Live With MS
@livewithms.bsky.social
Practical tools to help navigate MS 🧡
Learn more on our website 👇
https://livewithms.com/products/living-better-with-ms-digital-ebook-92-pages-6-mini-guides-795
Learn more on our website 👇
https://livewithms.com/products/living-better-with-ms-digital-ebook-92-pages-6-mini-guides-795
📚 Article: Why MS Causes Sensory Overload
How a stressed nervous system processes light, sound, movement — and how to calm it.
👉 Read:
How a stressed nervous system processes light, sound, movement — and how to calm it.
👉 Read:
Living with MS and Light Sensitivity: What You Need to Know!
Light sensitivity is common in MS. Learn what causes it and discover practical tips to manage photophobia and improve daily comfort.
livewithms.com
January 11, 2026 at 2:01 AM
📚 Article: Why MS Causes Sensory Overload
How a stressed nervous system processes light, sound, movement — and how to calm it.
👉 Read:
How a stressed nervous system processes light, sound, movement — and how to calm it.
👉 Read:
Early MS can feel confusing.
Symptoms may fluctuate, overlap, or change, and tests don’t always give clear answers right away.
The nervous system is complex, and uncertainty is common early on.
Confusion doesn’t mean failure — it’s part of early MS.
www.livewithms.com
Symptoms may fluctuate, overlap, or change, and tests don’t always give clear answers right away.
The nervous system is complex, and uncertainty is common early on.
Confusion doesn’t mean failure — it’s part of early MS.
www.livewithms.com
January 11, 2026 at 1:02 AM
Early MS can feel confusing.
Symptoms may fluctuate, overlap, or change, and tests don’t always give clear answers right away.
The nervous system is complex, and uncertainty is common early on.
Confusion doesn’t mean failure — it’s part of early MS.
www.livewithms.com
Symptoms may fluctuate, overlap, or change, and tests don’t always give clear answers right away.
The nervous system is complex, and uncertainty is common early on.
Confusion doesn’t mean failure — it’s part of early MS.
www.livewithms.com
Myth: “If symptoms improve with rest, they weren’t real.”
Truth: MS symptoms worsen with overload and improve with recovery — still neurological.
Truth: MS symptoms worsen with overload and improve with recovery — still neurological.
January 11, 2026 at 1:01 AM
Myth: “If symptoms improve with rest, they weren’t real.”
Truth: MS symptoms worsen with overload and improve with recovery — still neurological.
Truth: MS symptoms worsen with overload and improve with recovery — still neurological.
When your nervous system is overloaded, your brain prioritizes survival tasks — leaving less energy for thinking, planning, or moving smoothly.
January 11, 2026 at 12:01 AM
When your nervous system is overloaded, your brain prioritizes survival tasks — leaving less energy for thinking, planning, or moving smoothly.
Inflammation disrupts neurotransmitters like dopamine + serotonin, impacting motivation, mood, and cognitive clarity.
January 10, 2026 at 11:01 PM
Inflammation disrupts neurotransmitters like dopamine + serotonin, impacting motivation, mood, and cognitive clarity.
People with MS often experience micro-delays in nerve communication — tiny, invisible timing issues that make tasks feel slower or heavier.
January 10, 2026 at 6:01 PM
People with MS often experience micro-delays in nerve communication — tiny, invisible timing issues that make tasks feel slower or heavier.
An MS diagnosis can be a shock.
Even if you suspected something was wrong, hearing it can feel overwhelming.
Fear, confusion, anger, or numbness are all normal reactions.
There’s no right way to respond — give yourself time to process at your own pace.
www.livewithms.com
Even if you suspected something was wrong, hearing it can feel overwhelming.
Fear, confusion, anger, or numbness are all normal reactions.
There’s no right way to respond — give yourself time to process at your own pace.
www.livewithms.com
January 10, 2026 at 5:31 PM
An MS diagnosis can be a shock.
Even if you suspected something was wrong, hearing it can feel overwhelming.
Fear, confusion, anger, or numbness are all normal reactions.
There’s no right way to respond — give yourself time to process at your own pace.
www.livewithms.com
Even if you suspected something was wrong, hearing it can feel overwhelming.
Fear, confusion, anger, or numbness are all normal reactions.
There’s no right way to respond — give yourself time to process at your own pace.
www.livewithms.com
If daily life feels harder than it “should,” it’s not because you're weak — it’s because your nervous system is working harder than anyone can see.
January 10, 2026 at 5:01 PM
If daily life feels harder than it “should,” it’s not because you're weak — it’s because your nervous system is working harder than anyone can see.
Every MS symptom is the brain trying to route signals around damaged pathways — rewiring on the fly uses enormous energy.
January 10, 2026 at 4:01 PM
Every MS symptom is the brain trying to route signals around damaged pathways — rewiring on the fly uses enormous energy.
Myth: “MS only affects mobility.”
Truth: The nervous system controls everything — MS affects energy, cognition, sensory processing, balance, mood, and pain long before mobility.
Truth: The nervous system controls everything — MS affects energy, cognition, sensory processing, balance, mood, and pain long before mobility.
January 10, 2026 at 3:01 PM
Myth: “MS only affects mobility.”
Truth: The nervous system controls everything — MS affects energy, cognition, sensory processing, balance, mood, and pain long before mobility.
Truth: The nervous system controls everything — MS affects energy, cognition, sensory processing, balance, mood, and pain long before mobility.
🧵 THREAD: 10 MS Symptoms People Downplay — But Are Actually Signs Your Nervous System Is Overworking
1️⃣ You get tired from thinking, not doing.
Cognitive tasks drain neurological energy faster than physical ones.
1️⃣ You get tired from thinking, not doing.
Cognitive tasks drain neurological energy faster than physical ones.
January 10, 2026 at 1:01 PM
🧵 THREAD: 10 MS Symptoms People Downplay — But Are Actually Signs Your Nervous System Is Overworking
1️⃣ You get tired from thinking, not doing.
Cognitive tasks drain neurological energy faster than physical ones.
1️⃣ You get tired from thinking, not doing.
Cognitive tasks drain neurological energy faster than physical ones.
📚 Article: Heat Sensitivity in MS
Understanding why heat worsens symptoms — and how to stay functional.
👉 Read:
Understanding why heat worsens symptoms — and how to stay functional.
👉 Read:
Uhthoff’s Phenomenon and Heat Sensitivity in MS: How Cold Plunges May
Discover how cold exposure may help reduce heat-triggered MS symptoms like fatigue, blurry vision, and brain fog caused by Uhthoff’s Phenomenon. Practical tips and safety included.
livewithms.com
January 10, 2026 at 2:01 AM
📚 Article: Heat Sensitivity in MS
Understanding why heat worsens symptoms — and how to stay functional.
👉 Read:
Understanding why heat worsens symptoms — and how to stay functional.
👉 Read:
Keeping indoor temps cooler can improve concentration, energy, and mobility for people with MS.
January 10, 2026 at 2:01 AM
Keeping indoor temps cooler can improve concentration, energy, and mobility for people with MS.
New MS symptoms can be scary, but they don’t always mean rapid progression.
MS can affect different areas of the brain and spinal cord over time.
Changes in fatigue, stress, sleep, inflammation, or infection can reveal symptoms that were already there.
This isn’t your fault.
www.livewithms.com
MS can affect different areas of the brain and spinal cord over time.
Changes in fatigue, stress, sleep, inflammation, or infection can reveal symptoms that were already there.
This isn’t your fault.
www.livewithms.com
January 10, 2026 at 1:02 AM
New MS symptoms can be scary, but they don’t always mean rapid progression.
MS can affect different areas of the brain and spinal cord over time.
Changes in fatigue, stress, sleep, inflammation, or infection can reveal symptoms that were already there.
This isn’t your fault.
www.livewithms.com
MS can affect different areas of the brain and spinal cord over time.
Changes in fatigue, stress, sleep, inflammation, or infection can reveal symptoms that were already there.
This isn’t your fault.
www.livewithms.com
Myth: “If symptoms improve with cooling, they weren’t real.”
Truth: Temporary symptoms are STILL neurological — just reversible.
Truth: Temporary symptoms are STILL neurological — just reversible.
January 10, 2026 at 1:01 AM
Myth: “If symptoms improve with cooling, they weren’t real.”
Truth: Temporary symptoms are STILL neurological — just reversible.
Truth: Temporary symptoms are STILL neurological — just reversible.
Uhthoff’s phenomenon is the name for heat-triggered symptom worsening — recognized in MS for over 100 years.
January 9, 2026 at 11:01 PM
Uhthoff’s phenomenon is the name for heat-triggered symptom worsening — recognized in MS for over 100 years.
Heat causes symptoms because electrical signals lose strength when myelin is damaged — like a frayed wire overheating.
January 9, 2026 at 10:01 PM
Heat causes symptoms because electrical signals lose strength when myelin is damaged — like a frayed wire overheating.
Me: “It’s only 23°C.”
MS: “And I’m already DONE.”
MS: “And I’m already DONE.”
January 9, 2026 at 8:30 PM
Me: “It’s only 23°C.”
MS: “And I’m already DONE.”
MS: “And I’m already DONE.”
Cooling the wrists + neck lowers internal temperature fastest because those areas have high blood flow.
January 9, 2026 at 6:01 PM
Cooling the wrists + neck lowers internal temperature fastest because those areas have high blood flow.
MS symptoms can evolve over time.
Some may fade, others change, and new ones can appear as different nerve pathways are affected.
This doesn’t mean failure or that treatment isn’t helping.
MS is a dynamic condition — and change is part of it, not your fault.
www.livewithms.com
Some may fade, others change, and new ones can appear as different nerve pathways are affected.
This doesn’t mean failure or that treatment isn’t helping.
MS is a dynamic condition — and change is part of it, not your fault.
www.livewithms.com
January 9, 2026 at 5:31 PM
MS symptoms can evolve over time.
Some may fade, others change, and new ones can appear as different nerve pathways are affected.
This doesn’t mean failure or that treatment isn’t helping.
MS is a dynamic condition — and change is part of it, not your fault.
www.livewithms.com
Some may fade, others change, and new ones can appear as different nerve pathways are affected.
This doesn’t mean failure or that treatment isn’t helping.
MS is a dynamic condition — and change is part of it, not your fault.
www.livewithms.com
You’re not “weak” for struggling in the heat — your nervous system has different rules now, and you’re adapting every day.
January 9, 2026 at 5:01 PM
You’re not “weak” for struggling in the heat — your nervous system has different rules now, and you’re adapting every day.
A rise of just 0.5°C in body temperature can reduce nerve conduction speed in demyelinated nerves.
January 9, 2026 at 4:01 PM
A rise of just 0.5°C in body temperature can reduce nerve conduction speed in demyelinated nerves.
Myth: “Heat sensitivity means something is wrong right now.”
Truth: It’s temporary conduction slowing — not a relapse.
Truth: It’s temporary conduction slowing — not a relapse.
January 9, 2026 at 3:01 PM
Myth: “Heat sensitivity means something is wrong right now.”
Truth: It’s temporary conduction slowing — not a relapse.
Truth: It’s temporary conduction slowing — not a relapse.
🧵 THREAD: 10 MS Symptoms That Get Worse in Heat — And Why (Save This Guide)
(Heat sensitivity = massive engagement because almost everyone with MS relates.)
1️⃣ Weakness in limbs
Heat slows nerve conduction → weaker signals.
(Heat sensitivity = massive engagement because almost everyone with MS relates.)
1️⃣ Weakness in limbs
Heat slows nerve conduction → weaker signals.
January 9, 2026 at 1:01 PM
🧵 THREAD: 10 MS Symptoms That Get Worse in Heat — And Why (Save This Guide)
(Heat sensitivity = massive engagement because almost everyone with MS relates.)
1️⃣ Weakness in limbs
Heat slows nerve conduction → weaker signals.
(Heat sensitivity = massive engagement because almost everyone with MS relates.)
1️⃣ Weakness in limbs
Heat slows nerve conduction → weaker signals.