Angioedema News
@angioedemanews.bsky.social
Your source for angioedema news, support, & real stories from the community. Let’s raise AE & HAE awareness together!🎗️
Stay up to date on promising experimental treatments and clinical trials for hereditary angioedema: https://bit.ly/43PupIn
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
December 24, 2025 at 12:31 AM
Stay up to date on promising experimental treatments and clinical trials for hereditary angioedema: https://bit.ly/43PupIn
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
December 23, 2025 at 7:47 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Learn More: https://bit.ly/4sc09lf
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
December 23, 2025 at 3:04 PM
Learn More: https://bit.ly/4sc09lf
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
For some of us, becoming a patient advocate was never optional — it was the only way to survive a system that didn’t see us, believe us, or protect us.
December 23, 2025 at 12:31 AM
Discover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
December 22, 2025 at 7:47 PM
Discover on-demand options for managing swelling attacks: https://bit.ly/4mCCnvR
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
#Angioedema #HAE #RareDisease #TreatmentOptions #HealthCare #AngioedemaNews #Bionews
December 22, 2025 at 3:04 PM
December 22, 2025 at 12:31 AM
Learn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
December 21, 2025 at 7:47 PM
Learn how to recognize and manage caregiver burnout—read more here: https://bit.ly/4dO76SU
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
#Angioedema #CaregiverSupport #AngioedemaNews #Bionews
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
December 21, 2025 at 12:31 AM
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Take a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
December 20, 2025 at 7:46 PM
Take a moment today to recognize your progress: https://bit.ly/4kUuC33
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
It’s easy to get caught up in “what ifs” about the future, but don’t forget to celebrate how far you’ve come.
#Angioedema #HAE #ChronicIllness #CaregiverLife #ProgressNotPerfection #RareDisease #AngioedemaNews #Bionews
Stay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
December 20, 2025 at 12:31 AM
Stay in the know—and never miss an update! https://bit.ly/3FHecMk
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Sign up for the weekly newsletter, because knowledge is power, and you’re not alone!
#Angioedema #HAE #PatientSupport #Newsletter #RareDisease #AngioedemaNews #Bionews
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
December 19, 2025 at 7:47 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Learning to listen to my body means knowing when to push—and when to pause.
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
December 19, 2025 at 3:03 PM
Learning to listen to my body means knowing when to push—and when to pause.
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
December 19, 2025 at 12:31 AM
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
Feeling overwhelmed, exhausted, or isolated with angioedema? http://bit.ly/4fbgSz2
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
December 18, 2025 at 7:47 PM
Feeling overwhelmed, exhausted, or isolated with angioedema? http://bit.ly/4fbgSz2
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
Read More: https://bit.ly/3KMSg4Z
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
December 18, 2025 at 3:03 PM
Read More: https://bit.ly/3KMSg4Z
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Just diagnosed with HAE? https://bit.ly/43QkiTJ
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
December 18, 2025 at 12:31 AM
Just diagnosed with HAE? https://bit.ly/43QkiTJ
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
December 17, 2025 at 7:47 PM
Take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
December 17, 2025 at 3:03 PM
Stay up to date: https://bit.ly/43PupIn
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
December 17, 2025 at 12:32 AM
Stay up to date: https://bit.ly/43PupIn
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
December 16, 2025 at 7:47 PM
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
The holidays can bring joy, connection… and a little extra stress.
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
December 16, 2025 at 3:02 PM
The holidays can bring joy, connection… and a little extra stress.
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
December 16, 2025 at 12:31 AM
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
December 15, 2025 at 7:47 PM
Learn More: https://bit.ly/4oXZ4KR
Learning that “being there” isn’t always about being in the room has changed everything.
Learning that “being there” isn’t always about being in the room has changed everything.
December 15, 2025 at 3:03 PM
Learn More: https://bit.ly/4oXZ4KR
Learning that “being there” isn’t always about being in the room has changed everything.
Learning that “being there” isn’t always about being in the room has changed everything.