case discussions, #research, POMs & #care pathways, experts + patient representatives joined forces to keep pushing HTAD care forward.

🙏Thank you to all who joined us.

Planning for #pregnancy with a vascular anomaly (VA)? You don’t have to navigate it alone.

Our new patient-friendly booklet covers everything from #contraception to delivery written for people living with a VA such as AVMs, PROS, venous malformations, and more.

📘 Download here ➡️ bit.ly/4jDwqwB

Living with vascular #EhlersDanlos syndrome? Join our webinar to get information on practical tools created by experts & patient representatives.

🗓️ 13 May, 17:00 CEST
👉 Register here: bit.ly/3RRmqDV

Live captions in English, French, Spanish, Italian, German, & Dutch available.
#vEDS #RareDiseases

⏰ Our webinar on headache in #Moyamoya angiopathy is happening today!

Headache isn’t simple in Moyamoya. It could be an early warning sign or something we don't fully understand yet.

Join us live at 17:00 CEST to learn more. Bring your questions!
👉 bit.ly/43p4FTz

💜 It’s #RareDiseaseDay!

300 million people live with a rare disease. Today, we honour their strength, raise awareness, & advocate for better care.

🎙️ Hear our members share one word for Rare Disease Day➡️ youtu.be/iV-jgYSyOEQ

Which word speaks to you? Reply below! ⬇️