PSC Support
@pscsupport.bsky.social
Improving the lives of people affected by primary sclerosing cholangitis (PSC) by | Providing Info & Support | Improving Patient Care | Shaping & Funding Research to find effective treatments and a cure | #LetsBeatPSC | www.pscsupport.org.uk
A sister. A brother. A life-saving gift.
Sibling's Bethan and Peter kindly share their journey with living donor liver transplantation (LDLT) for PSC, just nine weeks after surgery. pscsupport.org.uk/psc-and-me/b... #LetsBeatPSC #PSCStory #PatientStory #LDLT #LivingDonor
Sibling's Bethan and Peter kindly share their journey with living donor liver transplantation (LDLT) for PSC, just nine weeks after surgery. pscsupport.org.uk/psc-and-me/b... #LetsBeatPSC #PSCStory #PatientStory #LDLT #LivingDonor
December 30, 2025 at 9:01 AM
A sister. A brother. A life-saving gift.
Sibling's Bethan and Peter kindly share their journey with living donor liver transplantation (LDLT) for PSC, just nine weeks after surgery. pscsupport.org.uk/psc-and-me/b... #LetsBeatPSC #PSCStory #PatientStory #LDLT #LivingDonor
Sibling's Bethan and Peter kindly share their journey with living donor liver transplantation (LDLT) for PSC, just nine weeks after surgery. pscsupport.org.uk/psc-and-me/b... #LetsBeatPSC #PSCStory #PatientStory #LDLT #LivingDonor
📝 Have you experienced waiting for a liver transplant, or supported someone who has?
@NICEGetInvolved wants to hear from you to help assess new transplant technology for the NHS.
👉 Share your views in this survey:
nice.welcomesyourfeedback.net/s/Liver_Tran... #LetsBeatPSC
@NICEGetInvolved wants to hear from you to help assess new transplant technology for the NHS.
👉 Share your views in this survey:
nice.welcomesyourfeedback.net/s/Liver_Tran... #LetsBeatPSC
December 29, 2025 at 9:01 AM
📝 Have you experienced waiting for a liver transplant, or supported someone who has?
@NICEGetInvolved wants to hear from you to help assess new transplant technology for the NHS.
👉 Share your views in this survey:
nice.welcomesyourfeedback.net/s/Liver_Tran... #LetsBeatPSC
@NICEGetInvolved wants to hear from you to help assess new transplant technology for the NHS.
👉 Share your views in this survey:
nice.welcomesyourfeedback.net/s/Liver_Tran... #LetsBeatPSC
Our vision is a world without PSC. We will not stop until that vision becomes a reality.
If you can, please consider becoming a monthly donor to help us plan our vital work.
pscsupport.enthuse.com/regular-dona... #LetsBeatPSC #PSCSupport
If you can, please consider becoming a monthly donor to help us plan our vital work.
pscsupport.enthuse.com/regular-dona... #LetsBeatPSC #PSCSupport
December 28, 2025 at 9:00 AM
Our vision is a world without PSC. We will not stop until that vision becomes a reality.
If you can, please consider becoming a monthly donor to help us plan our vital work.
pscsupport.enthuse.com/regular-dona... #LetsBeatPSC #PSCSupport
If you can, please consider becoming a monthly donor to help us plan our vital work.
pscsupport.enthuse.com/regular-dona... #LetsBeatPSC #PSCSupport
REMINDER: All our Ask the Expert sessions are available to watch on YouTube, anytime. Even if you’ve lived with PSC for many years and feel well informed, things can change and having clear, trusted information can make a real difference.
➡️ buff.ly/R2Yj8pT #LetsBeatPSC
➡️ buff.ly/R2Yj8pT #LetsBeatPSC
December 27, 2025 at 9:17 AM
REMINDER: All our Ask the Expert sessions are available to watch on YouTube, anytime. Even if you’ve lived with PSC for many years and feel well informed, things can change and having clear, trusted information can make a real difference.
➡️ buff.ly/R2Yj8pT #LetsBeatPSC
➡️ buff.ly/R2Yj8pT #LetsBeatPSC
Boxing Day doesn’t have to mean doing all the things.
Maybe today is for leftovers, laughter and dusting off the cobwebs.
Maybe it’s for naps, comfy clothes and a quiet moment.
Maybe it’s a mix of both.
Share your boxing day traditions in comments - old and new! #LetsBeatPSC
Maybe today is for leftovers, laughter and dusting off the cobwebs.
Maybe it’s for naps, comfy clothes and a quiet moment.
Maybe it’s a mix of both.
Share your boxing day traditions in comments - old and new! #LetsBeatPSC
December 26, 2025 at 9:00 AM
Boxing Day doesn’t have to mean doing all the things.
Maybe today is for leftovers, laughter and dusting off the cobwebs.
Maybe it’s for naps, comfy clothes and a quiet moment.
Maybe it’s a mix of both.
Share your boxing day traditions in comments - old and new! #LetsBeatPSC
Maybe today is for leftovers, laughter and dusting off the cobwebs.
Maybe it’s for naps, comfy clothes and a quiet moment.
Maybe it’s a mix of both.
Share your boxing day traditions in comments - old and new! #LetsBeatPSC
Wishing you all a safe, happy and healthy Christmas from all of us at PSC Support. #LetsBeatPSC #TogetherWeCan #PSCSupport #RareDiseaseCommunity #PSCCommunity
December 25, 2025 at 8:01 AM
Wishing you all a safe, happy and healthy Christmas from all of us at PSC Support. #LetsBeatPSC #TogetherWeCan #PSCSupport #RareDiseaseCommunity #PSCCommunity
Twas the night before Christmas....
Whether you’re wrapping presents, resting on the sofa, juggling meds with mince pies, or simply getting through the day. You’re doing enough.
There’s no “right” way to do Christmas with PSC. Take it at your own pace, in your own way. #LetsBeatPSC
Whether you’re wrapping presents, resting on the sofa, juggling meds with mince pies, or simply getting through the day. You’re doing enough.
There’s no “right” way to do Christmas with PSC. Take it at your own pace, in your own way. #LetsBeatPSC
December 24, 2025 at 3:03 PM
Twas the night before Christmas....
Whether you’re wrapping presents, resting on the sofa, juggling meds with mince pies, or simply getting through the day. You’re doing enough.
There’s no “right” way to do Christmas with PSC. Take it at your own pace, in your own way. #LetsBeatPSC
Whether you’re wrapping presents, resting on the sofa, juggling meds with mince pies, or simply getting through the day. You’re doing enough.
There’s no “right” way to do Christmas with PSC. Take it at your own pace, in your own way. #LetsBeatPSC
From all of us at PSC Support, THANK YOU! 2025 has seen real progress in PSC research and a growing sense of optimism across the PSC community. You've taken part in PPIE, shared your stories, fundraised, and supported each other. Wishing you the best for the New Year #LetsBeatPSC
December 23, 2025 at 10:01 AM
From all of us at PSC Support, THANK YOU! 2025 has seen real progress in PSC research and a growing sense of optimism across the PSC community. You've taken part in PPIE, shared your stories, fundraised, and supported each other. Wishing you the best for the New Year #LetsBeatPSC
Tis the season to be understanding, patient, and helpful. #LetsBeatPSC #ChronicIllness #InvisibleIllness
December 22, 2025 at 10:01 AM
Tis the season to be understanding, patient, and helpful. #LetsBeatPSC #ChronicIllness #InvisibleIllness
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) plans to update rules for rare disease therapies, including PSC. PSC Support helped develop these plans. More info and PSC research updates: buff.ly/t60RqPD #LetsBeatPSC #PSCSupport #PSCResearch
December 21, 2025 at 10:00 AM
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) plans to update rules for rare disease therapies, including PSC. PSC Support helped develop these plans. More info and PSC research updates: buff.ly/t60RqPD #LetsBeatPSC #PSCSupport #PSCResearch
You are not alone 💙
Support is available through our private Facebook Group, helpline, website, YouTube videos and social media. Navigating PSC can be challenging, but you don’t have to do it on your own.
➡️ pscsupport.org.uk/get-support/ #LetsBeatPSC #PSCSupport #PSCCommunity
Support is available through our private Facebook Group, helpline, website, YouTube videos and social media. Navigating PSC can be challenging, but you don’t have to do it on your own.
➡️ pscsupport.org.uk/get-support/ #LetsBeatPSC #PSCSupport #PSCCommunity
December 20, 2025 at 10:00 AM
You are not alone 💙
Support is available through our private Facebook Group, helpline, website, YouTube videos and social media. Navigating PSC can be challenging, but you don’t have to do it on your own.
➡️ pscsupport.org.uk/get-support/ #LetsBeatPSC #PSCSupport #PSCCommunity
Support is available through our private Facebook Group, helpline, website, YouTube videos and social media. Navigating PSC can be challenging, but you don’t have to do it on your own.
➡️ pscsupport.org.uk/get-support/ #LetsBeatPSC #PSCSupport #PSCCommunity
What a fantastic Ask the Expert with Dr Joshi! Watch or re-watch this session where Dr Joshi shares PSC research updates from last months international liver conference, AASLD. Full video on our YouTube Channel youtu.be/of0y5GYSugI #LetsBeatPSC #PSCResearch #AASLD2025 #LiverHealth #LiverResearch
December 19, 2025 at 9:01 AM
What a fantastic Ask the Expert with Dr Joshi! Watch or re-watch this session where Dr Joshi shares PSC research updates from last months international liver conference, AASLD. Full video on our YouTube Channel youtu.be/of0y5GYSugI #LetsBeatPSC #PSCResearch #AASLD2025 #LiverHealth #LiverResearch
'I'll be running #ParisMarathon on 12th April 2026 to raise funds for PSC Support. This charity is very close to my heart as my wife, Becs, was diagnosed with #PSC in 2016 at the age of 22 after being diagnosed with #ulcerativecolitis.' Inspired to join Martin?
👉 runforcharity.com/charity-regi...
👉 runforcharity.com/charity-regi...
December 18, 2025 at 2:44 PM
'I'll be running #ParisMarathon on 12th April 2026 to raise funds for PSC Support. This charity is very close to my heart as my wife, Becs, was diagnosed with #PSC in 2016 at the age of 22 after being diagnosed with #ulcerativecolitis.' Inspired to join Martin?
👉 runforcharity.com/charity-regi...
👉 runforcharity.com/charity-regi...
A new study from the University of Oxford has explored how non-invasive tests, such as FibroScan liver stiffness (LS), may relate to quality of life for people living with Primary Sclerosing Cholangitis. Learn more about the latest PSC research: pscsupport.org.uk/nov-2025-res...
December 17, 2025 at 9:01 AM
A new study from the University of Oxford has explored how non-invasive tests, such as FibroScan liver stiffness (LS), may relate to quality of life for people living with Primary Sclerosing Cholangitis. Learn more about the latest PSC research: pscsupport.org.uk/nov-2025-res...
If you’re 18+ and have PSC or PBC (or had a transplant) we’d love to hear from you! Your insights will help researchers design a study focused on wellbeing & understanding patient experiences.
🔗 redcap.ualberta.ca/surveys/?s=T... @UAlberta_DoM @uncdeptmedicine @PBCFoundation #LetsBeatPSC
🔗 redcap.ualberta.ca/surveys/?s=T... @UAlberta_DoM @uncdeptmedicine @PBCFoundation #LetsBeatPSC
December 16, 2025 at 9:31 AM
If you’re 18+ and have PSC or PBC (or had a transplant) we’d love to hear from you! Your insights will help researchers design a study focused on wellbeing & understanding patient experiences.
🔗 redcap.ualberta.ca/surveys/?s=T... @UAlberta_DoM @uncdeptmedicine @PBCFoundation #LetsBeatPSC
🔗 redcap.ualberta.ca/surveys/?s=T... @UAlberta_DoM @uncdeptmedicine @PBCFoundation #LetsBeatPSC
Looking for the perfect stocking stuffer or a little gift that shows you care? 🎁
Our merch store is still open, but don’t wait too long! Order soon to make sure your goodies arrive in time for Christmas.
pscsupport.org.uk/product-cate...
#LetsBeatPSC #PSCMerch #PSCSupport
Our merch store is still open, but don’t wait too long! Order soon to make sure your goodies arrive in time for Christmas.
pscsupport.org.uk/product-cate...
#LetsBeatPSC #PSCMerch #PSCSupport
December 15, 2025 at 8:11 AM
Looking for the perfect stocking stuffer or a little gift that shows you care? 🎁
Our merch store is still open, but don’t wait too long! Order soon to make sure your goodies arrive in time for Christmas.
pscsupport.org.uk/product-cate...
#LetsBeatPSC #PSCMerch #PSCSupport
Our merch store is still open, but don’t wait too long! Order soon to make sure your goodies arrive in time for Christmas.
pscsupport.org.uk/product-cate...
#LetsBeatPSC #PSCMerch #PSCSupport
The spectacular @RoyalParksHalf returns to central London on Sun 11th Oct 2026 and we have places! By joining #TeamPSCSupport you’ll help us improve the lives of people affected by PSC. Get your place before they sell out ➡️ buff.ly/cb377zV #LetsBeatPSC
December 14, 2025 at 9:00 AM
The spectacular @RoyalParksHalf returns to central London on Sun 11th Oct 2026 and we have places! By joining #TeamPSCSupport you’ll help us improve the lives of people affected by PSC. Get your place before they sell out ➡️ buff.ly/cb377zV #LetsBeatPSC
Living with PSC means #fatigue can drain your battery fast, especially during the festive season. If you get a moment of energy, celebrate it. If you need rest, then rest. There's no "right" way to do Christmas. 🎄 #LetsBeatPSC #PSCSupport #ChronicDisease #RareDisease
December 13, 2025 at 10:01 AM
Living with PSC means #fatigue can drain your battery fast, especially during the festive season. If you get a moment of energy, celebrate it. If you need rest, then rest. There's no "right" way to do Christmas. 🎄 #LetsBeatPSC #PSCSupport #ChronicDisease #RareDisease
Still time to register! Join us tomorrow for our Ask the Expert session, where Dr Joshi will break down the latest PSC research shared at The Liver Meeting (#AASLD) in Washington, D.C. earlier this month.
➡️ us06web.zoom.us/webinar/regi...
#LiverDisease #LetsBeatPSC
➡️ us06web.zoom.us/webinar/regi...
#LiverDisease #LetsBeatPSC
December 12, 2025 at 9:33 AM
Still time to register! Join us tomorrow for our Ask the Expert session, where Dr Joshi will break down the latest PSC research shared at The Liver Meeting (#AASLD) in Washington, D.C. earlier this month.
➡️ us06web.zoom.us/webinar/regi...
#LiverDisease #LetsBeatPSC
➡️ us06web.zoom.us/webinar/regi...
#LiverDisease #LetsBeatPSC
Christmas cards not your thing? Good news! You can send one of our eCards to friends and family and donate the postage costs to PSC Support instead. Spread cheer and help us improve the lives of people affected by PSC.
👉 pscsupport.org.uk/festive-cards/ #LetsBeatPSC
👉 pscsupport.org.uk/festive-cards/ #LetsBeatPSC
December 12, 2025 at 9:01 AM
Christmas cards not your thing? Good news! You can send one of our eCards to friends and family and donate the postage costs to PSC Support instead. Spread cheer and help us improve the lives of people affected by PSC.
👉 pscsupport.org.uk/festive-cards/ #LetsBeatPSC
👉 pscsupport.org.uk/festive-cards/ #LetsBeatPSC
𝙍𝙞𝙛𝙖𝙢𝙥𝙞𝙘𝙞𝙣 𝙎𝙪𝙥𝙥𝙡𝙮 𝙃𝙖𝙨 𝙄𝙢𝙥𝙧𝙤𝙫𝙚𝙙
The @dhscgovuk confirmed that the recent national shortage of rifampicin has improved. Normal prescribing has resumed and access to rifampicin for itch should now be more reliable.
👉 buff.ly/OEwx2h7 #LetsBeatPSC
The @dhscgovuk confirmed that the recent national shortage of rifampicin has improved. Normal prescribing has resumed and access to rifampicin for itch should now be more reliable.
👉 buff.ly/OEwx2h7 #LetsBeatPSC
December 11, 2025 at 9:00 AM
𝙍𝙞𝙛𝙖𝙢𝙥𝙞𝙘𝙞𝙣 𝙎𝙪𝙥𝙥𝙡𝙮 𝙃𝙖𝙨 𝙄𝙢𝙥𝙧𝙤𝙫𝙚𝙙
The @dhscgovuk confirmed that the recent national shortage of rifampicin has improved. Normal prescribing has resumed and access to rifampicin for itch should now be more reliable.
👉 buff.ly/OEwx2h7 #LetsBeatPSC
The @dhscgovuk confirmed that the recent national shortage of rifampicin has improved. Normal prescribing has resumed and access to rifampicin for itch should now be more reliable.
👉 buff.ly/OEwx2h7 #LetsBeatPSC
Thank you everyone who supported our first ever @BigGive #ChristmasChallenge! Not only did we reach our goal, we exceeded it! Your support means we can increase our Research Seed Funding grants by 50% next year, helping accelerate #PSresearch #LetsBeatPSC
➡️ pscsupport.org.uk/seed-funding...
➡️ pscsupport.org.uk/seed-funding...
December 10, 2025 at 8:00 AM
Thank you everyone who supported our first ever @BigGive #ChristmasChallenge! Not only did we reach our goal, we exceeded it! Your support means we can increase our Research Seed Funding grants by 50% next year, helping accelerate #PSresearch #LetsBeatPSC
➡️ pscsupport.org.uk/seed-funding...
➡️ pscsupport.org.uk/seed-funding...
Calum, a father, husband, former footballer, and manager in the SPFL, lives with AIH and PSC. Every penny donated to our @BigGive #ChristmasChallenge will go to PSC research to help people like Calum. Contribute if you can: donate.biggive.org/campaign/a05.... #LetsBeatPSC
Calum’s Journey: from Football to PSC – PSC Support
"I have to be honest, your posts and support to people who live with PSC is truly inspiring.
pscsupport.org.uk
December 9, 2025 at 7:01 AM
Calum, a father, husband, former footballer, and manager in the SPFL, lives with AIH and PSC. Every penny donated to our @BigGive #ChristmasChallenge will go to PSC research to help people like Calum. Contribute if you can: donate.biggive.org/campaign/a05.... #LetsBeatPSC
The only way to find effective treatments for PSC is through research. People with PSC, people like Gemma, need treatments and they need them now. Every penny donated to our @BigGive #ChristmasChallenge will fund PSC research.
➡️ buff.ly/ZlE1P4i #LetsBeatPSC
➡️ buff.ly/ZlE1P4i #LetsBeatPSC
December 8, 2025 at 9:01 AM
The only way to find effective treatments for PSC is through research. People with PSC, people like Gemma, need treatments and they need them now. Every penny donated to our @BigGive #ChristmasChallenge will fund PSC research.
➡️ buff.ly/ZlE1P4i #LetsBeatPSC
➡️ buff.ly/ZlE1P4i #LetsBeatPSC
We see you. We hear you. You matter.
Our Helpline Nurse has appointments available for anyone affected by PSC - friends, family, colleagues and PSC patients. This is a free service that can be accessed by phone, email or zoom. ➡️ pscsupport.org.uk/helpline/ @HelplinesUK #LetsBeatPSC
Our Helpline Nurse has appointments available for anyone affected by PSC - friends, family, colleagues and PSC patients. This is a free service that can be accessed by phone, email or zoom. ➡️ pscsupport.org.uk/helpline/ @HelplinesUK #LetsBeatPSC
December 7, 2025 at 3:02 PM
We see you. We hear you. You matter.
Our Helpline Nurse has appointments available for anyone affected by PSC - friends, family, colleagues and PSC patients. This is a free service that can be accessed by phone, email or zoom. ➡️ pscsupport.org.uk/helpline/ @HelplinesUK #LetsBeatPSC
Our Helpline Nurse has appointments available for anyone affected by PSC - friends, family, colleagues and PSC patients. This is a free service that can be accessed by phone, email or zoom. ➡️ pscsupport.org.uk/helpline/ @HelplinesUK #LetsBeatPSC