Pauly
@rivercitypauly.bsky.social
Disabled Kentucky Colonel🫡
Guillain-Barré & ME/CFS 🌻
LGBTQIA+ Supporter🏳️🌈
Ally; Accomplice; Amplifier
Guillain-Barré & ME/CFS 🌻
LGBTQIA+ Supporter🏳️🌈
Ally; Accomplice; Amplifier
Sorry it’s been a couple of months since my last update, but a lot has been happening. Check out my latest update and please share. Thanks y’all!
gofund.me/4afef757
gofund.me/4afef757
Donate to Support Paul's Ongoing Battle with Guillain-Barré Syndrome, organized by Paul Blakeley
Hi - I’m Paul. I never thought I would have to start a Go Fun… Paul Blakeley needs your support for Support Paul's Ongoing Battle with Guillain-Barré Syndrome
gofund.me
November 6, 2025 at 10:23 PM
Sorry it’s been a couple of months since my last update, but a lot has been happening. Check out my latest update and please share. Thanks y’all!
gofund.me/4afef757
gofund.me/4afef757
Reposted by Pauly
American football is indefensible.
(This is a very hard read. Take care.)
A Stranger Shattered Their Lives. At First, They Didn’t Know Why. www.nytimes.com/2025/09/28/u...
(This is a very hard read. Take care.)
A Stranger Shattered Their Lives. At First, They Didn’t Know Why. www.nytimes.com/2025/09/28/u...
A Stranger Shattered Their Lives. At First, They Didn’t Know Why.
www.nytimes.com
September 28, 2025 at 4:18 PM
American football is indefensible.
(This is a very hard read. Take care.)
A Stranger Shattered Their Lives. At First, They Didn’t Know Why. www.nytimes.com/2025/09/28/u...
(This is a very hard read. Take care.)
A Stranger Shattered Their Lives. At First, They Didn’t Know Why. www.nytimes.com/2025/09/28/u...
Finally made it to a Buc-ee’s!
September 28, 2025 at 3:20 PM
Finally made it to a Buc-ee’s!
Reposted by Pauly
People always tell me that I should have more support.
That if my level of function was really “that bad” I would have help.
Please believe me when I tell you help doesn’t magically appear when you become disabled.
Unless you’re rich or have family support, you’re on your own.
That if my level of function was really “that bad” I would have help.
Please believe me when I tell you help doesn’t magically appear when you become disabled.
Unless you’re rich or have family support, you’re on your own.
September 16, 2025 at 5:48 AM
People always tell me that I should have more support.
That if my level of function was really “that bad” I would have help.
Please believe me when I tell you help doesn’t magically appear when you become disabled.
Unless you’re rich or have family support, you’re on your own.
That if my level of function was really “that bad” I would have help.
Please believe me when I tell you help doesn’t magically appear when you become disabled.
Unless you’re rich or have family support, you’re on your own.
Update - I have more feelings now:
Rage. Obvs
Tired. Righteous anger is exhausting
Hurt. Exhaustion exacerbates pain
Outraged. How TF could anyone do this alone?! I’ve only gotten this far with extensive help
Determined. Consulting lawyers and more
Annoyed. It shouldn’t be this hard.
Rage. Obvs
Tired. Righteous anger is exhausting
Hurt. Exhaustion exacerbates pain
Outraged. How TF could anyone do this alone?! I’ve only gotten this far with extensive help
Determined. Consulting lawyers and more
Annoyed. It shouldn’t be this hard.
All i feel is rage.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
September 17, 2025 at 7:06 PM
Update - I have more feelings now:
Rage. Obvs
Tired. Righteous anger is exhausting
Hurt. Exhaustion exacerbates pain
Outraged. How TF could anyone do this alone?! I’ve only gotten this far with extensive help
Determined. Consulting lawyers and more
Annoyed. It shouldn’t be this hard.
Rage. Obvs
Tired. Righteous anger is exhausting
Hurt. Exhaustion exacerbates pain
Outraged. How TF could anyone do this alone?! I’ve only gotten this far with extensive help
Determined. Consulting lawyers and more
Annoyed. It shouldn’t be this hard.
All i feel is rage.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
September 15, 2025 at 2:03 AM
All i feel is rage.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
I want the person that decided this to live in my shoes for just a few hours.
Let them endure everything this nightmare entails.
It wouldn’t just change their mind, it would drive them crazy.
Yes, I will appeal. Fuck this.
Reposted by Pauly
It’s been almost a month since I published a Disabled Ginger article.
My flare took my ability to write
The negative self talk crept in. I’m lazy. A failure. I should play through the pain.
This is internalized ableism. We are not lazy for resting.
There’s no prize for setting back your baseline
My flare took my ability to write
The negative self talk crept in. I’m lazy. A failure. I should play through the pain.
This is internalized ableism. We are not lazy for resting.
There’s no prize for setting back your baseline
September 12, 2025 at 12:01 AM
It’s been almost a month since I published a Disabled Ginger article.
My flare took my ability to write
The negative self talk crept in. I’m lazy. A failure. I should play through the pain.
This is internalized ableism. We are not lazy for resting.
There’s no prize for setting back your baseline
My flare took my ability to write
The negative self talk crept in. I’m lazy. A failure. I should play through the pain.
This is internalized ableism. We are not lazy for resting.
There’s no prize for setting back your baseline
In this update: milestones, news, and for a change, uplifting things!
Thank you for all of your kindness, generosity, and support. We appreciate you all for coming on this journey with us.
Here’s the latest update: gofund.me/4afef757
And here’s our Amazon Wishlist: www.amazon.com/hz/wishlist/...
Thank you for all of your kindness, generosity, and support. We appreciate you all for coming on this journey with us.
Here’s the latest update: gofund.me/4afef757
And here’s our Amazon Wishlist: www.amazon.com/hz/wishlist/...
Donate to Support Paul's Ongoing Battle with Guillain-Barré Syndrome, organized by Paul Blakeley
Hi - I’m Paul. I never thought I would have to start a Go Fun… Paul Blakeley needs your support for Support Paul's Ongoing Battle with Guillain-Barré Syndrome
gofund.me
September 4, 2025 at 2:56 PM
In this update: milestones, news, and for a change, uplifting things!
Thank you for all of your kindness, generosity, and support. We appreciate you all for coming on this journey with us.
Here’s the latest update: gofund.me/4afef757
And here’s our Amazon Wishlist: www.amazon.com/hz/wishlist/...
Thank you for all of your kindness, generosity, and support. We appreciate you all for coming on this journey with us.
Here’s the latest update: gofund.me/4afef757
And here’s our Amazon Wishlist: www.amazon.com/hz/wishlist/...
Literally my favorite movie, ever, and I love that it’s playing out in real time.
*Two guys looking at posters of the dictator’s face, one red and one blue*
Guy 1: “I think I’m going to vote Blue.”
Guy 2: “Vote for whoever you want - it’s a free dictatorship.”
*Two guys looking at posters of the dictator’s face, one red and one blue*
Guy 1: “I think I’m going to vote Blue.”
Guy 2: “Vote for whoever you want - it’s a free dictatorship.”
"How about Moon Over Parador?"
August 31, 2025 at 11:34 PM
Literally my favorite movie, ever, and I love that it’s playing out in real time.
*Two guys looking at posters of the dictator’s face, one red and one blue*
Guy 1: “I think I’m going to vote Blue.”
Guy 2: “Vote for whoever you want - it’s a free dictatorship.”
*Two guys looking at posters of the dictator’s face, one red and one blue*
Guy 1: “I think I’m going to vote Blue.”
Guy 2: “Vote for whoever you want - it’s a free dictatorship.”
No problem. Nothing to see here.
August 26, 2025 at 4:51 PM
No problem. Nothing to see here.
I had a flare up yesterday that caused intense pain and fatigue.
I slept about 21 hours but got almost no rest. I was only awake for little bits to eat and take meds. I had no capacity and no bandwidth.
I feel “better” today, but I still hurt and am still tired.
It never ends and is always cruel.
I slept about 21 hours but got almost no rest. I was only awake for little bits to eat and take meds. I had no capacity and no bandwidth.
I feel “better” today, but I still hurt and am still tired.
It never ends and is always cruel.
“I’m sorry you’re sick but get over it, it’s been five years”.
This is the literal opposite of an apology, and a perfect example of how people can’t understand chronic illness.
We can’t simply “get over it”.
It doesn’t matter how many years it’s been.
It’s always with us. Cruel & unrelenting.
This is the literal opposite of an apology, and a perfect example of how people can’t understand chronic illness.
We can’t simply “get over it”.
It doesn’t matter how many years it’s been.
It’s always with us. Cruel & unrelenting.
August 24, 2025 at 4:46 PM
I had a flare up yesterday that caused intense pain and fatigue.
I slept about 21 hours but got almost no rest. I was only awake for little bits to eat and take meds. I had no capacity and no bandwidth.
I feel “better” today, but I still hurt and am still tired.
It never ends and is always cruel.
I slept about 21 hours but got almost no rest. I was only awake for little bits to eat and take meds. I had no capacity and no bandwidth.
I feel “better” today, but I still hurt and am still tired.
It never ends and is always cruel.
Reposted by Pauly
Please make your resistance efforts accessible!
It’s important to commit to not leaving disabled people behind.
We can bring a lot to the fight, but it starts with a commitment to inclusion.
That includes wearing masks so you can keep yourselves (and us!) healthy!
It’s important to commit to not leaving disabled people behind.
We can bring a lot to the fight, but it starts with a commitment to inclusion.
That includes wearing masks so you can keep yourselves (and us!) healthy!
August 18, 2025 at 3:43 AM
Please make your resistance efforts accessible!
It’s important to commit to not leaving disabled people behind.
We can bring a lot to the fight, but it starts with a commitment to inclusion.
That includes wearing masks so you can keep yourselves (and us!) healthy!
It’s important to commit to not leaving disabled people behind.
We can bring a lot to the fight, but it starts with a commitment to inclusion.
That includes wearing masks so you can keep yourselves (and us!) healthy!
Reposted by Pauly
This is just classic, age-old ableist eugenics. It’s the exact same shit sold to us during the pandemic. “Don’t worry, it’s only the already disabled and chronically ill that are suffering and dying.” It’s all the same playbook. “Nothing to see here. Nobody with worth to worry about.”
I’m kind of speechless with this one. I can’t imagine the kind of person who continues to make the argument that it doesn’t count as real starvation if the kids were already sick.
August 18, 2025 at 11:44 AM
This is just classic, age-old ableist eugenics. It’s the exact same shit sold to us during the pandemic. “Don’t worry, it’s only the already disabled and chronically ill that are suffering and dying.” It’s all the same playbook. “Nothing to see here. Nobody with worth to worry about.”
Reposted by Pauly
Instead of telling a disabled person what they should or shouldn’t be able to do… ask them how you could help them accomplish what they need.
Listen to their struggles. Approach the situation with compassion.
Offer genuine support.
That’s the best way to be an ally.
Listen to their struggles. Approach the situation with compassion.
Offer genuine support.
That’s the best way to be an ally.
August 8, 2025 at 2:46 AM
Instead of telling a disabled person what they should or shouldn’t be able to do… ask them how you could help them accomplish what they need.
Listen to their struggles. Approach the situation with compassion.
Offer genuine support.
That’s the best way to be an ally.
Listen to their struggles. Approach the situation with compassion.
Offer genuine support.
That’s the best way to be an ally.
Reposted by Pauly
Disability is not a vacation.
It’s not like that time you took a week off sick from work.
It’s a 24/7 job. It’s unrelenting pain, fatigue and suffering.
It’s dealing with a medical system that ignores and gaslights you, a society that views you as expendable & people who resent you for existing
It’s not like that time you took a week off sick from work.
It’s a 24/7 job. It’s unrelenting pain, fatigue and suffering.
It’s dealing with a medical system that ignores and gaslights you, a society that views you as expendable & people who resent you for existing
August 2, 2025 at 5:15 AM
Disability is not a vacation.
It’s not like that time you took a week off sick from work.
It’s a 24/7 job. It’s unrelenting pain, fatigue and suffering.
It’s dealing with a medical system that ignores and gaslights you, a society that views you as expendable & people who resent you for existing
It’s not like that time you took a week off sick from work.
It’s a 24/7 job. It’s unrelenting pain, fatigue and suffering.
It’s dealing with a medical system that ignores and gaslights you, a society that views you as expendable & people who resent you for existing
My long awaited neurologist appointment was last week, and I have some updates. We would appreciate it if you could share the link. gofund.me/4afef757
Thank you for your continued support. It’s hard to express how grateful we are for each and every one of you, but we will continue to try!
Thank you for your continued support. It’s hard to express how grateful we are for each and every one of you, but we will continue to try!
Donate to Support Paul's Ongoing Battle with Guillain-Barré Syndrome, organized by Paul Blakeley
Hi - I’m Paul. I never thought I would have to start a Go Fun… Paul Blakeley needs your support for Support Paul's Ongoing Battle with Guillain-Barré Syndrome
gofund.me
August 3, 2025 at 5:28 PM
My long awaited neurologist appointment was last week, and I have some updates. We would appreciate it if you could share the link. gofund.me/4afef757
Thank you for your continued support. It’s hard to express how grateful we are for each and every one of you, but we will continue to try!
Thank you for your continued support. It’s hard to express how grateful we are for each and every one of you, but we will continue to try!
Reposted by Pauly
Scotland’s signs are delivering. Y’all understood the assignment. 😂
July 26, 2025 at 6:11 PM
Scotland’s signs are delivering. Y’all understood the assignment. 😂
Today’s 🚩 job ad:
Coordinator at $40k with a “flexible” schedule (i.e. OT hours but no OT pay) that requires a 2 year commitment (from you). Benefits include 401k or healthcare
“You get to work a lot, for not a lot, and choose between retirement and healthcare. But we’re like a family!”
Coordinator at $40k with a “flexible” schedule (i.e. OT hours but no OT pay) that requires a 2 year commitment (from you). Benefits include 401k or healthcare
“You get to work a lot, for not a lot, and choose between retirement and healthcare. But we’re like a family!”
a man with a beard is sitting at a table with his eyes closed and his hands on his wrists .
Alt: a man with a beard is sitting at a table with his eyes closed and his hands on his wrists. He moves his hands up to his face in a gesture of frustration.
media.tenor.com
July 25, 2025 at 1:57 PM
Today’s 🚩 job ad:
Coordinator at $40k with a “flexible” schedule (i.e. OT hours but no OT pay) that requires a 2 year commitment (from you). Benefits include 401k or healthcare
“You get to work a lot, for not a lot, and choose between retirement and healthcare. But we’re like a family!”
Coordinator at $40k with a “flexible” schedule (i.e. OT hours but no OT pay) that requires a 2 year commitment (from you). Benefits include 401k or healthcare
“You get to work a lot, for not a lot, and choose between retirement and healthcare. But we’re like a family!”
I’ve posted an update on my condition and general state of things. Please check it out, and thank you all for everything that you’ve done and continue to do. It means the world to us!
gofund.me/4afef757
gofund.me/4afef757
June 29, 2025 at 11:55 PM
I’ve posted an update on my condition and general state of things. Please check it out, and thank you all for everything that you’ve done and continue to do. It means the world to us!
gofund.me/4afef757
gofund.me/4afef757
Reposted by Pauly
Learning to rest is crucial when you’re chronically ill.
If you try and play through the pain, you can permanently set back your baseline.
Make sure you remember to rest your brain and your body.
That crushing brain fog that feels like scrambled eggs in your head?
That’s a warning sign to rest
If you try and play through the pain, you can permanently set back your baseline.
Make sure you remember to rest your brain and your body.
That crushing brain fog that feels like scrambled eggs in your head?
That’s a warning sign to rest
June 29, 2025 at 5:04 AM
Learning to rest is crucial when you’re chronically ill.
If you try and play through the pain, you can permanently set back your baseline.
Make sure you remember to rest your brain and your body.
That crushing brain fog that feels like scrambled eggs in your head?
That’s a warning sign to rest
If you try and play through the pain, you can permanently set back your baseline.
Make sure you remember to rest your brain and your body.
That crushing brain fog that feels like scrambled eggs in your head?
That’s a warning sign to rest
Reposted by Pauly
Disability justice is a very hard thing to advocate for
Disability will happen to almost everyone, so it’s in their best interest to help
But people are terrified of disability & desperate to believe they’ll be the exception
So they treat us appallingly. They don’t “get it” until it’s their turn
Disability will happen to almost everyone, so it’s in their best interest to help
But people are terrified of disability & desperate to believe they’ll be the exception
So they treat us appallingly. They don’t “get it” until it’s their turn
June 13, 2025 at 5:13 AM
Disability justice is a very hard thing to advocate for
Disability will happen to almost everyone, so it’s in their best interest to help
But people are terrified of disability & desperate to believe they’ll be the exception
So they treat us appallingly. They don’t “get it” until it’s their turn
Disability will happen to almost everyone, so it’s in their best interest to help
But people are terrified of disability & desperate to believe they’ll be the exception
So they treat us appallingly. They don’t “get it” until it’s their turn
We all know that Sheriff Stay-Puft won’t be chasing anything himself, but we also know that he will order his sycophantic brownshirts to make good on these sickening threats.
June 13, 2025 at 5:37 PM
We all know that Sheriff Stay-Puft won’t be chasing anything himself, but we also know that he will order his sycophantic brownshirts to make good on these sickening threats.
In today’s episode of “🚩 jobs” I present this “COO/Integrator” ad
They basically say up front “we suck at what we’re doing and need you to fix it”
Their ideal candidate is “not seeking work life balance” with an 80+ hour workweek likely
$80-$130k salary is likely total or on target earnings
They basically say up front “we suck at what we’re doing and need you to fix it”
Their ideal candidate is “not seeking work life balance” with an 80+ hour workweek likely
$80-$130k salary is likely total or on target earnings
June 8, 2025 at 4:02 PM
In today’s episode of “🚩 jobs” I present this “COO/Integrator” ad
They basically say up front “we suck at what we’re doing and need you to fix it”
Their ideal candidate is “not seeking work life balance” with an 80+ hour workweek likely
$80-$130k salary is likely total or on target earnings
They basically say up front “we suck at what we’re doing and need you to fix it”
Their ideal candidate is “not seeking work life balance” with an 80+ hour workweek likely
$80-$130k salary is likely total or on target earnings
Reposted by Pauly
Being part of the labor force is not the difference between mattering and not mattering. That is false, it is dangerous, and it is deeply offensive.
June 7, 2025 at 5:20 PM
Being part of the labor force is not the difference between mattering and not mattering. That is false, it is dangerous, and it is deeply offensive.