Thoughts While Surviving Chronic Illness
@tatebasildon.bsky.social
Private chef. Sarcoidosis-infused life commentary.
Heart failure, AICD, Diabetes and a stubborn refusal to quit.
Hosting a podcast, trying to stay alive and stay funny.
#sarcoidosis #chronicillness #heartfailure #livedexperience #patientvoice #diabetes
Heart failure, AICD, Diabetes and a stubborn refusal to quit.
Hosting a podcast, trying to stay alive and stay funny.
#sarcoidosis #chronicillness #heartfailure #livedexperience #patientvoice #diabetes
Some days breathing feels like I’m renting air on a month-to-month lease. But I’m still here. Still cooking. Still writing. Survival isn’t glamorous, but it has its moments.
#sarcoidosis
#sarcoidosis
December 28, 2025 at 12:59 AM
Some days breathing feels like I’m renting air on a month-to-month lease. But I’m still here. Still cooking. Still writing. Survival isn’t glamorous, but it has its moments.
#sarcoidosis
#sarcoidosis
They asked if anything changed since the last visit. Yes. My patience. #sarcoidosis #patientexperience
December 27, 2025 at 11:41 PM
They asked if anything changed since the last visit. Yes. My patience. #sarcoidosis #patientexperience
If your body had a customer-service counter, what complaint would you file today?
#Sarcoidosis
#Sarcoidosis
December 27, 2025 at 9:13 PM
If your body had a customer-service counter, what complaint would you file today?
#Sarcoidosis
#Sarcoidosis
Sarcoidosis fatigue isn’t sleep deprivation; it’s system failure. #sarcoidosis #chronicfatigue
December 27, 2025 at 6:34 PM
Sarcoidosis fatigue isn’t sleep deprivation; it’s system failure. #sarcoidosis #chronicfatigue
Chef life: woke up ready to create culinary magic, only for my body to say, “Surprise! Today we’re playing Guess Which Organ Is Misbehaving.” I still made the dish. Chronic illness is unpredictable, but so am #sarcoidosis #ChronicIllness
December 27, 2025 at 4:05 PM
Chef life: woke up ready to create culinary magic, only for my body to say, “Surprise! Today we’re playing Guess Which Organ Is Misbehaving.” I still made the dish. Chronic illness is unpredictable, but so am #sarcoidosis #ChronicIllness
Once in my life I thought of getting into real estate. Then I realized I was not cut throat enough.
December 27, 2025 at 6:50 AM
Once in my life I thought of getting into real estate. Then I realized I was not cut throat enough.
I had turkey for lunch. Took a “quick nap.” Woke up at dinner. Ta da. That’s chronic illness math.
#HopeThisHelps #sarcoidosis #ChronicIllness
#HopeThisHelps #sarcoidosis #ChronicIllness
December 27, 2025 at 12:33 AM
I had turkey for lunch. Took a “quick nap.” Woke up at dinner. Ta da. That’s chronic illness math.
#HopeThisHelps #sarcoidosis #ChronicIllness
#HopeThisHelps #sarcoidosis #ChronicIllness
Living with Sarcoidosis is sitting in your car at the store and watching the incline thinking is it even worth it to go make a purchase?
#Sarcoidosis #ChronicIllness #ILD
#Sarcoidosis #ChronicIllness #ILD
December 26, 2025 at 10:31 PM
Living with Sarcoidosis is sitting in your car at the store and watching the incline thinking is it even worth it to go make a purchase?
#Sarcoidosis #ChronicIllness #ILD
#Sarcoidosis #ChronicIllness #ILD
So, today I had to say farewell to my beloved pulmonologist of the past twenty years. No, he did not die. His medical group dropped my insurance. He diagnosed my sarcoidosis. If it went out of the box, I don’t think I’ll be alive today.
1/3
1/3
December 26, 2025 at 5:35 PM
So, today I had to say farewell to my beloved pulmonologist of the past twenty years. No, he did not die. His medical group dropped my insurance. He diagnosed my sarcoidosis. If it went out of the box, I don’t think I’ll be alive today.
1/3
1/3
December 26, 2025 at 5:00 PM
December 26, 2025 at 5:00 PM
Loving the One Who Holds You Together When Chronic Illness Tries to Pull You Apart
Loving the One Who Holds You Together When Chronic Illness Tries to Pull You Apart
A heartfelt, humorous look at loving someone who stands by you through sarcoidosis, heart failure, and every medical plot twist life throws at you — a reminder that the strongest medicine is the person who refuses to let go.
tatebasildon.com
December 26, 2025 at 11:10 AM
Loving the One Who Holds You Together When Chronic Illness Tries to Pull You Apart
www.buzzsprout.com/2...
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity.
1/2
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity.
1/2
Silence, Sass, and Self-Control: How I Learned Not to Clap Back at Every Rude Receptionist
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity. Here’s how staying calm transformed my life, my work...
www.buzzsprout.com
December 25, 2025 at 5:32 PM
www.buzzsprout.com/2...
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity.
1/2
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity.
1/2
A very special Christmas to all of my fellow Sarcoidosis and chronic illness soldiers. May you have a wonderful, symptom free day!
🎄🌲🎅
🎄🌲🎅
December 25, 2025 at 1:00 PM
A very special Christmas to all of my fellow Sarcoidosis and chronic illness soldiers. May you have a wonderful, symptom free day!
🎄🌲🎅
🎄🌲🎅
It is 4:00am on Christmas morning and I am wide awake.
Is it because I was out partying last night at some Christmas Eve shindig? Nope. Is it because I am hyper about Santa? Definitely not.
It’s because my freaking sarcoidosis won’t let me sleep.
1/3
Is it because I was out partying last night at some Christmas Eve shindig? Nope. Is it because I am hyper about Santa? Definitely not.
It’s because my freaking sarcoidosis won’t let me sleep.
1/3
December 25, 2025 at 9:04 AM
It is 4:00am on Christmas morning and I am wide awake.
Is it because I was out partying last night at some Christmas Eve shindig? Nope. Is it because I am hyper about Santa? Definitely not.
It’s because my freaking sarcoidosis won’t let me sleep.
1/3
Is it because I was out partying last night at some Christmas Eve shindig? Nope. Is it because I am hyper about Santa? Definitely not.
It’s because my freaking sarcoidosis won’t let me sleep.
1/3
When sarcoidosis and heart failure get heavy, I reach for childhood comfort—nostalgia, humor, and Asterix & Obelix. It helps more than people think.
#chronicillness #coping #livedexperience
#chronicillness #coping #livedexperience
Rediscovering Joy: Why Asterix & Obelix Became My Unexpected Chronic Illness Therapy
Living with chronic illness can be exhausting—but sometimes, the best medicine isn’t in a prescription bottle. For me, it came in the form of two tiny Gauls named Asterix and Obelix. This heartfelt reflection explores how nostalgia, humor, and childhood comfort shows like Asterix & Obelix...
www.buzzsprout.com
December 24, 2025 at 9:48 PM
When sarcoidosis and heart failure get heavy, I reach for childhood comfort—nostalgia, humor, and Asterix & Obelix. It helps more than people think.
#chronicillness #coping #livedexperience
#chronicillness #coping #livedexperience
My sleep is wrecked and energy gone. Sarcoidosis is screaming this week, so I took vacation. This is what “listening to your body” looks like when your body has its own agenda.
#sarcoidosis #heartfailure #chronicillness #livedexperience
#sarcoidosis #heartfailure #chronicillness #livedexperience
a little girl is playing on a swing in a park
Alt: a little girl is sleeping on a swing in a park. Her body is hung over the seat if the swing, her head, arms and feet hanging loosly
media.tenor.com
December 24, 2025 at 4:20 PM
My sleep is wrecked and energy gone. Sarcoidosis is screaming this week, so I took vacation. This is what “listening to your body” looks like when your body has its own agenda.
#sarcoidosis #heartfailure #chronicillness #livedexperience
#sarcoidosis #heartfailure #chronicillness #livedexperience
December 23, 2025 at 5:00 PM
Six months of delayed shipments and missing meds was enough. I left PillPack for a local pharmacy. If you rely on multiple prescriptions, learn from my mistake.
#chronicillness #medicationfail #patientstory
#chronicillness #medicationfail #patientstory
Why I Ditched PillPack: The Truth About Mail-Order Pharmacies and Medication Chaos.
After six months of delayed shipments, missing meds, and endless insurance headaches, I finally ditched Amazon’s PillPack and went back to my local pharmacy. If you live with chronic illness or juggle multiple prescriptions, here’s what you should know before trusting your meds to a mail-order ph...
www.buzzsprout.com
December 23, 2025 at 1:13 PM
Six months of delayed shipments and missing meds was enough. I left PillPack for a local pharmacy. If you rely on multiple prescriptions, learn from my mistake.
#chronicillness #medicationfail #patientstory
#chronicillness #medicationfail #patientstory
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
Dealing with chronic illness is hard enough, but throw family dynamics, silent siblings, and a surprise heart failure diagnosis into the pot and watch the whole stew boil over. This honest, humorous look at navigating distance, disappointment, and sarcoidosis reminds you how choosing peace sometimes means choosing yourself.
tatebasildon.com
December 23, 2025 at 11:08 AM
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
Chronic illness teaches restraint fast.
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
Silence, Sass, and Self-Control: How I Learned Not to Clap Back at Every Rude Receptionist
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity. Here’s how staying calm transformed my life, my work...
www.buzzsprout.com
December 23, 2025 at 12:56 AM
Chronic illness teaches restraint fast.
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
Chef, husband, pet-parent, writer.
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Cooking Through the Chaos: My Life With Sarcoidosis, Heart Failure & Debut Novel Dreams
I’m a chef, husband, pet-parent, and emerging novelist living with pulmonary sarcoidosis, heart failure and the wild ride of long-term prednisone treatment. If you’re juggling a chronic illness, creative ambitions and ordinary life chaos—you’re in the right place. Let’s talk survival, cooking, wr...
www.buzzsprout.com
December 22, 2025 at 10:06 PM
Chef, husband, pet-parent, writer.
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis flares exactly when you start trusting your body again. #sarcoidosis #chronicillnessreality
December 22, 2025 at 7:59 PM
Sarcoidosis flares exactly when you start trusting your body again. #sarcoidosis #chronicillnessreality
December 22, 2025 at 5:48 PM