gail
@ahappycaregiver.bsky.social
Caregiver. Realistic Optimist. Advocate. Joy Seeker. Wannabe Gardener. Bookworm. #faithoverfear #caregiving #joyfuljuggle #rettsyndrome 💜
open.substack.com/pub/ahappyca...
“One day you will tell your story of how you overcame what you went through and it will be someone else’s survival guide. ~Brene Brown. It is my goal in starting The Joyful Juggle to help guide other caregivers. #leapoffaith #caregiving #helpingothers
“One day you will tell your story of how you overcame what you went through and it will be someone else’s survival guide. ~Brene Brown. It is my goal in starting The Joyful Juggle to help guide other caregivers. #leapoffaith #caregiving #helpingothers
July 11, 2025 at 10:01 PM
open.substack.com/pub/ahappyca...
“One day you will tell your story of how you overcame what you went through and it will be someone else’s survival guide. ~Brene Brown. It is my goal in starting The Joyful Juggle to help guide other caregivers. #leapoffaith #caregiving #helpingothers
“One day you will tell your story of how you overcame what you went through and it will be someone else’s survival guide. ~Brene Brown. It is my goal in starting The Joyful Juggle to help guide other caregivers. #leapoffaith #caregiving #helpingothers
These are the true stories that drove me to make phone calls. It’s the providers & broken systems that cause wasteful dollars with Medicaid. No one cared because they never experienced anything like what some families go through and the tough decisions they make to keep family members safe. 💔
Read it and cringe: Parents forced to invent and improvise medical devices for their medically fragile children because they can't get the right equipment and help at home: www.statnews.com/2025/06/09/i...
A broken system forces parents to DIY hospital-level care for their medically complex children
“Eventually I just stopped sleeping and did it all myself”: Parents of medically complex kids find that Medicaid won’t cover proper equipment or trained nursing assistance.
www.statnews.com
July 11, 2025 at 7:51 PM
These are the true stories that drove me to make phone calls. It’s the providers & broken systems that cause wasteful dollars with Medicaid. No one cared because they never experienced anything like what some families go through and the tough decisions they make to keep family members safe. 💔
📣Good news for #familycaregivers living in #Ohio. Here’s hoping other states pay attention and duplicate. 👇🤞 #caregiversupport #advocacy www.cleveland.com/opinion/2025...
Structured Family Caregiving can help Ohio family caregivers cope: Sue Gregg
Caregiving is a universal experience that affects everyone, and it’s time for caregivers to get back some of the same kind of acknowledgement and support that we readily give and seldom admit we need....
www.cleveland.com
July 6, 2025 at 5:59 PM
📣Good news for #familycaregivers living in #Ohio. Here’s hoping other states pay attention and duplicate. 👇🤞 #caregiversupport #advocacy www.cleveland.com/opinion/2025...
Reposted by gail
Medicaid covers more than annual checkups and ER visits—it is the backbone of the long-term care system in the U.S.
Without it, millions of seniors and people with disabilities will lose the in-home services and nursing care they need to survive.
Without it, millions of seniors and people with disabilities will lose the in-home services and nursing care they need to survive.
Cutting Medicaid Harms Older Adults No Matter How It’s Sliced - Justice in Aging
Whether Medicaid cuts come in the form of work requirements, stricter eligibility rules, or caps or cuts to federal funding, the result is the same: older adults lose healthcare.
justiceinaging.org
May 31, 2025 at 7:01 PM
Medicaid covers more than annual checkups and ER visits—it is the backbone of the long-term care system in the U.S.
Without it, millions of seniors and people with disabilities will lose the in-home services and nursing care they need to survive.
Without it, millions of seniors and people with disabilities will lose the in-home services and nursing care they need to survive.
👇 Medicaid cuts don’t just affect adults—they shape the lives of young caregivers. #ProtectMedicaid #caregiving
Medicaid cuts could push more kids into unpaid family caregiving roles
As state officials anticipate Medicaid funding cuts that could strip resources for those with disabilities and chronic health conditions, an army of unpaid caregivers waits in the wings: children.
www.cbsnews.com
May 31, 2025 at 3:39 PM
👇 Medicaid cuts don’t just affect adults—they shape the lives of young caregivers. #ProtectMedicaid #caregiving
Reposted by gail
As part of the Independent Living Network, we know how vital Medicaid is for our community.
It is imperative that your state officials know how devastating these cuts will be and that we work with the states to preserve these critical programs.
Take action: bit.ly/4iFtdvz
It is imperative that your state officials know how devastating these cuts will be and that we work with the states to preserve these critical programs.
Take action: bit.ly/4iFtdvz
Mobilize for Medicaid: Tell State Legislators to Contact Your Federal Delegation - National Council on Independent Living
The federal budget reconciliation is currently calling for devastating cuts to Medicaid. Medicaid is the lifeline that...
bit.ly
April 28, 2025 at 7:35 PM
As part of the Independent Living Network, we know how vital Medicaid is for our community.
It is imperative that your state officials know how devastating these cuts will be and that we work with the states to preserve these critical programs.
Take action: bit.ly/4iFtdvz
It is imperative that your state officials know how devastating these cuts will be and that we work with the states to preserve these critical programs.
Take action: bit.ly/4iFtdvz
Reposted by gail
Our country’s families deserve better options and opportunities to care for themselves and their loved ones without worrying about losing their care. Our nation’s leaders must put families first and end these harmful attacks on life-saving programs. #ProtectMedicaid
February 27, 2025 at 3:49 PM
Our country’s families deserve better options and opportunities to care for themselves and their loved ones without worrying about losing their care. Our nation’s leaders must put families first and end these harmful attacks on life-saving programs. #ProtectMedicaid
When you’re a family #caregiver doesn’t Dec 1 sorta feels like Dec 26? All the hype and excitement of #NationalFamilyCaregiversMonth is over. But #caregiving is a 24/7, 365 days responsibility. Let’s help each other by keeping the awareness going beyond November! 💜
December 1, 2024 at 3:29 PM
When you’re a family #caregiver doesn’t Dec 1 sorta feels like Dec 26? All the hype and excitement of #NationalFamilyCaregiversMonth is over. But #caregiving is a 24/7, 365 days responsibility. Let’s help each other by keeping the awareness going beyond November! 💜
I am a #caregiver because of #RettSyndrome. To hear it discussed on a national television show is so rare, that I had to share! www.rettrevealed.com/adventuring-...
The Drew Barrymore Show Talks About Rett Syndrome | Rett Revealed
The Drew Barrymore Show spotlights Rett syndrome and inspiring adventures of Rett families from Magnolia's Guide to Adventuring on her show.
www.rettrevealed.com
November 24, 2024 at 9:51 PM
I am a #caregiver because of #RettSyndrome. To hear it discussed on a national television show is so rare, that I had to share! www.rettrevealed.com/adventuring-...
#Caregivers we are halfway through #NationalFamilyCaregiverMonth How would you describe your #caregiving journey? My answer: A rollercoaster ride of emotions and daily juggle of home and work responsibilities. 💜🎢
November 16, 2024 at 5:52 PM
#Caregivers we are halfway through #NationalFamilyCaregiverMonth How would you describe your #caregiving journey? My answer: A rollercoaster ride of emotions and daily juggle of home and work responsibilities. 💜🎢
29 years ago, I learned that my beautiful baby girl has Rett Syndrome. I don’t often reflect back, but when I do, wow, it’s been a lot! Oftentimes the line between Mom and caregiver is blurred but the pure love and joy overlaps them both. 💜#caregiving #RettSyndrome #CaregiverNation
July 11, 2024 at 10:51 PM
29 years ago, I learned that my beautiful baby girl has Rett Syndrome. I don’t often reflect back, but when I do, wow, it’s been a lot! Oftentimes the line between Mom and caregiver is blurred but the pure love and joy overlaps them both. 💜#caregiving #RettSyndrome #CaregiverNation
Where are all my fellow family caregivers in this blue sky? Let’s start a conversation and learn something from each other. #caregiving #thejuggleisreal 💜
February 12, 2024 at 11:52 AM
Where are all my fellow family caregivers in this blue sky? Let’s start a conversation and learn something from each other. #caregiving #thejuggleisreal 💜