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pscsupport.bsky.social
PSC Support
@pscsupport.bsky.social
65 followers 40 following 290 posts
Improving the lives of people affected by primary sclerosing cholangitis (PSC) by | Providing Info & Support | Improving Patient Care | Shaping & Funding Research to find effective treatments and a cure | #LetsBeatPSC | www.pscsupport.org.uk
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pscsupport.bsky.social
Living with PSC can feel isolating, but you’re not alone.
🧑‍🤝‍🧑 Connect with others by joining our private FB group.
📧 Sign up for our newsletter to get the latest PSC news, webinars, and in-person Info Days.
ℹ️ pscsupport.org.uk/connect-with...
#LetsBeatPSC #PSCSupport #PSCCommunity
November 10, 2025 at 9:01 AM
pscsupport.bsky.social
#LestWeForget #Remembrance #RemembranceSunday
November 9, 2025 at 8:00 AM
pscsupport.bsky.social
“Be prepared.” A motto not just for Scouts, but PSC-ers too! Keep your #PSCAlertCard handy (it’s credit-card sized or a digital download) to help your medical team act fast if acute cholangitis strikes.
Get yours free: buff.ly/6xAhRpd
#PSCSupport #PSCfamily #LetsBeatPSC
November 8, 2025 at 8:43 AM
pscsupport.bsky.social
What do we get up to when we attend big events like @basl_events conference? 🤔 Simply put, we fly the PSC flag: raising awareness, building relationships and making sure the patient voice is heard 👉 pscsupport.org.uk/oct-2025-res... #LetsBeatPSC #LiverHealth
November 7, 2025 at 9:01 AM
pscsupport.bsky.social
As we head into comfort food season, many in our community are thinking about how to balance enjoyment with managing PSC. What are your go-to meals? Do you have a favourite recipe that brings comfort without compromising your wellbeing?
👉 buff.ly/f640aEf #PSCDiet
November 6, 2025 at 6:21 PM
pscsupport.bsky.social
PSC can bring uncertainty, fatigue and stress. It’s okay not to feel okay. Here's a reminder to:
🐌 Slow down and breathe
😔 Acknowledge your emotions
🙋‍♀️ Reach out for support (𝘺𝘰𝘶'𝘳𝘦 𝘯𝘰𝘵 𝘢𝘭𝘰𝘯𝘦!)
pscsupport.org.uk/the-challeng...
#NationalStressAwarenessDay #LetsBeatPSC
November 5, 2025 at 8:47 AM
pscsupport.bsky.social
🎁 Save the Date! We’re joining #TheBigGive #ChristmasChallenge 💚
From 2–9 Dec, your donation will be doubled:
£5→£10, £20→£40, £100→£200! You get the idea 😊
Together we can double the impact for people with PSC.
🔗 pscsupport.org.uk/biggive
#PSCSupport #LetsBeatPSC
November 4, 2025 at 2:29 PM
pscsupport.bsky.social
It’s #TrusteesWeek! 💙 We’re celebrating our 8 incredible trustees, 6 of whom are directly affected by PSC. Their lived experience ensures every decision is guided by real understanding & expertise. Interested in volunteering? Contact hello@pscsupport.org.uk
#LetsBeatPSC
November 3, 2025 at 2:00 PM
pscsupport.bsky.social
Confused about mortgages, insurance or finance when living with PSC? You’re not alone. We were joined by Pam, Nina and Joe Brown - mortgage, insurance & finance specialists - who know first-hand the challenges you face and how to navigate them.
👉 buff.ly/gGlMDLf #LetsBeatPSC
November 2, 2025 at 4:00 PM
pscsupport.bsky.social
"What are you looking forward to now that you have a new liver?” Thank you everyone who joined us at our Leeds Information Day, especially those who shared their experiences as #livertransplant recipients.
Learn more about transplantation for #PSC ➡️ pscsupport.org.uk/liver-transplantation/
November 1, 2025 at 10:01 AM
pscsupport.bsky.social
Have you seen the Government's new campaign featuring suits of armour? Everyone with long-term health conditions, like PSC, should consider protecting themselves this winter by getting the flu jab. ℹ️ pscsupport.org.uk/flu-vaccines...
#FluJab #StayWell #PSCSupport #LestBeatPSC
October 31, 2025 at 9:01 AM
pscsupport.bsky.social
“Step by step, PSC treatment moves forward, and so does our hope.”
Tarja Teitto-Tuckett from the Finnish Kidney and Liver Association reminds us that every advance in care brings renewed optimism.
Together, we’re moving hope into action for people with PSC.
#GlobalPSCAwarenessDay #LiverHealth #ELPA
October 30, 2025 at 3:01 PM
pscsupport.bsky.social
“Don't let PSC control your future.” Charlotte was diagnosed with PSC at just 10 yrs old. Living with an #invisibleillness was confusing and isolating at first, but she found strength in the support of those who understood her journey. #PSCAwarenessDay #LetsBeatPSC @EuropeLiver
October 30, 2025 at 10:02 AM
pscsupport.bsky.social
“Hope isn’t just a feeling, it’s about taking action.” Paula Hanford from @PSCSupportUK highlights how uniting as a global #PSCcommunity amplifies our voices & drives breakthrough research. Let’s move hope into action for everyone affected by PSC.
#PSCAwarenessDay @europeliver #ELPA#LetsBeatPSC
October 30, 2025 at 8:00 AM
pscsupport.bsky.social
“One voice can spark hope, but a global alliance can turn it into action.”
Jessica Travis from @PSCPartnersCa reminds us that collective advocacy drives research & shapes the future of PSC care.
Let’s raise our voices together this #GlobalPSCAwarenessDay. @EuropeLiver @PSCPartners #ELPA #LetsBeatPSC
October 29, 2025 at 8:00 PM
pscsupport.bsky.social
“Patients and families need support and updated information.”
Teresa Casanovas of @EuropeLiver highlights how new #clinicaltrials and global collaboration bring fresh hope to the #PSCcommunity.
Together, we turn knowledge into action and research into hope.
#GlobalPSCAwarenessDay #ELPA #LetsBeatPSC
October 29, 2025 at 7:00 PM
pscsupport.bsky.social
It’s #GlobalPSCAwarenessDay 💛
“Turning Hope Into Action” is this year’s theme, a powerful reminder that awareness is just the start. Real change happens every day.
Join us as we share inspiring #PSC stories from around the world 🌍
pscsupport.org.uk/global-psc-a...
#ELPA #LetsBeatPSC #PSCAwareness
October 29, 2025 at 6:41 PM
pscsupport.bsky.social
“Although PSC is a difficult disease to have, it is also a time of great hope and optimism in the field.” Prof Hirschfield shares how collaboration between patients, doctors, and researchers worldwide is driving real progress and bringing new treatments closer than ever. #PSCAwarenessDay
October 29, 2025 at 11:03 AM
pscsupport.bsky.social
No one faces PSC alone 💛
Together, we fight, support, and lift each other up.
👉 pscsupport.org.uk/global-psc-a...
#GlobalPSCAwarenessDay #HopeInAction #LetsBeatPSC
October 28, 2025 at 6:04 PM
pscsupport.bsky.social
Hope → Strength → Action 💪
Together, we push PSC research forward.
ℹ️ pscsupport.org.uk/global-psc-a...
#GlobalPSCAwarenessDay #HopeInAction #LetsBeatPSC #ELPA
October 28, 2025 at 1:03 PM
pscsupport.bsky.social
“I don’t feel like an unlucky mom, I feel grateful for every day.” 💙
Francesca’s son has faced PSC with courage through two liver transplants. Their story is one of love, empathy, and strength - proof that even in hardship, hope shines through.
#PSCAwarenessDay #ELPA #LetsBeatPSC
October 28, 2025 at 9:02 AM
pscsupport.bsky.social
Hope → Strength → Action 💪
Together, we push #PSCresearch forward.
#GlobalPSCAwarenessDay #HopeInAction #LetsBeatPSC @EuropeLiver
ℹ️ pscsupport.org.uk/global-psc-a...
October 27, 2025 at 4:32 PM
pscsupport.bsky.social
“Fear turned into strength, and hope into action.” 💙

Caj’s journey with #PSC and #livertransplant shows that even through struggle, life and hope can return. His story is a promise to others: you’re not alone. #PSCAwarenessDay
ℹ️ pscsupport.org.uk/global-psc-a...
#LetsBeatPSC #RareDisease
October 27, 2025 at 10:02 AM
pscsupport.bsky.social
Together, we raise one voice for brighter PSC futures 🌈
#GlobalPSCAwarenessDay
👉 pscsupport.org.uk/global-psc-a...
#HopeInAction #LetsBeatPSC @EuropeLiver
October 27, 2025 at 7:01 AM
pscsupport.bsky.social
“Every patient who joins a trial gives hope to the future.” 💙
Damjana, a researcher studying the microbiome in PSC, was inspired by the patients she met, and by how far research has come toward new treatments.
ℹ️ pscsupport.org.uk/global-psc-a... #PSCAwarenessDay #LetsBeatPSC #ELPA
October 26, 2025 at 7:02 PM