The Bottom Line IBD
@bottomlineibd.bsky.social
Promoting patient education in #IBD (Crohn's & UC). I help patients tell their stories. In the real world I'm Rachel, an IBD patient advocate. Also at ibdwomen.bsky.social. Based in 🇬🇧.
Pinned
🎧 Drug withdrawal in #IBD: a patient's perspective.
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
#19 Rachel reflects on staying in Crohn's remission, four years after stopping infliximab
open.spotify.com
October 26, 2025 at 9:17 AM
🎧 Drug withdrawal in #IBD: a patient's perspective.
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
open.spotify.com/episode/3Tcf...
#crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
Let's talk about diet in #IBD!
Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon.
Hope you enjoy it!
open.spotify.com/episode/3Uwq...
Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon.
Hope you enjoy it!
open.spotify.com/episode/3Uwq...
#16 Learning the basics of diet in IBD - with dietitian Dearbhaile O'Hanlon
open.spotify.com
September 25, 2025 at 5:34 PM
Let's talk about diet in #IBD!
Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon.
Hope you enjoy it!
open.spotify.com/episode/3Uwq...
Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon.
Hope you enjoy it!
open.spotify.com/episode/3Uwq...
Bile acid diarrhoea / malabsorption can be a big problem for Crohn's patients who've had their terminal ileum removed.
Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM.
🎧 Listen here: pod.link/1798553243
Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM.
🎧 Listen here: pod.link/1798553243
pod.link
September 15, 2025 at 10:59 AM
Bile acid diarrhoea / malabsorption can be a big problem for Crohn's patients who've had their terminal ileum removed.
Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM.
🎧 Listen here: pod.link/1798553243
Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM.
🎧 Listen here: pod.link/1798553243
Really enjoyed recording this #IBD podcast episode on bile acid diarrhoea / malabsorption with Prof Julian Walters and Nigel.
I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐
#wrestlingtheoctopusibd
I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐
#wrestlingtheoctopusibd
Rachel & I have just finished recording an episode of Wrestling The Octopus - The #IBD Patient’s Podcast. Today’s guest was Prof.Julian Walters @jrfw51.bsky.social who gave us the lowdown on #bileaciddiarrhoea/malabsorption. I learnt so much, thank you. It will be available in 2 weeks time
August 29, 2025 at 7:57 PM
Really enjoyed recording this #IBD podcast episode on bile acid diarrhoea / malabsorption with Prof Julian Walters and Nigel.
I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐
#wrestlingtheoctopusibd
I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐
#wrestlingtheoctopusibd
Our #IBD patient podcast, Wrestling the Octopus, has just notched up its 1000th download!
To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman.
Lots of top tips! ⤵️
tinyurl.com/459d97vn
To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman.
Lots of top tips! ⤵️
tinyurl.com/459d97vn
#12 Mental Health and IBD with Clinical Psychologist, Dr Stacey Boardman
Wrestling the Octopus (IBD) · Episode
open.spotify.com
August 12, 2025 at 7:42 PM
Our #IBD patient podcast, Wrestling the Octopus, has just notched up its 1000th download!
To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman.
Lots of top tips! ⤵️
tinyurl.com/459d97vn
To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman.
Lots of top tips! ⤵️
tinyurl.com/459d97vn
Meet Rob, a UK lawyer now living in the US who developed Crohn’s disease 3 years ago.
Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD.
open.spotify.com/episode/69OY...
Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD.
open.spotify.com/episode/69OY...
#8 From Birkenhead to Philadelphia - an IBD Patient's Story
Wrestling the Octopus (IBD) · Episode
open.spotify.com
July 19, 2025 at 9:23 AM
Meet Rob, a UK lawyer now living in the US who developed Crohn’s disease 3 years ago.
Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD.
open.spotify.com/episode/69OY...
Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD.
open.spotify.com/episode/69OY...
* NEW IBD PATIENT PODCAST EPISODE *
Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️
Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen!
open.spotify.com/epi...
Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️
Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen!
open.spotify.com/epi...
#6 Part 2 - More IBD patients' questions answered by Dr Mark Samaan
Wrestling the Octopus (IBD) · Episode
open.spotify.com
June 17, 2025 at 11:00 AM
* NEW IBD PATIENT PODCAST EPISODE *
Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️
Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen!
open.spotify.com/epi...
Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️
Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen!
open.spotify.com/epi...
Episode 6 of our #IBD patient podcast, "Wrestling the Octopus" gets expert answers to some common questions on Crohn's disease and ulcerative colitis.
Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐
open.spotify.com/episode/6Adm...
Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐
open.spotify.com/episode/6Adm...
#6 Part 1 - IBD patients' questions answered by Dr Mark Samaan
Wrestling the Octopus (IBD) · Episode
open.spotify.com
June 12, 2025 at 10:31 PM
Episode 6 of our #IBD patient podcast, "Wrestling the Octopus" gets expert answers to some common questions on Crohn's disease and ulcerative colitis.
Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐
open.spotify.com/episode/6Adm...
Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐
open.spotify.com/episode/6Adm...
Coming soon... a consultant gastroenterologist answers some common questions on inflammatory bowel disease for our #IBD patient podcast, Wrestling the Octopus.
While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com
#crohnsdisease #ulcerativecolitis
While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com
#crohnsdisease #ulcerativecolitis
Wrestling the Octopus (IBD)
Two long-term IBD patients, Rachel and Nigel, share their experiences and perspectives on living with inflammatory bowel disease (Crohn's disease and ulcerative colitis).
wrestlingtheoctopusibd.buzzsprout.com
June 10, 2025 at 8:56 PM
Coming soon... a consultant gastroenterologist answers some common questions on inflammatory bowel disease for our #IBD patient podcast, Wrestling the Octopus.
While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com
#crohnsdisease #ulcerativecolitis
While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com
#crohnsdisease #ulcerativecolitis
* NEW IBD PODCAST EPISODE *
It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics!
Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables.
open.spotify.com/episode/3nV3...
It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics!
Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables.
open.spotify.com/episode/3nV3...
#4 World IBD Day special - Shooting the breeze on IBD
Wrestling the Octopus (IBD) · Episode
open.spotify.com
May 19, 2025 at 11:27 AM
* NEW IBD PODCAST EPISODE *
It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics!
Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables.
open.spotify.com/episode/3nV3...
It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics!
Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables.
open.spotify.com/episode/3nV3...
The highlight of May for me each year is the blooming of my favourite rose, Ebb Tide.
Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍
Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍
May 14, 2025 at 11:35 AM
The highlight of May for me each year is the blooming of my favourite rose, Ebb Tide.
Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍
Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍
Episode 2 of our #IBD patient podcast, Wrestling the Octopus is live!
What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections?
Listen here: open.spotify.com/epi...
#crohns #crohndisease #ulcerativecolitis
What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections?
Listen here: open.spotify.com/epi...
#crohns #crohndisease #ulcerativecolitis
#2 How Do You Like Your IBD Medication Served... Oral, IV or Injection?
Wrestling the Octopus (IBD) · Episode
open.spotify.com
March 20, 2025 at 4:59 PM
Episode 2 of our #IBD patient podcast, Wrestling the Octopus is live!
What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections?
Listen here: open.spotify.com/epi...
#crohns #crohndisease #ulcerativecolitis
What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections?
Listen here: open.spotify.com/epi...
#crohns #crohndisease #ulcerativecolitis
The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision.
#ibd #crohns #crohnsdisease
www.mdpi.com/2624-5647/7/...
#ibd #crohns #crohnsdisease
www.mdpi.com/2624-5647/7/...
The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision
Background/Objectives: Individuals with Crohn’s disease often experience challenges at work and are confronted with the decision of whether to disclose their health status in their workplace. This stu...
www.mdpi.com
March 12, 2025 at 9:17 AM
The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision.
#ibd #crohns #crohnsdisease
www.mdpi.com/2624-5647/7/...
#ibd #crohns #crohnsdisease
www.mdpi.com/2624-5647/7/...
We don't have all the answers when it comes to cracking the mysteries of #IBD, but we should never forget the privilege of modern medicine.
I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.
I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.
March 8, 2025 at 3:43 PM
We don't have all the answers when it comes to cracking the mysteries of #IBD, but we should never forget the privilege of modern medicine.
I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.
I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.
Reposted by The Bottom Line IBD
My compatriot and fellow Crohn’s patient suggested we should make a podcast about IBD, so we did. First episode is now up on Spotify - open.spotify.com/show/0GgADPx...
We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!
We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!
February 19, 2025 at 2:08 PM
My compatriot and fellow Crohn’s patient suggested we should make a podcast about IBD, so we did. First episode is now up on Spotify - open.spotify.com/show/0GgADPx...
We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!
We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!
Welcome to mine and @Crohnoid's new 8-episode #IBD patient podcast, "Wrestling the Octopus" (title pinched from Nigel's book of the same name!).
In this episode, we're debating the hot topic of starting and stopping IBD medication.
We hope you enjoy it! 🎧 🥂
open.spotify.com/episode/06rH...
In this episode, we're debating the hot topic of starting and stopping IBD medication.
We hope you enjoy it! 🎧 🥂
open.spotify.com/episode/06rH...
#1 To start or stop IBD medication? We debate this hot topic!
Wrestling the Octopus (IBD) · Episode
open.spotify.com
February 18, 2025 at 11:01 PM
Welcome to mine and @Crohnoid's new 8-episode #IBD patient podcast, "Wrestling the Octopus" (title pinched from Nigel's book of the same name!).
In this episode, we're debating the hot topic of starting and stopping IBD medication.
We hope you enjoy it! 🎧 🥂
open.spotify.com/episode/06rH...
In this episode, we're debating the hot topic of starting and stopping IBD medication.
We hope you enjoy it! 🎧 🥂
open.spotify.com/episode/06rH...
Seems like there's a disproportionately high number of sports people who end up with #IBD.
Possibly my imagination, but it certainly feels that way...
www.bbc.com/sport/articl...
Possibly my imagination, but it certainly feels that way...
www.bbc.com/sport/articl...
Jarl Magnus Riiber to retire aged 27 after Crohn's disease diagnosis
Jarl Magnus Riiber, the most successful Nordic combined athlete of all time, will retire at the end of the season aged 27 after being diagnosed with Crohn's disease.
www.bbc.com
February 3, 2025 at 10:25 PM
Seems like there's a disproportionately high number of sports people who end up with #IBD.
Possibly my imagination, but it certainly feels that way...
www.bbc.com/sport/articl...
Possibly my imagination, but it certainly feels that way...
www.bbc.com/sport/articl...
Offering #IBD patients a place of psychological safety in clinic is one of the most critical things their doctor can do. Preferably early on.
Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.
Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.
January 22, 2025 at 2:02 PM
Offering #IBD patients a place of psychological safety in clinic is one of the most critical things their doctor can do. Preferably early on.
Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.
Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.
Reposted by The Bottom Line IBD
new article from Nottingham BRC and @spmic-uon.bsky.social "Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception" In JCC! academic.oup.com/ecco-jcc/adv...
Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception
AbstractBackground & Objective. IBD fatigue aetiology is poorly understood. This study quantified body composition and physical function alongside prot
academic.oup.com
January 12, 2025 at 2:27 PM
new article from Nottingham BRC and @spmic-uon.bsky.social "Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception" In JCC! academic.oup.com/ecco-jcc/adv...
Happy New Year to you all! 🎉🥂
The terrible weather has given me a free pass to sit here with a glass of wine and a bag of prawn crackers! 🙃 New resolutions can kick in tomorrow... 😁
Hope you all have a great year ahead! 🧡
The terrible weather has given me a free pass to sit here with a glass of wine and a bag of prawn crackers! 🙃 New resolutions can kick in tomorrow... 😁
Hope you all have a great year ahead! 🧡
January 1, 2025 at 3:27 PM
Happy New Year to you all! 🎉🥂
The terrible weather has given me a free pass to sit here with a glass of wine and a bag of prawn crackers! 🙃 New resolutions can kick in tomorrow... 😁
Hope you all have a great year ahead! 🧡
The terrible weather has given me a free pass to sit here with a glass of wine and a bag of prawn crackers! 🙃 New resolutions can kick in tomorrow... 😁
Hope you all have a great year ahead! 🧡
Season's greetings, #IBD-ers, and also random non-IBD people who've probably followed me by accident! 😁🎄
Thanks for all your support this year.
Hope you have yourselves a great festive break! 🥂🧡
Thanks for all your support this year.
Hope you have yourselves a great festive break! 🥂🧡
December 22, 2024 at 7:10 PM
Season's greetings, #IBD-ers, and also random non-IBD people who've probably followed me by accident! 😁🎄
Thanks for all your support this year.
Hope you have yourselves a great festive break! 🥂🧡
Thanks for all your support this year.
Hope you have yourselves a great festive break! 🥂🧡
Reposted by The Bottom Line IBD
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
December 11, 2024 at 6:52 AM
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
#CrohnsAndColitisAwarenessWeek
Day 7
A few observations from me on 25 years living with #IBD:
🔸Hope is the most potent drug of all
🔸Time, outcome and experience will enrich your perspective
🔸Keep sight of life outside IBD
🔸Don't follow the herd. Pursue what matters to you
Day 7
A few observations from me on 25 years living with #IBD:
🔸Hope is the most potent drug of all
🔸Time, outcome and experience will enrich your perspective
🔸Keep sight of life outside IBD
🔸Don't follow the herd. Pursue what matters to you
December 7, 2024 at 4:29 PM
#CrohnsAndColitisAwarenessWeek
Day 7
A few observations from me on 25 years living with #IBD:
🔸Hope is the most potent drug of all
🔸Time, outcome and experience will enrich your perspective
🔸Keep sight of life outside IBD
🔸Don't follow the herd. Pursue what matters to you
Day 7
A few observations from me on 25 years living with #IBD:
🔸Hope is the most potent drug of all
🔸Time, outcome and experience will enrich your perspective
🔸Keep sight of life outside IBD
🔸Don't follow the herd. Pursue what matters to you
#CrohnsAndColitisAwarenessWeek
Day 6
We don't talk enough about the importance of soft skills when #IBD specialists are treating patients.
I truly believe these skills play the starring role when it comes to positive and durable outcomes for those of us with Crohn's or UC.
What's your view?
Day 6
We don't talk enough about the importance of soft skills when #IBD specialists are treating patients.
I truly believe these skills play the starring role when it comes to positive and durable outcomes for those of us with Crohn's or UC.
What's your view?
December 6, 2024 at 9:00 AM
#CrohnsAndColitisAwarenessWeek
Day 6
We don't talk enough about the importance of soft skills when #IBD specialists are treating patients.
I truly believe these skills play the starring role when it comes to positive and durable outcomes for those of us with Crohn's or UC.
What's your view?
Day 6
We don't talk enough about the importance of soft skills when #IBD specialists are treating patients.
I truly believe these skills play the starring role when it comes to positive and durable outcomes for those of us with Crohn's or UC.
What's your view?
#CrohnsandColitisAwarenessWeek
Day 5
#IBD patients - did you know that 30-40% of people with Crohn's and UC also have IBS?
So how are you supposed to know when it's your IBD kicking off and when it's #IBS?
One way: ask your IBD team for a calprotectin test. Levels are not ⬆️ in IBS.
Day 5
#IBD patients - did you know that 30-40% of people with Crohn's and UC also have IBS?
So how are you supposed to know when it's your IBD kicking off and when it's #IBS?
One way: ask your IBD team for a calprotectin test. Levels are not ⬆️ in IBS.
December 5, 2024 at 4:45 PM
#CrohnsandColitisAwarenessWeek
Day 5
#IBD patients - did you know that 30-40% of people with Crohn's and UC also have IBS?
So how are you supposed to know when it's your IBD kicking off and when it's #IBS?
One way: ask your IBD team for a calprotectin test. Levels are not ⬆️ in IBS.
Day 5
#IBD patients - did you know that 30-40% of people with Crohn's and UC also have IBS?
So how are you supposed to know when it's your IBD kicking off and when it's #IBS?
One way: ask your IBD team for a calprotectin test. Levels are not ⬆️ in IBS.