Eindelijk een NTVG-artikel dat long covid biomedisch benadert en inzet op ondersteuning i.p.v. het oude CGT/GET-model. Er zitten nog wat haken en ogen aan, maar het is wel een stap in de goede richting. 👏

🔗 drive.google.com/file/d/1D1XU...

#LongCovid #pwme #PAIZ #millionsmissing

Happy animal day to my best buddy in the world Mr Grigor, who shines his light even on the darkest days, and is the best assistant ever!

#pwme #myalgicE #millionsmissing

"Dokters als Patiënten" in de Huisartsvandaag.nl.

Mocht je onze film nog niet hebben bekeken dan kan dat hier:

youtu.be/J0ywwLIfH_w?...

#pwme #myalgicE #millionsmissing

1) I'm really proud to share that one of the most prominent Dutch medical magazines for doctors, Medisch Contact, has published a short review of our film Doctors as Patients.

When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare

👆👆👆

🇩🇪🇩🇪🇩🇪 Deutsche Untertitel wurden jetzt hinzugefügt. 🇩🇪🇩🇪🇩🇪

German subtitles have now been added.

youtu.be/J0ywwLIfH_w?...

Danke Birte und Uma! ❤️😍❤️😍

#pwme

👆👆👆

🇫🇷🇫🇷 Les sous-titres en français sont maintenant disponibles. 🇫🇷🇫🇷

French subtitles have now been added.

🇪🇸🇪🇸🇪🇸🇪🇸 Now with Spanish subtitles! 🇪🇸🇪🇸🇪🇸🇪🇸

ME is a phenotype of #longCOVID. Long-COVID causes ME. Dr. Merel Hellemons and Jojanneke Kant during the Long-COVID Dag 2025

‼️Oproep: Beelden van mensen met zeer ernstige ME voor documentaire‼️

Voor een film "Doctors as Patients" waarin ik 4 artsen met een PAIZ interview, zoek ik mensen met zeer ernstige ME.

Lees hier de rest van het bericht:

m.facebook.com/story.php?st...

#pwme #myalgicE #millionsmissing

1) To my great surprise. CBT/GET promotor prof. Jos van der Meer is suddenly praising the work by cardiologist Linda van Campen & Frans Visser. Maybe he's finally learning something during his time as a member of the Dutch guidelines for "#MECFS"?

JEEJAR write in the comments:

"van de Meer writes

2025...let's hope it will bring us some effing scientific breakthrough. Wishing you all a happy less crappy New Year! 😊

Interesting take by Christian Puta on the red blood cell deformation and oxygen delivery.

www.wissenschaft.de/gesundheit-m...

It is however not exclusive to SARS-CoV-2 as we've also seen deformation in people with ME in the 1980-90.

me-pedia.org/wiki/Leslie_...

.

Austrian minister of Health Johannes Rauch joining the lemon challenge to raise awareness about ME and to stimulate biomedical research. How amazing is that!!

www.instagram.com/share/reel/B...

mecfs-research.org/lemonchallen...

#pwme #myalgicE #millionsmissing #lemonchallengeMEcfs

Grigor has had allergies for a while now. Changing food helps a bit but doesn't fix it completely. Mostly environmental. Sucks 4 him of course, but what surprises me the most are the long ass emails the vet sends to help us out instead of the one liners I get from my MDs. Imma bit jealous of my cat!

"Zo levendig en dynamisch als het eerste deel van het leven van Céline Corsius verliep, zo verstild was de laatste episode. Toch hield ze, zelfs toen haar toekomst mettertijd donkerder kleurde, altijd hoop. Op genezing, maar vooral op een alledaags leven."

drive.google.com/file/d/1tE7l...

#pwme

Endowed professor of CBT asks 7 critical questions and concludes with: 'Hans, I told you too. I read your article in CBT with dismay. What are you going to do about those patients who have been so let down with your blunt statements?o
x.com/Pascalgrootv...

During a symposium today about long-COVID in Amsterdam. Times are changing! 😊👍

twitter.com/AnilvanderZe...

#longCOVID #pwme #CBT

Rob Wüst about his research into post-exertional malaise in #LongCovid (and hopefully ME):

“It is still a little too early to reveal the contents of this, but we think we have big news."

drive.google.com/file/d/1cRzg...

#longCOVID #pwme #PEM

Get emotional reading this coming from NL:

“This study reveals that severe exercise induced myopathy, tissue infiltration with amyloid containing deposits and metabolic disturbances in skeletal muscles of #LongCovid are key characteristics of post-exertional malaise”

#longCOVID #pwme #PEM