Bristol Palliative and End of Life Care Research
@peolcsw.bsky.social
Group of Bristol University professionals conducting palliative and end-of-life care research. Coordinated by Charlotte Chamberlain, Lucy Selman and Lucy Pocock
https://www.bristol.ac.uk/population-health-sciences/projects/palliative-end-of-life-care
https://www.bristol.ac.uk/population-health-sciences/projects/palliative-end-of-life-care
Pinned
Hi, we are now here on Bluesky! Please follow us to keep up to date with news, updates and info from the Palliative and End of Life Care research group based at University of Bristol.
Reposted by Bristol Palliative and End of Life Care Research
📢 Do you work on a virtual ward /hospital at home service? 🧑⚕️ We need your help to make sure terminally ill people being cared for at home can get the pain relief and medication they need.
Please share your insights with us 👉 Https://southampton.qualtrics.com/jfe/form/SV_eFZFLvrgwQ9YfSm
Please share your insights with us 👉 Https://southampton.qualtrics.com/jfe/form/SV_eFZFLvrgwQ9YfSm
January 27, 2026 at 9:27 AM
📢 Do you work on a virtual ward /hospital at home service? 🧑⚕️ We need your help to make sure terminally ill people being cared for at home can get the pain relief and medication they need.
Please share your insights with us 👉 Https://southampton.qualtrics.com/jfe/form/SV_eFZFLvrgwQ9YfSm
Please share your insights with us 👉 Https://southampton.qualtrics.com/jfe/form/SV_eFZFLvrgwQ9YfSm
Please register for our PEOLC research network meeting coming up on 3 March. We have a great lineup of speakers
forms.office.com/e/DzCbuP8G1d
@lucyselman.bsky.social @barnyhole.bsky.social @drpoco.bsky.social @capcbristol.bsky.social
forms.office.com/e/DzCbuP8G1d
@lucyselman.bsky.social @barnyhole.bsky.social @drpoco.bsky.social @capcbristol.bsky.social
January 27, 2026 at 2:43 PM
Please register for our PEOLC research network meeting coming up on 3 March. We have a great lineup of speakers
forms.office.com/e/DzCbuP8G1d
@lucyselman.bsky.social @barnyhole.bsky.social @drpoco.bsky.social @capcbristol.bsky.social
forms.office.com/e/DzCbuP8G1d
@lucyselman.bsky.social @barnyhole.bsky.social @drpoco.bsky.social @capcbristol.bsky.social
Reposted by Bristol Palliative and End of Life Care Research
"Palliative care must prioritise cultural humility and social justice.”
This article underlines what hospices see every day: care is better when people’s own traditions and voices lead the way.
www.bmj.com/content/391/...
This article underlines what hospices see every day: care is better when people’s own traditions and voices lead the way.
www.bmj.com/content/391/...
End-of-life care needs cultural humility and social justice
Cultural competency is not enough for palliative medicine to build trust and offer good deaths to all, write Jamilla Akhter Hussain , Rekha Vijayshankar , and Mary Hodgson
Death, dying, and grief ar...
www.bmj.com
January 20, 2026 at 12:11 PM
"Palliative care must prioritise cultural humility and social justice.”
This article underlines what hospices see every day: care is better when people’s own traditions and voices lead the way.
www.bmj.com/content/391/...
This article underlines what hospices see every day: care is better when people’s own traditions and voices lead the way.
www.bmj.com/content/391/...
Reposted by Bristol Palliative and End of Life Care Research
This week’s #EAPCblog ‘We have to be very creative to ensure that food once again becomes a source of pleasure, desire and consequently, hope. This is why it is so crucial to provide nutritional support to people as early as possible.’ bit.ly/4aUu0Zl
Eating for pleasure, not pain
Many health and social care professionals contribute to palliative care – but a dietician may not be a role that first comes to mind. For our palliative stories blog series, Raphaëlle Rouhier, a n…
bit.ly
January 14, 2026 at 10:15 AM
This week’s #EAPCblog ‘We have to be very creative to ensure that food once again becomes a source of pleasure, desire and consequently, hope. This is why it is so crucial to provide nutritional support to people as early as possible.’ bit.ly/4aUu0Zl
SAVE THE DATE: 3 March 10am-12pm
Our next online network meeting is coming up soon. We have a great line-up of speakers, more details coming soon! @lucyselman.bsky.social @drpoco.bsky.social @barnyhole.bsky.social @capcbristol.bsky.social
Our next online network meeting is coming up soon. We have a great line-up of speakers, more details coming soon! @lucyselman.bsky.social @drpoco.bsky.social @barnyhole.bsky.social @capcbristol.bsky.social
January 13, 2026 at 2:22 PM
SAVE THE DATE: 3 March 10am-12pm
Our next online network meeting is coming up soon. We have a great line-up of speakers, more details coming soon! @lucyselman.bsky.social @drpoco.bsky.social @barnyhole.bsky.social @capcbristol.bsky.social
Our next online network meeting is coming up soon. We have a great line-up of speakers, more details coming soon! @lucyselman.bsky.social @drpoco.bsky.social @barnyhole.bsky.social @capcbristol.bsky.social
Reposted by Bristol Palliative and End of Life Care Research
Last week @griefcentrebris.bsky.social was launched @houseofcommons.parliament.uk.
Co-founders @lucyselman.bsky.social & @leseldawson.bsky.social were joined by MPs & grief experts from across the UK.
Read Lucy's blog about the launch, why the Centre is needed & future plans.
tinyurl.com/3csfju7c
Co-founders @lucyselman.bsky.social & @leseldawson.bsky.social were joined by MPs & grief experts from across the UK.
Read Lucy's blog about the launch, why the Centre is needed & future plans.
tinyurl.com/3csfju7c
December 17, 2025 at 1:30 PM
Last week @griefcentrebris.bsky.social was launched @houseofcommons.parliament.uk.
Co-founders @lucyselman.bsky.social & @leseldawson.bsky.social were joined by MPs & grief experts from across the UK.
Read Lucy's blog about the launch, why the Centre is needed & future plans.
tinyurl.com/3csfju7c
Co-founders @lucyselman.bsky.social & @leseldawson.bsky.social were joined by MPs & grief experts from across the UK.
Read Lucy's blog about the launch, why the Centre is needed & future plans.
tinyurl.com/3csfju7c
Reposted by Bristol Palliative and End of Life Care Research
University of Southampton are investigating access to medication for people in the last year of life in virtual wards / hospital at home services. If you work in these services please complete our survey southampton.qualtrics.com/jfe/form/SV_... Please share with colleagues
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
southampton.qualtrics.com
December 15, 2025 at 1:44 PM
University of Southampton are investigating access to medication for people in the last year of life in virtual wards / hospital at home services. If you work in these services please complete our survey southampton.qualtrics.com/jfe/form/SV_... Please share with colleagues
Reposted by Bristol Palliative and End of Life Care Research
A nine-item daily self-care handbook for palliative care staff was surveyed (75% response). Most found it useful, especially hydration and asking/offering help. Adherence was high. During COVID-19, usefulness and adherence increased further.
pubmed.ncbi.nlm.nih.gov/36318801/
pubmed.ncbi.nlm.nih.gov/36318801/
Evaluation of a Daily Nine-Item "Handbook for Self-Care at Work" for Palliative Care Clinicians - PubMed
<span><b><i>Context:</i></b> A daily nine-item "Handbook for Self-Care at Work" was created to increase the well-being and satisfaction of the staff at the department of palliative care of a tertiary oncological center in the United States. <b><i>Objectives:</i></b> To evaluate the perceived usefulness of</span> …
pubmed.ncbi.nlm.nih.gov
December 16, 2025 at 11:26 AM
A nine-item daily self-care handbook for palliative care staff was surveyed (75% response). Most found it useful, especially hydration and asking/offering help. Adherence was high. During COVID-19, usefulness and adherence increased further.
pubmed.ncbi.nlm.nih.gov/36318801/
pubmed.ncbi.nlm.nih.gov/36318801/
Reposted by Bristol Palliative and End of Life Care Research
A study of a 5-minute group meditation during palliative care rounds found 59% participation and high satisfaction. Participation was linked to perceived stress reduction and control, with many clinicians continuing meditation weekly outside rounds.
pubmed.ncbi.nlm.nih.gov/40285484/
pubmed.ncbi.nlm.nih.gov/40285484/
Evaluation of a Five-Minute Meditation Intervention During Weekly Palliative Care Clinical Rounds - PubMed
<span><b><i>Introduction:</i></b> Palliative care professionals experience high levels stress and burnout. Meditation improves stress and well-being, with group interventions more promising than individual-level efforts. This study assessed participation, satisfaction, helpfulness, and integration of a fi</span> …
pubmed.ncbi.nlm.nih.gov
December 16, 2025 at 11:29 AM
A study of a 5-minute group meditation during palliative care rounds found 59% participation and high satisfaction. Participation was linked to perceived stress reduction and control, with many clinicians continuing meditation weekly outside rounds.
pubmed.ncbi.nlm.nih.gov/40285484/
pubmed.ncbi.nlm.nih.gov/40285484/
Reposted by Bristol Palliative and End of Life Care Research
A survey of palliative care staff evaluated a 13-item self-care checklist carried in lab coats. Among 82% respondents, most found it useful. Exercise ranked highest, visual arts lowest. Findings support feasibility of workplace self-care tools to address burnout.
pubmed.ncbi.nlm.nih.gov/32979518/
pubmed.ncbi.nlm.nih.gov/32979518/
Empowering the Health and Well-Being of the Palliative Care Workforce: Evaluation of a Weekly Self-Care Checklist - PubMed
Numerous opportunities were identified to improve the checklist and facilitate achievement of checklist items. Survey data will be used in the next checklist version.
pubmed.ncbi.nlm.nih.gov
December 16, 2025 at 11:33 AM
A survey of palliative care staff evaluated a 13-item self-care checklist carried in lab coats. Among 82% respondents, most found it useful. Exercise ranked highest, visual arts lowest. Findings support feasibility of workplace self-care tools to address burnout.
pubmed.ncbi.nlm.nih.gov/32979518/
pubmed.ncbi.nlm.nih.gov/32979518/
Reposted by Bristol Palliative and End of Life Care Research
Thank you to everyone who joined our London launch, kindly hosted by @cajardinemp.bsky.social at the @houseofcommons.parliament.uk. The Grief Centre aims to make a genuine difference through interdisciplinary research that deepens our understanding of grief & improves support when it matters most
December 12, 2025 at 10:42 AM
Thank you to everyone who joined our London launch, kindly hosted by @cajardinemp.bsky.social at the @houseofcommons.parliament.uk. The Grief Centre aims to make a genuine difference through interdisciplinary research that deepens our understanding of grief & improves support when it matters most
Reposted by Bristol Palliative and End of Life Care Research
📣New paper: Shifting to online and telephone bereavement support provision during the COVID-19 pandemic: A mixed methods study of bereavement service provider perspectives and lessons learnt for current practice
Policy briefing: tinyurl.com/545efy49
Paper: journals.sagepub.com/doi/10.1177/...
Policy briefing: tinyurl.com/545efy49
Paper: journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
December 11, 2025 at 8:49 AM
📣New paper: Shifting to online and telephone bereavement support provision during the COVID-19 pandemic: A mixed methods study of bereavement service provider perspectives and lessons learnt for current practice
Policy briefing: tinyurl.com/545efy49
Paper: journals.sagepub.com/doi/10.1177/...
Policy briefing: tinyurl.com/545efy49
Paper: journals.sagepub.com/doi/10.1177/...
Reposted by Bristol Palliative and End of Life Care Research
🚨Register now for the Marie Curie Research into Practice Conference 2026!
events.zoom.us/ev/Aq_RYaxKT...
events.zoom.us/ev/Aq_RYaxKT...
Marie Curie Research into Practice Conference 2026
events.zoom.us
December 3, 2025 at 11:02 AM
🚨Register now for the Marie Curie Research into Practice Conference 2026!
events.zoom.us/ev/Aq_RYaxKT...
events.zoom.us/ev/Aq_RYaxKT...
Reposted by Bristol Palliative and End of Life Care Research
“Food for thought - How nutrition can impact mental health in advanced illness” - Mental Health and Wellbeing in Advanced Illness Network (MAIN) webinar
🗓 Date: Tuesday 27 January 2026
🕧 Time: 12:30-13:30 BST
📍 Online: Teams meeting
🔗 Registration: events.teams.microsoft.com/event/da93a0...
🗓 Date: Tuesday 27 January 2026
🕧 Time: 12:30-13:30 BST
📍 Online: Teams meeting
🔗 Registration: events.teams.microsoft.com/event/da93a0...
Microsoft Virtual Events Powered by Teams
Microsoft Virtual Events Powered by Teams
events.teams.microsoft.com
December 10, 2025 at 9:32 AM
“Food for thought - How nutrition can impact mental health in advanced illness” - Mental Health and Wellbeing in Advanced Illness Network (MAIN) webinar
🗓 Date: Tuesday 27 January 2026
🕧 Time: 12:30-13:30 BST
📍 Online: Teams meeting
🔗 Registration: events.teams.microsoft.com/event/da93a0...
🗓 Date: Tuesday 27 January 2026
🕧 Time: 12:30-13:30 BST
📍 Online: Teams meeting
🔗 Registration: events.teams.microsoft.com/event/da93a0...
Reposted by Bristol Palliative and End of Life Care Research
📣Out today: “The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
www.tandfonline.com/doi/full/10....
Policy brief: tinyurl.com/34sh98ac
www.tandfonline.com/doi/full/10....
Policy brief: tinyurl.com/34sh98ac
December 2, 2025 at 9:22 PM
📣Out today: “The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
www.tandfonline.com/doi/full/10....
Policy brief: tinyurl.com/34sh98ac
www.tandfonline.com/doi/full/10....
Policy brief: tinyurl.com/34sh98ac
Reposted by Bristol Palliative and End of Life Care Research
An accompanying policy briefing detailing key findings & recommendations has also been published today:
Bereavement: Systemic reform and targeted action needed to better support Black communities
👉 tinyurl.com/34sh98ac
@policybristol.bsky.social @griefcentrebris.bsky.social @lucyselman.bsky.social
Bereavement: Systemic reform and targeted action needed to better support Black communities
👉 tinyurl.com/34sh98ac
@policybristol.bsky.social @griefcentrebris.bsky.social @lucyselman.bsky.social
December 2, 2025 at 12:50 PM
An accompanying policy briefing detailing key findings & recommendations has also been published today:
Bereavement: Systemic reform and targeted action needed to better support Black communities
👉 tinyurl.com/34sh98ac
@policybristol.bsky.social @griefcentrebris.bsky.social @lucyselman.bsky.social
Bereavement: Systemic reform and targeted action needed to better support Black communities
👉 tinyurl.com/34sh98ac
@policybristol.bsky.social @griefcentrebris.bsky.social @lucyselman.bsky.social
Reposted by Bristol Palliative and End of Life Care Research
📢 New course alert!
Designed with GPs, 'Grief & Bereavement in Primary Care' features world-leading experts, practical tips & evidence-based resources. Learn how to support bereaved patients effectively & compassionately. Early-bird discount ends 6 Jan
Sign up today goodgrieffest.com/the-grief-ac...
Designed with GPs, 'Grief & Bereavement in Primary Care' features world-leading experts, practical tips & evidence-based resources. Learn how to support bereaved patients effectively & compassionately. Early-bird discount ends 6 Jan
Sign up today goodgrieffest.com/the-grief-ac...
December 3, 2025 at 12:21 PM
📢 New course alert!
Designed with GPs, 'Grief & Bereavement in Primary Care' features world-leading experts, practical tips & evidence-based resources. Learn how to support bereaved patients effectively & compassionately. Early-bird discount ends 6 Jan
Sign up today goodgrieffest.com/the-grief-ac...
Designed with GPs, 'Grief & Bereavement in Primary Care' features world-leading experts, practical tips & evidence-based resources. Learn how to support bereaved patients effectively & compassionately. Early-bird discount ends 6 Jan
Sign up today goodgrieffest.com/the-grief-ac...
Reposted by Bristol Palliative and End of Life Care Research
Did you catch Drs Bajwah & Mayland's seminar about their Equitable Bereavement Care study? The recording is now on our website!
& you can learn more about grief in diverse communities at a @goodgrieffest.bsky.social #DyingMattersAwarenessWeek panel next Thurs: www.ticketsource.co.uk/goodgrieffes...
& you can learn more about grief in diverse communities at a @goodgrieffest.bsky.social #DyingMattersAwarenessWeek panel next Thurs: www.ticketsource.co.uk/goodgrieffes...
www.ticketsource.co.uk
November 27, 2025 at 5:34 PM
Did you catch Drs Bajwah & Mayland's seminar about their Equitable Bereavement Care study? The recording is now on our website!
& you can learn more about grief in diverse communities at a @goodgrieffest.bsky.social #DyingMattersAwarenessWeek panel next Thurs: www.ticketsource.co.uk/goodgrieffes...
& you can learn more about grief in diverse communities at a @goodgrieffest.bsky.social #DyingMattersAwarenessWeek panel next Thurs: www.ticketsource.co.uk/goodgrieffes...
Reposted by Bristol Palliative and End of Life Care Research
“The system doesn’t really cater for the trauma that Black people have experienced”
Structural racism and cultural misunderstanding compound grief for Black British and Black Caribbean communities, according to a new study published today in Death Studies
#Grief
arc-w.nihr.ac.uk/structural-r...
Structural racism and cultural misunderstanding compound grief for Black British and Black Caribbean communities, according to a new study published today in Death Studies
#Grief
arc-w.nihr.ac.uk/structural-r...
Structural racism and cultural misunderstanding compound grief for Black British and Black Caribbean communities, study finds - ARC West
Inequities in how bereavement is experienced and supported among people of Black British and Black Caribbean heritage in England has been revealed in a new study led by the University of Bristol. The ...
arc-w.nihr.ac.uk
December 2, 2025 at 11:41 AM
“The system doesn’t really cater for the trauma that Black people have experienced”
Structural racism and cultural misunderstanding compound grief for Black British and Black Caribbean communities, according to a new study published today in Death Studies
#Grief
arc-w.nihr.ac.uk/structural-r...
Structural racism and cultural misunderstanding compound grief for Black British and Black Caribbean communities, according to a new study published today in Death Studies
#Grief
arc-w.nihr.ac.uk/structural-r...
Reposted by Bristol Palliative and End of Life Care Research
Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
Read the full paper by @lucyselman.bsky.social @sabiredwood.bsky.social et al
www.tandfonline.com/doi/full/10....
Read the full paper by @lucyselman.bsky.social @sabiredwood.bsky.social et al
www.tandfonline.com/doi/full/10....
“The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. However, bereavement exper...
www.tandfonline.com
December 2, 2025 at 11:41 AM
Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study
Read the full paper by @lucyselman.bsky.social @sabiredwood.bsky.social et al
www.tandfonline.com/doi/full/10....
Read the full paper by @lucyselman.bsky.social @sabiredwood.bsky.social et al
www.tandfonline.com/doi/full/10....
Reposted by Bristol Palliative and End of Life Care Research
Today is the last day of #ChildrensGriefAwarenessWeek!
As Lily & Ben explain in this clip, creative activities can be a great way for children to explore their emotions, tell their story & connect to people who have died.
Watch the full video here: youtu.be/pZx8dg1sjHY?...
As Lily & Ben explain in this clip, creative activities can be a great way for children to explore their emotions, tell their story & connect to people who have died.
Watch the full video here: youtu.be/pZx8dg1sjHY?...
November 23, 2025 at 4:01 PM
Today is the last day of #ChildrensGriefAwarenessWeek!
As Lily & Ben explain in this clip, creative activities can be a great way for children to explore their emotions, tell their story & connect to people who have died.
Watch the full video here: youtu.be/pZx8dg1sjHY?...
As Lily & Ben explain in this clip, creative activities can be a great way for children to explore their emotions, tell their story & connect to people who have died.
Watch the full video here: youtu.be/pZx8dg1sjHY?...
Reposted by Bristol Palliative and End of Life Care Research
How is grief experienced in ethnically diverse communities? And how well do current services meet the needs of all bereaved people? Join us to explore these questions in a special panel discussion for #NationalGriefAwarenessWeek on 4 December at 7pm: www.ticketsource.co.uk/goodgrieffes...
November 20, 2025 at 2:38 PM
How is grief experienced in ethnically diverse communities? And how well do current services meet the needs of all bereaved people? Join us to explore these questions in a special panel discussion for #NationalGriefAwarenessWeek on 4 December at 7pm: www.ticketsource.co.uk/goodgrieffes...
Last chance to book - PEOLC Southwest Research Network Meeting, Tomorrow 6 November 2-4pm, online. We have an exciting list of speakers and interesting talks lined up. Presentations will have a focus on equity. Register here www.ticketsource.co.uk/alice-malpas...
@lucyselman.bsky.social
@lucyselman.bsky.social
November 5, 2025 at 12:10 PM
Last chance to book - PEOLC Southwest Research Network Meeting, Tomorrow 6 November 2-4pm, online. We have an exciting list of speakers and interesting talks lined up. Presentations will have a focus on equity. Register here www.ticketsource.co.uk/alice-malpas...
@lucyselman.bsky.social
@lucyselman.bsky.social
Reposted by Bristol Palliative and End of Life Care Research
Exciting! Abstract submission now open for the Society for Academic Primary Care Annual Scientific Meeting 2026 in St Andrew's, Scotland.
This is the key #PrimaryCare research conference in the UK.
Deadline: 23 January 2026.
@sapc.ac.uk @bnssgresearch.bsky.social @nihrspcr.bsky.social
#GPSky
This is the key #PrimaryCare research conference in the UK.
Deadline: 23 January 2026.
@sapc.ac.uk @bnssgresearch.bsky.social @nihrspcr.bsky.social
#GPSky
SAPC ASM 2026, St Andrews, 24th - 26th June
For further details : sapc.ac.uk/conference/2...
#SAPC2026 #SAPC_ASM #PrimaryCare #AcademicMedicine #StAndrews
For further details : sapc.ac.uk/conference/2...
#SAPC2026 #SAPC_ASM #PrimaryCare #AcademicMedicine #StAndrews
October 30, 2025 at 12:53 PM
Exciting! Abstract submission now open for the Society for Academic Primary Care Annual Scientific Meeting 2026 in St Andrew's, Scotland.
This is the key #PrimaryCare research conference in the UK.
Deadline: 23 January 2026.
@sapc.ac.uk @bnssgresearch.bsky.social @nihrspcr.bsky.social
#GPSky
This is the key #PrimaryCare research conference in the UK.
Deadline: 23 January 2026.
@sapc.ac.uk @bnssgresearch.bsky.social @nihrspcr.bsky.social
#GPSky
Reposted by Bristol Palliative and End of Life Care Research
We are very proud that alumnus Prof. Naveen Salins led the #palliativecare strand of this work with @catherinewalshe.bsky.social and @nancypreston.bsky.social also involved. Do read this important work here: authors.elsevier.com/c/1m2735EIIg... #hpm #hapc #hospice #cancer #oncology
November 3, 2025 at 9:33 AM
We are very proud that alumnus Prof. Naveen Salins led the #palliativecare strand of this work with @catherinewalshe.bsky.social and @nancypreston.bsky.social also involved. Do read this important work here: authors.elsevier.com/c/1m2735EIIg... #hpm #hapc #hospice #cancer #oncology