Julie Gerhart-Rothholz
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advocatemama.bsky.social
Julie Gerhart-Rothholz
@advocatemama.bsky.social
Pharmacist, wife, mom of a child with Down syndrome. Disability Advocate.
Please help spread the word! We’re trying to raise funds to expand services and research, supporting the Trisomy 21 program at Children’s Hospital of Philadelphia. #chopbuddywalk
October 16, 2025 at 2:59 AM
For Discovery #SharkWeek Ev wants to share about hammerhead sharks: The position of their eyes gives hammerheads nearly 360-degree vision, allowing them to see above, below, and to the sides at the same time—though there is a small blind spot directly in front of their heads.
July 24, 2025 at 12:14 PM
It’s Discovery #SharkWeek and Ev’s rocking is wearing a shirt from a prior year from Target. They haven’t made great choices lately, but they still have #disability inclusive ads. Fun shark fact: some sharks lose more than 30,000 teeth in a lifetime.
July 24, 2025 at 12:15 AM
It’s Discovery #SharkWeek and Ev is wearing an old favorite from @LandsEnd. We were so excited when they included kids with #Downsyndrome in their catalog and hope to see more #inclusive ads! Fun fact: The Greenland shark may live >400 years!
July 22, 2025 at 2:19 PM
Evan’s wearing this fun shirt we purchased during a visit to the Audubon Aquarium in New Orleans. #SharkWeek reminds me of all the wonderful conservation and research efforts that help us better understand Sharks! 🦈
July 21, 2025 at 10:30 PM
Reposted by Julie Gerhart-Rothholz
Happy to catch up with my friends, Julia and Mitch — and their remarkable son, Evan.

Their family was recently in D.C. with the National Down Syndrome Society.

From education to health to employment, NDSS works to ensure people with Down syndrome can live a full, beautiful life.
May 15, 2025 at 6:55 PM
That time we met @aaronparnas.bsky.social while preparing to advocate on the hill for people with #downsyndrome
April 29, 2025 at 6:06 PM
Heading to NYC today to see The Outsiders!
March 29, 2025 at 12:18 PM
Tomorrow is #WorldDownSyndromeDay. Please join us in wearing your brightly colored or mismatched socks and spam us with your pics! Why socks? Chromosomes look like bright socks!
March 20, 2025 at 10:59 AM
Join us on March 21 in celebrating #WorldDownSyndromeDay. Wear your most colorful and even mismatched socks! Did you know that chromosomes look like colorful socks?
March 17, 2025 at 3:54 AM
#WorldDownSyndromeDay is Friday, 3/21. So touched that my son’s school is celebrating all week! #inclusion
March 17, 2025 at 3:48 AM
#Advocacy didn’t come naturally to me. Now it’s second nature thanks to my son Evan, who has #Downsyndrome. Yesterday I spoke on a podcast on Advocacy 101. I hope you will listen! downsyndromecenter.libsyn.com
Down Syndrome Center Podcast
This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former ...
downsyndromecenter.libsyn.com
February 27, 2025 at 11:37 PM
My son who has Down syndrome was helping with the laundry. He’s done it before, so I gave him space. About 20 minutes in, the washer sounded noisy. He’d thrown in the entire pod container. I retrieved it but the pods were dissolved. We’re going to have the cleanest clothes.
February 23, 2025 at 9:42 PM
What are you bringing to/having at your #Superbowl party? We’re bringing this amazing queso—best I have ever had www.seededatthetable.com/queso-blanco... and some fun dessert shooters.
February 9, 2025 at 8:41 PM
@nflbluesky.bsky.social it’s disappointing that you chose to remove #endracism from the end zones for the Super Bowl. Please honor the players who make up your league.
February 6, 2025 at 12:52 AM
If you ever have a chance to go to a school and participate in a sendoff for #SpecialOlympics, do it! Witnessing a whole middle school cheer on my son was so moving! #inclusion
January 31, 2025 at 1:30 PM
Dear #amazon, thanks for sending me a used toothbrush. This mangled, open box and stickered toothbrush was sent to me. Ewww.
January 16, 2025 at 10:36 PM
My son has #downsyndrome and is very dental phobic. Today he did incredibly well, sat in the chair, let them recline it. He let them scrape plaque. Our Dentist is Dr. Angel. She lives up to her name. She’s encouraging and patient, especially with the kids with greatest needs.
January 15, 2025 at 10:23 PM
This guy is part of the Spartans league at @bowlerobowl.bsky.social in Limerick. He’s such a @philadelphiaeagles.bsky.social fan that even his bowling ball is an Eagles ball!
December 28, 2024 at 9:52 PM