sp1ngirl.bsky.social
@sp1ngirl.bsky.social
Parent to a child with SEN. Often found advocating for support for own family and others. Likes to learn/share info on related issues incl. UK law/policy. Retweets are not necessarily endorsements.
Reposted
Last month, I found out I have hypermobile Ehlers Danlos Syndrome, after decades of chronic pain and medical disinterest.

I've decided to write publicly about this, not just about hypermobility and its health impacts, but about how it feels when doctors don't care:

medium.com/p/4fea6398b8ba
Welcome to my body
After twenty years of pain and repeated medical dead ends, a stranger sent me a message on Instagram. It led to a diagnosis all the doctors…
medium.com
November 26, 2025 at 5:20 PM
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Tomorrow we'll be hosting the first meeting of our parent and caregivers' advisory group. Here's a reminder of how expert voices will shape #WaitUpSLT #research ⤵️
waitupslt.blogspot.com/2025/07/phas...
How expert voices will shape WAIT-UP SLT: A look at our advisory groups
Research should be designed and carried out in partnership with the communities that it seeks to represent.  WAIT-UP SLT therefore adopts a ...
waitupslt.blogspot.com
November 30, 2025 at 7:35 PM
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🎁🎄
Our chocolate boxes feel extra magical this time of the year! ✨

If you’re looking for something thoughtful, delicious, and a little bit showy under the Christmas tree, this is it. Treat someone you love or create a box just for yourself. A little luxury never hurts. 🎄🍫
November 23, 2025 at 8:24 PM
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He really does.
November 30, 2025 at 9:24 AM
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Extremely grim consequence of Home Sec announcement of penalising claiming benefits claims in routes to settlement: a low-paid carer cancelling housing benefit, universal credit, and disability allowance for her autistic daughter’s personal care and mobility www.theguardian.com/uk-news/2025...
UK immigration status fears prompt carer to cancel benefits she is entitled to
Woman cancels all benefits including disability living allowance for daughter after policy change announcement
www.theguardian.com
November 29, 2025 at 1:16 PM
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We have written a special report looking at the people behind Reform in Wales.

This was a bizarre piece to write.
willhaywardwales.substack.com/p/special-re...
Special report: Who are Reform in Wales?
We dived into the wild world of Reform UK in Cymru
willhaywardwales.substack.com
November 30, 2025 at 9:13 AM
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So here's a thing. I help run my local food bank, and we're doing this: 12 Days of Christmas Giving.

It's the busiest time of year for us and we have to build up our stocks right through December.

I know you're not in N4, but all food banks are in the same boat, so if you can help please do! 🙏🎄
November 30, 2025 at 10:29 AM
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I wrote for @theobserveruk.bsky.social on the special needs problem highlighted by the budget and the big political battle over it coming next year.

share.google/kTTENR1gX4Y4...
Labour’s holiday homework: solve the problem of special needs education | The Observer
share.google
November 30, 2025 at 8:50 AM
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Ok folks, I've got a task I need help with.

I need to know about high money value detector finds found since 2019 (not including tudor heart or Chew Valley hoard) from news reports, social media posts etc.

England & Wales only.

Please share, thank you 😊

#Archaeology 🏺 #Treasure #Detecting
November 30, 2025 at 10:34 AM
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The exempt accommodation sector was always a bit dodgy. But this is next level.
November 30, 2025 at 10:39 AM
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Today is the anniversary of the Individuals with Disabilities Education Act. Not only did the law literally open doors to countless students with disabilities (myself included), it also had the unintended consequence of creating the moral panic around an autism "epidemic." 🧵 1/
November 30, 2025 at 3:57 AM
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A quick reminder that the Christmas cut off for USA and worldwide (non UK and EU) orders is only a week away, on Friday 5 December. If you were planning to order, make sure to get it in soon to guarantee delivery before Christmas. 🎄🍫
Luxury Artisan Chocolates | Chocolate Bars & Chocolate Gift Boxes
The Christmas Chocolate collection is here! Discover luxury artisan chocolates crafted in the UK. Deliciours chocolate treats and gift boxes
jenkinsemporium.co.uk
November 28, 2025 at 7:56 PM
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As Jesus said: “You’re on your own mate, not my problem”
November 28, 2025 at 11:07 AM
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What if we’re the shithole country?
Emmanuel, a 15-year-old with intellectual disabilities, wandered away from his mom’s fruit stand in October.

She reported him missing to Houston police. But instead of reuniting them, the city turned him over to ICE.

“They’re failing all of us,” his mom said.

thebarbedwire.com/2025/11/24/d...
A Disabled Child’s Mom Reported Him Missing. He Was Locked Away by Federal Immigration Authorities for 48 Days.
Emmanuel, a 15-year-old who has an intellectual disability, walked away from his mom’s fruit stand in October. Houston Police called ICE.
thebarbedwire.com
November 25, 2025 at 9:48 PM
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Children in complex situations at risk of deprivation of liberty – in conversation with Dr Susannah Bowyer

In this 'in conversation' with, I talk to Dr Susannah Bowyer, Deputy Director at Research in Practice, about the recent research paper published by Research in Practice and the National…
Children in complex situations at risk of deprivation of liberty – in conversation with Dr Susannah Bowyer
In this 'in conversation' with, I talk to Dr Susannah Bowyer, Deputy Director at Research in Practice, about the recent research paper published by Research in Practice and the National Children's Bureau (commissioned by DfE) entitled (snappily) Improving the outcomes of looked-after children and young people in complex situations with multiple needs, at risk or subject to a Deprivation of Liberty.  
www.mentalcapacitylawandpolicy.org.uk
November 25, 2025 at 1:31 PM
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Was it by having no kids with chronic illness at the school?
Must let everyone else know how they managed that.
I hate these sorts of stories.
The Caerphilly school with almost 100% attendance - and how they did it
Attendance rates remain significantly lower than in 2019, but one school is bucking the trend.
www.bbc.co.uk
November 25, 2025 at 12:35 PM
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Sometimes wonder if what the UK needs is a thinktank that doesn't do any new research, it just repeats obviously true statements that people try to ignore because they're inconvenient.

International students cross-subsidise home students. Your pension is paid for out of general taxation.
November 25, 2025 at 1:01 PM
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ICE arrests, detains British woman with US husband and newborn when she shows up for her green card interview. She’s now in a detention center, separated from her 6-month-old. No criminal record. She had overstayed her visa.

www.lbc.co.uk/article/brit...
British mum detained by ICE agents in California as six-month old baby and stunned husband watch on | LBC
Katie Paul, 33, was in the process of applying for a green card when she was ambushed by immigration agents
www.lbc.co.uk
November 25, 2025 at 11:13 AM
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Carers shouldn't need courage to claim Carer's Allowance.

If today's review resolves this, it's a win thanks to carers and investigative journalism.

Independent Review of Carer’s Allowance Overpayments
www.gov.uk
November 25, 2025 at 1:51 PM
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today's round of online-radicalised racist rent-a-mentals www.thetimes.com/uk/education...
Mothers trying to learn English face demonstration outside school
The protest follows a campaign by YouTube influencers against schools offering migrant parents lessons to improve their language skills
www.thetimes.com
November 25, 2025 at 11:54 AM
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A firestorm has ripped through the BBC, but no one can quite put their finger on why. An analysis of yesterday's curious hearing into an undoubted PR coup by those who wish the BBC ill www.prospectmagazine.co.uk/ideas/media/...
A firestorm has ripped through the BBC—but no one will say why
Called before MPs, none of the characters who supposedly see so much wrong with the corporation would make a case for institutional bias
www.prospectmagazine.co.uk
November 25, 2025 at 11:59 AM
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I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.

They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
November 25, 2025 at 9:26 AM
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Auntie In The Dock: my SKETCH of Today in People Who Love The BBC And Definitely Didn't Leak Anything To The Telegraph.
Auntie in the dock | Robert Hutton | The Critic Magazine
“I have been defined by these two years at Number 10,” Robbie Gibb complained, sounding for all the world like the chap in the joke who only shagged one sheep. How dare anyone suggest that this…
thecritic.co.uk
November 24, 2025 at 9:43 PM
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AutismNews
Autism Act has failed to bring meaningful change for autistic people, new Lords’ report finds
Autism Act has failed to bring meaningful change for autistic people, new Lords’ report finds - Learning Disability Today
The House of Lords Special Inquiry Committee on the Autism Act 2009 has published a new report examining what the Government needs to do to develop an effective new strategy for launch in July 2026, w...
www.learningdisabilitytoday.co.uk
November 25, 2025 at 8:18 AM