Beth #MillionsMissing
@bethmazur.bsky.social
#pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
Reposted by Beth #MillionsMissing
“1,374 Days: My Life With Long Covid”
This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.
Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵
This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.
Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵
Opinion | 1,374 Days: My Life With Long Covid
Chronic illness has a way of picking apart your mind and breaking your heart.
www.nytimes.com
December 14, 2023 at 6:08 PM
“1,374 Days: My Life With Long Covid”
This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.
Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵
This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.
Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵
Reposted by Beth #MillionsMissing
Are you a science writer? Are you familiar with ME/CFS? Are you looking to make extra holiday funds?
#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!
HMU: forms.gle/SmWo3ezaGkdp...
#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!
HMU: forms.gle/SmWo3ezaGkdp...
December 2, 2023 at 12:00 AM
Are you a science writer? Are you familiar with ME/CFS? Are you looking to make extra holiday funds?
#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!
HMU: forms.gle/SmWo3ezaGkdp...
#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!
HMU: forms.gle/SmWo3ezaGkdp...
Reposted by Beth #MillionsMissing
New from Latvia:
Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression
Only abstract currently available:
www.frontiersin.org/articles/10....
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression
Only abstract currently available:
www.frontiersin.org/articles/10....
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
November 28, 2023 at 4:33 PM
New from Latvia:
Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression
Only abstract currently available:
www.frontiersin.org/articles/10....
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression
Only abstract currently available:
www.frontiersin.org/articles/10....
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
Reposted by Beth #MillionsMissing
This Giving Tuesday, I hope you will consider #MEAction!
We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate
We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate
Donate - #MEAction Network
meaction.net
November 28, 2023 at 11:31 PM
This Giving Tuesday, I hope you will consider #MEAction!
We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate
We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate
Reposted by Beth #MillionsMissing
Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
October 5, 2023 at 8:49 PM
Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social
www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org/article/S002...
Reposted by Beth #MillionsMissing
Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
October 3, 2023 at 11:07 PM
Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...