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haemnet.bsky.social
Haemnet
@haemnet.bsky.social
170 followers 180 following 89 posts
Haemnet works at the heart of the bleeding disorders community.
We're a specialist consultancy, engaged in research, communications, community education and support.

#HemeSky #MedSky #BloodSky
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haemnet.bsky.social
Our journal's top 10 online articles for December 2025 have been revealed! You can read these and more on the new Bleeding Disorders: Care & Practice platform: https://loom.ly/Z_wuqf8

#bdcpjournal #bleedingdisorders #hemophilia #research #MedSky #HemeSky

January 19, 2026 at 7:04 AM
haemnet.bsky.social
Our journal is dedicated to the full spectrum of #bleedingdisorders – and we’re changing our name to reflect that. Introducing Bleeding Disorders: Care & Practice – the new name for The Journal of Haemophilia Practice

www.bdcpjournal.com

#BDCPjournal #haemophilia #VWD
#HemeSky #MedSky #BloodSky
January 13, 2026 at 6:33 AM
haemnet.bsky.social
We're winding down for the holidays and looking forward to the new year to come. Wishing a very Merry Christmas and Happy Holidays to all our clients, colleagues and friends in the bleeding disorders community. See you in 2026!

#bleedingdisorders #research #livedexperience #Haemnet #HemeSky #MedSky
December 22, 2025 at 6:30 AM
haemnet.bsky.social
AI touches our lives in many ways, but sometimes there's nothing like human insight to find the right words. In our end-of-year #blog, we share our experience of what happens when AI transcription misses the mark.

https://loom.ly/8hciI04

#Haemnet #research #bleedingdisorders #AI
#HemeSky #MedSky
December 18, 2025 at 6:30 AM
haemnet.bsky.social
Thank you to all readers, authors & reviewers who have shown continued trust in JHP this year. Our mission is to share expertise & experience in the bleeding disorder community. Watch out for our exciting new chapter!

#bleedingdisorders #research #haemophilia #VWD
#HemeSky #BloodSky #MedSky
December 15, 2025 at 6:56 AM
haemnet.bsky.social
It's that time of year again… What's in your #SpotifyWrapped? Haemcast is a 2025 Marathon, Talked About, & Most Shared Show! We call that recommended holiday listening. Tune in via your favourite platform or visit https://loom.ly/A4UWu6M

#bleedingdisorders #podcast
#HemeSky #BloodSky #MedSky
December 10, 2025 at 7:09 AM
haemnet.bsky.social
New in The Journal of Haemophilia Practice: results from a clinic-based questionnaire aimed at improving treatment of heavy menstrual bleeding in women with bleeding disorders

https://doi.org/10.2478/jhp-2025-0018

#HMB #periods #women #bleedingdisorders #research
#HemeSky #MedSky #BloodSky
December 3, 2025 at 6:30 AM
haemnet.bsky.social
#WorldAIDSDay2025

Support - Remember - Raise awareness - Fight stigma - End new cases of HIV by 2030
December 1, 2025 at 7:01 AM
haemnet.bsky.social
Wishing Happy Thanksgiving to all our American friends, families and followers 🧡
November 27, 2025 at 6:59 AM
haemnet.bsky.social
What do recent changes to the WHO #EssentialMedicines List mean for #haemophilia on the ground? We asked the Haemophilia Foundation of Uganda's Agnes Kiskaye. Read her thoughts and hopes on the Haemnet blog: https://loom.ly/AB3rNJI

#HemeSky #MedSky #BloodSky
November 20, 2025 at 7:10 AM
haemnet.bsky.social
Being heard and understood? Getting advice and support? Meeting people like you? If you live with a bleeding disorder, what does community mean to you?

#bleedingdisorders #community #livedexperience #research #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

#HemeSky #BloodSky
November 13, 2025 at 6:57 AM
haemnet.bsky.social
Intergenerational impacts of the #ContaminatedBloodScandal, stakeholder roles in #patientorganisations in India, acquired haemophilia A, and #haemophilia clinical practice are the focus of the latest papers published in JHP. Find out more: https://loom.ly/mXzYdu4

#HemeSky #BloodSky #MedSky
November 3, 2025 at 8:01 AM
haemnet.bsky.social
Wishing our friends, followers, colleagues and clients a spooktacular Halloween 👻🎃🕷️
October 31, 2025 at 7:01 AM
haemnet.bsky.social
Trust in Healthcare & Disrupted Life Paths are major themes in a paper on how the #ContaminatedBlood Scandal has impacted adult children and siblings of people with #haemophilia who were affected. Open access, in The Journal of Haemophilia Practice: https://loom.ly/keKXHlU
#HemeSky #BloodSky #MedSky
October 27, 2025 at 6:53 AM
haemnet.bsky.social
What links banana sap, mangos and #haemophilia? Join us for the latest episode of #Haemcast, with Morris Okello and Dr Kate Khair, to find out more. Available here: https://loom.ly/p27kavc, or on your favourite #podcast platform.

#Uganda #livedexperience
#HemeSky #BloodSky #MedSky
October 20, 2025 at 6:27 AM
haemnet.bsky.social
New in The Journal of Haemophilia Practice: a real-world study in the UAE shows improved clinical outcomes with #emicizumab #prophylaxis in children and adults with severe #haemophilia A. https://doi.org/10.2478/jhp-2025-0013

#HemeSky #MedSky #BloodSky
October 14, 2025 at 6:33 AM
haemnet.bsky.social
October 10th is Hereditary #FactorX Deficiency Awareness Day. This #UltraRare #BleedingDiisorder affects ca. 1 in a million worldwide. Check out the commentary on two FXD case studies in The Journal of Haemophilia Practice: https://doi.org/10.2478/jhp-2023-0019

#HemeSky #MedSky #BloodSky

October 10, 2025 at 5:23 AM
haemnet.bsky.social
How do you make life as 'normal' as possible for a child with a bleeding disorder? On our #blog, Debbie discusses encouraging her son to 'own' his #haemophilia, school trips, holidays, and student doctor exams. Read it here: https://loom.ly/mSM9vzo

#HemeSky #BloodSky #MedSky
October 7, 2025 at 5:39 AM
haemnet.bsky.social
New in The Journal of Haemophilia Practice: a case series on the use of extended half-life Factor IX in the surgical setting. Read it, open access, here: https://doi.org/10.2478/jhp-2025-0012

#haemophiliaB #prophylaxis #surgery
#HemeSky #MedSky #BloodSky
September 30, 2025 at 5:31 AM
haemnet.bsky.social
We're shining a (purple) light on #ImmuneThrombocytopenia for Global #ITP Awareness Week. Our blog takes a closer look at ITP & its impact on women. Find out more here: https://loom.ly/CVEQD6g

#ImmuneThrombocytopenia #ITPAwareness #Global4ITP #PaintThePlanetPurple
#HemeSky #BloodSky #MedSky
September 25, 2025 at 5:00 AM
haemnet.bsky.social
It's Global ITP Awareness Week!

Immune thrombocytopenia — #ITP — affects around 9.5 adults in 100,000 at any one time, but can occur at any age. Characterised by a low #platelet count, it can result in easy bruising and #bleeding.

#ITPaware #global4itp #HemeSky #MedSky #BloodSKy
September 22, 2025 at 5:00 AM
haemnet.bsky.social
New in The Journal of Haemophilia Practice: results from a #qualitative study exploring the experiences of people with severe #haemophilia A in the #HemiNorth cohort switching from factor VIII prophylaxis to #emicizumab. Open access, here: https://loom.ly/MvtKKe4

#HemeSky #MedSky #BloodSky
September 17, 2025 at 5:53 AM
haemnet.bsky.social
With no family history of #haemophilia, Debbie was shocked when her son, Jamie, was diagnosed with severe haemophilia. She saw being able to treat him as a way of taking back control. Read her story in our #parent-focused blog: https://loom.ly/c4ZQfgQ

#HemeSky #BloodSky #MedSky
September 10, 2025 at 6:35 AM
haemnet.bsky.social
In @eahad.bsky.social's latest podcast,
@majfbirkedal.bsky.social discusses using a subcutaneous drug delivery device to reduce treatment-related #pain in children with #haemophiliaA on #emicizumab. Read her paper in The Journal of Haemophilia Practice sciendo.com/article/10.2...

#HemeSky #MedSky
September 4, 2025 at 10:41 AM
haemnet.bsky.social
New in The Journal of Haemophilia Practice: a case series report from the Netherlands on the complexity of managing acquired haemophilia A, highlighting the role of #emicizumab: https://doi.org/10.2478/jhp-2025-0008

#AcquiredHaemophilia #CaseSeries #HemeSky #MedSky #BloodSky
August 27, 2025 at 8:27 AM