Amy
@ajzero118o2xi.bsky.social
Navigating life with SLE lupus | Sharing personal journeys, daily life, and lessons | Inspiring resilience & compassion one story at a time.
For a long time, lupus made me watch my hair fall out strand by strand. Today, I get to see it grow back — and that feels like victory, even if the new growth is sticking straight up💜 #lupus #autoimmune
November 12, 2025 at 4:59 PM
For a long time, lupus made me watch my hair fall out strand by strand. Today, I get to see it grow back — and that feels like victory, even if the new growth is sticking straight up💜 #lupus #autoimmune
"And in that moment, I swear we were infinite"- Charlie
Finished reading Perks of Being a Wallflower, by Stephen Chbosky and I think this has been my favorite book I've read this year. #booksky 📚
Finished reading Perks of Being a Wallflower, by Stephen Chbosky and I think this has been my favorite book I've read this year. #booksky 📚
November 5, 2025 at 12:59 AM
"And in that moment, I swear we were infinite"- Charlie
Finished reading Perks of Being a Wallflower, by Stephen Chbosky and I think this has been my favorite book I've read this year. #booksky 📚
Finished reading Perks of Being a Wallflower, by Stephen Chbosky and I think this has been my favorite book I've read this year. #booksky 📚
If you’re on SNAP or a gov worker not getting paid, Taste Community Restaurant in Fort Worth & Arlington offers pay-what-you-can meals 💛 Their mission: to feed, educate & serve Tarrant County’s food-insecure neighbors. #governmentshutdown #snap #tastecommunity
October 29, 2025 at 12:52 AM
If you’re on SNAP or a gov worker not getting paid, Taste Community Restaurant in Fort Worth & Arlington offers pay-what-you-can meals 💛 Their mission: to feed, educate & serve Tarrant County’s food-insecure neighbors. #governmentshutdown #snap #tastecommunity
So proud of Fort Worth , TX! 10/18/2026
#nokings2.0
#nokings2.0
October 21, 2025 at 10:12 PM
So proud of Fort Worth , TX! 10/18/2026
#nokings2.0
#nokings2.0
Chronic illness teaches you resilience and to keep showing up even when it’s hard. This past Saturday I did just that. Volunteered at the No Kings Rally in Fort Worth, TX w/my dear friend, because I love this country. Serving, caring, and standing up for what’s right.
#NOKINGS #democracy #USA
#NOKINGS #democracy #USA
October 21, 2025 at 10:11 PM
Chronic illness teaches you resilience and to keep showing up even when it’s hard. This past Saturday I did just that. Volunteered at the No Kings Rally in Fort Worth, TX w/my dear friend, because I love this country. Serving, caring, and standing up for what’s right.
#NOKINGS #democracy #USA
#NOKINGS #democracy #USA
Saw this today on my way home: #StopStarvingGaza
My heart aches for the people of Gaza.
No one deserves to starve. No child should suffer like this.
My heart aches for the people of Gaza.
No one deserves to starve. No child should suffer like this.
July 28, 2025 at 10:51 PM
Saw this today on my way home: #StopStarvingGaza
My heart aches for the people of Gaza.
No one deserves to starve. No child should suffer like this.
My heart aches for the people of Gaza.
No one deserves to starve. No child should suffer like this.
Reposted by Amy
Happy Independence Day, TX-30.
Let this day be a reminder that democracy doesn’t protect itself.
We’ve got to keep showing up, speaking out, and standing firm—until freedom feels real for everyone.
Let this day be a reminder that democracy doesn’t protect itself.
We’ve got to keep showing up, speaking out, and standing firm—until freedom feels real for everyone.
July 4, 2025 at 5:08 PM
Happy Independence Day, TX-30.
Let this day be a reminder that democracy doesn’t protect itself.
We’ve got to keep showing up, speaking out, and standing firm—until freedom feels real for everyone.
Let this day be a reminder that democracy doesn’t protect itself.
We’ve got to keep showing up, speaking out, and standing firm—until freedom feels real for everyone.
Getting sick shouldn’t mean going broke.
Healthcare should be a right, not a punishment!
Healthcare should be a right, not a punishment!
July 3, 2025 at 11:25 AM
Getting sick shouldn’t mean going broke.
Healthcare should be a right, not a punishment!
Healthcare should be a right, not a punishment!
Woke up feeling wrecked from yesterday’s Benlysta infusion—headache, nausea, the whole package. But my husband showed up with my favorite 7 Brew like a true hero. Love and caffeine might not cure lupus, but they sure help me survive it. ☕❤️🩹
July 1, 2025 at 1:37 PM
Woke up feeling wrecked from yesterday’s Benlysta infusion—headache, nausea, the whole package. But my husband showed up with my favorite 7 Brew like a true hero. Love and caffeine might not cure lupus, but they sure help me survive it. ☕❤️🩹
This is very random, but this floss brings me more joy than it probably should. Small wins, y’all. 🌿🦷 #cocofloss #lupus
June 27, 2025 at 12:24 AM
This is very random, but this floss brings me more joy than it probably should. Small wins, y’all. 🌿🦷 #cocofloss #lupus
Just attended the Banned Together screening w/my amazing friend 💛 Powerful, inspiring, and so needed right now. Grateful for the voices speaking up and standing strong. 📚💙 #FreedomToRead #BannedTogether
June 18, 2025 at 3:15 AM
Just attended the Banned Together screening w/my amazing friend 💛 Powerful, inspiring, and so needed right now. Grateful for the voices speaking up and standing strong. 📚💙 #FreedomToRead #BannedTogether
Getting ready for bed and starting this new book tonight. The tagline says “The couple who slays together, stays together”... should I be concerned? 😅😳 📚💙
June 17, 2025 at 12:55 AM
Getting ready for bed and starting this new book tonight. The tagline says “The couple who slays together, stays together”... should I be concerned? 😅😳 📚💙
Reposted by Amy
In honor of #MensHealthMonth, we’re sharing our new blog highlighting the challenges men with #lupus face — including delayed diagnoses, stigma, and more severe complications.
💙🔗 Learn how we’re raising awareness, building community, and supporting men: buff.ly/AKmxWDX
💙🔗 Learn how we’re raising awareness, building community, and supporting men: buff.ly/AKmxWDX
June 9, 2025 at 12:40 PM
In honor of #MensHealthMonth, we’re sharing our new blog highlighting the challenges men with #lupus face — including delayed diagnoses, stigma, and more severe complications.
💙🔗 Learn how we’re raising awareness, building community, and supporting men: buff.ly/AKmxWDX
💙🔗 Learn how we’re raising awareness, building community, and supporting men: buff.ly/AKmxWDX
It took me a few tries to get into A Court of Thorns and Roses. I wasn’t feeling the writing style at first and almost gave up more than once. But once I hit the halfway point, it got so good I couldn’t put it down. Now I’m already on book 3. #booksky📚
May 25, 2025 at 4:40 PM
It took me a few tries to get into A Court of Thorns and Roses. I wasn’t feeling the writing style at first and almost gave up more than once. But once I hit the halfway point, it got so good I couldn’t put it down. Now I’m already on book 3. #booksky📚
As a woman living with chronic illness this just adds to the anger and frustration I've had since November. Pertussis (whooping cough) is also on the rise just to add to the list, in case you weren't aware.
#chronicillness #USA #politics
#chronicillness #USA #politics
Some of the CDC's main channels for communicating urgent health information to the public have gone silent.
Diseases are spreading. The CDC isn't warning the public like it was months ago
Some of the CDC's main channels for communicating urgent health information to the public have gone silent.
www.npr.org
May 22, 2025 at 11:23 AM
As a woman living with chronic illness this just adds to the anger and frustration I've had since November. Pertussis (whooping cough) is also on the rise just to add to the list, in case you weren't aware.
#chronicillness #USA #politics
#chronicillness #USA #politics
POV: You try to take a cute selfie but your dog decides it’s their time to shine.
Personal space? Never heard of her.
Personal space? Never heard of her.
April 19, 2025 at 2:10 AM
POV: You try to take a cute selfie but your dog decides it’s their time to shine.
Personal space? Never heard of her.
Personal space? Never heard of her.
Ice cream party with a purpose. Sweet treats for everyone, including our sweet pup.
Ben & Jerry’s for the win tonight.
#ben&jerry's #dogs
Ben & Jerry’s for the win tonight.
#ben&jerry's #dogs
April 19, 2025 at 1:43 AM
Ice cream party with a purpose. Sweet treats for everyone, including our sweet pup.
Ben & Jerry’s for the win tonight.
#ben&jerry's #dogs
Ben & Jerry’s for the win tonight.
#ben&jerry's #dogs
Anyone else out there fighting a chronic illness and still trying to find the energy to fight for our democracy too? I’m exhausted mentally, physically & emotionally. But staying silent isn’t an option. #ChronicWarriorsForDemocracy #WeThePeople #AutoimmuneAndActive #StrengthInTruth
April 18, 2025 at 3:00 PM
Anyone else out there fighting a chronic illness and still trying to find the energy to fight for our democracy too? I’m exhausted mentally, physically & emotionally. But staying silent isn’t an option. #ChronicWarriorsForDemocracy #WeThePeople #AutoimmuneAndActive #StrengthInTruth
Just finished Onyx & now nothing else hits the same-I need more Empyrean! It’s benlysta infusion day, so I’ve got an hour of uninterrupted reading. Currently diving into The Seven Husbands of Evelyn Hugo,any recs for books that i can add to my reading list? #booksky #LupusWarrior
March 10, 2025 at 8:50 PM
Just finished Onyx & now nothing else hits the same-I need more Empyrean! It’s benlysta infusion day, so I’ve got an hour of uninterrupted reading. Currently diving into The Seven Husbands of Evelyn Hugo,any recs for books that i can add to my reading list? #booksky #LupusWarrior
Reposted by Amy
To every woman who feels overlooked or unheard—Women’s History Month is a reminder of your strength and worth. Together, we move forward in solidarity.
March 1, 2025 at 2:45 PM
To every woman who feels overlooked or unheard—Women’s History Month is a reminder of your strength and worth. Together, we move forward in solidarity.
Reposted by Amy
Nobody is celebrating President Trump and Vice President Vance’s embarrassing behavior in the Oval Office more than Vladimir Putin. Today was a distressing moment for those of us who value democracy and America’s role as a force for good.
February 28, 2025 at 9:02 PM
Nobody is celebrating President Trump and Vice President Vance’s embarrassing behavior in the Oval Office more than Vladimir Putin. Today was a distressing moment for those of us who value democracy and America’s role as a force for good.
Reposted by Amy
We apologize to our Ukrainian supporters. We are embarrassed by how our president and vice president have behaved. We are fighting to redeem the soul of America. 🇺🇸
February 28, 2025 at 8:04 PM
We apologize to our Ukrainian supporters. We are embarrassed by how our president and vice president have behaved. We are fighting to redeem the soul of America. 🇺🇸
Reposted by Amy
Trump's 𝐃𝐞𝐬𝐩𝐢𝐜𝐚𝐛𝐥𝐞 𝐃𝐢𝐬𝐩𝐥𝐚𝐲 𝐨𝐟 𝐃𝐢𝐬𝐫𝐞𝐬𝐩𝐞𝐜𝐭 to our ally in the Oval Office is a DAMN SHAME.
Denigrating a democratic world leader while sitting next to him has not only jeopardized our work with global allies. Once again, Trump's ego just put our national security at risk.
Denigrating a democratic world leader while sitting next to him has not only jeopardized our work with global allies. Once again, Trump's ego just put our national security at risk.
"You're either going to make a deal or we're out."
President Trump to Ukrainian President Zelenskyy : "The problem is I've empowered you to be a tough guy. I don't think you'd be a tough guy without the U.S. You're people are very brave. But, you're e...
www.c-span.org
February 28, 2025 at 8:19 PM
Trump's 𝐃𝐞𝐬𝐩𝐢𝐜𝐚𝐛𝐥𝐞 𝐃𝐢𝐬𝐩𝐥𝐚𝐲 𝐨𝐟 𝐃𝐢𝐬𝐫𝐞𝐬𝐩𝐞𝐜𝐭 to our ally in the Oval Office is a DAMN SHAME.
Denigrating a democratic world leader while sitting next to him has not only jeopardized our work with global allies. Once again, Trump's ego just put our national security at risk.
Denigrating a democratic world leader while sitting next to him has not only jeopardized our work with global allies. Once again, Trump's ego just put our national security at risk.