Raymond A. Wood Foundation
@rawoodfoundation.bsky.social
The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
Today is World Diabetes Day!
On this day of awareness, let’s continue to educate, advocate, and push for better care and solutions for all. Share your story or tag someone who inspires you in the fight against diabetes. 💪💙
#rawfcommunity #worlddiabetesday
On this day of awareness, let’s continue to educate, advocate, and push for better care and solutions for all. Share your story or tag someone who inspires you in the fight against diabetes. 💪💙
#rawfcommunity #worlddiabetesday
November 14, 2025 at 3:18 PM
Today is World Diabetes Day!
On this day of awareness, let’s continue to educate, advocate, and push for better care and solutions for all. Share your story or tag someone who inspires you in the fight against diabetes. 💪💙
#rawfcommunity #worlddiabetesday
On this day of awareness, let’s continue to educate, advocate, and push for better care and solutions for all. Share your story or tag someone who inspires you in the fight against diabetes. 💪💙
#rawfcommunity #worlddiabetesday
Caregivers do so much —from managing appointments & medications to juggling travel, work, & family needs. In the process, they often put their own emotions & well-being last. Thank you, caregivers, for all that you do. Learn more about caregiver resources zurl.co/wY9VN
November 13, 2025 at 5:00 PM
Caregivers do so much —from managing appointments & medications to juggling travel, work, & family needs. In the process, they often put their own emotions & well-being last. Thank you, caregivers, for all that you do. Learn more about caregiver resources zurl.co/wY9VN
November is National Caregiver’s Month! 💙
Caregivers show up with compassion, resilience, and love every single day.
Let’s take a moment to recognize their impact, share gratitude, and remind them that they deserve care, too.
Caregivers show up with compassion, resilience, and love every single day.
Let’s take a moment to recognize their impact, share gratitude, and remind them that they deserve care, too.
November 11, 2025 at 4:22 PM
November is National Caregiver’s Month! 💙
Caregivers show up with compassion, resilience, and love every single day.
Let’s take a moment to recognize their impact, share gratitude, and remind them that they deserve care, too.
Caregivers show up with compassion, resilience, and love every single day.
Let’s take a moment to recognize their impact, share gratitude, and remind them that they deserve care, too.
Our FY2025 Annual Report is available! These reports share the stories, impact numbers, & financial stewardship that make our work possible. Explore our annual report to see how your generosity & collective efforts drive change and improve lives.
zurl.co/oCi7R
zurl.co/oCi7R
November 7, 2025 at 5:12 PM
Our FY2025 Annual Report is available! These reports share the stories, impact numbers, & financial stewardship that make our work possible. Explore our annual report to see how your generosity & collective efforts drive change and improve lives.
zurl.co/oCi7R
zurl.co/oCi7R
Speaker Spotlight: Pituitary Brain Tumor Family Conference
We’re honored to present three of our Sunday speakers who will be leading sessions focused on research updates and family support.
Don’t miss your chance to join the conference! zurl.co/7ih88
We’re honored to present three of our Sunday speakers who will be leading sessions focused on research updates and family support.
Don’t miss your chance to join the conference! zurl.co/7ih88
November 4, 2025 at 6:47 PM
Speaker Spotlight: Pituitary Brain Tumor Family Conference
We’re honored to present three of our Sunday speakers who will be leading sessions focused on research updates and family support.
Don’t miss your chance to join the conference! zurl.co/7ih88
We’re honored to present three of our Sunday speakers who will be leading sessions focused on research updates and family support.
Don’t miss your chance to join the conference! zurl.co/7ih88
Joining & updating your information in the Hypothalamic-Pituitary Brain Tumor Patient Registry Just Got Easier!
The new NORD IAMRARE app is free to download & gives you a more convenient way to stay involved with our registry on the go!
Download the app today from the Apple App Store & Google Play
The new NORD IAMRARE app is free to download & gives you a more convenient way to stay involved with our registry on the go!
Download the app today from the Apple App Store & Google Play
November 3, 2025 at 3:07 PM
Joining & updating your information in the Hypothalamic-Pituitary Brain Tumor Patient Registry Just Got Easier!
The new NORD IAMRARE app is free to download & gives you a more convenient way to stay involved with our registry on the go!
Download the app today from the Apple App Store & Google Play
The new NORD IAMRARE app is free to download & gives you a more convenient way to stay involved with our registry on the go!
Download the app today from the Apple App Store & Google Play
November at RAWF!
We're all hands on deck for our upcoming Pituitary Brain Tumor Family Conference. If you missed the chance to register, stay tuned to our social media profiles for live updates.
And please note this month's support groups are cancelled!
We're all hands on deck for our upcoming Pituitary Brain Tumor Family Conference. If you missed the chance to register, stay tuned to our social media profiles for live updates.
And please note this month's support groups are cancelled!
November 1, 2025 at 3:34 PM
November at RAWF!
We're all hands on deck for our upcoming Pituitary Brain Tumor Family Conference. If you missed the chance to register, stay tuned to our social media profiles for live updates.
And please note this month's support groups are cancelled!
We're all hands on deck for our upcoming Pituitary Brain Tumor Family Conference. If you missed the chance to register, stay tuned to our social media profiles for live updates.
And please note this month's support groups are cancelled!
🎃 Halloween can be a tricky time for families managing hypothalamic obesity, but with a little planning, it’s possible to enjoy the festivities! Here are some tips you can try to make the holiday a bit healthier and less stressful!
October 31, 2025 at 1:42 PM
🎃 Halloween can be a tricky time for families managing hypothalamic obesity, but with a little planning, it’s possible to enjoy the festivities! Here are some tips you can try to make the holiday a bit healthier and less stressful!
We’re honored to present another one of our distinguished experts! Fran Castellow, MSEd is the President of Operations for the Patient Advocate Foundation and will discuss Navigating the Healthcare System.
Don’t miss your chance to join our Pituitary Brain Tumor Family Conference!
zurl.co/ZF2up
Don’t miss your chance to join our Pituitary Brain Tumor Family Conference!
zurl.co/ZF2up
October 30, 2025 at 4:48 PM
We’re honored to present another one of our distinguished experts! Fran Castellow, MSEd is the President of Operations for the Patient Advocate Foundation and will discuss Navigating the Healthcare System.
Don’t miss your chance to join our Pituitary Brain Tumor Family Conference!
zurl.co/ZF2up
Don’t miss your chance to join our Pituitary Brain Tumor Family Conference!
zurl.co/ZF2up
Congratulations to our dancers @Michaelbrown5921 and @adrifonses for their incredible performances in the @DCsdancingstars Gala!
To date, the DCs Dancing Stars Gala has raised over $2.1M to support local charities!
Until next year 💃🕺
#dcsdancingstars #fundraising
To date, the DCs Dancing Stars Gala has raised over $2.1M to support local charities!
Until next year 💃🕺
#dcsdancingstars #fundraising
October 29, 2025 at 1:35 PM
Congratulations to our dancers @Michaelbrown5921 and @adrifonses for their incredible performances in the @DCsdancingstars Gala!
To date, the DCs Dancing Stars Gala has raised over $2.1M to support local charities!
Until next year 💃🕺
#dcsdancingstars #fundraising
To date, the DCs Dancing Stars Gala has raised over $2.1M to support local charities!
Until next year 💃🕺
#dcsdancingstars #fundraising
The next episode of getting to know Mike Brown, one of our dancers for tomorrow's @dcsdancingstarsgala
In this episode, he shares what he wants everyone to know about our mission
👉 Vote with your donation zurl.co/jKde4
#DCsDancingStars #DonateToVote #BrainTumor
In this episode, he shares what he wants everyone to know about our mission
👉 Vote with your donation zurl.co/jKde4
#DCsDancingStars #DonateToVote #BrainTumor
October 24, 2025 at 1:39 PM
The next episode of getting to know Mike Brown, one of our dancers for tomorrow's @dcsdancingstarsgala
In this episode, he shares what he wants everyone to know about our mission
👉 Vote with your donation zurl.co/jKde4
#DCsDancingStars #DonateToVote #BrainTumor
In this episode, he shares what he wants everyone to know about our mission
👉 Vote with your donation zurl.co/jKde4
#DCsDancingStars #DonateToVote #BrainTumor
Sponsor Spotlight: Silver Sponsor Eton Pharmaceuticals & Bronze Sponsor Everyday Life Foundation!
Thank you, Eton and Everyday Life Foundation, for championing this community!
Have you registered for the conference? There are just a few spots left!
Join us on November 15/16 in Philadelphia.
Thank you, Eton and Everyday Life Foundation, for championing this community!
Have you registered for the conference? There are just a few spots left!
Join us on November 15/16 in Philadelphia.
October 22, 2025 at 3:53 PM
Sponsor Spotlight: Silver Sponsor Eton Pharmaceuticals & Bronze Sponsor Everyday Life Foundation!
Thank you, Eton and Everyday Life Foundation, for championing this community!
Have you registered for the conference? There are just a few spots left!
Join us on November 15/16 in Philadelphia.
Thank you, Eton and Everyday Life Foundation, for championing this community!
Have you registered for the conference? There are just a few spots left!
Join us on November 15/16 in Philadelphia.
Our Teen Support Group Meets Tonight!
We’re thrilled to continue building a safe and welcoming space for preteen and teen hypothalamic-pituitary brain tumor survivors!
📅 When: Tonight!
⏰ Time: 7:00 PM ET
📍 Where: Zoom
Register here for free: zurl.co/2w7Ac
We’re thrilled to continue building a safe and welcoming space for preteen and teen hypothalamic-pituitary brain tumor survivors!
📅 When: Tonight!
⏰ Time: 7:00 PM ET
📍 Where: Zoom
Register here for free: zurl.co/2w7Ac
October 21, 2025 at 1:28 PM
Our Teen Support Group Meets Tonight!
We’re thrilled to continue building a safe and welcoming space for preteen and teen hypothalamic-pituitary brain tumor survivors!
📅 When: Tonight!
⏰ Time: 7:00 PM ET
📍 Where: Zoom
Register here for free: zurl.co/2w7Ac
We’re thrilled to continue building a safe and welcoming space for preteen and teen hypothalamic-pituitary brain tumor survivors!
📅 When: Tonight!
⏰ Time: 7:00 PM ET
📍 Where: Zoom
Register here for free: zurl.co/2w7Ac
Getting to know Mike Brown before this week's @dcsdancingstarsgala
Mike is supporting us in honor of his great-niece Maddie. In this episode, he shares what he is most excited and nervous about for the upcoming event.
Vote with your donation! zurl.co/AK3DZ
Mike is supporting us in honor of his great-niece Maddie. In this episode, he shares what he is most excited and nervous about for the upcoming event.
Vote with your donation! zurl.co/AK3DZ
October 20, 2025 at 2:09 PM
Getting to know Mike Brown before this week's @dcsdancingstarsgala
Mike is supporting us in honor of his great-niece Maddie. In this episode, he shares what he is most excited and nervous about for the upcoming event.
Vote with your donation! zurl.co/AK3DZ
Mike is supporting us in honor of his great-niece Maddie. In this episode, he shares what he is most excited and nervous about for the upcoming event.
Vote with your donation! zurl.co/AK3DZ
Join us for our monthly gathering of strength, support, and shared experiences. This Saturday, our Survivor Support Group is coming together to connect and support one another.
🗓 When: Today
⏰ Time: 3:00pm ET
📍 Where: Zoom
Register here: zurl.co/67rPJ
🗓 When: Today
⏰ Time: 3:00pm ET
📍 Where: Zoom
Register here: zurl.co/67rPJ
October 18, 2025 at 12:00 PM
Join us for our monthly gathering of strength, support, and shared experiences. This Saturday, our Survivor Support Group is coming together to connect and support one another.
🗓 When: Today
⏰ Time: 3:00pm ET
📍 Where: Zoom
Register here: zurl.co/67rPJ
🗓 When: Today
⏰ Time: 3:00pm ET
📍 Where: Zoom
Register here: zurl.co/67rPJ
Getting to know Mike Brown, one of our dancers for next week's @DCs Dancing Stars Gala !
Mike is dancing in honor of his great-niece Maddie, who has bravely faced a rare brain tumor at just three years old.
👉 Vote with your donation now! zurl.co/hh4oo
Mike is dancing in honor of his great-niece Maddie, who has bravely faced a rare brain tumor at just three years old.
👉 Vote with your donation now! zurl.co/hh4oo
October 17, 2025 at 2:30 PM
Getting to know Mike Brown, one of our dancers for next week's @DCs Dancing Stars Gala !
Mike is dancing in honor of his great-niece Maddie, who has bravely faced a rare brain tumor at just three years old.
👉 Vote with your donation now! zurl.co/hh4oo
Mike is dancing in honor of his great-niece Maddie, who has bravely faced a rare brain tumor at just three years old.
👉 Vote with your donation now! zurl.co/hh4oo
Thank you Lindsay @If You Had Wings, Inc. for the beautiful birdhouse!
If You Had Wings, Inc builds custom birdhouses, with all proceeds going to support non-profit groups. Since the launch of If You Had Wings, Inc in 2020, they have donated over $40K to other non profits.
zurl.co/CZpFh.
If You Had Wings, Inc builds custom birdhouses, with all proceeds going to support non-profit groups. Since the launch of If You Had Wings, Inc in 2020, they have donated over $40K to other non profits.
zurl.co/CZpFh.
October 15, 2025 at 2:54 PM
Thank you Lindsay @If You Had Wings, Inc. for the beautiful birdhouse!
If You Had Wings, Inc builds custom birdhouses, with all proceeds going to support non-profit groups. Since the launch of If You Had Wings, Inc in 2020, they have donated over $40K to other non profits.
zurl.co/CZpFh.
If You Had Wings, Inc builds custom birdhouses, with all proceeds going to support non-profit groups. Since the launch of If You Had Wings, Inc in 2020, they have donated over $40K to other non profits.
zurl.co/CZpFh.
We're 1 month away from our Pituitary Brain Tumor Family Conference and it is almost sold out! Register now before it’s too late.
Join us this year and be part of a growing, empowered community. Because understanding begins with listening—and healing grows from connection.
zurl.co/U6rgm
Join us this year and be part of a growing, empowered community. Because understanding begins with listening—and healing grows from connection.
zurl.co/U6rgm
October 15, 2025 at 2:48 PM
We're 1 month away from our Pituitary Brain Tumor Family Conference and it is almost sold out! Register now before it’s too late.
Join us this year and be part of a growing, empowered community. Because understanding begins with listening—and healing grows from connection.
zurl.co/U6rgm
Join us this year and be part of a growing, empowered community. Because understanding begins with listening—and healing grows from connection.
zurl.co/U6rgm
Calling all caregivers! Join us TONIGHT at 8:00 PM ET for our FREE virtual support group with Eugenie Hsu!
Date: 10/14/2025
Time:8pm ET
Location: Zoom
Register here before 2pm EST zurl.co/QwJli
Email outreach@rawroodfoundation.org for questions or additional info.
Date: 10/14/2025
Time:8pm ET
Location: Zoom
Register here before 2pm EST zurl.co/QwJli
Email outreach@rawroodfoundation.org for questions or additional info.
October 14, 2025 at 1:15 PM
Calling all caregivers! Join us TONIGHT at 8:00 PM ET for our FREE virtual support group with Eugenie Hsu!
Date: 10/14/2025
Time:8pm ET
Location: Zoom
Register here before 2pm EST zurl.co/QwJli
Email outreach@rawroodfoundation.org for questions or additional info.
Date: 10/14/2025
Time:8pm ET
Location: Zoom
Register here before 2pm EST zurl.co/QwJli
Email outreach@rawroodfoundation.org for questions or additional info.
Don't miss our October Grief Support sessions!
Led by Holly Gainsboro, these sessions are a safe and supportive space for those impacted by hypothalamic pituitary brain tumors to share their experiences with grief with the guidance of a grief support professional.
Register: zurl.co/YACjN
Led by Holly Gainsboro, these sessions are a safe and supportive space for those impacted by hypothalamic pituitary brain tumors to share their experiences with grief with the guidance of a grief support professional.
Register: zurl.co/YACjN
October 9, 2025 at 7:09 PM
Don't miss our October Grief Support sessions!
Led by Holly Gainsboro, these sessions are a safe and supportive space for those impacted by hypothalamic pituitary brain tumors to share their experiences with grief with the guidance of a grief support professional.
Register: zurl.co/YACjN
Led by Holly Gainsboro, these sessions are a safe and supportive space for those impacted by hypothalamic pituitary brain tumors to share their experiences with grief with the guidance of a grief support professional.
Register: zurl.co/YACjN
Our Bonfire shop is now restocked!
Every item you buy helps fund research, advocacy, and resources for brain tumor survivors and families.
💙 Wear your impact. Make a statement. Support the mission.
zurl.co/RDQfr
Every item you buy helps fund research, advocacy, and resources for brain tumor survivors and families.
💙 Wear your impact. Make a statement. Support the mission.
zurl.co/RDQfr
October 8, 2025 at 2:26 PM
Our Bonfire shop is now restocked!
Every item you buy helps fund research, advocacy, and resources for brain tumor survivors and families.
💙 Wear your impact. Make a statement. Support the mission.
zurl.co/RDQfr
Every item you buy helps fund research, advocacy, and resources for brain tumor survivors and families.
💙 Wear your impact. Make a statement. Support the mission.
zurl.co/RDQfr
Registration for the upcoming Pituitary Brain Tumor Family Conference is almost sold out! Register now before it’s too late.
Learn more on our website! zurl.co/KvOGe
Learn more on our website! zurl.co/KvOGe
October 3, 2025 at 4:01 PM
Registration for the upcoming Pituitary Brain Tumor Family Conference is almost sold out! Register now before it’s too late.
Learn more on our website! zurl.co/KvOGe
Learn more on our website! zurl.co/KvOGe
October at RAWF: Support & Community
This month, connect with others who understand your journey—whether you're a caregiver, teen, survivor, or navigating grief. Join our support groups to connect with the community and take part in meaningful conversations.
zurl.co/eVbKl
This month, connect with others who understand your journey—whether you're a caregiver, teen, survivor, or navigating grief. Join our support groups to connect with the community and take part in meaningful conversations.
zurl.co/eVbKl
October 1, 2025 at 3:24 PM
October at RAWF: Support & Community
This month, connect with others who understand your journey—whether you're a caregiver, teen, survivor, or navigating grief. Join our support groups to connect with the community and take part in meaningful conversations.
zurl.co/eVbKl
This month, connect with others who understand your journey—whether you're a caregiver, teen, survivor, or navigating grief. Join our support groups to connect with the community and take part in meaningful conversations.
zurl.co/eVbKl
Join us for an upcoming FREE webinar:
School Success Starts with Support: Navigating IEPs with Confidence!
zurl.co/sqwoC
School Success Starts with Support: Navigating IEPs with Confidence!
zurl.co/sqwoC
School Success Starts with Support: Navigating IEPs with Confidence
Join us for a candid discussion on IEPs and advocacy in helping students thrive in school - because support is key to success!
www.eventbrite.com
September 5, 2025 at 2:51 PM
Join us for an upcoming FREE webinar:
School Success Starts with Support: Navigating IEPs with Confidence!
zurl.co/sqwoC
School Success Starts with Support: Navigating IEPs with Confidence!
zurl.co/sqwoC
Support groups, grief sessions, an IEP webinar, and our Family Conference in Philly—September is full of ways to connect. Register now: zurl.co/vzyGT
#RAWFCommunity #BrainTumors
#RAWFCommunity #BrainTumors
September 2, 2025 at 3:02 PM
Support groups, grief sessions, an IEP webinar, and our Family Conference in Philly—September is full of ways to connect. Register now: zurl.co/vzyGT
#RAWFCommunity #BrainTumors
#RAWFCommunity #BrainTumors