@twistedharmony.bsky.social
Chronic Pain Coach, Therapeutic Harpist, JHS/hEDS Warrior, Trauma Survivor, Exmo, Artist, YouTuber, Cozy Gamer.
Reposted
#ChronicIllness #LifeInPain #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #99PrescriptionsButAPainPillAintOne #UntreatedPainIsTorture #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #ButYouDontLookSick #InvisibleIllness #Depression
March 11, 2025 at 12:08 AM
Yay! I got to 5 degrees dorsiflexion today in PT. I’m progressing super fast now thanks to 50 min PT sessions and being consistent with my exercises. I also took my first bike ride since the accident and also did the rowing machine this week ❤️🙌🏻❤️ #trimalleolarfracture #brokenankle #physicaltherapy
March 10, 2025 at 7:12 PM
Yay! I got to 5 degrees dorsiflexion today in PT. I’m progressing super fast now thanks to 50 min PT sessions and being consistent with my exercises. I also took my first bike ride since the accident and also did the rowing machine this week ❤️🙌🏻❤️ #trimalleolarfracture #brokenankle #physicaltherapy
Ugh. Bruxism. Yep. You can break your own teeth. 😢 #bruxism #stress #anxiety #hEDs #eds #jhs #teeth #chippedtooth #chippedteeth
March 3, 2025 at 4:52 PM
Ugh. Bruxism. Yep. You can break your own teeth. 😢 #bruxism #stress #anxiety #hEDs #eds #jhs #teeth #chippedtooth #chippedteeth
February 27, 2025 at 12:29 AM
At PT today we broke through scar tissue and I gained 2 degrees dorsiflexion! Our goal is 10 degrees to be able to walk normally. 👍 #trimalleolarfracture #brokenankle #physicaltherapy
February 24, 2025 at 10:15 PM
At PT today we broke through scar tissue and I gained 2 degrees dorsiflexion! Our goal is 10 degrees to be able to walk normally. 👍 #trimalleolarfracture #brokenankle #physicaltherapy
I meant to post this art earlier this month before Valentine’s Day 💗 #blueskyartist #artist #illustration #fantasyartist #harp #harpist #art #fantasyart #valentinesart
February 21, 2025 at 4:19 PM
I meant to post this art earlier this month before Valentine’s Day 💗 #blueskyartist #artist #illustration #fantasyartist #harp #harpist #art #fantasyart #valentinesart
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"When people do not understand the state that I’m in, it makes me feel even worse during a flare. So whenever I’m in such a state, I accept it & know that it’s only temporary. It will pass and I will regenerate": https://buff.ly/2I00xg6 #PainFlare #ChronicPain #InvisibleIllness #resilient #spoonie
February 20, 2025 at 9:30 PM
"When people do not understand the state that I’m in, it makes me feel even worse during a flare. So whenever I’m in such a state, I accept it & know that it’s only temporary. It will pass and I will regenerate": https://buff.ly/2I00xg6 #PainFlare #ChronicPain #InvisibleIllness #resilient #spoonie
I officially filed for #disability today by mailing this bad boy in. I included the medical records that I had on hand. Let’s hope disability benefits are still a thing the next 4 years. #disabled #hEDS #eds #chronicpain #chronicillness
February 20, 2025 at 8:52 PM
I officially filed for #disability today by mailing this bad boy in. I included the medical records that I had on hand. Let’s hope disability benefits are still a thing the next 4 years. #disabled #hEDS #eds #chronicpain #chronicillness
I love it when I eat a russet potato and am up all night in joint and nerve pain. My enemies can take me out with a potato. A f*ckg 🥔. #nightshades #chronicpain #chronicillness #foodintolerance #foodsensitivity #hEDS #eds
February 20, 2025 at 5:35 PM
I love it when I eat a russet potato and am up all night in joint and nerve pain. My enemies can take me out with a potato. A f*ckg 🥔. #nightshades #chronicpain #chronicillness #foodintolerance #foodsensitivity #hEDS #eds
I like to pretend I’ve mastered most things in all my past “lifetimes” but this was the last one where I wanted to master the ultimate challenging physical life. Then I can graduate, have parties with kittens, cheese, and play with space glitter. 😆🤷♀️ Whatever helps right? #chronicillness #chronicpain
February 20, 2025 at 5:27 PM
I like to pretend I’ve mastered most things in all my past “lifetimes” but this was the last one where I wanted to master the ultimate challenging physical life. Then I can graduate, have parties with kittens, cheese, and play with space glitter. 😆🤷♀️ Whatever helps right? #chronicillness #chronicpain
I’m learning how to do it #depressed, do it #anxious, do it #tired, do it in pain, do it #angry, do it with #apathy and to be ok with it all. Just start and do the thing however you feel. #chronicpain #chronicillness #hEDS #EDS #depression #justdoit #disability #disabled #motivation
February 19, 2025 at 4:18 PM
I’m learning how to do it #depressed, do it #anxious, do it #tired, do it in pain, do it #angry, do it with #apathy and to be ok with it all. Just start and do the thing however you feel. #chronicpain #chronicillness #hEDS #EDS #depression #justdoit #disability #disabled #motivation
Physical therapy felt amazing today! That is all. #physicaltherapy #trimalleolarfracture #brokenankle #anklesurgery
February 17, 2025 at 5:28 PM
Physical therapy felt amazing today! That is all. #physicaltherapy #trimalleolarfracture #brokenankle #anklesurgery
Out of all the #chronicillness symptoms for #hEDS, #migraines that make me puke, almost dying in childbirth, #childhoodabuse and #trauma, #trimalleolarfracture, #appendectomy, #depression is the worst symptom that completely disables me. Depression. #disability #disabled #chronicpain
February 16, 2025 at 8:55 PM
Out of all the #chronicillness symptoms for #hEDS, #migraines that make me puke, almost dying in childbirth, #childhoodabuse and #trauma, #trimalleolarfracture, #appendectomy, #depression is the worst symptom that completely disables me. Depression. #disability #disabled #chronicpain
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I just want to be more creative, but all my energy is being used up to simply survive
February 7, 2025 at 1:02 AM
I just want to be more creative, but all my energy is being used up to simply survive
Meet Leo. He is almost 3 years old. He is a #flamepoint #siamesecat. He is a gentle giant, loves wand toys and food. He’s a big cowardly lion and amazing with kids. But he loves my sister more than me. Hmph. #cat #kitty
February 6, 2025 at 2:59 AM
Meet Leo. He is almost 3 years old. He is a #flamepoint #siamesecat. He is a gentle giant, loves wand toys and food. He’s a big cowardly lion and amazing with kids. But he loves my sister more than me. Hmph. #cat #kitty
Meet Skye. She is almost 2 years old. She survived wet #fip (feline corona virus) with experimental meds. We almost lost her. The shots and pills saved her as well as a couple belly fluid drains from the vet. She’s a miracle! #siamesecat #lynxpoint #kitty #cat
February 6, 2025 at 2:54 AM
Meet Skye. She is almost 2 years old. She survived wet #fip (feline corona virus) with experimental meds. We almost lost her. The shots and pills saved her as well as a couple belly fluid drains from the vet. She’s a miracle! #siamesecat #lynxpoint #kitty #cat
#trimalleolarfracture update. Screw is fine. 0 degrees dorsiflexion = limp and trip. It may take 1-2 years until I can walk normally with possible #arthritis. #brokenankle #disabled #disability
February 6, 2025 at 2:44 AM
#trimalleolarfracture update. Screw is fine. 0 degrees dorsiflexion = limp and trip. It may take 1-2 years until I can walk normally with possible #arthritis. #brokenankle #disabled #disability
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#Depression #LifeInPain #YourPainMatters #MyPainMatters #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #99PrescriptionsButAPainPillAintOne #ChronicPain #Fibromyalgia #ChronicFatigue #OccipitalNeuralgia #Migraine #TMJD #Osteoarthritis #ButYouDontLookSick #InvisibileIllness
February 5, 2025 at 6:12 PM
Heard this quote today… #angels #earthangels
February 3, 2025 at 3:51 PM
Heard this quote today… #angels #earthangels
Woah. It’s like they saw my earlier post. Yay! Playing #thesims on my #steamdeck 😃
February 1, 2025 at 3:27 AM
Woah. It’s like they saw my earlier post. Yay! Playing #thesims on my #steamdeck 😃
January 31, 2025 at 5:53 PM
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Soft but frail but the kind of youthful appearence only a zebra can make without ever having to alter their appearence.
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #chronicpain
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #chronicpain
January 21, 2025 at 6:28 PM
Soft but frail but the kind of youthful appearence only a zebra can make without ever having to alter their appearence.
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #chronicpain
#eds #heds #ehlersdanlos #ehlersdanlossyndrome #chronicpain
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January 28, 2025 at 4:15 PM
Reason number 7,624 you can’t sleep:
Your nose is freezing.
#insomnia #painsomnia #chronicillness #eds #jhs #heds #chronicpain
Your nose is freezing.
#insomnia #painsomnia #chronicillness #eds #jhs #heds #chronicpain
January 29, 2025 at 4:31 PM
Reason number 7,624 you can’t sleep:
Your nose is freezing.
#insomnia #painsomnia #chronicillness #eds #jhs #heds #chronicpain
Your nose is freezing.
#insomnia #painsomnia #chronicillness #eds #jhs #heds #chronicpain