Raymond A. Wood Foundation
@rawoodfoundation.bsky.social
The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
What's happening in February!
Check out some upcoming events and RAWF initiatives and comment below if you want to get involved!
Check out some upcoming events and RAWF initiatives and comment below if you want to get involved!
February 2, 2026 at 2:38 PM
What's happening in February!
Check out some upcoming events and RAWF initiatives and comment below if you want to get involved!
Check out some upcoming events and RAWF initiatives and comment below if you want to get involved!
Team RAWF is getting ready to run the United NYC Half Marathon and we want you to join the team! There is 1 spot left on our team that guarantees entry into the race.
DM or email us if you want more info and to join!
#NYCHalfMarathon #UnitedNYCHalf #movingforamission
DM or email us if you want more info and to join!
#NYCHalfMarathon #UnitedNYCHalf #movingforamission
January 27, 2026 at 4:46 PM
Team RAWF is getting ready to run the United NYC Half Marathon and we want you to join the team! There is 1 spot left on our team that guarantees entry into the race.
DM or email us if you want more info and to join!
#NYCHalfMarathon #UnitedNYCHalf #movingforamission
DM or email us if you want more info and to join!
#NYCHalfMarathon #UnitedNYCHalf #movingforamission
Adrenal fatigue vs adrenal insufficiency: check out the blog for a dive into what is adrenal insufficiency, its complications, and the adrenal fatigue vs adrenal insufficiency.
zurl.co/Tl6AK
zurl.co/Tl6AK
January 26, 2026 at 4:43 PM
Adrenal fatigue vs adrenal insufficiency: check out the blog for a dive into what is adrenal insufficiency, its complications, and the adrenal fatigue vs adrenal insufficiency.
zurl.co/Tl6AK
zurl.co/Tl6AK
Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris!
Email outreach@rawoodfoundation.org to join
Email outreach@rawoodfoundation.org to join
January 20, 2026 at 2:40 PM
Join us for our Survivor Support group tonight at 7pm EST, hosted by brain tumor survivor Jason Burris!
Email outreach@rawoodfoundation.org to join
Email outreach@rawoodfoundation.org to join
We’re deeply thankful to everyone who has participated in Art of Surviving and contributed their art, stories, and hearts over the years.
Our future work will continue to honor that same spirit and we appreciate your continued support as we grow and evolve together.
Our future work will continue to honor that same spirit and we appreciate your continued support as we grow and evolve together.
January 15, 2026 at 5:01 PM
We’re deeply thankful to everyone who has participated in Art of Surviving and contributed their art, stories, and hearts over the years.
Our future work will continue to honor that same spirit and we appreciate your continued support as we grow and evolve together.
Our future work will continue to honor that same spirit and we appreciate your continued support as we grow and evolve together.
We're happy to share some of the most recent insights from our patient registry! Thank you to everyone who has joined and updated their information.
Become an active voice in research. Join our patient registry: zurl.co/pNSuS
Become an active voice in research. Join our patient registry: zurl.co/pNSuS
January 14, 2026 at 5:11 PM
We're happy to share some of the most recent insights from our patient registry! Thank you to everyone who has joined and updated their information.
Become an active voice in research. Join our patient registry: zurl.co/pNSuS
Become an active voice in research. Join our patient registry: zurl.co/pNSuS
Join us for our Caregiver Support group tonight at 8pm EST, hosted by caregiver and RAWF board member Eugenie Hsu!
Email outreach@rawoodfoundation.org to join
Email outreach@rawoodfoundation.org to join
January 13, 2026 at 2:42 PM
Join us for our Caregiver Support group tonight at 8pm EST, hosted by caregiver and RAWF board member Eugenie Hsu!
Email outreach@rawoodfoundation.org to join
Email outreach@rawoodfoundation.org to join
Registration is now open for Rare Disease Week 2026 on Capitol Hill. This free multi-day event, hosted by the Rare Disease Legislative Advocates, brings together rare disease advocates from across the country to make their voices heard.
Register for #RareDC2026 zurl.co/rLFj5
Register for #RareDC2026 zurl.co/rLFj5
January 8, 2026 at 5:04 PM
Registration is now open for Rare Disease Week 2026 on Capitol Hill. This free multi-day event, hosted by the Rare Disease Legislative Advocates, brings together rare disease advocates from across the country to make their voices heard.
Register for #RareDC2026 zurl.co/rLFj5
Register for #RareDC2026 zurl.co/rLFj5
After a holiday hiatus, our monthly support groups are back!
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email outreach@rawoodfoundation.org to join.
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email outreach@rawoodfoundation.org to join.
January 7, 2026 at 5:49 PM
After a holiday hiatus, our monthly support groups are back!
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email outreach@rawoodfoundation.org to join.
January 13th 8pm - Caregiver Support Group, hosted by caregiver and RAWF board member Eugenie Hsu
January 20th 7pm EST - Survivor Support group, hosted by brain tumor survivor Jason Burris
Email outreach@rawoodfoundation.org to join.
TODAY IS THE LAST DAY!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
January 4, 2026 at 3:35 PM
TODAY IS THE LAST DAY!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
👉 Take the survey before midnight tonight: zurl.co/BVBuC
Share your experience with acquired hypothalamic obesity and help our Canadian community!
You do not need to live in Canada to take part!
Happy New Year! The Raymond A. Wood foundation is off to a busy start. Here are just a few things to look forward to in January!
Email outreach@rawoodfoundation.org for more info about these exciting initiatives!
Email outreach@rawoodfoundation.org for more info about these exciting initiatives!
January 1, 2026 at 5:31 PM
Happy New Year! The Raymond A. Wood foundation is off to a busy start. Here are just a few things to look forward to in January!
Email outreach@rawoodfoundation.org for more info about these exciting initiatives!
Email outreach@rawoodfoundation.org for more info about these exciting initiatives!
“Never give up. Just keep looking forward.”
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
December 31, 2025 at 5:03 PM
“Never give up. Just keep looking forward.”
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
This is what one survivor shared when asked what helps most.
As we close out the year, we are grateful for this community and for the hope you help make possible.
Happy New Year, from the Raymond A. Wood Foundation!
Don't forget to take the survey to share your experience with acquired hypothalamic obesity!
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
December 26, 2025 at 3:28 PM
Don't forget to take the survey to share your experience with acquired hypothalamic obesity!
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
You do not need to live in Canada to take part.
Deadline: Sunday, January 4 (11:59 PM ET)
Take the survey now: Don't for zurl.co/BgGqn
Merry Christmas from the Raymond A. Wood Foundation team!
December 25, 2025 at 2:42 PM
Merry Christmas from the Raymond A. Wood Foundation team!
Ten years later, the challenges haven’t stopped. But neither has our fight.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
December 24, 2025 at 4:56 PM
Ten years later, the challenges haven’t stopped. But neither has our fight.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
This year has been one of our hardest. And it is exactly why this work matters more than ever.
Thank you for standing with families navigating the long-term realities of brain tumors and survivorship.
There is still time to share your experience with acquired hypothalamic obesity and help our Canadian community! Take the survey today – you do not need to live in Canada to participate!!
zurl.co/WIeE0
zurl.co/WIeE0
December 20, 2025 at 3:05 PM
There is still time to share your experience with acquired hypothalamic obesity and help our Canadian community! Take the survey today – you do not need to live in Canada to participate!!
zurl.co/WIeE0
zurl.co/WIeE0
The holiday season is often portrayed as a joyful time filled with perfect celebrations. But in reality, many caregivers are simply struggling to get through the day.
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Navigating Grief During the Holidays: Support, Compassion, and Care for Those Caring for Others - Raymond A. Wood Foundation
The holiday season is often portrayed as a joyful time filled with perfect celebrations, family ... Read more
zurl.co
December 18, 2025 at 7:17 PM
The holiday season is often portrayed as a joyful time filled with perfect celebrations. But in reality, many caregivers are simply struggling to get through the day.
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
Read our latest blog post for helpful tips on Navigating Grief During the Holidays
zurl.co/Vf277
📣 Have you or someone you love been diagnosed with acquired hypothalamic obesity? We want to hear from you! We are conducting a survey to understand the real-life impact of aHO on patients and caregivers.
✅ Take the survey today – zurl.co/ddwmv
✅ Take the survey today – zurl.co/ddwmv
December 16, 2025 at 2:00 PM
📣 Have you or someone you love been diagnosed with acquired hypothalamic obesity? We want to hear from you! We are conducting a survey to understand the real-life impact of aHO on patients and caregivers.
✅ Take the survey today – zurl.co/ddwmv
✅ Take the survey today – zurl.co/ddwmv
We're reflecting on our many accomplishments for 2025, and gearing up for an even stronger 2026! Watch this highlight reel for a quick glimpse of the impact we’ve made together, and check out the full blog post to see how we’re paving the way for a brighter 2025!
zurl.co/OBHNy
zurl.co/OBHNy
December 12, 2025 at 3:45 PM
We're reflecting on our many accomplishments for 2025, and gearing up for an even stronger 2026! Watch this highlight reel for a quick glimpse of the impact we’ve made together, and check out the full blog post to see how we’re paving the way for a brighter 2025!
zurl.co/OBHNy
zurl.co/OBHNy
We're so proud to have raised $116,000 at the DC's Dancing Stars Gala! Special thanks to our dancers Mike Brown and Adriana Fonseca for their dedication and amazing dance moves!
Their contributions will help take us next level in leading research and supporting patients and families.
Their contributions will help take us next level in leading research and supporting patients and families.
December 11, 2025 at 3:33 PM
We're so proud to have raised $116,000 at the DC's Dancing Stars Gala! Special thanks to our dancers Mike Brown and Adriana Fonseca for their dedication and amazing dance moves!
Their contributions will help take us next level in leading research and supporting patients and families.
Their contributions will help take us next level in leading research and supporting patients and families.
The holidays can be a time of joy & celebration. But for caregivers & those impacted by health challenges, the season often brings additional stress. Check out the RAWF blog for tips on how you can navigate these challenges & find support along the way
zurl.co/kOVKf
zurl.co/kOVKf
December 10, 2025 at 2:23 PM
The holidays can be a time of joy & celebration. But for caregivers & those impacted by health challenges, the season often brings additional stress. Check out the RAWF blog for tips on how you can navigate these challenges & find support along the way
zurl.co/kOVKf
zurl.co/kOVKf
The RAWF Patient Registry is a secure, confidential platform designed to collect real-world data from survivors and caregivers. Join to contribute to vital research and shape the future of care for this community.
Learn more zurl.co/Co0y7
Learn more zurl.co/Co0y7
December 8, 2025 at 4:32 PM
The RAWF Patient Registry is a secure, confidential platform designed to collect real-world data from survivors and caregivers. Join to contribute to vital research and shape the future of care for this community.
Learn more zurl.co/Co0y7
Learn more zurl.co/Co0y7
Our merch makes the best stocking stuffers!
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
December 5, 2025 at 4:26 PM
Our merch makes the best stocking stuffers!
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
If you want to give the gift that gives back, check out our shop for t-shirts, sweatshirts, and hats for adults and kids!
Don't wait until the last minute to order since holiday shipping will take time! zurl.co/nsL00
Thank you for standing with brain tumor survivors on #GivingTuesday.
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
December 3, 2025 at 2:13 PM
Thank you for standing with brain tumor survivors on #GivingTuesday.
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
Because of you and our generous $10,000 match, families have more tools, more support, and more hope.
Missed Giving Tuesday? You can still make a gift that supports our year-end goal: zurl.co/ZxNis
#GivingTuesday starts NOW.
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
December 2, 2025 at 3:20 PM
#GivingTuesday starts NOW.
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6
Thanks to a generous board member, every gift is matched up to $10,000 - your impact goes twice as far.
Help us start strong and give survivors the tools and support they need: zurl.co/LWVj6