Raymond A. Wood Foundation
rawoodfoundation.bsky.social
Raymond A. Wood Foundation
@rawoodfoundation.bsky.social
The mission of the Raymond A. Wood Foundation is to drive research and advocate for treatment outcomes to improve quality of life for hypothalamic-pituitary brain tumor survivors.
#GivingTuesday is just a few days away. ⏳💙

For survivors of hypothalamic pituitary brain tumors, everyday moments depend on careful planning and the right tools.

Your early matched gift means more stability, more safety, and more days of joy.

zurl.co/At9Is
November 29, 2025 at 3:14 PM
"When my child was diagnosed, I just wanted someone who understood.” – Maria 💬💛

This #GivingTuesday, your gift goes twice as far thanks to a $10K match. Help parents find support, & hope when they feel most alone.

Make your early matched gift✨: zurl.co/oHOdU
November 27, 2025 at 5:41 PM
Happy Thanksgiving from all of us at the Raymond A. Wood Foundation!

Today, we pause to reflect on the many things we are grateful for—and at the top of that list is YOU.

Wishing you and your families a day filled with love, joy, and gratitude.
November 27, 2025 at 2:33 PM
After the brain tumor, the hard part really begins. 💛

This Giving Tuesday, every dollar you give will be DOUBLED up to $10,000, thanks to a board-member match. Your early gift helps survivors face lifelong challenges with more safety and support.

Make your matched gift today: zurl.co/jT260
November 26, 2025 at 2:33 PM
More touching moments from last week's Pituitary Brain Tumor Family Conference in Philadelphia!

Thank you again to all the families that attended, our staff, board members and sponsors that made the incredible weekend possible.

We're hard at work at our next initiative, so stay tuned for more!
November 25, 2025 at 2:13 PM
A new bipartisan bill—the Credit for Caring Act—could change the game for caregivers and families by granting up to $5,000 in annual tax credits to family members providing unpaid care.

If you want to show your support for this bill, contact your local representative! zurl.co/VhAkE
November 20, 2025 at 2:52 PM
Thank you to everyone who attended our 2025 Pituitary Brain Tumor Family Conference!

It was an incredible weekend of community, teamwork, and in-depth discussions from our amazing speakers. Until next time!
November 18, 2025 at 7:53 PM
Today is World Diabetes Day!

On this day of awareness, let’s continue to educate, advocate, and push for better care and solutions for all. Share your story or tag someone who inspires you in the fight against diabetes. 💪💙

#rawfcommunity #worlddiabetesday
November 14, 2025 at 3:18 PM
Caregivers do so much —from managing appointments & medications to juggling travel, work, & family needs. In the process, they often put their own emotions & well-being last. Thank you, caregivers, for all that you do. Learn more about caregiver resources zurl.co/wY9VN
November 13, 2025 at 5:00 PM
November is National Caregiver’s Month! 💙

Caregivers show up with compassion, resilience, and love every single day.

Let’s take a moment to recognize their impact, share gratitude, and remind them that they deserve care, too.
November 11, 2025 at 4:22 PM
Our FY2025 Annual Report is available! These reports share the stories, impact numbers, & financial stewardship that make our work possible. Explore our annual report to see how your generosity & collective efforts drive change and improve lives.

zurl.co/oCi7R
November 7, 2025 at 5:12 PM
Speaker Spotlight: Pituitary Brain Tumor Family Conference

We’re honored to present three of our Sunday speakers who will be leading sessions focused on research updates and family support.

Don’t miss your chance to join the conference! zurl.co/7ih88
November 4, 2025 at 6:47 PM
Joining & updating your information in the Hypothalamic-Pituitary Brain Tumor Patient Registry Just Got Easier!

The new NORD IAMRARE app is free to download & gives you a more convenient way to stay involved with our registry on the go!

Download the app today from the Apple App Store & Google Play
November 3, 2025 at 3:07 PM
November at RAWF!

We're all hands on deck for our upcoming Pituitary Brain Tumor Family Conference. If you missed the chance to register, stay tuned to our social media profiles for live updates.

And please note this month's support groups are cancelled!
November 1, 2025 at 3:34 PM
🎃 Halloween can be a tricky time for families managing hypothalamic obesity, but with a little planning, it’s possible to enjoy the festivities! Here are some tips you can try to make the holiday a bit healthier and less stressful!
October 31, 2025 at 1:42 PM
We’re honored to present another one of our distinguished experts! Fran Castellow, MSEd is the President of Operations for the Patient Advocate Foundation and will discuss Navigating the Healthcare System.

Don’t miss your chance to join our Pituitary Brain Tumor Family Conference!

zurl.co/ZF2up
October 30, 2025 at 4:48 PM
Congratulations to our dancers @Michaelbrown5921 and @adrifonses for their incredible performances in the @DCsdancingstars Gala!

To date, the DCs Dancing Stars Gala has raised over $2.1M to support local charities!

Until next year 💃🕺

#dcsdancingstars #fundraising
October 29, 2025 at 1:35 PM
The next episode of getting to know Mike Brown, one of our dancers for tomorrow's @dcsdancingstarsgala

In this episode, he shares what he wants everyone to know about our mission

👉 Vote with your donation zurl.co/jKde4

#DCsDancingStars #DonateToVote #BrainTumor
October 24, 2025 at 1:39 PM
Sponsor Spotlight: Silver Sponsor Eton Pharmaceuticals & Bronze Sponsor Everyday Life Foundation!

Thank you, Eton and Everyday Life Foundation, for championing this community!

Have you registered for the conference? There are just a few spots left!
Join us on November 15/16 in Philadelphia.
October 22, 2025 at 3:53 PM
Our Teen Support Group Meets Tonight!

We’re thrilled to continue building a safe and welcoming space for preteen and teen hypothalamic-pituitary brain tumor survivors!

📅 When: Tonight!
⏰ Time: 7:00 PM ET
📍 Where: Zoom

Register here for free: zurl.co/2w7Ac
October 21, 2025 at 1:28 PM
Getting to know Mike Brown before this week's @dcsdancingstarsgala

Mike is supporting us in honor of his great-niece Maddie. In this episode, he shares what he is most excited and nervous about for the upcoming event.

Vote with your donation! zurl.co/AK3DZ
October 20, 2025 at 2:09 PM
Join us for our monthly gathering of strength, support, and shared experiences. This Saturday, our Survivor Support Group is coming together to connect and support one another.

🗓 When: Today
⏰ Time: 3:00pm ET
📍 Where: Zoom
Register here: zurl.co/67rPJ
October 18, 2025 at 12:00 PM
Getting to know Mike Brown, one of our dancers for next week's @DCs Dancing Stars Gala !
Mike is dancing in honor of his great-niece Maddie, who has bravely faced a rare brain tumor at just three years old.

👉 Vote with your donation now! zurl.co/hh4oo
October 17, 2025 at 2:30 PM
Thank you Lindsay @If You Had Wings, Inc. for the beautiful birdhouse!

If You Had Wings, Inc builds custom birdhouses, with all proceeds going to support non-profit groups. Since the launch of If You Had Wings, Inc in 2020, they have donated over $40K to other non profits.

zurl.co/CZpFh.
October 15, 2025 at 2:54 PM
We're 1 month away from our Pituitary Brain Tumor Family Conference and it is almost sold out! Register now before it’s too late.

Join us this year and be part of a growing, empowered community. Because understanding begins with listening—and healing grows from connection.
zurl.co/U6rgm
October 15, 2025 at 2:48 PM