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unremarkableme.bsky.social
Unremarkable Me
@unremarkableme.bsky.social
500 followers 1.2K following 320 posts
Health and Wellness
EDS & hEDS Awareness
Chiari Malformation Awareness
Chronic Illness Awareness
Mass Cell Activation Syndrome
POTS


I have been fighting EDS, Chiari Malformation, Mass Cell Activation Syndrome, Scoliosis & POTS for 15 years.
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#UnremarkableMe #Chronicillness #EhlersDanlos #ChiariMalformation #hEDS #EDS
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www.UnremarkableMe.com/Music
June 3, 2025 at 6:48 AM
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#UnremarkableMe #chronicillness #EDS&Chiari #hEDS
June 9, 2025 at 6:09 PM
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#UnremarkableMe #EDS&Chiari
#EDS #ChronicIllness #hEDS
#ChiariMalformation
June 11, 2025 at 6:54 AM
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#Unremarkableme.com
#EDS #ChronicIllness #UnremarkableMe #EDS&Chiari
#hEDS #ChiariMalformation
June 16, 2025 at 8:06 AM
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UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:14 AM
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UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:25 AM
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#UnremarkableMe #hEDS #EDS #EDS&Chiari
June 17, 2025 at 7:50 PM
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unremarkableme.bsky.social
Beauty tips, chaos, and chronic illness—because glam doesn’t stop just ’cause your joints do.
#ChronicIllness #BeautyWithEDS #EDS #hEDS #DisabilityStyle #SpoonieBeauty #UnremarkableMe

www.unremarkableme.com/post/beauty-...
Beauty Survival Tips from a Chronically Ill Dreadful Hippy
By Antonia@UnremarkableMe, your local dreadful hippy and professional fashle enthusiastThere’s a particular kind of magic in learning to care for yourself when your body has stopped playing fair. It’s...
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April 18, 2025 at 7:58 AM
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Wobbly spine? Brain too low? Same. 💀 Here’s my journey with Ehlers-Danlos Syndrome and Chiari Malformation—because one weird diagnosis clearly wasn’t enough.
#EDS #ChiariMalformation #ChronicIllness #UnremarkableMe #hEDS #Chiari #Chronicillnessawareness

www.unremarkableme.com/post/my-jour...
My Journey: Ehlers-Danlos Syndrome & Chiari Malformation
The Brain That Moved House (and Other Chronic Illness Shenanigans)By Antonia at Unremarkable Me I wouldn’t call myself an expert—but I’ve read, researched, interrogated specialists, double-checked stu...
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April 30, 2025 at 8:53 AM
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Denial: The worst timeshare you’ll ever inherit. Comes with guilt, excuses, and a complimentary minibar of lies. No beach. Just burnout.
#ChronicIllness #DisabilityHumour #UnremarkableMe #SpoonieLife #EDS #MCAS #POTS #InvisibleIllness #Chiari #hEDS

www.unremarkableme.com/post/denial-...
Denial: The Worst Timeshare You’ll Ever Inherit
By Antonia @UnremarkableMePublished: June 2025Let’s Talk About DenialNot the cool, off-grid kind of denial where you bin your WiFi, raise goats, and learn the banjo. No—we’re talking about the chronic...
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June 6, 2025 at 7:10 AM
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#UnremarkableMe #chronicillness
#EDS #hEDS #EDS&Chiari
#Ehlersdanlos
June 9, 2025 at 9:18 AM
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#Unremarkableme #EDS&Chiari
#EDS #hEDS #ChiariMalformation
#Chronicillness
June 10, 2025 at 8:42 AM
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#UnremarkableMe #EDS&Chiari
#chronicIllness #EDS #hEDS #Chiarimalformation
June 11, 2025 at 7:06 AM
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#Unremarkableme #EDS #hEDS #EDS&Chiari
June 18, 2025 at 9:55 AM
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When inpatient and outpatient teams stop working together, patients get caught in the crossfire. It’s not just miscommunication—it’s system failure.
#ChronicIllness #HospitalCare ##EDS&Chiari #EDS #hEDS #UnremarkableMe #NHS #chiariMalformation

www.unremarkableme.com/post/the-bat...
The Battle of the Wards: How Outpatient and Inpatient Care Became a Tug of War (and Why We’re the Ones Getting Rope Burn)
By Antonia at Unremarkable MeWhere the System Ends and We BeginI’ve always said that navigating chronic illness is like being forced to play a game you don’t understand, where the rules change halfway...
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June 12, 2025 at 8:25 AM
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UnremarkableMe.com #hEDS
#EDS&Chiari
#ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
June 16, 2025 at 8:25 AM
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unremarkableme.bsky.social
You can laugh, cry, cope, collapse—and still get told you “look well.” That’s the chronic illness paradox in action.
#ChronicIllness #EDS #hEDS #EDS&Chiari #SpoonieTruth #InvisibleDisability #Chiari #UnremarkableMe

www.unremarkableme.com/post/the-chr...
The Chronic Illness Paradox
By Antonia @ Unremarkable Me | Published June 2025 I’ve had more experience justifying my mascara than some people have explaining their taxes. Because if you’re chronically ill and dare to look prese...
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June 24, 2025 at 7:45 AM
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#UnremarkableMe #EDS #hEDS #EDS&Chiari
June 19, 2025 at 9:52 AM
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achronicvoice.com
“The current system isn’t just inefficient—it’s actively harmful..We fall between departments. We get sent home from A&E with a leaflet & the subtle suggestion that it might all be in our heads.”: buff.ly/znjIYy2

#healthcare #disability #PatientCare #ChronicIllness
by @unremarkableme.bsky.social
“Whose Problem Is It Anyway?”: Why We Desperately Need a Safety Net for Complex and Undiagnosed Patients
By Toni, writer, professional lip-reader, medical maze-runner, and reluctant NHS ninjaPicture this: You’ve bounced around the NHS for years. You’ve seen so many specialists that your medical history…
buff.ly
May 18, 2025 at 12:30 PM
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ciaraarmstrong.bsky.social
My sister has one, my cousin has one, I have almost identical symptoms as them, but I can’t get a diagnostic MRI. Would love a wealth tax to pump $ into health so we have access to more resources…. It’s about $3.5 thousand dollars for an MRI privately, so that’s a no.
#Kikorangi #nzpol
May 25, 2025 at 11:14 AM
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achronicvoice.com
“ #Curiosity is Power. The more you learn, the more control you reclaim. #Knowledge won’t cure you, but it will help you make sense of the chaos.": buff.ly/9SRfgQy

#ChronicIllness #ChronicPain #disability
by @unremarkableme.bsky.social
Disability Guilt:Losing, Finding, and Learning to Live Again: The Emotional Journey of Chronic Illness
Imagine this. You’re walking through life, minding your own business, maybe even humming your favorite song, when suddenly—bam!—the ground gives way beneath your feet.One minute, everything is…
buff.ly
September 3, 2025 at 6:30 PM
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#NHS #NHSENGLAND
#UnremarkableMe
March 27, 2025 at 12:59 PM
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Living with EDS, a rebellious collarbone, and a brain that just won’t sit still. Join me on this bendy, bony, brain-squishing ride. #EDS #ChiariMalformation #ChronicIllness #SpoonieLife #hEDS #zebrastrong #UnremarkableMe #BeKindToYourself

www.unremarkableme.com/post/living-...
My Journey: EDS, Clavicle Chaos, and Chiari Malformation.
By Antonia@UnremarkableMe, Professional Human Pretzel and Part-Time Chaos Coordinator.If my life were a symphony, my connective tissue would be playing out of tune while the conductor stares blankly a...
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April 19, 2025 at 9:07 AM
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unremarkableme.bsky.social
You’ve got a diagnosis! Now what? Oh… right. The hope, the heartbreak, the “fix it” fantasy. Let’s talk cruel optimism and what really comes next. #ChronicIllness #DiagnosisJourney #NHS #EDS #hEDS #UnremarkableMe #UnremarkableMe #BeKindToYourself

www.unremarkableme.com/post/so-what...
“So… What Now?” The Cruel Optimism of Diagnosis
By Antonia at Unremarkable Me – who once genuinely believed that getting a diagnosis would mean getting a solution. There’s this story we’re all sold—the idea that once you’re diagnosed, the hard part...
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April 23, 2025 at 8:15 AM
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Ghosting and Chronic illness. 👻 Here’s why we fade, and how we reclaim space on our own terms.
#ChronicIllness #InvisibleDisability #EDSLife #MCAS #POTS #UnremarkableMe #Ehlersdanlos
#ChiariMalformation

www.unremarkableme.com/post/when-th...
When the Ghost Is You: Why People with Chronic Illness Disappear (And How We Can Show Up in Our Own Way)
By Antonia at Unremarkable MeConfession time: I ghost people.I ghost friends, family, chat groups, even the pizza delivery guy once because I couldn’t cope with the doorbell. But before you slap a “ba...
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May 19, 2025 at 5:10 AM