Stephen
@sventh.bsky.social
Designer turned patient ♿ Here mainly to yell about it away from my main socials
This was my introduction to Ray Madoff and it was GOOD. Haven't yet read her book (The Second Estate), but even this talk at NYPL drops so much info about *how* exactly the ultra-wealthy has rigged the tax code to work in their favor, and also how they continue to get away with it (propaganda).
Ray D. Madoff with Gary Gulman: The Second Estate | LIVE from NYPL
YouTube video by The New York Public Library
www.youtube.com
November 24, 2025 at 6:29 AM
This was my introduction to Ray Madoff and it was GOOD. Haven't yet read her book (The Second Estate), but even this talk at NYPL drops so much info about *how* exactly the ultra-wealthy has rigged the tax code to work in their favor, and also how they continue to get away with it (propaganda).
Nice to see UK CCI patients banding together, and in the process getting an article out there about CCI.
While 0-3 neurosurgeons in the US diagnose and treat CCI (depending who you ask), access to care is dismal here, too. Hopefully someday this condition will get more recognition and research 🤞
While 0-3 neurosurgeons in the US diagnose and treat CCI (depending who you ask), access to care is dismal here, too. Hopefully someday this condition will get more recognition and research 🤞
Young Britons beg government for £150k neck ops abroad
The NHS doesn't offer the procedure, and UK private surgeons have stopped. Their only option is to raise £50,000-£150,000 each for neurosurgeons abroad.
www.express.co.uk
November 23, 2025 at 10:43 PM
Nice to see UK CCI patients banding together, and in the process getting an article out there about CCI.
While 0-3 neurosurgeons in the US diagnose and treat CCI (depending who you ask), access to care is dismal here, too. Hopefully someday this condition will get more recognition and research 🤞
While 0-3 neurosurgeons in the US diagnose and treat CCI (depending who you ask), access to care is dismal here, too. Hopefully someday this condition will get more recognition and research 🤞
My newest medical issue, while tragic in its own ways, is understood and largely measurable, and has been met with more attentive care and community support, and less ableism (and other -isms) than the rarer, harder to diagnose, or "invisible" conditions that originally knocked me down.
November 20, 2025 at 11:02 PM
My newest medical issue, while tragic in its own ways, is understood and largely measurable, and has been met with more attentive care and community support, and less ableism (and other -isms) than the rarer, harder to diagnose, or "invisible" conditions that originally knocked me down.
So impressed by my friend's piece in Forbes! She breaks down how Bangladesh, even amidst continuous political instability, has continued to grow bc of its sustainable businesses that meet real needs and don't rely on political protections. (...kinda the opposite of the companies driving US growth?)
What Bangladesh Teaches Us About Resilient Capitalism
Bangladesh’s political transition offers powerful lessons for investors and businesses and anyone navigating rising global uncertainty — from emerging markets to the U.S.
www.forbes.com
November 19, 2025 at 3:46 PM
So impressed by my friend's piece in Forbes! She breaks down how Bangladesh, even amidst continuous political instability, has continued to grow bc of its sustainable businesses that meet real needs and don't rely on political protections. (...kinda the opposite of the companies driving US growth?)
I can't believe this sentence, but I was recently injured by a test performed *for another injury I'd sustained from a different test.*
Today, we checked if treatment for the recent one's been effective. I told the Dr. I was optimistic. My results: 0 objective improvement.
Clowned again 🤡
Today, we checked if treatment for the recent one's been effective. I told the Dr. I was optimistic. My results: 0 objective improvement.
Clowned again 🤡
November 18, 2025 at 10:11 PM
I can't believe this sentence, but I was recently injured by a test performed *for another injury I'd sustained from a different test.*
Today, we checked if treatment for the recent one's been effective. I told the Dr. I was optimistic. My results: 0 objective improvement.
Clowned again 🤡
Today, we checked if treatment for the recent one's been effective. I told the Dr. I was optimistic. My results: 0 objective improvement.
Clowned again 🤡
Reposted by Stephen
You can opt out of the new Amazon hand scanners at NYU Langone facilities.
Check in by name on the kiosk, and X out of the hand scanner enrollment when it comes up.
Desk staff are supposed to help with this if you say you want to opt out.
Check in by name on the kiosk, and X out of the hand scanner enrollment when it comes up.
Desk staff are supposed to help with this if you say you want to opt out.
May 28, 2025 at 5:59 PM
You can opt out of the new Amazon hand scanners at NYU Langone facilities.
Check in by name on the kiosk, and X out of the hand scanner enrollment when it comes up.
Desk staff are supposed to help with this if you say you want to opt out.
Check in by name on the kiosk, and X out of the hand scanner enrollment when it comes up.
Desk staff are supposed to help with this if you say you want to opt out.
Just got a call about a genetics appointment I've been waiting a YEAR for saying that the doctor is no longer seeing #EDS patients, nor is anyone else at #NYULangone. No further explanation, no next steps.
Besides the logistical nightmare of it all, how do you think that leaves patients feeling?
Besides the logistical nightmare of it all, how do you think that leaves patients feeling?
November 12, 2025 at 6:45 PM
Just got a call about a genetics appointment I've been waiting a YEAR for saying that the doctor is no longer seeing #EDS patients, nor is anyone else at #NYULangone. No further explanation, no next steps.
Besides the logistical nightmare of it all, how do you think that leaves patients feeling?
Besides the logistical nightmare of it all, how do you think that leaves patients feeling?
Venting: my body hurts, my legs are jelly, my head is spinning, I'm short of breath. All from traveling from one Manhattan neighborhood to another for a 20 minute doctor's appointment that resulted in more bad news, and more appointments and tests I'm dreading having to leave the house again for.
November 5, 2025 at 9:12 PM
Venting: my body hurts, my legs are jelly, my head is spinning, I'm short of breath. All from traveling from one Manhattan neighborhood to another for a 20 minute doctor's appointment that resulted in more bad news, and more appointments and tests I'm dreading having to leave the house again for.
Sure I only made two calls phonebanking, and sure that was a few months ago, but he couldn't have done it without me
November 5, 2025 at 5:59 AM
Sure I only made two calls phonebanking, and sure that was a few months ago, but he couldn't have done it without me
Reposted by Stephen
Before its PBS and streaming premiere tonight, watch the prologue from "Born Poor" — FRONTLINE's documentary, made over 14 years, that follows kids in three families who try to overcome poverty from childhood through the teen years to young adulthood.
'Born Poor’ in America, They're Now Fighting to Shake Poverty’s Lingering Impact | FRONTLINE
Watch the prologue from "Born Poor" — a documentary made over 14 years that follows kids in three families who try to overcome poverty from childhood through the teen years to young adulthood.
www.pbs.org
October 7, 2025 at 8:42 PM
Before its PBS and streaming premiere tonight, watch the prologue from "Born Poor" — FRONTLINE's documentary, made over 14 years, that follows kids in three families who try to overcome poverty from childhood through the teen years to young adulthood.
Historically when Demi's music is very good, she's not - I hope my girl is ok bc this is a banger 💖
Demi Lovato - Kiss (Official Music Video)
YouTube video by DemiLovatoVEVO
youtu.be
October 11, 2025 at 3:17 AM
Historically when Demi's music is very good, she's not - I hope my girl is ok bc this is a banger 💖
This is a silly example, but honestly bots and rage bait need to be bigger news. The bots on TikTok alone are so inflammatory and easy to fall for, and get SO much engagement from real accounts. It's no wonder people are growing less trusting and more on edge offline as well.
September 27, 2025 at 2:16 AM
This is a silly example, but honestly bots and rage bait need to be bigger news. The bots on TikTok alone are so inflammatory and easy to fall for, and get SO much engagement from real accounts. It's no wonder people are growing less trusting and more on edge offline as well.
Reposted by Stephen
Reposted by Stephen
surely we can come up with something better for 7 billion people than being lorded over by a bunch of plundering elderly murder and torture enthusiasts who whisper to each other about printing spare organs so they can immiserate others in perpetuity
September 4, 2025 at 4:24 AM
surely we can come up with something better for 7 billion people than being lorded over by a bunch of plundering elderly murder and torture enthusiasts who whisper to each other about printing spare organs so they can immiserate others in perpetuity
Reposted by Stephen
Under Dr. Oz, Medicare is launching a pilot program that will use AI to determine whether patients would be covered for certain procedures.
Companies running the program will be paid a share of the savings from rejecting claims.
Who in their right mind voted for this? No one.
Companies running the program will be paid a share of the savings from rejecting claims.
Who in their right mind voted for this? No one.
September 2, 2025 at 5:03 PM
Under Dr. Oz, Medicare is launching a pilot program that will use AI to determine whether patients would be covered for certain procedures.
Companies running the program will be paid a share of the savings from rejecting claims.
Who in their right mind voted for this? No one.
Companies running the program will be paid a share of the savings from rejecting claims.
Who in their right mind voted for this? No one.
Welcome to my newest insurance hell – one I'm going to talk about because it's so absurd. I was recently awarded disability (amazing!), but due to a policy that I imagine is well-intended, my Medicare was backdated several months.... 🧵
August 31, 2025 at 2:07 AM
Welcome to my newest insurance hell – one I'm going to talk about because it's so absurd. I was recently awarded disability (amazing!), but due to a policy that I imagine is well-intended, my Medicare was backdated several months.... 🧵
Embarrassed I hadn't considered just how much (beyond viral outbreaks or religious psychosis) of what we deem "scary" is simply ableism, until I heard @zefrrr.bsky.social's beautiful essay in my new favorite spooky book
It Came from the Closet
Through the lens of horror - from Halloween to Hereditary - queer and trans writers consider the films that deepened, amplified, and illuminated their own experiences.Horror movies hold a complicated ...
share.libbyapp.com
August 31, 2025 at 12:41 AM
Embarrassed I hadn't considered just how much (beyond viral outbreaks or religious psychosis) of what we deem "scary" is simply ableism, until I heard @zefrrr.bsky.social's beautiful essay in my new favorite spooky book
Reposted by Stephen
Great episode & review of the evidence on fare free buses.
Also, love this line from @sgoodyear.bsky.social:
“We need these public spaces and public goods that bring together people from all walks of life, all backgrounds, to create solidarity in our society… the bus is uniquely able to do that”
Also, love this line from @sgoodyear.bsky.social:
“We need these public spaces and public goods that bring together people from all walks of life, all backgrounds, to create solidarity in our society… the bus is uniquely able to do that”
NEW EPISODE: "Should the Bus Be Free? With Yonah Freemark."
Zohran Mamdani has promised fast, free buses if he becomes mayor of NYC. It's a big idea, but is it a good one? @yonahfreemark.com walks us through the pros and cons, with examples from around the world.
podcasts.apple.com/us/podcast/s...
Zohran Mamdani has promised fast, free buses if he becomes mayor of NYC. It's a big idea, but is it a good one? @yonahfreemark.com walks us through the pros and cons, with examples from around the world.
podcasts.apple.com/us/podcast/s...
August 13, 2025 at 8:16 PM
Great episode & review of the evidence on fare free buses.
Also, love this line from @sgoodyear.bsky.social:
“We need these public spaces and public goods that bring together people from all walks of life, all backgrounds, to create solidarity in our society… the bus is uniquely able to do that”
Also, love this line from @sgoodyear.bsky.social:
“We need these public spaces and public goods that bring together people from all walks of life, all backgrounds, to create solidarity in our society… the bus is uniquely able to do that”
Reposted by Stephen
Age verification is here, and now UK Redditors can’t access their favorite LGBTQ+, political, or public health communities without destroying their anonymity. Help us fight to avoid this future. www.eff.org/deeplinks/2...
August 9, 2025 at 2:00 PM
Age verification is here, and now UK Redditors can’t access their favorite LGBTQ+, political, or public health communities without destroying their anonymity. Help us fight to avoid this future. www.eff.org/deeplinks/2...
Other versions the team considered:
1. "We can probably even find someone who'll drive YOU"
2. "Oh 👀 No promises"
#uxwriting
1. "We can probably even find someone who'll drive YOU"
2. "Oh 👀 No promises"
#uxwriting
August 8, 2025 at 8:49 PM
Other versions the team considered:
1. "We can probably even find someone who'll drive YOU"
2. "Oh 👀 No promises"
#uxwriting
1. "We can probably even find someone who'll drive YOU"
2. "Oh 👀 No promises"
#uxwriting
Very accessible read about how digital privacy = safety when, @stribs.bsky.social says simply, "cultural and legal changes within the United States are making it more difficult to escape harm."
Anxiously (literally) awaiting his book 🫥
Anxiously (literally) awaiting his book 🫥
I wrote about this incident in the context of how so many people need to update their threat models now in the United States who may never have considered their privacy and safety before: stribs.medium.com/its-time-to-...
August 6, 2025 at 7:05 PM
Very accessible read about how digital privacy = safety when, @stribs.bsky.social says simply, "cultural and legal changes within the United States are making it more difficult to escape harm."
Anxiously (literally) awaiting his book 🫥
Anxiously (literally) awaiting his book 🫥
I am the blueprint.
(This is really funny but you might not get it because it assumes you know I had to leave my career in product design because of disability and not because of superior foresight, and I'm obviously not going to explain a joke because everyone knows not to do that)
(This is really funny but you might not get it because it assumes you know I had to leave my career in product design because of disability and not because of superior foresight, and I'm obviously not going to explain a joke because everyone knows not to do that)
There will be no such thing as a “Product Designer” by 2030.
August 6, 2025 at 4:02 AM
I am the blueprint.
(This is really funny but you might not get it because it assumes you know I had to leave my career in product design because of disability and not because of superior foresight, and I'm obviously not going to explain a joke because everyone knows not to do that)
(This is really funny but you might not get it because it assumes you know I had to leave my career in product design because of disability and not because of superior foresight, and I'm obviously not going to explain a joke because everyone knows not to do that)
iykyk (but iydk: youtu.be/1uosIpj-CRs?...)
August 6, 2025 at 12:06 AM
iykyk (but iydk: youtu.be/1uosIpj-CRs?...)
Only read the abstract, but it's not looking good for nepo baby PR
📈New research in Personality and Social Psychology Bulletin reveals fascinating differences in how children respond to unfairness. Kids from lower social classes were more likely to step in when they witnessed unfair treatment.
Learn more: ow.ly/U1n150Wy3kF
Learn more: ow.ly/U1n150Wy3kF
July 31, 2025 at 11:10 PM
Only read the abstract, but it's not looking good for nepo baby PR