Hi BlueSky, my name is Alan
@abrewi3010.bsky.social
#ChronicPain #Rheum #AFIB patient. #Medx alumni & former board member. Graduate of Social Health Network's Patient Leader Program. Obnoxiousness = Bad Pain Day!
Pinned
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A raw, unflinching look at caregiving through the final months of a father’s life. This Father’s Day reflection explores the limits of informed consent, the meaning of living vs. existing, and the har...
www.alanbrewington.com
At some point in time, most of us will be a #caregiver to a parent, grandparent, or love one. This was not easy to write, it definitely pushed my vulnerability limit. Hopefully my experience can help someone else. #Healthcare #ChronicPain www.alanbrewington.com/blog/2025/6/...
Perspective. AI is going to revolutionize medicine. CMS (pre Trump) has shown interest in authorizing new reimbursement models. All great things but my #RheumatoidArthritis flare started last week & is now one of my worst in years. Who is helping my perspective, the now? #ChronicPain #PainAwareness
June 21, 2025 at 6:54 PM
Perspective. AI is going to revolutionize medicine. CMS (pre Trump) has shown interest in authorizing new reimbursement models. All great things but my #RheumatoidArthritis flare started last week & is now one of my worst in years. Who is helping my perspective, the now? #ChronicPain #PainAwareness
At some point in time, most of us will be a #caregiver to a parent, grandparent, or love one. This was not easy to write, it definitely pushed my vulnerability limit. Hopefully my experience can help someone else. #Healthcare #ChronicPain www.alanbrewington.com/blog/2025/6/...
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A raw, unflinching look at caregiving through the final months of a father’s life. This Father’s Day reflection explores the limits of informed consent, the meaning of living vs. existing, and the har...
www.alanbrewington.com
June 21, 2025 at 4:33 PM
At some point in time, most of us will be a #caregiver to a parent, grandparent, or love one. This was not easy to write, it definitely pushed my vulnerability limit. Hopefully my experience can help someone else. #Healthcare #ChronicPain www.alanbrewington.com/blog/2025/6/...
Today I wrote about the realities of #Caregiving. This is a pretty vulnerable look at my experiences with dad before he passed. #FathersDay #Healthcare www.alanbrewington.com/blog/2025/6/15/sur8twvv8lh2m1durzk7v9tl06zrgc
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A raw, unflinching look at caregiving through the final months of a father’s life. This Father’s Day reflection explores the limits of informed consent, the meaning of living vs. existing, and the har...
www.alanbrewington.com
June 15, 2025 at 6:18 PM
Today I wrote about the realities of #Caregiving. This is a pretty vulnerable look at my experiences with dad before he passed. #FathersDay #Healthcare www.alanbrewington.com/blog/2025/6/15/sur8twvv8lh2m1durzk7v9tl06zrgc
New Post - Talking about the art and challenge of patient storytelling in today’s world. #MedSky #ChronicPain #Rheum #PatientsUseAI www.alanbrewington.com/blog/2025/5/...
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Chronic illness storytelling isn’t about polished templates—it’s about honesty. Learn how your unique patient voice can inspire change and improve care.
www.alanbrewington.com
June 2, 2025 at 6:41 PM
New Post - Talking about the art and challenge of patient storytelling in today’s world. #MedSky #ChronicPain #Rheum #PatientsUseAI www.alanbrewington.com/blog/2025/5/...
New Post-Patient Storytelling. #RheumChampion #ChronicPain #Rheum #Healthcare www.alanbrewington.com/blog/2025/5/31/kuwolfsy00aez28ir3ocqv8z7ruxoq
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Chronic illness storytelling isn’t about polished templates—it’s about honesty. Learn how your unique patient voice can inspire change and improve care.
www.alanbrewington.com
May 31, 2025 at 6:49 PM
New Post-Patient Storytelling. #RheumChampion #ChronicPain #Rheum #Healthcare www.alanbrewington.com/blog/2025/5/31/kuwolfsy00aez28ir3ocqv8z7ruxoq
Guess what, I have an another new post to share. That's 2 in a little over a week. Today's post is about redefining what it means to be a patient using my #ChronicPain and #RheumatoidArthritis as an example. #MedSky www.alanbrewington.com/blog/2025/5/25/rlibnfe909sxo6jts9fbq5a5jdc5n0
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A raw, honest look at life with chronic pain and rheumatoid arthritis. This post challenges traditional ideas of what it means to be a "patient"—and why treatment stories, including opioids, deserve s...
www.alanbrewington.com
May 25, 2025 at 7:02 PM
Guess what, I have an another new post to share. That's 2 in a little over a week. Today's post is about redefining what it means to be a patient using my #ChronicPain and #RheumatoidArthritis as an example. #MedSky www.alanbrewington.com/blog/2025/5/25/rlibnfe909sxo6jts9fbq5a5jdc5n0
If you support #Trump and his so-called "big, beautiful bill" you are NOT in anyway shape or form pro-life at all. This bill takes away health care and food away from millions of citizens, largely kids, in order to protect those who have an abundance. #BigBeautifulBill #IDPol
May 24, 2025 at 5:27 PM
If you support #Trump and his so-called "big, beautiful bill" you are NOT in anyway shape or form pro-life at all. This bill takes away health care and food away from millions of citizens, largely kids, in order to protect those who have an abundance. #BigBeautifulBill #IDPol
Reposted by Hi BlueSky, my name is Alan
“I felt the need to respond since #exercise is a big part of my #success as a patient..posts..that criticize #patients like me who #advocate for exercise r denying my right to treat the ridiculousness [of #ChronicIllness]..on my own terms”: buff.ly/8DavrjX
by @abrewi3010.bsky.social
by @abrewi3010.bsky.social
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A chronic illness advocate challenges the idea that exercise is ableist, sharing personal experience with pain, progress, and the right to move. Movement is medicine—even if it hurts.
buff.ly
May 22, 2025 at 5:31 PM
“I felt the need to respond since #exercise is a big part of my #success as a patient..posts..that criticize #patients like me who #advocate for exercise r denying my right to treat the ridiculousness [of #ChronicIllness]..on my own terms”: buff.ly/8DavrjX
by @abrewi3010.bsky.social
by @abrewi3010.bsky.social
Work requirements for #Medicaid are cruel and will cause deaths. Kicking some 14 million off their insurance will cause death. #Trumps big beautiful bill is cruel and will cause deaths. #IDPol #Healthcare #ChronicPain
May 22, 2025 at 5:28 PM
Work requirements for #Medicaid are cruel and will cause deaths. Kicking some 14 million off their insurance will cause death. #Trumps big beautiful bill is cruel and will cause deaths. #IDPol #Healthcare #ChronicPain
If your interested I have a new post out! #medsky #chronicpain
New Post - Exercise doesn't make me an #Ableist, I lift therefore I limp (and that's ok). #ChronicPain #Rheum #RheumatoidArthritis #Share www.alanbrewington.com/blog/2025/5/18/qesjzcoje1rfs3l4slq5hiucp9b0ew
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A chronic illness advocate challenges the idea that exercise is ableist, sharing personal experience with pain, progress, and the right to move. Movement is medicine—even if it hurts.
www.alanbrewington.com
May 20, 2025 at 7:43 PM
If your interested I have a new post out! #medsky #chronicpain
New Post - Exercise doesn't make me an #Ableist, I lift therefore I limp (and that's ok). #ChronicPain #Rheum #RheumatoidArthritis #Share www.alanbrewington.com/blog/2025/5/18/qesjzcoje1rfs3l4slq5hiucp9b0ew
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
A chronic illness advocate challenges the idea that exercise is ableist, sharing personal experience with pain, progress, and the right to move. Movement is medicine—even if it hurts.
www.alanbrewington.com
May 18, 2025 at 7:37 PM
New Post - Exercise doesn't make me an #Ableist, I lift therefore I limp (and that's ok). #ChronicPain #Rheum #RheumatoidArthritis #Share www.alanbrewington.com/blog/2025/5/18/qesjzcoje1rfs3l4slq5hiucp9b0ew
May is #arthritisawareness month. If you have any ?'s about the 120 different types of #arthritis of which some 80 are autoimmune based, please ask. For patient advocates like me, answering questions is the best advocacy. This is a ridiculous disease which affects each differently. #Medsky #Share
May 7, 2025 at 4:24 PM
May is #arthritisawareness month. If you have any ?'s about the 120 different types of #arthritis of which some 80 are autoimmune based, please ask. For patient advocates like me, answering questions is the best advocacy. This is a ridiculous disease which affects each differently. #Medsky #Share
Saw a clip of RFK Jr claiming he has never heard of rheumatoid arthritis, lupus, Crohn's, or any other autoimmune disease. Is he really that ignorant? This is not a great time to be a chronic patient, apparently everything is my fault. #Medsky #RheumatoidArthritis #ChronicPain
May 6, 2025 at 6:05 PM
Saw a clip of RFK Jr claiming he has never heard of rheumatoid arthritis, lupus, Crohn's, or any other autoimmune disease. Is he really that ignorant? This is not a great time to be a chronic patient, apparently everything is my fault. #Medsky #RheumatoidArthritis #ChronicPain
I'm concerned that the current administration is going to turn #Medicaid into a big business administration. The purpose will be to give business loans & socialize healthcare losses, it won't be about the patient or person anymore. #BlueSky #Healthcare.
April 27, 2025 at 4:37 PM
I'm concerned that the current administration is going to turn #Medicaid into a big business administration. The purpose will be to give business loans & socialize healthcare losses, it won't be about the patient or person anymore. #BlueSky #Healthcare.
Reposted by Hi BlueSky, my name is Alan
“Quality of life applies to #caregivers too, especially when discussing #EndOfLife type issues. #Dad was a huge #advocate for this idea. He understood better than most that the only true metric in #healthcare should be #QualityOfLife.”: buff.ly/ssX1rgA
by @abrewi3010.bsky.social
by @abrewi3010.bsky.social
Alan Brewington | Quality of Life vs Medical Romanticism
Thanks dad! Explore the emotional journey of caregiving and the harsh realities of our healthcare system. This heartfelt story reveals the struggles of balancing medical decisions, quality of life,…
buff.ly
April 24, 2025 at 8:30 PM
“Quality of life applies to #caregivers too, especially when discussing #EndOfLife type issues. #Dad was a huge #advocate for this idea. He understood better than most that the only true metric in #healthcare should be #QualityOfLife.”: buff.ly/ssX1rgA
by @abrewi3010.bsky.social
by @abrewi3010.bsky.social
Tell your doctor a complete picture of your life & not just the negative. This turns the visit into a human interaction instead of just a clinical experience. #Medsky #ChronicPain
April 22, 2025 at 4:20 AM
Tell your doctor a complete picture of your life & not just the negative. This turns the visit into a human interaction instead of just a clinical experience. #Medsky #ChronicPain
What do you want to know about treating and living with #ChronicPain? What do you want to know about utilizing #Opioids as part of a pain management plan? How might we (meaning patients like me) increase your knowledge, understanding, or & empathy about chronic pain? #Medsky #Healthcare
April 19, 2025 at 5:46 PM
What do you want to know about treating and living with #ChronicPain? What do you want to know about utilizing #Opioids as part of a pain management plan? How might we (meaning patients like me) increase your knowledge, understanding, or & empathy about chronic pain? #Medsky #Healthcare
Reposted by Hi BlueSky, my name is Alan
“Since #nudity is such a #taboo subject coupled with the weirdness of having that many drugs running through your system at once, it is easy to forget this one small, yet surreal experience of #surgery ": buff.ly/43hxGjN
by @abrewi3010.bsky.social
#ChronicIllness #patients
by @abrewi3010.bsky.social
#ChronicIllness #patients
Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond
Welcome to my life. I'm Alan Brewington, the author, epatient advocate, skier, hiker, photographer, and chronic pain patient. Sometimes I hike, sometimes I eat cookies, sometimes I have surgeries,…
www.alanbrewington.com
April 17, 2025 at 3:30 AM
“Since #nudity is such a #taboo subject coupled with the weirdness of having that many drugs running through your system at once, it is easy to forget this one small, yet surreal experience of #surgery ": buff.ly/43hxGjN
by @abrewi3010.bsky.social
#ChronicIllness #patients
by @abrewi3010.bsky.social
#ChronicIllness #patients
In today’s adventure with #chronicpain I began the day by slowly driving over a speed bump that sent massive amounts of pain thru my neck. Neck feels somewhat better but that trauma set off my #rheumatoidarthritis. This is common if you are not familiar. #Medsky
April 15, 2025 at 7:01 PM
In today’s adventure with #chronicpain I began the day by slowly driving over a speed bump that sent massive amounts of pain thru my neck. Neck feels somewhat better but that trauma set off my #rheumatoidarthritis. This is common if you are not familiar. #Medsky
Just like you can support the men and women of the armed forces and think the orange one isn't qualified to run a lemonade stand, its important to realize the same goes for employees of government agencies. Government workers are dedicated & hard working, it's time to stand with them! #IDPol #Medsky
April 12, 2025 at 4:50 PM
Just like you can support the men and women of the armed forces and think the orange one isn't qualified to run a lemonade stand, its important to realize the same goes for employees of government agencies. Government workers are dedicated & hard working, it's time to stand with them! #IDPol #Medsky
Reposted by Hi BlueSky, my name is Alan
Here's an advance directive I hadn't thought about before @taylorcoffman.bsky.social wrote this: taylorcoffman.substack.com/p/illness-an...
How to create social media guidelines before emergencies occur
A cautionary tale for families and loved ones.
taylorcoffman.substack.com
April 10, 2025 at 4:27 PM
Here's an advance directive I hadn't thought about before @taylorcoffman.bsky.social wrote this: taylorcoffman.substack.com/p/illness-an...
Trump, RFK Jr, & Musk firing so many at HHS is not about improving patient centered care, it's about their politics. More specifically, it's about their politics of capitalism. It's paternalism with a profit motive. #ChronicPain #MedSky
April 6, 2025 at 7:01 PM
Trump, RFK Jr, & Musk firing so many at HHS is not about improving patient centered care, it's about their politics. More specifically, it's about their politics of capitalism. It's paternalism with a profit motive. #ChronicPain #MedSky
There is a lot of energy and desire for political change right now. If there were ever a time to recruit candidates for office, it is now. Look for organizers at these protests, students, small business owners who prioritize people over politics. We need true human centered problem solvers. #IDPol
April 6, 2025 at 6:20 PM
There is a lot of energy and desire for political change right now. If there were ever a time to recruit candidates for office, it is now. Look for organizers at these protests, students, small business owners who prioritize people over politics. We need true human centered problem solvers. #IDPol