#PSCResearch
LightNews LightNews
pscsupport.bsky.social
Missed our Newport Information Day? Catch up now!

We’ve shared all the presentations online—including the latest PSC research, managing symptoms, clinic tips, and more.

👉 View here: pscsupport.org.uk/newport-2025...
#PSCsupport #PSCresearch #LetsBeatPSC #RareDisease
May 31, 2025 at 8:07 AM
pscsupport.bsky.social
🧠 Love research? Organised & detail-focused? We're looking for a Volunteer Research Administrator. Help advance PSC research behind the scenes in a flexible, remote role with a supportive team.

🔗 Apply by 23rd May: buff.ly/U8ZW7ds
#LetsBeatPSC #PSCResearch
May 16, 2025 at 7:02 PM
pscsupport.bsky.social
Easier said than done, but worth saying anyway: it’s important to keep an eye on your internal battery and take a meaningful break to recharge when you need it.
Full video buff.ly/WyQIlDp
#PSCFatigue #Fatigue #LetsBeatPSC #PSC #PSCExpert #PSCResearch
August 19, 2025 at 9:56 AM
pscsupport.bsky.social
Do you have PSC and IBD and haven’t had a liver transplant? You may be eligible to take part in the new CATCH clinical trial, which is now recruiting.
ℹ️ pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCResearch #ClinicalTrials #CatchClinicalTrial #PSCIBD #IBD #PSC
October 23, 2025 at 8:37 AM
pscsupport.bsky.social
Breaking news! Chemomab Therapeutics announces plans for a Phase 3 clinical trial, following positive results from their Phase 2 SPRING study https://buff.ly/3X6OHJK #LetsBeatPSC #PSC #PSCResearch
February 21, 2025 at 8:00 AM
pscsupport.bsky.social
We're proud to fund #Mission2030 research to find the best tests to detect bile duct cancer early in people with PSC. Early diagnosis saves lives—and PSC patients deserve the most accurate tools. 👉🏻 buff.ly/75xV3qO #LetsBeatPSC #PSCResearch #PSC
June 23, 2025 at 8:02 AM
pscsupport.bsky.social
Positive NorUrso news for PSC patients!
"I’m hopeful and I’m optimistic that the difference will rise from that 20% and 1 in 5 people, to greater numbers.” Dr Palak Trivedi
👉 youtu.be/vpScVn7W814 #LetsBeatPSC #NurUrso #EASLUpdate #PSCResearch
EASL Congress - Latest PSC news with Dr Palak Trivedi (PSC Support)
This video was taken from Dr Palak Trivedi's live Ask the Expert and Q&A session, originally broadcast on a live Zoom webinar. Dr Trivedi is a Consultant Hep...
youtu.be
June 18, 2025 at 7:01 AM
pscsupport.bsky.social
We've been busy...

➡️ pscsupport.org.uk/june-2025-re...
#LetsBeatPSC #PSCResearch #PSCSupport
July 2, 2025 at 9:02 AM
pscsupport.bsky.social
PSC research is challenging, but progress is happening faster than ever. There are now more clinical trials testing potential treatments than ever. Every study brings us closer to better care and, one day, a cure.
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
November 11, 2025 at 6:03 PM
pscsupport.bsky.social
📢 Live PSC Webinar – Sat 17 May, 3:30pm (BST). Dr Palak Trivedi joins us to discuss the breaking research updates from #EASL2025 – with encouraging news for the PSC community.
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
May 15, 2025 at 8:01 AM
pscsupport.bsky.social
Together, no one faces PSC alone 💙 Every step forward grows our hope.
#GlobalPSCAwarenessDay #GlobalPSCAwareness #HopeInAction #LetsBeatPSC #PSCResearch
ℹ️ pscsupport.org.uk/global-psc-a...
October 25, 2025 at 3:01 PM
pscsupport.bsky.social
📣 Calling all PSC researchers! Don’t miss your chance to apply for funding for your #PSC research project. We’re offering:
💷 Project Grant: £50k
💷 Seed Funding Grants: £15k

🗓️ Deadline for LOIs: 24 March 2025
👉 buff.ly/NoAncJc
#Mission2030 #PSCResearch #LetsBeatPSC
March 18, 2025 at 1:06 PM
pscsupport.bsky.social
How does PSC affect your daily life - socially, emotionally, and financially? Could you share your experience to help improve knowledge of what it’s really like to live with #PSC? ➡️ buff.ly/rbIoRGG #LetsBeatPSC #PatientVoice #PSCResearch @sheffielduni @mirumpharma
October 13, 2025 at 8:37 AM
pscsupport.bsky.social
We are delighted to announce that we’ve awarded £51,060 to a leading expert on PSC in Sweden, Professor Annika Bergquist @ki.se to help fund her clinical trial assessing a type of statin in people with PSC.
Find out more 👉🏻 buff.ly/Vv5WIrS
#LetsBeatPSC #Mission2030 #PSC #PSCResearch
March 21, 2025 at 9:00 AM
pscsupport.bsky.social
@crick.ac.uk @inst-of-liver.bsky.social @kingscollegelondon.bsky.social @james-sun.bsky.social @foadrouhani.bsky.social #LetsBeatPSC #PSCResearch #PSCSupport
March 3, 2025 at 8:00 AM
pscsupport.bsky.social
If you have itch, you might be interested in the VISTAS trial testing a new drug to combat itch in PSC. Find out more and see if you could take part.
➡️ buff.ly/3Xex2jy <a href="/hashtag/LetsBeatPSC" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#LetsBeatPSC #PSCItch #PSCResearch #PSC
March 1, 2025 at 10:00 AM
pscsupport.bsky.social
Every donation, every voice, and every minute matters. Your support not only funds essential PSC research but also drives advocacy that puts the PSC community front and centre. Thank you! #PSCSupport #LetsBeatPSC #PSCResearch
July 6, 2025 at 4:02 PM
pscsupport.bsky.social
By 2030, we’ll invest over £1M in PSC research — but how do we decide what to fund?

Our expert Scientific Review Committee (SRC) volunteers their time to review every application and guide our decisions.

Thank you to each of them! #LetsBeatPSC #PSCResearch #VolunteersWeek
June 4, 2025 at 8:17 AM
pscsupport.bsky.social
The lineup for our Newport, Wales Information Day is looking fantastic! 🎉 We’re excited to announce a research highlights session, where PSC researchers will each share summaries of their ground-breaking work. Register here: buff.ly/QYR1bQ9 #LetsBeatPSC #PSCResearch
April 2, 2025 at 9:17 AM
pscsupport.bsky.social
Hope → Strength → Action 💪
Together, we push #PSCresearch forward.
#GlobalPSCAwarenessDay #HopeInAction #LetsBeatPSC @EuropeLiver
ℹ️ pscsupport.org.uk/global-psc-a...
October 27, 2025 at 4:32 PM