Rebel
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rebellionista.bsky.social
Rebel
@rebellionista.bsky.social
Single mum. Expert napper. Pet wrangler. Severe ME/CFS, mostly bedridden. Mr22 & I are AuDHD. Former gifted child. Reformed TV producer. Live for horror movies. Life is a roller coaster.
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This is a thread about leaving the house with #SevereME #MECFS #pwme

A few days ago I needed to get to the city for oral surgery

My alarm was set for 7:30am for an 8:30 ambulance pick up

They actually arrived at 7:45 😬
I had to try to rush around to get ready
What a night. That was some drama I did not need. Think I’m the only one left awake.

Luckily the storm has moved on, watch out Victorians. It’s a wet one. Patio flooded for a while there. Heaps of lightning too.

All good now. Cat and dog are both curled up in the lounge snoring.
November 22, 2025 at 12:49 PM
Had fun with the curtains today. Both sets are up now.

Waiting on a missing finial to be replaced on one of the rods. The small metal clips should be here in the next day or two, then I can hang them properly.

It’s taken 10 years to finish off window dressings. I started with newspaper!
November 22, 2025 at 12:09 PM
Mika sat by me and held my knee during the storm. So sweet.
November 22, 2025 at 10:52 AM
Power back on. Provider stated “lighting activity”. Almost every storm our power gets cut.

I’m prepared with lights and stuff. Kiddo though, it’s like someone has cut off his damn air :/
November 22, 2025 at 10:44 AM
Mr22 doesn’t cope with blackouts. It’s a shitshow
November 22, 2025 at 10:27 AM
Not a fan of the dark, as I lose balance, so have a power pack always charged to run the light projector. USB powered things are great in a blackout. I’m charging my phone with an even bigger power pack. We have lots of power failures in our area. Pays to be prepared.
November 22, 2025 at 9:23 AM
Damn it! 7:30pm and power is out. Not expected to be back till after midnight. Not impressed. Mr22 is virtually rabid. He’s having a bad day.

Storm is still going. Lots of rain, lightning, and very close thunder. Coco is coping remarkably well.
November 22, 2025 at 9:07 AM
Thundery tonight. It’s been grumbling for about an hour. Coco is camped out in my bedroom. She was medicated earlier, so she’s not fretting, just a little anxious. Really hope we don’t lose power.
November 22, 2025 at 7:54 AM
Quite a change!
November 22, 2025 at 7:50 AM
Someone wants dinner…
November 22, 2025 at 6:36 AM
Quite a nice view from the lounge room window. Looks especially beautiful after the good rain we’re having today.

Was still too overwhelmingly bright though, and seriously cold as soon as I opened the blind. Window film is coming. Wanted to give the room a little facelift :)
November 22, 2025 at 4:31 AM
Package containing curtains was delivered at 4:30am. I woke about 5am and hung them.

Waiting on some little hooks to be delivered, so I can hang them differently.

They look like nice curtains. Definitely what I ordered, which is a bonus.
November 22, 2025 at 3:57 AM
Reposted by Rebel
November 21, 2025 at 7:05 PM
Mr22 “What’s different? Something is different”

Me “Curtain rods”

Mr22 “Weren’t they always there?”

Haha. Nope. Never had curtains in the lounge or dining rooms. I think that means they look like they belong. I’ll take it as approval.
November 21, 2025 at 11:39 AM
I’ve been getting creative with my pill diary.

Take these pictures as my short term memory is useless and I need about 20 pills a day.

It’s impossible to keep track of everything I’ve taken in my head, so, pill photos.
November 21, 2025 at 11:19 AM
9pm and Mr22 is still out. He left at 10am. He’s going to be exhausted. I’m feeling a bit like I’m crashing from the dentist trip yesterday. Think the antibiotics are giving me munchies. Still needing a big long sleep. Hopefully soon.
November 21, 2025 at 10:41 AM
7pm and Mr22 is still out. It’s been quite relaxing. The gardener was inside for an hour putting up curtain rods. Lots of sitting up and chatting. Immediately horizontal when he went to work in the garden. lol. Cherry tree is netted. Weeds pulled. He even fed the cat. Mika will love him forever now.
November 21, 2025 at 8:42 AM
Pill pic of the day
November 21, 2025 at 7:39 AM
Feet up now! Cute gardener just left. He put up curtain rod brackets for me this week as well as gardening. Curtains are out for delivery.

This is my birthday present to myself, I’d like to see out the windows without being blinded. Part 1 sheer curtains. Part 2 will be window film.
a mosquito net is hanging over a bed in a room with a sliding glass door
Alt: a sheer white curtain is hanging in a room with a sliding glass door. It’s blowing with a gentle breeze
media.tenor.com
November 21, 2025 at 6:03 AM
Just installed a wifi globe in the kitchen. Long overdue. The damn light has been blinding me for years. It finally has a dimmable globe.
November 21, 2025 at 3:13 AM
Mr22 is out with his support worker to go watch cars racing. It’s gardener day here at home. Looking forward to having a chat.

Feeling a bit crappy after my outing yesterday. Didn’t get the big sleep I’d hoped for last night. Desperately trying to stay awake.
a cartoon cat is holding a camera in his hands and looking at it .
Alt: a cartoon cat, Tom from Tom and Jerry, is holding tape in his hands and taping his eyelids open
media.tenor.com
November 21, 2025 at 1:40 AM
100% this!
November 20, 2025 at 10:49 PM
Reposted by Rebel
November 20, 2025 at 4:27 PM
Reposted by Rebel
This is Cole. He is a deaf service dog at Dr. William Mennies Elementary School. He just turned 9, and all of his students learned sign language to sing him happy birthday at a massive party. 14/10 for all (IG: colethedeafdog)
November 20, 2025 at 9:16 PM