Karen Cheng
LightNews LightNews
banner
karencheng.bsky.social
Karen Cheng
@karencheng.bsky.social
34 followers 65 following 19 posts
#Myositis patient and advocate; Medical Affairs and Drug Development executive; Retired Clinician; Private Pilot; Scuba Diver; All views are my own
Posts Replies Media Videos
karencheng.bsky.social
📢 Clinicians and researchers working in adult-onset myositis - please help in a survey on AI in Cancer Risk Assessment for Myositis.
💡You can help shape future clinical AI development in myositis!
🙏 Thanks for your support!
🔗 Survey: redcap.ki.se/surveys/?s=J...

#myositis #IIM #AI #cancer
Clinician's attitude, concerns, and expectations regarding AI-powered cancer risk assessment tools for patients with idiopathic inflammatory myopathies
redcap.ki.se
December 9, 2025 at 4:39 PM
karencheng.bsky.social
Arrived in Brussels for the EULAR PARE training & conference! Excited to learn, connect, and advocate. 💪✨ #EULAR #PARE #myositis #rheumatology
November 18, 2025 at 2:36 PM
karencheng.bsky.social
🚨 Last call for researchers and clinical innovators! Abstract submissions for #GCOM26 is extended till Nov 11 2025! Your research deserves the spotlight! Don’t miss your chance to share your breakthroughs on the global stage 🌍 and help shape the future of care for patients living with #Myositis!
October 30, 2025 at 6:07 PM
karencheng.bsky.social
Quote of the day from the 9th CAR-T Days in Lille, France: “stick with me…listen to my french accent…and you might get it..” 🤣😆😂
September 11, 2025 at 10:46 AM
karencheng.bsky.social
On the road to the CAR T Days conference in Lille, France. Long drives are great for catching up with podcasts and was happy to listen to Andy Mammen in Part 1 and Part 2 of Updates on all things Myositis on this platform: neurology.libsyn.com/website. Hope you’ll find it helpful too!
Neurology® Podcast
The Neurology Podcast provides practical information for neurologists and clinicians to practice the best possible medicine for patients. Examining methods and findings in peer-reviewed journals, the ...
neurology.libsyn.com
September 11, 2025 at 10:29 AM
karencheng.bsky.social
Looking forward to learning and meeting everyone at the GCOM next year!!
imyos.bsky.social International Myositis Society @imyos.bsky.social · Sep 1
JOIN IN! -Register now for the 6th Global Conference on Myositis, 23-26 March 2026!
The early bird registration & the abstract submission are OPEN!
Don't hesitate-be quick and part of GCOM 2026. 🤗
More information, registration & abstract submission on our website: www.gcom.imyos.org
#gcom #imyos
September 1, 2025 at 7:13 PM
karencheng.bsky.social
Looking forward to another fantastic program at the CAR-T Days in Lille, France on 11-12 September! cartday.org/program-2/
PROGRAM
Preliminary program 2025 The interactive preliminary program 2025 is available here. Thursday September 11th, 2025 08:00 – Welcome and registration 08:45 – Introduction Bruno QUESN…
cartday.org
August 21, 2025 at 1:37 PM
Reposted by Karen Cheng
eular.org
EULAR is proud to launch a new 3-year Research Programme, supporting young investigators from low- and middle-income EULAR-affiliated countries.

Learn more about this Mentorship Programme here 👉 https://pulse.ly/6stw4ay07u

More information on how to register and apply coming soon. Stay tuned!
August 20, 2025 at 7:00 AM
karencheng.bsky.social
If you’re a patient living with myositis, please help to contribute your thoughts on the future of myositis research. We are looking for more perspectives from people living with PM/NAM/IMNM/DM/OM/ASyS. Thanks very much in advance! docs.google.com/forms/d/e/1F...?
Patients Can Help Shape the Future of Myositis Research
Dear Patient Community Member, Your voice matters. People living with myositis diseases (& their loved ones) MUST help decide what research gets funded in myositis diseases. The MIHRA Patient Advis...
docs.google.com
August 20, 2025 at 4:54 PM
Reposted by Karen Cheng
eular.org
📢 Welcome to the EULAR BlueSky Channel!

🚀 Follow along for the latest updates as we count down to #EULAR2025, taking place in Barcelona from 11–14 June 2025.

💡 Stay tuned, more scientific information on Rheumatic and Musculoskeletal Diseases coming soon!

#EULAR #Rheumatology
May 15, 2025 at 11:02 AM
karencheng.bsky.social
Join me and other patients around the world who are living well with Myositis, regardless of the odds and challenges. We will share our experiences, daily struggles and achievements. Sign up for free here: www.myositis.org/calendar/eve...

#Myositis #TheMyositisAssociation #PatientAdvocacy
May 5, 2025 at 3:21 PM
Reposted by Karen Cheng
ucldiscovery.bsky.social
Open Access UCL Research: Efficacy and safety of pharmacological treatments in inclusion body myositis: a systematic review discovery.ucl.ac.uk/id/eprint/10...
Efficacy and safety of pharmacological treatments in inclusion body myositis: a systematic review - UCL Discovery
UCL Discovery is UCL's open access repository, showcasing and providing access to UCL research outputs from all UCL disciplines.
discovery.ucl.ac.uk
February 12, 2025 at 1:11 PM
karencheng.bsky.social
CureJM is offering grants for researchers working on improving juvenile myositis care. For more info, have a look here www.curejm.org/grants/
For inquiries, contact Andrew: andrew.heaton@curejm.org.

#myositis #curejm #juvenilemyositis
Cure JM Research Grants - Cure JM Foundation
Cure JM offers grant funding for clinicians and researchers who are working to improve juvenile myositis care and research.
www.curejm.org
March 18, 2025 at 5:57 PM
Reposted by Karen Cheng
aai.org
AAI encourages members and friends of #immunology to #StandUpforScience on March 7. Join the rally in Washington, D.C., or participate in the National Day of Action to uphold the integrity of science, protect its accessibility, and ensure its benefits serve all people! standupforscience2025.org
March 6, 2025 at 8:34 PM
karencheng.bsky.social
The Myositis Edition of the Journal of Clinical and Experimental Rheumatology (JCER) is out!! Be sure to read this for the latest perspectives and research developments in myositis! #myositis #JCER #iMyoS #curemyositis www.clinexprheumatol.org/a.asp?IDArch...
February - Myositis 2025
2025 Vol.43, N°2 - Table of contents
www.clinexprheumatol.org
March 6, 2025 at 11:58 AM
karencheng.bsky.social
Happy to provide a patient's perspective in this upcoming discussion! nexus-conference.com/ctneu/ #myositis #MIHRA #clinicaltrials #iMyoS #patientvoice #patientengagement #patientcentricity
March 5, 2025 at 9:38 PM
Reposted by Karen Cheng
acr-journals.bsky.social
PhIP-Seq study of serum from patients positive for anti-MDA5 and anti-SRP autoantibodies characterized viral antibody responses. Increased enteroviral antibody response in MDA5+ patients suggests a potential environmental trigger of MDA5 myositis

In ACR Open Rheumatology
acr.tw/4fxPSsy
🩺🧪
How enterovirus (B) infection might lead to the production of both viral antibodies and MDA5 autoantibodies in the inflammatory milieu of a viral infection that leads to subsequent loss of MDA5 tolerance
November 12, 2024 at 1:46 PM
karencheng.bsky.social
About 300 million of us live with our rare disease(s) EVERY day, but today we came together to support each other, to celebrate our special friendship, and to remember our departed warriors. In a world where peace seems to have been forgotten, we need more than ever to stand together. #curemyositis
February 28, 2025 at 10:04 PM
Reposted by Karen Cheng
drailyntan.bsky.social
Patients with idiopathic inflammatory #myopathies have higher burden of comorbidities that influence physical & mental health

▶️Age
▶️Active disease
▶️Basic multimorbidity
▶️#MentalHealth disorders

👉🏽 academic.oup.com/rheumatology...
February 25, 2025 at 7:38 AM
Reposted by Karen Cheng
rheumcat.bsky.social
The first message from the American College of Rheumatology (ACR) about the current political issues and their impact on our work
Currently, the ACR is: 1. Closely monitoring all new executive orders, as well as directives to organizations relevant to any ACR or ARP members' work. 2. Reviewing the current 40+ executive orders to identify the greatest threats to providing quality healthcare to patients and conducting meaningful rheumatology research. We are also tracking the legal challenges to some executive orders and which ones have been retracted, rescinded, or revised since their initial introduction. 3. Engaging policymakers on the ACR’s policy priorities, such as preserving the sanctity of the doctor/patient relationship, reducing barriers to access to care, addressing issues that cause disproportionate disease burden and suboptimal care and outcomes for patients, sustaining a robust rheumatology workforce and the sustainability of Medicare and Medicaid. Currently, our messaging to lawmakers also emphasizes the importance of data and evidence-based policymaking as well as broad access to public health information and guidance to address the health needs of the U.S. population. 4. Collaborating with other medical societies to amplify the healthcare community's voice. The ACR recently joined over 300 organizations via the Ad Hoc Group for Medical Research Coalition (a group facilitated by the Association of American Medical Colleges) in writing a letter to remind Congress that investment in medical research in rheumatology and other chronic illnesses should remain a national priority. Collectively, we asked for $48.9B in funding for NIH for FY 2025.
February 12, 2025 at 8:40 PM
Reposted by Karen Cheng
acr-journals.bsky.social
Systematic review assessed frequency of SLE flares in patients with end-stage renal disease following renal replacement therapy
35.9% had ≥1 extra-renal SLE flare; dialysis patients had higher flare risk than those post kidney transplant

In AC&R
doi.org/10.1002/acr....
#Medsky #Nephsky
Frequency of SLE flares after hemodialysis and/or peritoneal dialysis
February 13, 2025 at 9:08 PM
karencheng.bsky.social
Nearly 20yrs ago when I was diagnosed with myositis, there were only PM, DM & IBM. With the knowledge expansion till today, we have a greater need to align all the terminology we use to continue our research in myositis. #myositis #iMyoS #CureMyositis #JCER www.clinexprheumatol.org/abstract.asp...
www.clinexprheumatol.org
February 12, 2025 at 7:26 PM
Reposted by Karen Cheng
vjhemonc.bsky.social
🎥 Elise Pennings & Anne Mea Spanjaart stopped by for a joint interview in which they discussed their work on patient-reported outcomes of #CARTCell therapy🩸🎥

This European study evaluated patients’ experiences, QoL, & unmet care needs, and you can hear all the details soon on vjhemonc.com! 👀
February 7, 2025 at 2:20 PM
Reposted by Karen Cheng
acr-journals.bsky.social
New special collection of articles in ACR Open Rheumatology on diet and rheumatic disease. All articles in ACROR are open access

Read the collection: acr.tw/4hNFDBk
ACR Open Rheumatology special collection on diet and rheumatic disease banner
February 9, 2025 at 5:02 PM
karencheng.bsky.social
Planes sir! The sky has no limits! #EBMT #CART25
February 8, 2025 at 10:42 AM