Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
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amcsupport.bsky.social
Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
@amcsupport.bsky.social
Advancing awareness and support for Arthrogryposis Multiplex Congenita (AMC). Connecting families, professionals, and advocates worldwide.

🔗 amcsupport.org
This Giving Tuesday, help AMC families feel supported, connected & never alone. Your gift to AMCSI provides scholarships, grants & resources that truly change lives.

Tell Your Story with AMCSI:
amcsupport.org/testimonials/
Ways To Give:
amcsupport.org/ways-to-give/

#AMCSI #GivingTuesday #AMCstrong
November 20, 2025 at 6:53 PM
📣 AMC Research

Seeking research and lived-experience insights across genetics, rehab, obstetrics, orthopedics, mental health, advocacy, adaptive equipment, and more.

Deadline: Feb 28, 2026
🔗 onlinelibrary.wiley.com/page/journal...
November 19, 2025 at 5:46 PM
Spread cheer this season by sending & receiving cards with AMC families worldwide. 🌍💙

🗓️ Sign up by Dec 1

🎄 Connect. Share. Celebrate.
👉 amcsupport.org/holiday-card-exchange

#AMCSI #HolidayCardExchange #AMCstrong #SpreadTheLove #HolidaySeason 💙
November 17, 2025 at 7:24 PM
💌✨ The AMCSI Holiday Card Exchange is back! ✨💌

Spread cheer this season by sending & receiving cards with AMC families worldwide. 🌍💙

🗓️ Sign up by Dec 1

🎄 Connect. Share. Celebrate.
👉 amcsupport.org/holiday-card-exchange

#AMCSI #HolidayCardExchange #AMCstrong #SpreadTheLove #HolidaySeason 💙
November 8, 2025 at 4:24 PM
💙 November is #NationalFamilyCaregiversMonth

Thank you for your strength, love & endless support. You are the heart of the AMC Community & so many others. 💙

Tag or share a photo of a caregiver who makes a difference every day!

#FamilyCaregivers #Arthrogryposis #AMCStrong #AMCFamily #AMCSI
November 3, 2025 at 7:32 PM
💙 The November AMCSI Newsletter is here! 💙


Catch up on AMC community news:
🌟 Alyson Virgel
🎁 AMC Holiday Fund
🚴 253 for AMC
🎶 Brandon in NYC
📅 2026–27 Conferences + more!

👉 Subscribe: amcsupport.org/join-our-newsletter

#AMCSI #AMCFamily #AMCStrong
November 3, 2025 at 3:51 PM
🎃 Show us your spooky, silly & creative Halloween looks!


📸 Email your costume pic to info@amcsupport.org by Nov. 7 for a shot at a FREE June 30th, 2026 T-shirt! 👕

Let’s see those boo-tiful costumes! 🧡🖤

#AMCSIhalloween #AdaptiveCostumes #AMCcommunity #Halloween #CostumeContest
October 31, 2025 at 2:40 PM
💙 Today we celebrate #WorldOTDay!

For the AMC community, occupational therapy empowers independence, creativity & confidence every day.

Thank you to all OT specialists for helping our AMC community thrive! 🌍🙌

#OccupationalTherapy #Arthrogryposis #AMCSI #AMCstrong
October 27, 2025 at 7:03 PM
We’re excited to welcome Partners In Medicine to the 21st Annual AMCSI Conference in Columbus, OH | July 1–4, 2026! 💙

👉 Learn more: partnersinmed.com
👉 Exhibit or attend: amcsupport.org/21st-annual-amcsi-conference

#AMCOH26 #AMCSI #ArthrogryposisAwareness #MobilityMatters #AMCstrong
October 22, 2025 at 7:24 PM
A huge thank you to all the riders of The Prairie – 253 For AMC! 🚴‍♂️💙

Mark took on 103 miles in one day to kick off this incredible fundraiser, a true journey of endurance & heart. Totally 367 miles by the end of the event!

Learn more: amcsupport.org/the-prairie/

#253ForAMC #ThePrairie253
October 15, 2025 at 3:55 PM
A huge thank-you from AMCSI! 💙

With 65 donors, our 253 For AMC riders exceeded their goal. Watch Marshall’s Day 3 video from the trails in Carrabassett Valley to hear his gratitude!

To learn more, visit: amcsupport.org/253foramc/

#253ForAMC #AMCSI #ArthrogryposisAwareness #RideForACause
October 15, 2025 at 3:13 PM
📚 Dive into the AMC Library!

Guides, stories & resources for families & friends learning about AMC.👉 amcsupport.org/amc-library/

💡 Wrote a book on Arthrogryposis? Share it with our community! 👉 amcsupport.org/amc-library

#AMCSI #AMCStrong #AMCSupport #AMC
October 5, 2025 at 2:08 PM
📢 Research opportunity! Shriners Hospital–Canada is developing a GMFC-AMC Family Version & needs input from:


✅ Parents/caregivers of kids (2–21) w/ AMC

✅ Adults w/ AMC (18+)


Remote mtgs, flexible. Email (ndahan@shrinenet.org) by Oct 17 to join!

#Arthrogryposis #AMCSupport #AMC #AMCstrong
October 3, 2025 at 5:53 PM
🍂 The October AMCSI Newsletter is out!


✨ Featured AMCer: Camille Mitchell

🎃 Halloween Costume Contest

🍁 Ohio Fall Meet-Up

🎁 Holiday Fund 2025

📅 2026 & 2027 Conference Dates

Subscribe 👉 amcsupport.org/join-our-new...

#AMCSI #AMC #AMCstrong
October 1, 2025 at 5:39 PM
Imagine hundreds of supporters giving $5 a month.

Together, we:

💙 Help families attend our annual conference

🏅 Fund adaptive sports and activities

🌍 Provide resources year-round

Join our Monthly Giving Circle
amcsupport.org/donate

#AMCSI #Arthrogryposis #SupportAMC #MonthlyGiving #AMCstrong
September 27, 2025 at 5:44 PM
🌟 Saturday Spotlight: It’s all about YOU! 🌈

Share your AMC story:
💙 Lift others up
💬 Connect with the global AMC community
🌍 Raise awareness

Get featured:
1️⃣ Submit your story & headshot (<10MB)
2️⃣ Add your website (if you have one)

✨ Shine on our AMCers page: amcsupport.org/amc-websites/
September 27, 2025 at 5:15 PM
💙 Our All About AMC: Learning Together packet helps kids, families & classmates understand Arthrogryposis in a simple, fun way, complete with illustrations & space to share your story. ✨

👉 amcsupport.org/all-about-am...

#Arthrogryposis #AMCSupport #AMCstrong
September 20, 2025 at 5:09 PM
RMZ Creations is joining our Exhibitor family at the 21st Annual AMCSI Conference in Columbus, OH | July 1–4, 2026 🎉

✨ Stop by their table to explore unique handmade crafts (and take some home!) 💙

🔗 Learn more: amcsupport.org/21st-annual-...

#AMCSIConference #Arthrogryposis #AMCSupport
September 17, 2025 at 5:20 PM
🌟 Advertise in the 21st Annual AMCSI Conference Program!

✅ Prime spots (inside/back cover – first come!)

✅ Seen by AMC families + 21.5K+ online audience

✅ Featured in program, socials & newsletter

⏰ Limited space—reserve now: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #AMCSIConference
September 14, 2025 at 5:42 PM
🌟 Showcase your work at the 21st Annual AMCSI Conference! 🌟

✅ Connect w/ 600 AMC families
✅ Social media, website & newsletter feature
✅ Prime exhibitor space + table & chairs
✅ Included in program

💙 Apply today: amcsupport.org/21st-annual-...

#AMCOH26#AMCAwareness #ExhibitorOpportunity
September 13, 2025 at 3:41 PM
🌟 Partner with AMCSI Sponsorship! 🌟

21st Annual Conference | July 1–4, 2026 | Columbus, OH

Perks:
✅21.5K+ social reach
✅Logo on site & emails
✅On-site table & recognition

👉 Apply: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #Inclusion #AccessibilityMatters
September 12, 2025 at 2:55 PM
🕊️ To every person impacted by 9/11, you are in our hearts. 🕊️

Today, we honor the lives lost, the survivors & the heroes who gave everything. 💙

As we reflect, may we also remember the day after, when people came together in unity, strength & compassion. 🕊️💙

#NeverForget #September11 #AMCstrong
September 11, 2025 at 4:17 PM
🐻💙 Happy #NationalTeddyBearDay! 💙🐻

If you made a bear at the Norfolk Teddy Bear Clinic, share a pic, we’d love to see it!

#AMCSI #TeddyBearLove #AMCstrong
September 10, 2025 at 1:16 AM
🚨 The September AMCSI Newsletter is here!

✨ Featured AMCer: Daniel E. Gonzalez

💙 Fundraisers: The Prairie 253 for AMC

🕊️ Tribute to Ward Foley

📬 Not subscribed yet? Don’t miss out!

👉 amcsupport.org/join-our-new...

#AMCStrong #BeeTheFirstToKnow 🐝💙 #AMCstrong
September 9, 2025 at 9:29 PM
🌍💙 Happy #WorldPTDay!

PTs play a vital role in the AMC community, helping build strength, mobility & independence.

We’re so thankful for our PT specialists—share a photo with your favorite PT today! 💪

#Arthrogryposis #AMCSupport
September 8, 2025 at 6:58 PM