Bettje37
Bettje37
@bettje37.bsky.social
one of the #MillionsMissing, book lover, moderate/severe ME, favorite artists Amy Winehouse and J.S. Bach, not creative at all. Brain fog very bad, please excuse weird language now and then. #ME/CFS
Reposted by Bettje37
Two boys on the beach of Scheveningen
James Higson
1904
November 27, 2024 at 8:50 PM
Reposted by Bettje37
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.

youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 12:42 PM
Reposted by Bettje37
Drafts would be so helpful! I’m currently using a notepad and it’s less than ideal. I also really want official bookmarks. Thrilled for the pin workaround but it’s also causing a ton of notifications on my posts - so I miss people’s replies.
November 16, 2024 at 10:09 AM
Reposted by Bettje37
The point about drafts is an accessibility issue.

Many of us with disabilities can’t make posts in one go and need to save them and return, this is especially the case for long threads 🧵

@bsky.app @support.bsky.team
November 16, 2024 at 9:54 AM
Hi all
I'm a newbie on bluesky, how do I get on the chronic illness channel? Or do I stay on social and see everything from the chronic illness channel there? Help?!
January 19, 2024 at 12:43 PM