bexlogan.bsky.social
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bexlogan.bsky.social
bexlogan.bsky.social
@bexlogan.bsky.social
Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Pinned
Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated.
youtu.be/A2CEg2PaB6A?...
Two Lives, One Story
YouTube video by Hope4MEFibroNI
youtu.be
Reposted by bexlogan.bsky.social
Thanks very much to Jethren Barr for sharing his story in this in-depth article about how Myalgic Encephalomyelitis forced him to retire from his professional football career 👍

www.belfasttelegraph.co.uk/sport/footba...

Archive:
archive.is/wu7ZP

#MEcfs #MyalgicEncephalomyelitis #CFS #PwME
January 24, 2026 at 7:09 PM
Reposted by bexlogan.bsky.social
TW: Medical neglect, severe ME/CFS

An NHS hospital has withdrawn vital medication from a severe ME patient that enables her to tolerate food and fluids. She is now showing signs of dehydration following the removal of her IV fluids.

www.thecanary.co/uk/analysis/...
https://www.thecanary.co/uk/analysis/2026/01/22/severe-me-savannah/​​​​​​​​​​​​​​​​
January 23, 2026 at 12:37 PM
Reposted by bexlogan.bsky.social
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
Too ill to treat?
A former nurse shares her experiences campaigning for better care in Northern Ireland
www.thereforme.uk
January 22, 2026 at 2:49 PM
Reposted by bexlogan.bsky.social
🚨 One week left to contribute to ME research and fill in our 2025/26 Big Survey!

If you've got ME or ME-like symptoms as part of long Covid, we want to hear from you 🙏

🔗 Take part, and find out more: www.actionforme.org.uk/research-cam...

Thank you!
January 20, 2026 at 3:49 PM
Reposted by bexlogan.bsky.social
Our Digivan has started its journey!

First stop Department of Work and Pensions!

It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃

Full route in photo attached.
March 18, 2025 at 10:39 AM
Reposted by bexlogan.bsky.social
We were trending on Twitter/X earlier!

Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
March 18, 2025 at 11:46 PM
Please watch & share to raise awareness on the similarities between Long Covid & ME & how history has repeated itself in how we are treated.
youtu.be/A2CEg2PaB6A?...
Two Lives, One Story
YouTube video by Hope4MEFibroNI
youtu.be
January 22, 2026 at 3:09 PM
www.thereforme.uk/p/too-ill-to...
A bit about me & my journey living with Long Covid ME in Northern Ireland. @thereforme.bsky.social
Too ill to treat?
A former nurse shares her experiences campaigning for better care in Northern Ireland
www.thereforme.uk
January 22, 2026 at 2:49 PM