Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
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Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI)
@amcsupport.bsky.social
37 followers 15 following 290 posts
Advancing awareness and support for Arthrogryposis Multiplex Congenita (AMC). Connecting families, professionals, and advocates worldwide.

🔗 amcsupport.org
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amcsupport.bsky.social
Fran Guardo is Director of Rehabilitation at the Paley Orthopedic & Spine Institute & a recognized leader in the rehabilitation of limb lengthening & the treatment of arthrogryposis.

Register:
amcsupport.org/21st-annual-...

#AMCOH26 #AMCSIConference #Arthrogryposis #PhysicalTherapy #AMCSupport
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Dr. Fran Guardo’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
January 21, 2026 at 5:07 PM
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💼 HR leaders: A Company Match program can double the impact of employee giving at no extra cost.

Matching donations to AMCSI supports families affected by Arthrogryposis Multiplex Congenita.

Learn more:
amcsupport.org/company-match/

#AMCSI #CompanyMatch #CorporateGiving #HRLeadership #AMCstrong
A blue-toned promotional graphic from AMCSI. At the top left is the AMCSI logo with the text “Arthrogryposis Multiplex Congenita Support, Inc.” Centered at the top, large white text reads, “Your Company Can Multiply Impact Without Increasing Cost.” Below, smaller text explains that a Company Match program allows organizations to turn employee generosity into increased support for families affected by Arthrogryposis Multiplex Congenita (AMC). In the center of the image, two Arthrgryposis hands reach toward each other from opposite sides, each holding a glowing puzzle piece. The puzzle pieces meet in the middle, symbolizing partnership and connection. At the bottom, bold white text reads, “Learn more about our Company Match program & start supporting AMC Families today!” Beneath this is the website link: https://amcsupport.org/company-match/. AMCSI’s social media handle and platform icons, Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT, appear in the lower left corner, and the hashtags “#AMCSI & #CompanyMatch” appear in the lower right corner.
January 20, 2026 at 9:14 PM
amcsupport.bsky.social
Today, we honor Dr. Martin Luther King Jr. and his commitment to justice, dignity, and equality.

At AMCSI, we reflect on his call to build communities rooted in compassion, understanding, and respect for every individual.

#AMCSI #AMCStrong #MLKDay #MartinLutherKingJr #Equity #Inclusion
A blue gradient graphic honoring Martin Luther King Jr. Day. At the top left is the AMCSI logo with the text “Arthrogryposis Multiplex Congenita Support, Inc.” Large metallic-style letters in the center spell “MLK,” with “Martin Luther King Jr Day” written below in white. Beneath that, the phrase “I have a dream” appears in blue handwritten script. Near the bottom are two large stylized footprints in a darker blue tone. At the bottom left are the Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT & on the right, the hashtags #AMCSI & #MLK in white.
January 19, 2026 at 5:04 PM
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A pediatric orthopedic surgeon at the Paley Institute, Dr. David Feldman, brings 25+ years of experience treating arthrogryposis, scoliosis, & complex limb & spinal conditions.

Register: amcsupport.org/21st-annual-...


#AMCOH26 #AMCSIConference #Arthrogryposis
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Dr. David Feldman’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
January 14, 2026 at 6:51 PM
amcsupport.bsky.social
This Thursday at 8 PM EST, see you there! 💙💙💙
amcsupport.bsky.social Arthrogryposis Multiplex Congenita Support, Inc. (AMCSI) @amcsupport.bsky.social · Dec 18
📣 Webinar: ABLE Accounts & Special Needs Trusts

🗓 Jan 15 | ⏰ 8–9 PM EST
🎙 Donald T. Brown, ChFC, ChSNC

Hosted by AMCSI

Learn how to protect benefits, understand eligibility, and fund for a lifetime of care.

🔗 Register: nationallife.zoom.us/meeting/regi...

#SpecialNeedsPlanning #ABLEAccounts
Background has a light-blue-to-transparent gradient on the left, with a photo of Don Brown behind it covering the right side. On the left-hand side, it says 'WEBINAR Thursday, January 15, 8:00 - 9:00 pm EST' & 'Understanding ABLE Accounts & Special Needs Trusts' & 'Featuring: Donald T. Brown, ChFC, ChSNC' in three separate sections. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtags #Webinar & #AbleAccounts& are in the bottom-right corner, all in white.
January 12, 2026 at 6:49 PM
amcsupport.bsky.social
✨ January AMCSI Newsletter ✨

💙 Featured AMCer Althea Holmes

🧑‍🤝‍🧑 Adult Zooms + new family resources

🎟️ Early Bird registration for the 21st Annual AMCSI Conference
📘 Learning about AMC, research, events, and community updates

Get the full newsletter each month:
💌 amcsupport.org/join-our-new...
It features the January 2026 AMCSI newsletter cover of a photo of Althea Holmes. The background is a light blue to blue gradient with a step & repeat that says, ‘JOIN OUR NEWSLETTER’ in blue, bold letters. At the bottom left are the Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT & on the right, the hashtags #AMCSI & #JoinOurNewsletter in white.
January 10, 2026 at 7:05 PM
amcsupport.bsky.social
Becoming an AMCSI Member helps fund global AMC resources, translated brochures, awareness tools & critical grants, including medical travel, scholarships, research, accessibility & conference support.

Join today: amcsupport.org/become-a-mem...

#AMCSI #Arthrogryposis #AMCAwareness
The AMCSI logo is in white in the upper right corner with a photo of AMCers, from the 20th Annual AMCSI Conference in Norfolk, VA, shot by Bob Wellmon, with a dark blue bar near the bottom, and it says ‘Become A Member’ with the website link https://amcsupport.org/become-a-member/ on top of it in white. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtag #BecomeAMember is in the bottom-right corner, all in white.
January 7, 2026 at 3:05 PM
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We’re excited to welcome Dr. Reid Nichols to the 21st Annual AMCSI Conference!💙

A pediatric orthopaedic surgeon at Nemours & Co-Director of the Arthrogryposis Clinic🎤

🔗 amcsupport.org/21st-annual-amcsi-conference


#AMCOH26 #AMCCommunity #Arthrogryposis #PediatricPT #AMCstrong
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Dr. Reid Nichols’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
January 5, 2026 at 5:52 PM
amcsupport.bsky.social
Becoming an AMCSI Member helps fund global AMC resources, translated brochures, awareness tools & critical grants, including medical travel, scholarships, research, accessibility & conference support.

Join today: amcsupport.org/become-a-mem...

#AMCSI #AMCCommunity #Arthrogryposis #AMCAwareness
The AMCSI logo is in white in the upper right corner with a photos of AMCers, from the 20th Annual AMCSI Conference in Norfolk, VA, shot by Bob Wellmon, with a dark blue bar near the bottom, and it says ‘Become A Member’ with the website link https://amcsupport.org/become-a-member/ on top of it in white. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtag #BecomeAMember is in the bottom-right corner, all in white. The AMCSI logo is in white in the upper right corner with a photos of AMCers, from the 20th Annual AMCSI Conference in Norfolk, VA, shot by Bob Wellmon, with a dark blue bar near the bottom, and it says ‘Become A Member’ with the website link https://amcsupport.org/become-a-member/ on top of it in white. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtag #BecomeAMember is in the bottom-right corner, all in white. The AMCSI logo is in white in the upper right corner with a photos of AMCers, from the 20th Annual AMCSI Conference in Norfolk, VA, shot by Bob Wellmon, with a dark blue bar near the bottom, and it says ‘Become A Member’ with the website link https://amcsupport.org/become-a-member/ on top of it in white. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtag #BecomeAMember is in the bottom-right corner, all in white.
January 3, 2026 at 4:19 PM
amcsupport.bsky.social
A message from Tracey ...

And to learn more about ways to give & support those with Arthrogryposis, please visit: amcsupport.org/ways-to-give/
December 31, 2025 at 11:39 PM
amcsupport.bsky.social
A message from Siera ...

And to learn more about ways to give & support those with Arthrogryposis, please visit: amcsupport.org/ways-to-give/
December 31, 2025 at 8:35 PM
amcsupport.bsky.social
A message from Rod ...

And to learn more about ways to give & support those with Arthrogryposis, please visit: amcsupport.org/ways-to-give/
December 31, 2025 at 4:58 PM
amcsupport.bsky.social
Grateful beyond words for our 345 donors this year.

Thank you for standing with the AMC community & making this work possible. 💙

Your support helps families affected by Arthrogryposis Multiplex Congenita find connection, resources & community.

Ways to give:
amcsupport.org/ways-to-give/

#AMCSI
Ways To Give - AMCSI: Supporting the Arthrogryposis Multiplex Congenita Community
Ways to Give There are so many meaningful ways to make a difference for the AMC community! 💙 Whether you choose to donate once, give monthly, or start your own fundraiser, every gift helps AMCSI conti...
amcsupport.org
December 30, 2025 at 5:30 PM
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We’re excited to welcome Dr. Maureen Donohoe to the 21st Annual AMCSI Conference!💙

A board-certified pediatric clinical specialist, sharing expertise in AMC, OI & clubfoot care. 🎤

🔗 amcsupport.org/21st-annual-amcsi-conference


#AMCOH26 #AMCCommunity #Arthrogryposis #PediatricPT #AMCstrong
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Dr. Maureen Donohoe’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
December 28, 2025 at 6:55 PM
amcsupport.bsky.social
🎄➡️💙 After Christmas, SALES are still happening at the AMCSI Store!

Stock up on AMC Awareness merch while sale items last. Every purchase supports awareness & community year-round.

🛍️ shop.amcsupport.org
📸 Tag @AMCsupport

#AMCAwareness #RockYourBlue #SupportAMC #AMCSI
In the top left corner is the AMCSI logo in white, & to the right of that, it says ‘Shop & Support’ in a neutral blue. The center has screenshots of the AMCSI Shop webpage, showing different products through three images, with the link ‘shop.amcsupport.org’ underneath, set over a blue-to-dark blue circular gradient. The Facebook, Instagram, BlueSky, TikTok, YouTube, and X logos, along with @AMCSUPPORT, are displayed at the bottom left. The hashtags #AMCSI, #Store, and #AMCSIshop are located at the bottom right in a neutral blue.
December 26, 2025 at 5:56 PM
amcsupport.bsky.social
We’re honored to have Philip F. Giampietro, MD, PhD! 🎤💙


A leader in medical genetics, focusing on congenital conditions, dysmorphology & the genetics of scoliosis.

Register: amcsupport.org/21st-annual-amcsi-conference


Speakers: amcsupport.org/professional-guest-speakers

#AMCOH26 #AMCstrong
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Philip F. Giampietro, MD, PhD’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
December 21, 2025 at 5:58 PM
amcsupport.bsky.social
📣 Webinar: ABLE Accounts & Special Needs Trusts

🗓 Jan 15 | ⏰ 8–9 PM EST
🎙 Donald T. Brown, ChFC, ChSNC

Hosted by AMCSI

Learn how to protect benefits, understand eligibility, and fund for a lifetime of care.

🔗 Register: nationallife.zoom.us/meeting/regi...

#SpecialNeedsPlanning #ABLEAccounts
Background has a light-blue-to-transparent gradient on the left, with a photo of Don Brown behind it covering the right side. On the left-hand side, it says 'WEBINAR Thursday, January 15, 8:00 - 9:00 pm EST' & 'Understanding ABLE Accounts & Special Needs Trusts' & 'Featuring: Donald T. Brown, ChFC, ChSNC' in three separate sections. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtags #Webinar & #AbleAccounts& are in the bottom-right corner, all in white.
December 18, 2025 at 5:22 PM
amcsupport.bsky.social
🎁✨ The 2025 AMC Holiday Fund is here! ✨🎁

Help bring joy & relief to AMC families this holiday season. 💙

🌟 Donate $200+ & receive a free June 30th T-shirt!
💝 Give today: givebutter.com/AMC-Holiday-...

Every dollar goes directly to families in need.

#AMCHolidayFund #AMCSupport #AMCStrong
AMC Holiday Fund 2025
Support the AMC Holiday Fund 2025! Your donation helps AMC families facing medical expenses enjoy the holidays with joy and relief. Give today and make the season brighter for families nationwide.
givebutter.com
December 16, 2025 at 6:31 PM
amcsupport.bsky.social
As the year ends, we’re asking you to support a community often overlooked. AMC affects 1 in 3,000 children. AMCSI provides connection, resources, and hope for families who shouldn’t have to navigate this alone.

Your gift or company match truly helps.

Ways to give:
amcsupport.org/ways-to-give/
The AMCSI logo is in white in the upper right corner with a photo of a little girl with AMC from the 20th Annual AMCSI Conference in Norfolk, VA, shot by Bob Wellmon, with a dark blue bar near the bottom, and it says Ways To Give with the website link https://amcsupport.org/ways-to-give/ on top of it in white. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtags #AMCSI & #GivingTuesday are in the bottom-right corner, all in white.
December 13, 2025 at 3:53 PM
amcsupport.bsky.social
Please share, funds go directly to AMC Families:

amcsupport.org/amc-holiday-...
AMC Holiday Fund 2025 - AMCSI: Supporting the Arthrogryposis Multiplex Congenita Community
Every year, we want to express our heartfelt appreciation & #Love for the incredible support we’ve received from our AMC Community, Organizations, Hospitals, & Fundraisers. We’re excited to continue t...
amcsupport.org
December 13, 2025 at 4:06 AM
amcsupport.bsky.social
We’re honored to have Dr. Harold J. P. van Bosse! 🎤

💙
A leading voice in pediatric orthopedics, his work focuses heavily on AMC & PWS across the globe.

Register: amcsupport.org/21st-annual-amcsi-conference

Speakers: amcsupport.org/professional-guest-speakers

#AMCOH26 #AMCstrong #Arthrogryposis
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘PROFESSIONAL GUEST SPEAKER, Dr. Harold J. P. van Bosse’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
December 10, 2025 at 5:36 PM
amcsupport.bsky.social
🎉 Early Bird Registration is OPEN! 🎉


Give a gift that goes far beyond the holidays. AMCSI Conference registration is a life-changing experience!

Early Bird runs now – Mar 7, 2026.

Learn more & register: amcsupport.org/21st-annual-...

#AMCOH26 #AMCSI #Arthrogryposis #AMCStrong
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right. On the left side, it says ‘EARLY-BIRD REGISTRATION IS OPEN! Ends March 7 At Midnight, Register Today!’ in white. The background is a photo from the 20th Annual AMCSI Conference in Norfolk, VA. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/21st-annual-amcsi-conference/ to learn more about getting involved.
December 10, 2025 at 3:42 PM
amcsupport.bsky.social
💙 Thank you to everyone who supported AMCSI this Giving Tuesday. Your generosity helps us provide grants, scholarships & medical support to individuals with AMC

Your support helps:
amcsupport.org/testimonials/

Continued support:

amcsupport.org/ways-to-give/

#AMCSI #GivingTuesday
Image features a dark-to-light blue circular gradient in the background, with teh words ‘Thank you’ in a scipt styled font with a blue heart between the words and ‘For Your Support’ written below that, a blue globe in the center, and the Giving Tuesday white heart on top, with a larger version of the Giving Tuesday heart logo ghosted behind the world in the bottom half of the image. In the bottom left, the AMCSI logo & the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X are displayed, with the text "@AMCSUPPORT" above them. The hashtags #AMCSI & #GivingTuesday are in the bottom-right corner, all in white.
December 5, 2025 at 5:43 PM
amcsupport.bsky.social
Welcome our 2026 Keynote Speaker, Todd Craighead! 🎤💙

Todd’s path spans wildlife conservation, 30 years hosting Outdoor Oklahoma & now living his childhood dream as a Ranger in Yellowstone.

Register: amcsupport.org/21st-annual-...


Speakers: amcsupport.org/professional...

#AMCOH26
The 21st Annual AMCSI Conference logo is at the top left, with the AMCSI logo in the top right, in white, & ‘KEYNOTE SPEAKER, Todd Craighead’ written underneath them. The background is a sky-blue-to-white gradient from top to bottom. In the center is a photo of the professional guest speaker. At the bottom is the artistic outline of the Columbus, Ohio, skyline in red, with a transparent-to-crimson red gradient on top. In the bottom right are the FB, IG, BlueSky, TikTok, YouTube & X logos, with @AMCSUPPORT on the bottom left & the hashtags #AMCOH26 #Speaker on the bottom right, both in white. Below that is the professional guest speakers link https://amcsupport.org/professional-guest-speakers/ to learn more about getting involved.
December 4, 2025 at 3:28 PM
amcsupport.bsky.social
Today, we recognize the International Day of Persons with Disabilities, highlighting inclusion, rights, and well-being worldwide.

How has AMCSI supported you or your family? Share your experience here: amcsupport.org/testimonials/

#IDPD #AMCSI #Arthrogryposis #AMCawareness #AMCstrong
The AMCSI logo is white in the upper-left corner, with a silhouette of a child in a wheelchair, and the outer blue gloss fills the left side of the graphic with a light-blue-to-dark-blue gradient background. In the middle, left side, it says ‘International Day Of Persons With Disabilities’ in white & above it is a diagram of the world across the top. At the bottom are the logos of Facebook, Instagram, BlueSky, TikTok, YouTube, and X, with the text "@AMCSUPPORT" above them. The hashtags #AMCSI & #IDPD are on the bottom right, all in white.
December 3, 2025 at 6:02 PM