Someone decided my take on living with sarcoidosis was “too upbeat,” like I’m out here harmonizing with woodland creatures while my body runs a nonstop group project I didn’t sign up for. But if you’ve ever tried to stay afloat in chronic illness while strangers critique your coping skills, you already know the real story isn’t about pretending—it’s about refusing to let misery run the whole kitchen…

Living with sarcoidosis means navigating prednisone side effects, adrenal failure, and the emotional chaos of a drug that saves your life while stealing your peace. After decades on prednisone—and …

Ever wondered what happens when an 18-year-old bank manager gets peer-pressured into a “mandatory meeting” that turns out to be rum shots and card games? Here’s the messy, hilarious, and surprisingly life-defining story of my first and only time getting drunk—complete with spinning rooms, questio...

As a chef, writer, and lifelong bookworm living with chronic illness, I’ve discovered that my Kindle isn’t just a gadget—it’s freedom. Between hospital visits, late-night writing sessions, and lazy Sundays with my pets, it lets me carry an entire library in my pocket without the weight or the gui...

Living with chronic illness brings sarcoidosis, heart failure, and an ICD that now syncs to my iPhone like it’s tracking my heart for a fitness challenge—but I’m grateful for the technology keeping me alive. This updated look at remote monitoring, reversed pulmonary hypertension, and modern cardiac care shows why complaining less and appreciating more can change everything.

Living with sarcoidosis means navigating prednisone side effects, adrenal failure, and the emotional chaos of a drug that saves your life while stealing your peace. After decades on prednisone—and four disastrous attempts to taper off—I’ve accepted that I’m on it for life, begrudgingly, impatiently, and with the kind of humor only chronic illness veterans understand.

Prednisone and sarcoidosis have been in a long-term relationship with my body for years, and lately they’ve added a new plus-one: diabetes. So I tried a CGM for “easy” blood sugar tracking—because …

Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity. Here’s how staying calm transformed my life, my work...

Living with chronic illness means collecting odd symptoms like souvenirs, but nothing prepared me for the nerve pain, phantom crawling, and burning sting shingles left behind. Here’s my long, winding, occasionally sarcastic journey with post-herpetic neuralgia, chronic pain, homeopathic experiments, and life with sarcoidosis—plus why an imaginary ant still runs laps on my face whenever it feels like it.

In a world obsessed with celebrity net worths and Instagram wealth, it’s easy to forget that our true value isn’t tied to money but to character, compassion, and integrity. As someone living with chronic illness, I’ve learned that self-worth has nothing to do with how much you earn—and everything...

Living with cardiac sarcoidosis isn’t a five-year countdown—it’s a masterclass in ignoring terrifying survival statistics, baffling specialists, and learning how to live fully in the moment. After twenty years of sarcoidosis, heart failure, and even pulmonary hypertension that mysteriously reversed itself, I’m still here, still cooking, still sarcastic, and still proving that numbers don’t get the final say. sarcoidosis

If you’ve ever tried to recreate a TV chef’s “simple” dinner and ended up wondering if you accidentally auditioned for a survival show, you’re not alone. As someone juggling sarcoidosis, heart failure, and a full-time chef life, let’s just say I’ve learned exactly how misleading those glossy cook...

Living with sarcoidosis, heart failure, and a grab-bag of medications means my energy cycle runs on its own chaotic schedule. Some days I’m unstoppable; others I’m barely upright. Here’s how I navigate the ups, downs, and surprisingly emotional middle ground of chronic illness.

Chronic illness can feel like a grief rollercoaster — denial, anger, and all the feelings in between. As someone living with sarcoidosis, heart failure, and a whole list of “don’ts,” I’ve stumbled my way through the stages of grief and found acceptance in the most unexpected places, like garden pots I can’t lift and reversible pulmonary hypertension. Here’s my real talk on surviving, adapting, and laughing through it all — with a side of stubborn positivity and sarcasm.

In a world overflowing with self-help books and symptom-specific blogs, what are we really searching for? As someone living with sarcoidosis, chronic illness, and a whole choir of organs trying to retire early, I’ve noticed that beyond the medical terms and hashtags, the word we’re truly chasing is simple: peace. My most-read post ever proved it.

Living with sarcoidosis, heart failure, and a body that treats oxygen like a luxury upgrade means learning to laugh at what hurts, carry what scares you, and drag that oxygen tank around even when you’re tired of feeling “not like the man you used to be.” This is my messy, honest, slightly sarcastic reminder that using oxygen doesn’t mean giving up—it means choosing to stay alive.

I showed up for a stress test expecting the usual treadmill humiliation—just me, some wires, and the subtle reminder that sarcoidosis doesn’t care about my plans. Instead, the numbers went rogue, the tech started bargaining with the screen, and I walked out with the kind of plot twist that makes you stare at your own body like, “Excuse me, who authorized this?”

Ever had someone snatch your phone while you were just trying to show them a picture? Twice in one day, it hit me how much of my entire life—accounts, passwords, memories, even my brain power—now lives inside this little iPhone. As a chef with sarcoidosis and heart failure who once memorized enti...