@d4itdr.bsky.social
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American participants while protecting the rights of the individuals and respecting sovereignty. Part of @nativebio.bsky.social
Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...
November 7, 2025 at 11:06 PM
Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...
Happy Halloween from D4I!
What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
October 31, 2025 at 9:44 PM
Happy Halloween from D4I!
What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
Reposted
Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!
October 31, 2025 at 4:04 PM
Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!
Reposted
Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM
October 30, 2025 at 10:57 PM
Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM
Another classic from D4I!
October 29, 2025 at 10:43 PM
Another classic from D4I!
Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
October 27, 2025 at 11:02 PM
Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?...
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
October 17, 2025 at 11:48 PM
Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?...
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
Reposted
Any bioethicists at #ASHG This year? I’m a newbie to the conference! come to our D4I session and lets connect.
Check out our D4I session tomorrow at ASHG!
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
October 16, 2025 at 7:42 PM
Any bioethicists at #ASHG This year? I’m a newbie to the conference! come to our D4I session and lets connect.
Reposted
Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!
October 16, 2025 at 10:51 PM
Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!
Check out our D4I session tomorrow at ASHG!
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
October 16, 2025 at 6:06 PM
Check out our D4I session tomorrow at ASHG!
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
#DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
Reposted
Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC
www.nature.com/articles/s41...
www.nature.com/articles/s41...
October 15, 2025 at 12:43 PM
Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Reposted
Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov
A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics
We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...
www.nature.com
October 15, 2025 at 9:37 PM
Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov
Reposted
For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!
October 14, 2025 at 2:29 PM
For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!
Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)
A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics
We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...
www.nature.com
October 15, 2025 at 10:16 PM
Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)
Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A
conference.aises.org/agenda
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
conference.aises.org/agenda
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
Agenda | 2025 AISES National Conference
conference.aises.org
October 3, 2025 at 9:41 PM
Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A
conference.aises.org/agenda
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
conference.aises.org/agenda
#DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
Them: You look so happy!
Us: Thanks! We're upholding Indigenous Data Sovereignty!
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
Us: Thanks! We're upholding Indigenous Data Sovereignty!
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
September 26, 2025 at 9:57 PM
Them: You look so happy!
Us: Thanks! We're upholding Indigenous Data Sovereignty!
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
Us: Thanks! We're upholding Indigenous Data Sovereignty!
#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
Ever wonder what IDSov and related topics could look like as a music album?
September 19, 2025 at 7:36 PM
Ever wonder what IDSov and related topics could look like as a music album?
Reposted
When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science
From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social
From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social
Professor creates 'a safe harbor' for Indigenous data | ASU News
Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...
news.asu.edu
September 19, 2025 at 4:07 PM
When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science
From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social
From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social
Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)
September 12, 2025 at 6:15 PM
Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)
We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
September 10, 2025 at 6:00 PM
We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f
September 8, 2025 at 4:52 PM
If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f
Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
September 3, 2025 at 6:47 PM
Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org
#DataSovereignty #Indigenous #IDSov #Tribal #Data
#DataSovereignty #Indigenous #IDSov #Tribal #Data
August 29, 2025 at 4:27 PM
Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org
#DataSovereignty #Indigenous #IDSov #Tribal #Data
#DataSovereignty #Indigenous #IDSov #Tribal #Data
What is a Common Data Element (CDE)? And why do we care about them?
CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)
CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)
August 22, 2025 at 10:08 PM
What is a Common Data Element (CDE)? And why do we care about them?
CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)
CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)
Come check out our website! d4itdr.org/were-in-our-...
We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository
d4itdr.org
August 15, 2025 at 9:57 PM
Come check out our website! d4itdr.org/were-in-our-...