Alice Fricker
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alicefricker.bsky.social
Alice Fricker
@alicefricker.bsky.social
21, Bedridden for 9yrs with #VerySevereME #hEDS #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition.
Mother helps run account. ♥️
Instagram : @aliceandthemillions / alicefricker
Mums done a good job! We hope you enjoy and take a read - Caroline ♥️
theredtreeandme.substack.com/p/the-red-tr... Inspired by #TheRedTreeandME & Dr Lucinda Bateman @batemanhornecenter.bsky.social @carolinefricker.bsky.social has delicately crafted & introduces The Red Tree Warriors:

“We know you are suffering and will continue to fight for you.”

Dr Lucinda Bateman
The Red Tree Warriors
By Caroline Fricker
theredtreeandme.substack.com
February 19, 2025 at 6:23 PM
Reposted by Alice Fricker
I know I am not completely alone in thinking #ME research should be designed to *include* very severe ME and *exclude* fatigue as the only criterion for participation. Am I the only one seeking to establish ethical approval highlight to ensure every study is designed to *avoid symptom exacerbation*.
January 12, 2025 at 10:11 AM