Are you going to #ISTH2025? Look out for our posters presenting results and insights from the #Haemnet VWD360 study, which explored the daily impact of #vonWillebrandDisease with over 600 participants

#ISTH #bleedingdisorders #research #livedexperience
#HemeSky #MedSky #BloodSky

Nurses are pivotal in improving health care for people with #bleedingdisorders and ensuring better patient outcomes. On International Nurses Day, @katekhair.bsky.social highlights the role nurse-led research. Read more here: loom.ly/UXOCa0E
#IND2025 #OurNursesOurFuture #HemeSky #MedSky

Funded PhD opportunity for qualitative work on health inequalities and factors affecting health outcomes at University of Aberdeen, in partnership with Aberdeen City Council
Please share!
www.findaphd.com/phds/project...

We support the World Federation for Hemophilia's call for equity in access to diagnosis and care for women & girls with bleeding disorders. Read our World Hemophilia Day blog about the mother of a girl with mild haemophilia: loom.ly/XYrT7Mc

#WeBleedToo #WHD2025

#MedSky #BloodSky #HemeSky

It's out! 5th edition of #qual #methods for health research now published, and in a library near you soon!

And this was a top scoring abstract - we won a rosette

We're presenting results from our GT360 study on the lived experience of #GlanzmannThrombasthenia at #EAHAD2025 AHP Day today. @katekhair.bsky.social is joining the line-up in the Nurses session on managing rare bleeding disorders, 17.30 local time. Hope to see you there!
#HemeSky #MedSky #BloodSky

Here's the speech if you haven't heard it. 13 minutes of your time. Share it with your American friends and neighbours, because they won't see it otherwise. Circulate it in Mexico and Denmark, France and the UK, Panama and Germany, Poland and Estonia, and especially -- especially -- Ukraine.

On the anniversary of Dr Erik Adolf von Willebrand's birth, we're marking European #VonWillebrandDisease Awareness Day. More than a century after he first recognised VWD, we still don't know enough about its daily impact. Can you help us change that?

#HemeSky #MedSky #beVWDaware #VWDunited

@katekhair.bsky.social will present interim results from our ongoing VWD360 #vonWillebrandDisease study at the #EAHAD2025 congress AHP Day on 4 February. In the meantime, find out about our 2023 pilot study here: loom.ly/1Z-9hEc

#EAHADCongress #HemeSky #MedSky #BloodSky

📢 The 2025 EAHAD Research Grants cycle is now open! Apply before March 7 for a chance to advance your career in #haemophilia and allied disorders. This year, EAHAD is offering up to 6 grants, including a new category for researchers! www.eahad.org/2025-eahad-r...

Weird that we have to say this, but the government doesn’t get to decide what gender a person is.

I understand that the FDA decision on Fitusiran is expected on March 28th, 2025. Fitusiran is an si-RNA against antithrombin and is said to "rebalance" hemostasis in hemophilia A and B.

It’s been an OK year. See you @eahad.bsky.social @wfh and @isth-official.bsky.social 2025s busy already

scholar.google.com/scholar_url?... finally a CTIMP for women with haemophilia. Hoorah

#jobfairy - alert VERY TIGHT DEADLINE of 8th Sept - assoc prof (senior lecturer) in history & heritate at University of Birmingham, pref for geog. spec in Asia, the Middle East, Latin America, or North America. Permanent position
www.jobs.ac.uk/job/DJG439/a...
(not my dept so I've no inside info) 🗃️

Trying out Bluesky - finding a few old Twitter pals here. Hope this is a better place