Esther
@shakinginmyboots.bsky.social
Wife, mom, Activist YOPD Ambassador Parkinson’s Foundation Board Member. Past life hospital Quality Director MSHA, CPHQ
El Paso, TX 🏠
https://linktr.ee/elabibkiyarash
El Paso, TX 🏠
https://linktr.ee/elabibkiyarash
Since I can’t seem to coax Gavin over here I will direct you to his blog. The closest thing to Parky Yoda I have met #parkinsons
yourmove.fitness/blog/f/up-si...
yourmove.fitness/blog/f/up-si...
Up-side to Down
Having now spent almost 1/3 of my life with Parkinson’s, I feel like I’m finally understanding how to turn this mutha’ ***** on its head. Well, sometimes anyway.
yourmove.fitness
March 7, 2025 at 5:08 PM
Since I can’t seem to coax Gavin over here I will direct you to his blog. The closest thing to Parky Yoda I have met #parkinsons
yourmove.fitness/blog/f/up-si...
yourmove.fitness/blog/f/up-si...
Ellen Bookman , a person with Parkinson’s,writes a beautiful letter to her daughter
www.keepfngoing.com/post/a-lette...
www.keepfngoing.com/post/a-lette...
A Letter to my daughter.
Parkinson's is a challenging journey, both for me and for those who love me..
www.keepfngoing.com
February 27, 2025 at 3:33 AM
Ellen Bookman , a person with Parkinson’s,writes a beautiful letter to her daughter
www.keepfngoing.com/post/a-lette...
www.keepfngoing.com/post/a-lette...
Reposted by Esther
The thing about destroying NIH is NIH’s scale in medical research just dwarfs everyone else.
For ex, in 2023 the American Cancer Society gave out $64.5 million worth of grants. Sounds big, right?
But NIH’s budget was $49 billion. With a B.
Kill NIH and the floor drops out of US science.
For ex, in 2023 the American Cancer Society gave out $64.5 million worth of grants. Sounds big, right?
But NIH’s budget was $49 billion. With a B.
Kill NIH and the floor drops out of US science.
HHS might as well be wrapping a wire around a piece of metal and running a current through it and see what happens.
February 21, 2025 at 6:11 AM
Reposted by Esther
A man genetically destined to develop early Alzheimer's… doesn’t. Why?
A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins.
Anything else? (1/4)
🔗 www.nature.com/articles/s41...
A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins.
Anything else? (1/4)
🔗 www.nature.com/articles/s41...
Longitudinal analysis of a dominantly inherited Alzheimer disease mutation carrier protected from dementia - Nature Medicine
A rare case of asymptomatic dominantly inherited Alzheimer’s reveals confined tau pathology and unique proteomic features, highlighting potential resilience mechanisms decades beyond expected onset.
www.nature.com
February 18, 2025 at 1:54 AM
A man genetically destined to develop early Alzheimer's… doesn’t. Why?
A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins.
Anything else? (1/4)
🔗 www.nature.com/articles/s41...
A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins.
Anything else? (1/4)
🔗 www.nature.com/articles/s41...
I can handle my own spirituality thx. Go do Health stuff plz🤨 #hhs #parkinsons
February 15, 2025 at 3:38 PM
I can handle my own spirituality thx. Go do Health stuff plz🤨 #hhs #parkinsons
Reposted by Esther
Happy Valentine’s Day! Check out the first episode of the newest season of the Young Onst Parkinson’s Network’s Podcast “Living Well Starts Here” where Melissa Livingston and me talk about sex, intimacy & relationships with #parkinsonsdisease #yopd
yopn.podbean.com/e/navigating...
yopn.podbean.com/e/navigating...
February 14, 2025 at 8:19 PM
Happy Valentine’s Day! Check out the first episode of the newest season of the Young Onst Parkinson’s Network’s Podcast “Living Well Starts Here” where Melissa Livingston and me talk about sex, intimacy & relationships with #parkinsonsdisease #yopd
yopn.podbean.com/e/navigating...
yopn.podbean.com/e/navigating...
Reposted by Esther
Join us online next Wednesday for a webinar on Impulse Control Disorders: Understanding & Managing the Challenges.
This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW
This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW
Impulse Control Disorders: Understanding and Managing the Challenges
This webinar will explore what causes ICDs, how to manage them, and practical tools to support those impacted.
www.parkinson.org
February 14, 2025 at 7:00 PM
Join us online next Wednesday for a webinar on Impulse Control Disorders: Understanding & Managing the Challenges.
This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW
This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW
Reposted by Esther
Check out our latest podcast episode, featuring Melissa Grassia Chisholm, MS, CCC-SLP. In this episode, she explains how speech & swallowing problems can develop in people with Parkinson's & discusses diagnostic procedures, therapies, and programs that can help improve speech & swallowing. (1/2)
February 12, 2025 at 1:05 PM
Check out our latest podcast episode, featuring Melissa Grassia Chisholm, MS, CCC-SLP. In this episode, she explains how speech & swallowing problems can develop in people with Parkinson's & discusses diagnostic procedures, therapies, and programs that can help improve speech & swallowing. (1/2)
For someone who generally has a lot to say I am at a loss for words. Here’s some flowers #parkinsonsdisease
February 9, 2025 at 3:13 AM
For someone who generally has a lot to say I am at a loss for words. Here’s some flowers #parkinsonsdisease
Reposted by Esther
Rebecca Wallings, PhD, is leveraging her Parkinson’s Foundation Launch Award to investigate how aging impairs a type of immune cell outside the brain — & how this impairment impacts the development of PD. 🔬
Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings
Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings
Meet a Researcher Studying How Boosting Immune Cells Could Lead to a Preventative Parkinson’s Therapy
There is a lot to know about Parkinson's disease. Learn about symptoms, how it is diagnosed and what treatment options are available.
www.parkinson.org
February 6, 2025 at 1:00 PM
Rebecca Wallings, PhD, is leveraging her Parkinson’s Foundation Launch Award to investigate how aging impairs a type of immune cell outside the brain — & how this impairment impacts the development of PD. 🔬
Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings
Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings
Reposted by Esther
🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.
February 4, 2025 at 1:26 AM
🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.
“The Good Addiction “
open.substack.com/pub/shakingi...
open.substack.com/pub/shakingi...
Inbox | Substack
open.substack.com
January 28, 2025 at 3:20 PM
“The Good Addiction “
open.substack.com/pub/shakingi...
open.substack.com/pub/shakingi...
Reposted by Esther
Here is a guide to what a + α-synuclein seed amplification assay (αSyn-SAA) means for Parkinson’s.
✅ Confirms a clinical diagnosis
❌ Cannot diagnose asymptomatic people
❌ Doesn’t define PD biologically
❌ Can’t stage, predict progression, or monitor treatment
(1/2)
www.prd-journal.com/article/S135...
✅ Confirms a clinical diagnosis
❌ Cannot diagnose asymptomatic people
❌ Doesn’t define PD biologically
❌ Can’t stage, predict progression, or monitor treatment
(1/2)
www.prd-journal.com/article/S135...
The α-synuclein seed amplification assay: Interpreting a test of Parkinson's pathology
The α-synuclein seed amplification assay (αSyn-SAA) sensitively detects Lewy pathology,
the amyloid state of α-synuclein, in the cerebrospinal fluid (CSF) of patients with
Parkinson's disease (PD). Th...
www.prd-journal.com
January 26, 2025 at 4:55 PM
Here is a guide to what a + α-synuclein seed amplification assay (αSyn-SAA) means for Parkinson’s.
✅ Confirms a clinical diagnosis
❌ Cannot diagnose asymptomatic people
❌ Doesn’t define PD biologically
❌ Can’t stage, predict progression, or monitor treatment
(1/2)
www.prd-journal.com/article/S135...
✅ Confirms a clinical diagnosis
❌ Cannot diagnose asymptomatic people
❌ Doesn’t define PD biologically
❌ Can’t stage, predict progression, or monitor treatment
(1/2)
www.prd-journal.com/article/S135...
My thoughts on Anger and Parkinson’s open.substack.com/pub/shakingi...
Inbox | Substack
open.substack.com
January 25, 2025 at 2:26 PM
My thoughts on Anger and Parkinson’s open.substack.com/pub/shakingi...
Thank you @drisubramanian.bsky.social for raising awareness on the stigma we face as people with Parkinson’s. As always you are a shining example of what collaboration is🌷 @alliesiggy.bsky.social as always 👏👏
I am doing a fellowship in journalism to raise the voices in #parkinsons #healthcare my first publication on #stigma #neurology #mentalhealth #movement-disorders @parkinsondotorg.bsky.social @parkinsoncanada.bsky.social @shakinginmyboots.bsky.social @alliesiggy.bsky.social @michaelokun.bsky.social
‘Are you going to have dementia’? Parkinson’s community struggles to overcome stigma healthydebate.ca/2025/01/topi... @drisubramanian.bsky.social @healthydebate.bsky.social
Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁
Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁
January 24, 2025 at 4:12 PM
Thank you @drisubramanian.bsky.social for raising awareness on the stigma we face as people with Parkinson’s. As always you are a shining example of what collaboration is🌷 @alliesiggy.bsky.social as always 👏👏
Reposted by Esther
All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.
January 22, 2025 at 8:46 PM
All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.
Reposted by Esther
#yopd folks in america - the shutdown of NIH grant reviewing is going to have a major impact on Parkinson's disease research to mention just one disease among, well, all of them. yikes. #nih #parkinsons
January 23, 2025 at 3:20 PM
#yopd folks in america - the shutdown of NIH grant reviewing is going to have a major impact on Parkinson's disease research to mention just one disease among, well, all of them. yikes. #nih #parkinsons
Let me know when Amazon acquires DHHS
January 23, 2025 at 2:34 AM
Let me know when Amazon acquires DHHS
If history has taught us anything it is that the sick & disabled will be targeted first
January 23, 2025 at 2:20 AM
If history has taught us anything it is that the sick & disabled will be targeted first
I had my Mom enrolled in a monthly flower subscription service. I cancelled it as she has passed. They sent me a free bouquet and condolences. The Bouqs is my go to flower service. Direct from growers. Highly recommend
January 22, 2025 at 9:13 PM
I had my Mom enrolled in a monthly flower subscription service. I cancelled it as she has passed. They sent me a free bouquet and condolences. The Bouqs is my go to flower service. Direct from growers. Highly recommend
When I was diagnosed with Young Onset Parkinson’s I was so confident I was going to try ALL the things. Find some overlooked discovery or shortcut. Now I try & focus on learning about the disease and being grateful for what I have. It’s like a weight has been lifted off my shoulders
January 22, 2025 at 9:07 PM
When I was diagnosed with Young Onset Parkinson’s I was so confident I was going to try ALL the things. Find some overlooked discovery or shortcut. Now I try & focus on learning about the disease and being grateful for what I have. It’s like a weight has been lifted off my shoulders
Part of my frustration with social media rn is what I call “The Rise of the Device” the constant barage of gizmos and gadgets, jaw dropping videos of fellow Parkies dramatically freed from an array of symptoms. Is this helping? Maybe it’s just me. Good listen:
search.app/pCxDK46zfDHG...
search.app/pCxDK46zfDHG...
The Dramatic Cure
In recent months, many of us have become familiar with the sense of fear expressing itself in our bodies. We may feel restless or physically exhausted. At times, we may even have trouble catching our ...
search.app
January 21, 2025 at 1:22 AM
Part of my frustration with social media rn is what I call “The Rise of the Device” the constant barage of gizmos and gadgets, jaw dropping videos of fellow Parkies dramatically freed from an array of symptoms. Is this helping? Maybe it’s just me. Good listen:
search.app/pCxDK46zfDHG...
search.app/pCxDK46zfDHG...