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visibleappchat.bsky.social
Visible app chat - not associated with Visible
@visibleappchat.bsky.social
To talk about pacing, energy envelope, mecfs, long covid and more using the Visible app, with or without the heart rate arm band
Pinned
Questions are probably going to be weekly now, but with all the usual caveats we're all used to giving.
Please feel free to bump old posts, tag us when you want to interact with folk who truly get it, or when you're having a good moment/hour/day!
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I just want to wake up one morning and actually feel rested. Like my body actually did what sleep is supposed to do. Like I could get up and exist without pushing through exhaustion before the day even starts. #longcovid #mecfs
March 16, 2025 at 5:05 PM
How did you spend Long Covid Awareness Day, did you know it was happening?

As folk with energy limiting illnesses we're all impacted by how society & the medical & research fields treat each other's illnesses 💙

We're stronger together!

#mecfs #longcovid #pots #chronicillness
March 16, 2025 at 6:26 PM
@batemanhornecenter.bsky.social
We're very happy to see you guys here on Bluesky!
March 11, 2025 at 9:41 PM
Yikes, what a week over in this part of me/cfs land!
To make up for it, let's do two questions!

What's your favorite thing about using the #visbleapp?

What do you wish they'd add?
March 11, 2025 at 9:33 PM
Selfcare is core to #pacing & it's always valuable to hear from people living it rather than wearing a lab coat and preaching it. We all have our own paths, but we can also always learn from each other's experiences 💙
"One bonus of #pacing – you’ll be able to absorb the information much faster and more easily after you’re well rested. So it’s really more #productive href="https://buff.ly/3rvoODf" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link" target="_blank" rel="noopener" data-link="bsky">ve in the end": buff.ly/3rvoODf <a href="/hashtag/ChronicIllness" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#ChronicIllness #ChronicPain #students
March 1, 2025 at 11:11 PM
Did you know that Visible has a blog which covers new research around energy limiting conditions & that's available through the app via the community tab?
If so, how do you like it and how do you feel about the use of ads?
#visbleapp
March 1, 2025 at 11:01 PM
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[Updated] "My paternal #grandmother was a professional seamstress & would hand sew..dresses for us when we were children.. #embroidery work can be lots of fun, & is also a #meditative experience as you focus and repeat the stitches": https://buff.ly/3T0DfxS #surgery #MondayBlogs
February 24, 2025 at 3:30 PM
Has anyone gotten the 2.0 armband &, if so, do you think it was worth it?
February 24, 2025 at 11:11 PM
Questions are probably going to be weekly now, but with all the usual caveats we're all used to giving.
Please feel free to bump old posts, tag us when you want to interact with folk who truly get it, or when you're having a good moment/hour/day!
February 24, 2025 at 11:10 PM
Sooooooo I keep hoping I'll have the spoons to do the daily questions etc. But I'm so tired! Does anyone want to take over this account to do it? #visibleapp #visibleappchat
February 16, 2025 at 10:03 PM
Q6 what are some quiet activities that help you when you need to reduce your pace points for the day? #visibleappchat #visibleapp
February 13, 2025 at 4:01 PM
Q5 do you have ideas for daily-ish questions for #visibleappchat? What do you think of people volunteering for a certain day of the week (or other schedule) to come up with one? #visibleapp
February 13, 2025 at 3:59 PM
Q4 how did you hear about #visibleapp? What made you decide to try it, if you have?
#visibleappchat #visibleapp #pacing #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
February 13, 2025 at 3:03 AM
Q3 when your heart rate is up, is there anything that helps bring it down quickly? Or at least reduces it a bit?

#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
February 7, 2025 at 5:58 PM
Reposted by Visible app chat - not associated with Visible
Many new friends here (thanks @maggietokudahall.bsky.social ❤️) so here's an intro!

We are an alternative to Amazon-owned Audible that shares all profits with indie bookshops across the globe. Plus:
❤️Employee-owned Social Purpose Corporation
🚫Booksellers drive our recommendations—not algos!
Buy audiobooks & support local bookstores
Libro.fm makes it possible for you to buy audiobooks directly through local bookstores.
Libro.fm
January 29, 2025 at 8:46 PM
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@weneeddiversebooks.bsky.social is providing emergency grants to BIPOC, LGBTQIA+, &/or disabled authors, illustrators, educators, & more in LA impacted by the wildfires ❤️

From now through February, donate $15 or more to their Emergency Grants and you’ll receive a free Libro.fm audiobook credit.
January 30, 2025 at 5:21 PM
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We're a registered Social Purpose Corporation, but what does that mean?

We pursue social goals, even if those goals conflict with our financial interests. This is because we deeply care about supporting indie bookshops & local communities.

We hope you'll join us for your audiobook listening ❤️
February 4, 2025 at 9:08 PM
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For the love of audiobooks...it's time for a reading challenge! 😍⁠

Between now and 2/15, if you read 10+ hours on audio, you'll earn a free Libro.fm audiobook credit! Plus, new members that sign up w/ code FORTHELOVE will get 3 audiobook credits for the price of 1.

Learn more: blog.libro.fm/love/
February 5, 2025 at 5:14 PM
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A1 Tansi! Hi! I’m a disabled Indigenous keynote speaker/singer. I’m also a trauma-informed personal mentor and virtual event host for Covid-conscious women. 🔗 in my bio. Been using Visible app daily since April 2024 and love it. I’m a 4/5 today after a crash yesterday. Thx for this #VisibleAppChat!
February 5, 2025 at 5:59 PM
Q2 has anything surprised you that can raise your heart rate? What sorts of things do, if you want to share?
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chronicillness #chroniclife
February 6, 2025 at 3:22 PM
Q1 introduce yourself however you feel comfortable (no dx or medical info needed, this is a public forum, unless you want to). Bonus points for pet pics!
#visibleappchat #visibleapp #mecfs #longcovid #pots #spoonie #chroniclife #chronicillness
February 4, 2025 at 4:33 PM
Using #visibleapp to pace with #mecfs / #longcovid? Join #visibleappchat for daily-ish questions and conversation. #spoonie #chroniclife #chronicillness #pots
I wanted to be more well thought out before starting #visibleappchat but if I do that, I'll never start because omg brain fog and fatigue! So here goes....
February 4, 2025 at 4:30 PM
I probably should have used #visibleapp too. 😅 #visibleappchat
February 4, 2025 at 4:28 PM