NativeBio Data Consortium
@nativebio.bsky.social
First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. 501 (C)(3) non-profit. www.nativebio.org / Tribal Data Repository d4itdr.org @Indigidata @SENAHD
Honestly, though NativeBio is internationally known, we've had trouble getting the message out on the Northern Plains. Bad Actors know this & this makes them ripe for data exploitation (see Sue T Rex vs CRST story). This young Oglala scholar says it all the correct way. Read, listen, investigate!
February 11, 2026 at 8:06 PM
Honestly, though NativeBio is internationally known, we've had trouble getting the message out on the Northern Plains. Bad Actors know this & this makes them ripe for data exploitation (see Sue T Rex vs CRST story). This young Oglala scholar says it all the correct way. Read, listen, investigate!
Hello #NCAI, NativeBio, in May 2022, sponsored SENAHD at University of North Carolina. The information sorely needed and provided to SouthEast Tribal Nations is and was part of the Indigenous Data Sovereignty Movement. #IDSov. Please take a look. uncch.hosted.panopto.com/Panopto/Page...
Big Data, Precision Medicine, Research & Resilience in Southeast Indian Country
Southeast Native American Health Data (SENAHD) is an initiative to bring information and programming to Southeast tribal communities, researchers, and health professionals about the ethical use of Ind...
uncch.hosted.panopto.com
February 11, 2026 at 7:36 PM
Hello #NCAI, NativeBio, in May 2022, sponsored SENAHD at University of North Carolina. The information sorely needed and provided to SouthEast Tribal Nations is and was part of the Indigenous Data Sovereignty Movement. #IDSov. Please take a look. uncch.hosted.panopto.com/Panopto/Page...
Reposted by NativeBio Data Consortium
Dear Tribal Leaders and tribal associates at #NationalCongressOfAmericanIndians given all the legal changes around data, it’s in our interests to speak to each other while in DC
February 10, 2026 at 11:55 PM
Dear Tribal Leaders and tribal associates at #NationalCongressOfAmericanIndians given all the legal changes around data, it’s in our interests to speak to each other while in DC
Reposted by NativeBio Data Consortium
Hello National Congress of American Indians. @nativebio.bsky.social are with you in DC to explain the project below and the dangers around your data made possible by the Wild West of Artificial Intelligence
Youtube: youtube.com/@D4ITDR
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
D4I TDR
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...
youtube.com
February 9, 2026 at 4:20 PM
Hello National Congress of American Indians. @nativebio.bsky.social are with you in DC to explain the project below and the dangers around your data made possible by the Wild West of Artificial Intelligence
@nytimes.com shut the Comments section down to soon. Here's a sample. Smart people defended us. Others wanted to know how to support. Look up Donor-Advised Funds (DAFs). We have that and other ways to financially support us! Tell your favorite Philanthropist about us! We are righteous and visionary!
February 9, 2026 at 5:20 AM
@nytimes.com shut the Comments section down to soon. Here's a sample. Smart people defended us. Others wanted to know how to support. Look up Donor-Advised Funds (DAFs). We have that and other ways to financially support us! Tell your favorite Philanthropist about us! We are righteous and visionary!
The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org
Native BioData Consortium | Official Merchandise | Bonfire
Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.
www.bonfire.com
February 6, 2026 at 8:47 PM
The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org
Reposted by NativeBio Data Consortium
Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)
D4I TDR
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...
youtube.com
December 18, 2025 at 12:29 AM
Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)
Reposted by NativeBio Data Consortium
As part of our mission to build educational capacity for Tribal communities, we will not deactivate our social media accounts as we hope our YouTube videos, SEEDs database, and website will continue to educate. These are linked below:
(3/4)
(3/4)
D4I TDR
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...
youtube.com
December 18, 2025 at 12:29 AM
As part of our mission to build educational capacity for Tribal communities, we will not deactivate our social media accounts as we hope our YouTube videos, SEEDs database, and website will continue to educate. These are linked below:
(3/4)
(3/4)
Reposted by NativeBio Data Consortium
Youtube: youtube.com/@D4ITDR
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
D4I TDR
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...
youtube.com
December 18, 2025 at 12:29 AM
Youtube: youtube.com/@D4ITDR
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)
Reposted by NativeBio Data Consortium
NYT Told it in the 3rd (he built) person but there were many of us fighting this fight across 7 institutions, including our Great GREAT PARTNERS Stanford University and all of our Indigenous colleagues and allies at OSU, UW Seattle, UW Madison, UC Santa Cruz, ASU and the Tribes in RADx UP
Native Bio has made the @nytimes.com for the second time. The #IDsov movement is a tidal wave....and a solution for these difficult times. “We are at a fork in the road. Do not choose hate & do not choose unsustainability.” ~ 21st Century Maxim, Author Unknown www.nytimes.com/2026/02/05/s...
He Built a Server to Protect Indigenous Health Data
www.nytimes.com
February 5, 2026 at 6:08 PM
NYT Told it in the 3rd (he built) person but there were many of us fighting this fight across 7 institutions, including our Great GREAT PARTNERS Stanford University and all of our Indigenous colleagues and allies at OSU, UW Seattle, UW Madison, UC Santa Cruz, ASU and the Tribes in RADx UP
Reposted by NativeBio Data Consortium
LOVE seeing the work on @nativebio.bsky.social and @joseph-yracheta.bsky.social highlighted in the NYT.
More good news of Indigenous data champions!
www.nytimes.com/2026/02/05/s...
More good news of Indigenous data champions!
www.nytimes.com/2026/02/05/s...
He Built a Server to Protect Indigenous Health Data
www.nytimes.com
February 5, 2026 at 7:01 PM
LOVE seeing the work on @nativebio.bsky.social and @joseph-yracheta.bsky.social highlighted in the NYT.
More good news of Indigenous data champions!
www.nytimes.com/2026/02/05/s...
More good news of Indigenous data champions!
www.nytimes.com/2026/02/05/s...
Native Bio has made the @nytimes.com for the second time. The #IDsov movement is a tidal wave....and a solution for these difficult times. “We are at a fork in the road. Do not choose hate & do not choose unsustainability.” ~ 21st Century Maxim, Author Unknown www.nytimes.com/2026/02/05/s...
He Built a Server to Protect Indigenous Health Data
www.nytimes.com
February 5, 2026 at 5:47 PM
Native Bio has made the @nytimes.com for the second time. The #IDsov movement is a tidal wave....and a solution for these difficult times. “We are at a fork in the road. Do not choose hate & do not choose unsustainability.” ~ 21st Century Maxim, Author Unknown www.nytimes.com/2026/02/05/s...
NativeBio is comprised of leading Indigenous Scientists & Ethicists in fields of technology that will affect, or steal Indigenous Data & Resources for the "discovery" behemoth of today's world economy. Here, OUR scholars talk about CRISPR in relation to Native plant, microbial & animal relatives.
Indigenous perspectives on gene editing in health and agriculture
YouTube video by CRISPRcon
www.youtube.com
February 2, 2026 at 10:36 PM
NativeBio is comprised of leading Indigenous Scientists & Ethicists in fields of technology that will affect, or steal Indigenous Data & Resources for the "discovery" behemoth of today's world economy. Here, OUR scholars talk about CRISPR in relation to Native plant, microbial & animal relatives.
Reposted by NativeBio Data Consortium
We have been lucky to make such good friends & strong partners around the world. Here, at 5:50, you will hear me sort of predict our current moment & how we could have avoided it. CRISPR Con was a series of conferences dedicated to helping create the best policies around Gene Editing Technologies.
CRISPRcon Midwest - What’s at Stake? The Promise and Perils of Gene Editing
YouTube video by CRISPRcon
www.youtube.com
February 2, 2026 at 10:20 PM
We have been lucky to make such good friends & strong partners around the world. Here, at 5:50, you will hear me sort of predict our current moment & how we could have avoided it. CRISPR Con was a series of conferences dedicated to helping create the best policies around Gene Editing Technologies.
Reposted by NativeBio Data Consortium
2/2 This excuse of "National Strategic Action" or urgency allows an all manner of sins, including stealing Indigenous DNA (human, animal, plant, microbial, and ancestors). Read this great piece by Cree thinker, Jessica Kolopenuk. www.hilltimes.com/story/2026/0...
'The ground on which we stand': innovation and Indigenous sovereignty
In national innovation policy, the knowledge and concerns of Indigenous peoples are often treated as constraints to be overcome rather than strengths to be supported.
www.hilltimes.com
February 2, 2026 at 7:15 PM
2/2 This excuse of "National Strategic Action" or urgency allows an all manner of sins, including stealing Indigenous DNA (human, animal, plant, microbial, and ancestors). Read this great piece by Cree thinker, Jessica Kolopenuk. www.hilltimes.com/story/2026/0...
Reposted by NativeBio Data Consortium
1/2 Canada is trying to go blow for blow with the US Trump land grab, data grab, money grab and people grab with it's version of the "Big Beautiful Bill" that makes Indigenous resources objects of National Emergency (economic, military and privacy are all de-siloed because of ML/AI).
'The ground on which we stand': innovation and Indigenous sovereignty
In national innovation policy, the knowledge and concerns of Indigenous peoples are often treated as constraints to be overcome rather than strengths to be supported.
www.hilltimes.com
February 2, 2026 at 7:15 PM
1/2 Canada is trying to go blow for blow with the US Trump land grab, data grab, money grab and people grab with it's version of the "Big Beautiful Bill" that makes Indigenous resources objects of National Emergency (economic, military and privacy are all de-siloed because of ML/AI).
Watch this to learn about a global groundbreaking standard to decolonize research, Intellectual property law and environmental responsibility open.spotify.com/episode/0ugg...
Decoding IEEE 2890-2025 Part I: The New Global Baseline for Indigenous Data Governance
open.spotify.com
January 30, 2026 at 9:01 PM
Watch this to learn about a global groundbreaking standard to decolonize research, Intellectual property law and environmental responsibility open.spotify.com/episode/0ugg...
Blockbuster summit for a World changing movement called #IDSov #IndigenousDataSovereignty. It's the best plan of defense against #TheGildedAge2.0 Sign up, watch videos, read academic articles and news stories. #WERISE! usindigenousdatanetwork.org/summit-2026/
U.S. Indigenous Data Sovereignty & Governance Summit 2026
Coming Home: Indigenous Data Governance By Us For Us REGISTER FOR SUMMIT 2026 Call for Abstracts Closed Thank you for your abstract submissions! Decisions will be announced by January 16, 2026. See…
usindigenousdatanetwork.org
January 29, 2026 at 7:57 PM
Blockbuster summit for a World changing movement called #IDSov #IndigenousDataSovereignty. It's the best plan of defense against #TheGildedAge2.0 Sign up, watch videos, read academic articles and news stories. #WERISE! usindigenousdatanetwork.org/summit-2026/
This is why Native Bio Data Consortium and other Indigenous peoples have pushed back on folks like @alondra.bsky.social and other proponents of #OpenData and #FAIR. We are in dangerous times. Science is ruined. www.nytimes.com/2026/01/24/u...
Genetic Data From Over 20,000 U.S. Children Misused for ‘Race Science’
www.nytimes.com
January 25, 2026 at 4:03 AM
This is why Native Bio Data Consortium and other Indigenous peoples have pushed back on folks like @alondra.bsky.social and other proponents of #OpenData and #FAIR. We are in dangerous times. Science is ruined. www.nytimes.com/2026/01/24/u...
Please check out our partners page, MASS design group on YouTube. IT's AMAZING!! Really phenomenal work and ethos of praxis. www.youtube.com/@modelofarch...
MASS
At Model of Architecture Serving Society (MASS), our work ensures there is justice in our built environment. Too often access to architecture has been restricted only to those who can afford it, produ...
www.youtube.com
January 24, 2026 at 1:55 AM
Please check out our partners page, MASS design group on YouTube. IT's AMAZING!! Really phenomenal work and ethos of praxis. www.youtube.com/@modelofarch...
Just in case you don't know who Maggie Walter is and all the work she's done to recommend how and why Indigenous people need to protect and utilize (for continued cultural continuity and economic survival) their own data! www.youtube.com/watch?v=cfAn...
UN Open Science and Open Scholarship Conference 2025 - Day 1 – Keynote: Maggie Walter
YouTube video by Dag Hammarskjöld Library
www.youtube.com
January 21, 2026 at 7:21 PM
Just in case you don't know who Maggie Walter is and all the work she's done to recommend how and why Indigenous people need to protect and utilize (for continued cultural continuity and economic survival) their own data! www.youtube.com/watch?v=cfAn...
The current and #dangerousDataLandscape we find ourselves in was predicted by folks like @ruha9.bsky.social and NativeBio. Look at our video, hear our words. Only difference now is that all people are at risk. www.youtube.com/watch?v=xOXb...
www.youtube.com
January 21, 2026 at 6:53 PM
The current and #dangerousDataLandscape we find ourselves in was predicted by folks like @ruha9.bsky.social and NativeBio. Look at our video, hear our words. Only difference now is that all people are at risk. www.youtube.com/watch?v=xOXb...
1/3 In our series of posts about the non-patentability of naturally occurring human DNA, we left out that "synthetic biology" is patentably, including cDNA from human sequences. The cDNA has to be sufficiently longer & be created by a unique process that focuses on the method and use
Legislation Threatens ASCP, Lab Community’s Supreme Court Win on Patents
A landmark Supreme Court decision concerning gene patents is under threat of being overruled by legislation under consideration in CongressThe legislation could threaten patient access to testing and ...
www.ascp.org
January 21, 2026 at 4:25 AM
1/3 In our series of posts about the non-patentability of naturally occurring human DNA, we left out that "synthetic biology" is patentably, including cDNA from human sequences. The cDNA has to be sufficiently longer & be created by a unique process that focuses on the method and use
1/2 Patenting an apple or patenting a common substance like wood is a baffling concept. Much of the ban occurred to prevent angering women voters before an election. Now that politicians feel that women have forgotten
The Gene Patent Question
YouTube video by Wendover Productions
www.youtube.com
January 21, 2026 at 4:13 AM
1/2 Patenting an apple or patenting a common substance like wood is a baffling concept. Much of the ban occurred to prevent angering women voters before an election. Now that politicians feel that women have forgotten
1/2 Patents for DNA is a "Lawyer Trick" by defining segments of nature as "compositions of matter". Now with technology going so fast and in so many places, it's likely that only sequences that are very rare and at low frequency with deep penetrance will be patentable..
The Supreme Court Battle Over Your Genes | Jorge Contreras - Harvard Law Professor
YouTube video by Scott D. Clary - Success Story Podcast
www.youtube.com
January 21, 2026 at 3:59 AM
1/2 Patents for DNA is a "Lawyer Trick" by defining segments of nature as "compositions of matter". Now with technology going so fast and in so many places, it's likely that only sequences that are very rare and at low frequency with deep penetrance will be patentable..