Angioedema News
@angioedemanews.bsky.social
Your source for angioedema news, support, & real stories from the community. Let’s raise AE & HAE awareness together!🎗️
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
December 19, 2025 at 7:47 PM
Your mental health matters: https://bit.ly/4jEt387
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Self-care, mindfulness, support groups, and therapy can all help you cope 💙
#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews
Accepting ups and downs is part of the journey. How do you handle difficult days? #InvisibleIllness
December 19, 2025 at 7:46 PM
Accepting ups and downs is part of the journey. How do you handle difficult days? #InvisibleIllness
Explore how building community can transform the rare disease experience: https://bit.ly/4o28t4s
Community turns isolation into strength. See how connection is transforming the rare disease journey for many. #RareDisease
Community turns isolation into strength. See how connection is transforming the rare disease journey for many. #RareDisease
From isolation to community: The power of connection
In her journey with hereditary angioedema, columnist Hollie Amadio has discovered the power of connection with others who have the disease.
bit.ly
December 19, 2025 at 6:33 PM
Explore how building community can transform the rare disease experience: https://bit.ly/4o28t4s
Community turns isolation into strength. See how connection is transforming the rare disease journey for many. #RareDisease
Community turns isolation into strength. See how connection is transforming the rare disease journey for many. #RareDisease
Learning to listen to my body means knowing when to push—and when to pause.
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
December 19, 2025 at 3:03 PM
Learning to listen to my body means knowing when to push—and when to pause.
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Rest isn’t giving up; it’s part of the plan that keeps me stronger and helps me prevent flares. One step, one breath, one mindful moment at a time. Read more about HAE by clicking the link in our bio!
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
December 19, 2025 at 12:31 AM
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed
Feeling overwhelmed, exhausted, or isolated with angioedema? http://bit.ly/4fbgSz2
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
December 18, 2025 at 7:47 PM
Feeling overwhelmed, exhausted, or isolated with angioedema? http://bit.ly/4fbgSz2
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
Whether you’re looking for information, community, or support, we’re here every step of the way.
#Angioedema #AE #AngioedemaAwareness #RareDiseaseCommunity #YouAreNotAlone #AngioedemaNews #Bionews
There is beauty in your perseverance even when times are tough. 🌼 #RareDisease
December 18, 2025 at 7:46 PM
There is beauty in your perseverance even when times are tough. 🌼 #RareDisease
Understand the hurdles faced in accessing care and what can be done: https://bit.ly/43mLVTK
Insurance battles can be challenging and costly. Understand the system and empower yourself to navigate obstacles. #RareDisease
Insurance battles can be challenging and costly. Understand the system and empower yourself to navigate obstacles. #RareDisease
Absurd insurance battles are costly for those with rare conditions
Columnist Hollie Amadio notes the ways that profit-minded insurance battles can prove multifariously costly to those with rare conditions.
bit.ly
December 18, 2025 at 6:33 PM
Understand the hurdles faced in accessing care and what can be done: https://bit.ly/43mLVTK
Insurance battles can be challenging and costly. Understand the system and empower yourself to navigate obstacles. #RareDisease
Insurance battles can be challenging and costly. Understand the system and empower yourself to navigate obstacles. #RareDisease
Read More: https://bit.ly/3KMSg4Z
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
December 18, 2025 at 3:03 PM
Read More: https://bit.ly/3KMSg4Z
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Listening to your body during the holidays is an act of courage, not selfishness.
Saying no can be heartbreaking, but protecting your health in the face of stress, symptoms, and others’ expectations is how you make space for hope, joy, and resilience this season.
Resilience isn’t a destination; it’s the path we walk every day. #ChronicIllness
December 18, 2025 at 3:47 AM
Resilience isn’t a destination; it’s the path we walk every day. #ChronicIllness
Just diagnosed with HAE? https://bit.ly/43QkiTJ
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
December 18, 2025 at 12:31 AM
Just diagnosed with HAE? https://bit.ly/43QkiTJ
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Here’s what to do next, from building your care team to managing daily life.
#NewDiagnosis #HAESupport #CareTeam #PatientGuide #LivingWithHAE #AngioedemaNews #Bionews
Take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
December 17, 2025 at 7:47 PM
Take action after a hereditary angioedema diagnosis: https://bit.ly/3FD176u
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
#HAEJourney #PatientEmpowerment #RareDiseaseSupport #TakeAction #HealthResources #AngioedemaNews #Bionews
Leave a 🤷 in the comments if your brain and body are often out of sync. #DisabilityAwareness
December 17, 2025 at 7:46 PM
Leave a 🤷 in the comments if your brain and body are often out of sync. #DisabilityAwareness
Celebrate the compassion and strength it takes to care for a loved one: https://bit.ly/3L2nmVR
Great caregivers show strength every day. Celebrate the compassion and dedication that make all the difference. #Caregivers
Great caregivers show strength every day. Celebrate the compassion and dedication that make all the difference. #Caregivers
Celebrating the qualities of a good caregiver and father
For Father's Day, columnist Danita LaShelle Jones shares how her husband, Paul, demonstrates the qualities of a good caregiver and dad.
bit.ly
December 17, 2025 at 6:33 PM
Celebrate the compassion and strength it takes to care for a loved one: https://bit.ly/3L2nmVR
Great caregivers show strength every day. Celebrate the compassion and dedication that make all the difference. #Caregivers
Great caregivers show strength every day. Celebrate the compassion and dedication that make all the difference. #Caregivers
December 17, 2025 at 3:03 PM
Your efforts matter: even when results feel distant. ⏳ #ChronicIllnessWarrior
December 17, 2025 at 3:47 AM
Your efforts matter: even when results feel distant. ⏳ #ChronicIllnessWarrior
Stay up to date: https://bit.ly/43PupIn
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
December 17, 2025 at 12:32 AM
Stay up to date: https://bit.ly/43PupIn
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Learn about promising experimental treatments and clinical trials for hereditary angioedema
#ClinicalTrials #ExperimentalTherapies #HAEResearch #RareDiseaseResearch #FutureOfMedicine #AngioedemaNews #Bionews
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
December 16, 2025 at 7:47 PM
Discover Hollie's story: https://bit.ly/4lDaF0K
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients. 👊
#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness
Acceptance isn’t always possible, and that’s okay too. #InvisibleIllness
December 16, 2025 at 7:46 PM
Acceptance isn’t always possible, and that’s okay too. #InvisibleIllness
Discover important lessons from a patient’s first rescue treatment: https://bit.ly/4nYEo5R
First rescue med experience? Discover what to expect and lessons from those who have been there. #RescueTreatment
First rescue med experience? Discover what to expect and lessons from those who have been there. #RescueTreatment
What I learned from my first experience with rescue medication
When columnist Natalie Sirota embarked on a labor of love project, she knew she might need her rescue medication for the first time.
bit.ly
December 16, 2025 at 6:33 PM
Discover important lessons from a patient’s first rescue treatment: https://bit.ly/4nYEo5R
First rescue med experience? Discover what to expect and lessons from those who have been there. #RescueTreatment
First rescue med experience? Discover what to expect and lessons from those who have been there. #RescueTreatment
The holidays can bring joy, connection… and a little extra stress.
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
December 16, 2025 at 3:02 PM
The holidays can bring joy, connection… and a little extra stress.
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
For those of us living with HAE, finding balance and protecting our health is just as important as celebrating the season. How do you take care of yourself with HAE during the holidays?
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
December 16, 2025 at 12:31 AM
Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time.
#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews
December 15, 2025 at 7:47 PM