Bex
@rebeccajpw.bsky.social
#PalliativeCare, #experience-based co-design, #ebcd, #QualitativeResearch, assistant prof @JHSON, Londoner in the US/#immigrant, #nurse #dyslexia #SpectrumBrain. I also very much love the silly & the enjoyable & the interesting things.
Reposted by Bex
“In Finland, the number of homeless people has fallen sharply. Those affected receive a small apartment & counselling with no preconditions. 4 out of 5 people affected make their way back into a stable life. And all this is CHEAPER than accepting homelessness.”
Finland ends homelessness and provides shelter for all in need - scoop.me
In Finland, the number of homeless people has fallen sharply. Why? The country applies the "Housing First" concept agains homelessness.
thebetter.news
March 6, 2025 at 5:45 AM
“In Finland, the number of homeless people has fallen sharply. Those affected receive a small apartment & counselling with no preconditions. 4 out of 5 people affected make their way back into a stable life. And all this is CHEAPER than accepting homelessness.”
Reposted by Bex
ICYMI - Article in @theconversation.com Death doulas: helping people at the end of their life
theconversation.com/death-doulas...
theconversation.com/death-doulas...
Death doulas: helping people at the end of their life
There is a growing demand for people who help the terminally ill have a good death.
theconversation.com
February 26, 2025 at 11:42 AM
ICYMI - Article in @theconversation.com Death doulas: helping people at the end of their life
theconversation.com/death-doulas...
theconversation.com/death-doulas...
Reposted by Bex
It was fabulous to be a co-applicant on The Victoria & Stuart Project and even more so to see our overview paper published!
➡️ onlinelibrary.wiley.com/doi/10.1111/...
#research #palliativecare #learningdisabilities #hpm
➡️ onlinelibrary.wiley.com/doi/10.1111/...
#research #palliativecare #learningdisabilities #hpm
February 11, 2025 at 11:25 AM
It was fabulous to be a co-applicant on The Victoria & Stuart Project and even more so to see our overview paper published!
➡️ onlinelibrary.wiley.com/doi/10.1111/...
#research #palliativecare #learningdisabilities #hpm
➡️ onlinelibrary.wiley.com/doi/10.1111/...
#research #palliativecare #learningdisabilities #hpm
Reposted by Bex
I heard you like critical thinking. Come hang out February 20th and learn how to encourage it in any organization that's not actively opposed.
Evidence-based decision-making is possible!
www.eventbrite.com/e/lets-do-de...
Evidence-based decision-making is possible!
www.eventbrite.com/e/lets-do-de...
Let's Do Design Research Right!
A 3-hour workshop that compels you to rethink your approach to design research, ensuring you are more effective and influential.
www.eventbrite.com
February 10, 2025 at 11:53 PM
I heard you like critical thinking. Come hang out February 20th and learn how to encourage it in any organization that's not actively opposed.
Evidence-based decision-making is possible!
www.eventbrite.com/e/lets-do-de...
Evidence-based decision-making is possible!
www.eventbrite.com/e/lets-do-de...
Reposted by Bex
Your end of life patient now has terminal delirium. I hope it’s not because you applied a scopolamine patch, but even if you did, not to worry, there’s a very easy approach.
February 7, 2025 at 4:37 AM
Your end of life patient now has terminal delirium. I hope it’s not because you applied a scopolamine patch, but even if you did, not to worry, there’s a very easy approach.
Reposted by Bex
Given all these critical webpages are being taken down, this might be a good time to familiarize yourself with the Wayback Machine on Internet Archive. It can pull up pages that are no longer active:
web.archive.org
web.archive.org
Wayback MachineHamburger iconInternet Archive logoWeb iconTexts iconVideo iconAudio iconSoftware iconImages iconDonate iconEllipses iconDonate iconUser iconUpload iconSearch iconSearch iconSearch icon...
web.archive.org
January 31, 2025 at 11:20 PM
Given all these critical webpages are being taken down, this might be a good time to familiarize yourself with the Wayback Machine on Internet Archive. It can pull up pages that are no longer active:
web.archive.org
web.archive.org
Great news paper, well worth a read, likely a very useful citation when justifying qualitative methods in grants as well as papers.
My latest paper with #QRDC team comparing in person and remote qualitative data collection focusing on data quality and inclusion #IJNS #researchmethods #qualitativeresearch journals.sagepub.com/doi/10.1177/...
January 24, 2025 at 2:30 PM
Great news paper, well worth a read, likely a very useful citation when justifying qualitative methods in grants as well as papers.
Reposted by Bex
If you’re a federal govt employee targeted for leave or termination on the basis of your DEI work, please file an EEO (Equal Employment Opportunity) complaint & retain legal counsel.
I’m a former NIH PI. Happy to refer you to a law firm that has successfully sued the govt many times!
Pls repost 🙏❤️
I’m a former NIH PI. Happy to refer you to a law firm that has successfully sued the govt many times!
Pls repost 🙏❤️
January 24, 2025 at 10:02 AM
If you’re a federal govt employee targeted for leave or termination on the basis of your DEI work, please file an EEO (Equal Employment Opportunity) complaint & retain legal counsel.
I’m a former NIH PI. Happy to refer you to a law firm that has successfully sued the govt many times!
Pls repost 🙏❤️
I’m a former NIH PI. Happy to refer you to a law firm that has successfully sued the govt many times!
Pls repost 🙏❤️
Reposted by Bex
No don’t want the ‘Pro’ version of the computer, I want the ‘Amateur’, which doesn’t hide commands in obscure places, doesn’t want to keep updating everything all the time, and is on good speaking terms with the printer.
January 6, 2025 at 7:40 AM
No don’t want the ‘Pro’ version of the computer, I want the ‘Amateur’, which doesn’t hide commands in obscure places, doesn’t want to keep updating everything all the time, and is on good speaking terms with the printer.
Reposted by Bex
Recognition in the form of a Gisèle Pelicot Medal for the betterment of Womankind, with an attached monetary stipend similar to a Nobel Prize to be awarded yearly to a deserving woman is the least that could be done.
Some years there will be a need for multiple medals unfortunately.
Some years there will be a need for multiple medals unfortunately.
December 20, 2024 at 8:34 AM
Recognition in the form of a Gisèle Pelicot Medal for the betterment of Womankind, with an attached monetary stipend similar to a Nobel Prize to be awarded yearly to a deserving woman is the least that could be done.
Some years there will be a need for multiple medals unfortunately.
Some years there will be a need for multiple medals unfortunately.
Reposted by Bex
Some things a Brit might say to visitors when they want them to go. From the new book: Britain According to Very British Problems.
shorturl.at/j9gYd
shorturl.at/j9gYd
December 20, 2024 at 2:59 PM
Some things a Brit might say to visitors when they want them to go. From the new book: Britain According to Very British Problems.
shorturl.at/j9gYd
shorturl.at/j9gYd
A problem with being dyslexic and of the spectrum, which also though makes life funnier, is not always seeing what others do. First time I saw someone write 'OOO' in an email for 'out of office' I thought they were pretending to be a ghost for kicks and giggles. 👻
December 21, 2024 at 4:17 AM
A problem with being dyslexic and of the spectrum, which also though makes life funnier, is not always seeing what others do. First time I saw someone write 'OOO' in an email for 'out of office' I thought they were pretending to be a ghost for kicks and giggles. 👻
Reposted by Bex
People who've never been dependent on a paycheck should not get to decide how long you can go without yours.
December 19, 2024 at 6:58 PM
People who've never been dependent on a paycheck should not get to decide how long you can go without yours.
Reposted by Bex
I can hardly think of a better example of the moral decay in modern health care than a Goldman analyst noting that biotech cures for diseases like hepatitis are cool and all, until their success diminishes the business opportunity for pharmaceutical manufacturers.
www.cnbc.com/2018/04/11/g...
www.cnbc.com/2018/04/11/g...
Goldman Sachs asks in biotech research report: 'Is curing patients a sustainable business model?'
Goldman Sachs warns sales from the most successful disease treatments are difficult to maintain.
www.cnbc.com
December 19, 2024 at 11:57 PM
I can hardly think of a better example of the moral decay in modern health care than a Goldman analyst noting that biotech cures for diseases like hepatitis are cool and all, until their success diminishes the business opportunity for pharmaceutical manufacturers.
www.cnbc.com/2018/04/11/g...
www.cnbc.com/2018/04/11/g...
New word I'd like to coin:
'Frolleague'
Definition: colleagues who become friends.
@susiedent.com @academic-chatter.bsky.social
#academia #chums
'Frolleague'
Definition: colleagues who become friends.
@susiedent.com @academic-chatter.bsky.social
#academia #chums
December 17, 2024 at 3:30 PM
New word I'd like to coin:
'Frolleague'
Definition: colleagues who become friends.
@susiedent.com @academic-chatter.bsky.social
#academia #chums
'Frolleague'
Definition: colleagues who become friends.
@susiedent.com @academic-chatter.bsky.social
#academia #chums
Reposted by Bex
Reposted by Bex
Proper chuffed to get this paper out.
@ginnybraun.bsky.social @vicclarke.bsky.social per my last post, I really hope we done you proud with this application of #RTA to #EBCD, would love (and slightly fear) your thoughts if you have time to read 😁
#qualitative
doi.org/10.1177/1049...
@ginnybraun.bsky.social @vicclarke.bsky.social per my last post, I really hope we done you proud with this application of #RTA to #EBCD, would love (and slightly fear) your thoughts if you have time to read 😁
#qualitative
doi.org/10.1177/1049...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
December 13, 2024 at 12:17 AM
Proper chuffed to get this paper out.
@ginnybraun.bsky.social @vicclarke.bsky.social per my last post, I really hope we done you proud with this application of #RTA to #EBCD, would love (and slightly fear) your thoughts if you have time to read 😁
#qualitative
doi.org/10.1177/1049...
@ginnybraun.bsky.social @vicclarke.bsky.social per my last post, I really hope we done you proud with this application of #RTA to #EBCD, would love (and slightly fear) your thoughts if you have time to read 😁
#qualitative
doi.org/10.1177/1049...
Reposted by Bex
December 5, 2024 at 7:24 PM
Reposted by Bex
Two stages of writing:
1) This shouldn't take too long
2) Oh no
1) This shouldn't take too long
2) Oh no
December 4, 2024 at 7:36 PM
Two stages of writing:
1) This shouldn't take too long
2) Oh no
1) This shouldn't take too long
2) Oh no
Reposted by Bex
There used to be an assumption that research participation is burdensome to palliative care patients. This is changing now. Altruism, legacy, and being heard - these can all be meaningful, even at the very end of life (see quote!)
Reflecting on lessons from hospice research nurses at #HospiceUKConf
Reflecting on lessons from hospice research nurses at #HospiceUKConf
December 3, 2024 at 12:59 PM
There used to be an assumption that research participation is burdensome to palliative care patients. This is changing now. Altruism, legacy, and being heard - these can all be meaningful, even at the very end of life (see quote!)
Reflecting on lessons from hospice research nurses at #HospiceUKConf
Reflecting on lessons from hospice research nurses at #HospiceUKConf
Reposted by Bex
“Say again” - I wasn’t listening
“Pardon?” - I didn’t hear you
“Eh?” - What are you on about?
“You what?” - What the hell are you on about?
“What did you just say?” - I might have to fight you
“I beg your pardon” - I might have to challenge you to a duel
“Pardon?” - I didn’t hear you
“Eh?” - What are you on about?
“You what?” - What the hell are you on about?
“What did you just say?” - I might have to fight you
“I beg your pardon” - I might have to challenge you to a duel
November 30, 2024 at 1:05 PM
“Say again” - I wasn’t listening
“Pardon?” - I didn’t hear you
“Eh?” - What are you on about?
“You what?” - What the hell are you on about?
“What did you just say?” - I might have to fight you
“I beg your pardon” - I might have to challenge you to a duel
“Pardon?” - I didn’t hear you
“Eh?” - What are you on about?
“You what?” - What the hell are you on about?
“What did you just say?” - I might have to fight you
“I beg your pardon” - I might have to challenge you to a duel
Reposted by Bex
Thanks @lbc.co.uk for having me on to discuss AD.
Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that.
But will they?
Or will they turn their backs on dying people?
www.lbc.co.uk/news/palliat...
Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that.
But will they?
Or will they turn their backs on dying people?
www.lbc.co.uk/news/palliat...
November 30, 2024 at 2:02 PM
Thanks @lbc.co.uk for having me on to discuss AD.
Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that.
But will they?
Or will they turn their backs on dying people?
www.lbc.co.uk/news/palliat...
Both Keir Starmer & Wes Streeting know full well how grossly underfunded UK palliative care is - & they have the power to change that.
But will they?
Or will they turn their backs on dying people?
www.lbc.co.uk/news/palliat...
Reposted by Bex
My direct appeal to @rthonwesstreeting.bsky.social
& Keir_Starmer in the light of yesterday's vote on AD.
If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?
www.theguardian.com/society/2024...
& Keir_Starmer in the light of yesterday's vote on AD.
If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?
www.theguardian.com/society/2024...
Good palliative care can alleviate the pain of dying – this bill means Labour must fund it | Rachel Clarke
Making dying easier is not the solution when NHS, social and palliative care are simply not there for patients
www.theguardian.com
November 30, 2024 at 8:32 AM
My direct appeal to @rthonwesstreeting.bsky.social
& Keir_Starmer in the light of yesterday's vote on AD.
If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?
www.theguardian.com/society/2024...
& Keir_Starmer in the light of yesterday's vote on AD.
If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care?
www.theguardian.com/society/2024...
Cannot figure out how to make a thread, but a thread could be a flutter, while a single post could be a flap!
November 26, 2024 at 5:19 PM
Cannot figure out how to make a thread, but a thread could be a flutter, while a single post could be a flap!