Been trying to post positive for a long time now . But things are getting worse . sporadic inclusion body myositis and neuropathy kicking my ass . May have to cancel my thanksgiving trip and adepticon if things keep up .
November 11, 2025 at 7:05 PM
Been trying to post positive for a long time now . But things are getting worse . sporadic inclusion body myositis and neuropathy kicking my ass . May have to cancel my thanksgiving trip and adepticon if things keep up .
I would discuss w/ your PCP as SARS-CoV-2 is potentially a key driver. Everything from myositis to pain brought on by inflammation (+ scarring / fibrosis) is vasculopathy. Covid is primarily a vascular disease. It damages blood vessels & can make you susceptible to other viruses ~> more damage.
November 12, 2025 at 3:10 AM
I would discuss w/ your PCP as SARS-CoV-2 is potentially a key driver. Everything from myositis to pain brought on by inflammation (+ scarring / fibrosis) is vasculopathy. Covid is primarily a vascular disease. It damages blood vessels & can make you susceptible to other viruses ~> more damage.
I can see why the internet was full of conspiracy theories after his wife died "suddenly at home," of respiratory failure. I can't imagine how she could be ill enough to die of respiratory complications of autoimmune myositis & not have sought medical attention before getting to that point.
November 3, 2025 at 6:54 AM
I can see why the internet was full of conspiracy theories after his wife died "suddenly at home," of respiratory failure. I can't imagine how she could be ill enough to die of respiratory complications of autoimmune myositis & not have sought medical attention before getting to that point.
Everyone knows someone with a chronic illness. It might be Arthritis, Hypothyroidism, Diabetes, or Systemic Sclerosis-Myositis overlap (like me). This is the best list of products and services to gift them that I have ever seen.
"Many of these #wishlist items are things I’d never thought I’d want or need in another life. If not for my #ChronicIllnesses, I probably wouldn’t even know of their existence.": buff.ly/gSnGa1k
#MondayBlogs #ChronicPain #GiftIdeas
#MondayBlogs #ChronicPain #GiftIdeas
November 2, 2025 at 9:49 PM
Everyone knows someone with a chronic illness. It might be Arthritis, Hypothyroidism, Diabetes, or Systemic Sclerosis-Myositis overlap (like me). This is the best list of products and services to gift them that I have ever seen.
🆕 Secrets & Pearls of #Rheumatology at #ACR25 | Part 1 by Dr. Janet Pope
🖐️ Cutaneous Pathology SLE/DM
🧴 Tips for SLE
💪 Cancer Screening in Myositis
🩸 Laboratory Testing
🥶 Raynaud's / Scleroderma
👀 Sjogrens Disease
#RheumSky #MedSky #Lupus #Myositis #Scleroderma #Sjogrens
🖐️ Cutaneous Pathology SLE/DM
🧴 Tips for SLE
💪 Cancer Screening in Myositis
🩸 Laboratory Testing
🥶 Raynaud's / Scleroderma
👀 Sjogrens Disease
#RheumSky #MedSky #Lupus #Myositis #Scleroderma #Sjogrens
October 28, 2025 at 11:02 PM
🆕 Secrets & Pearls of #Rheumatology at #ACR25 | Part 1 by Dr. Janet Pope
🖐️ Cutaneous Pathology SLE/DM
🧴 Tips for SLE
💪 Cancer Screening in Myositis
🩸 Laboratory Testing
🥶 Raynaud's / Scleroderma
👀 Sjogrens Disease
#RheumSky #MedSky #Lupus #Myositis #Scleroderma #Sjogrens
🖐️ Cutaneous Pathology SLE/DM
🧴 Tips for SLE
💪 Cancer Screening in Myositis
🩸 Laboratory Testing
🥶 Raynaud's / Scleroderma
👀 Sjogrens Disease
#RheumSky #MedSky #Lupus #Myositis #Scleroderma #Sjogrens
Axial T2 (below left) shows bright signal intensity in the paraspinal tissues representing myositis which on T1 with contrast (below right) enhances heterogenously. The spinal cord compression from the extradural mass is also well seen on the axial images.
October 25, 2025 at 11:30 AM
Axial T2 (below left) shows bright signal intensity in the paraspinal tissues representing myositis which on T1 with contrast (below right) enhances heterogenously. The spinal cord compression from the extradural mass is also well seen on the axial images.
In all these cases, patients presented with eye symptoms. But the origin of the disease is in the nose. We drained the abscess in the first 3 patients through the nose, going behind the eyeball. If you’re not sure, seek a specialist opinion. #ENT #Surgery #ENTsecrets #surgeon #headandneck #rhinology
October 20, 2025 at 9:02 AM
In all these cases, patients presented with eye symptoms. But the origin of the disease is in the nose. We drained the abscess in the first 3 patients through the nose, going behind the eyeball. If you’re not sure, seek a specialist opinion. #ENT #Surgery #ENTsecrets #surgeon #headandneck #rhinology
Exploring #Autoimmune Consequences of #SARSCoV2 Infection & LC-
#Myositis
www.cell.com/trends/endoc...
onlinelibrary.wiley.com/doi/full/10....
www.atsjournals.org/doi/epdf/10....
#Myositis
www.cell.com/trends/endoc...
onlinelibrary.wiley.com/doi/full/10....
www.atsjournals.org/doi/epdf/10....
Skeletal muscle adaptations and post-exertional malaise in long COVID
When acute SARS-CoV-2 infections cause symptoms that persist longer than 3 months,
this condition is termed long COVID. Symptoms experienced by patients often include
myalgia, fatigue, brain fog, cogn...
www.cell.com
October 17, 2025 at 4:40 AM
Exploring #Autoimmune Consequences of #SARSCoV2 Infection & LC-
#Myositis
www.cell.com/trends/endoc...
onlinelibrary.wiley.com/doi/full/10....
www.atsjournals.org/doi/epdf/10....
#Myositis
www.cell.com/trends/endoc...
onlinelibrary.wiley.com/doi/full/10....
www.atsjournals.org/doi/epdf/10....
#pedsky #Episky
What is Known:
• Benign Acute Childhood Myositis (BACM) is a temporary, self-limiting condition in children following viral infections, historically linked to #influenzaA.
What is New:
• The incidence of BACM increased by 140% #postCOVID mirroring the rise in Flu-like illness.
What is Known:
• Benign Acute Childhood Myositis (BACM) is a temporary, self-limiting condition in children following viral infections, historically linked to #influenzaA.
What is New:
• The incidence of BACM increased by 140% #postCOVID mirroring the rise in Flu-like illness.
October 17, 2025 at 4:52 AM
#pedsky #Episky
What is Known:
• Benign Acute Childhood Myositis (BACM) is a temporary, self-limiting condition in children following viral infections, historically linked to #influenzaA.
What is New:
• The incidence of BACM increased by 140% #postCOVID mirroring the rise in Flu-like illness.
What is Known:
• Benign Acute Childhood Myositis (BACM) is a temporary, self-limiting condition in children following viral infections, historically linked to #influenzaA.
What is New:
• The incidence of BACM increased by 140% #postCOVID mirroring the rise in Flu-like illness.
New bills came up today. Med insurance blows. Doctors concur it is sporadic inclusion body myositis and incurable disease but I still have more tests to do . Thanks to my friends. If any one could help that’d be great if not thanks for listening. #Battletech #GriffithIndiana #GoFundMe #StarLeague
Donate to Help Charles Stipes Battle with sIBM ,neuropathy, organized by Charles Stipes II
My name is Charles Stipes. I live in Griffith, Indiana with my par… Charles Stipes II needs your support for Help Charles Stipes Battle with sIBM ,neuropathy
gofund.me
September 15, 2025 at 8:56 PM
New bills came up today. Med insurance blows. Doctors concur it is sporadic inclusion body myositis and incurable disease but I still have more tests to do . Thanks to my friends. If any one could help that’d be great if not thanks for listening. #Battletech #GriffithIndiana #GoFundMe #StarLeague
Try working when you’ve got this shit going on all the time.
This is #lupus.
I deal with lupus on top of #myositis, #ChronicMigraine and various mental health conditions.
Some people - who didn’t heard
the word lupus until yesterday - tell me lupus is nothing 😆
This is #lupus.
I deal with lupus on top of #myositis, #ChronicMigraine and various mental health conditions.
Some people - who didn’t heard
the word lupus until yesterday - tell me lupus is nothing 😆
March 11, 2025 at 10:33 PM
Try working when you’ve got this shit going on all the time.
This is #lupus.
I deal with lupus on top of #myositis, #ChronicMigraine and various mental health conditions.
Some people - who didn’t heard
the word lupus until yesterday - tell me lupus is nothing 😆
This is #lupus.
I deal with lupus on top of #myositis, #ChronicMigraine and various mental health conditions.
Some people - who didn’t heard
the word lupus until yesterday - tell me lupus is nothing 😆
One of my late pugs developed an autoimmune disorder called muscle myositis where his body attacked his muscle tissue. He was put on medication and we got it under control and he lived to be 15. You may ask your vet to test your little guy for it.
December 12, 2024 at 1:49 PM
One of my late pugs developed an autoimmune disorder called muscle myositis where his body attacked his muscle tissue. He was put on medication and we got it under control and he lived to be 15. You may ask your vet to test your little guy for it.
I had the same thought... All I see when I go looking is some reports of mushroom *supplements* triggering inflammatory myositis and some discussion of major fungal infections causing autoimmune conditions... but viral and bacterial infections do that as well... just sort of "infections as a class."
January 30, 2025 at 3:21 AM
I had the same thought... All I see when I go looking is some reports of mushroom *supplements* triggering inflammatory myositis and some discussion of major fungal infections causing autoimmune conditions... but viral and bacterial infections do that as well... just sort of "infections as a class."
🟥 H.Res.277 - Supporting the designation of May 2025 as "National Myositis Awareness Month"
✏️ Rep. McCormick, Richard [R-GA-7]
🔗 https://www.congress.gov/bill/119th-congress/house-resolution/277
✏️ Rep. McCormick, Richard [R-GA-7]
🔗 https://www.congress.gov/bill/119th-congress/house-resolution/277
April 1, 2025 at 2:18 PM
🟥 H.Res.277 - Supporting the designation of May 2025 as "National Myositis Awareness Month"
✏️ Rep. McCormick, Richard [R-GA-7]
🔗 https://www.congress.gov/bill/119th-congress/house-resolution/277
✏️ Rep. McCormick, Richard [R-GA-7]
🔗 https://www.congress.gov/bill/119th-congress/house-resolution/277
It is what it is, and it is POTS, myositis, and the heat of summer.
![warning (pic of guy sitting with his forward) This human is in battery saver mode. Activity is paused to help conserve battery life.
[a button that says carry on anyway]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreic5hcp3u7tf4kfu5hzsrshoionmlsjzmioa65fxhjw4mrpkak2k6a@jpeg)
July 12, 2025 at 11:12 PM
It is what it is, and it is POTS, myositis, and the heat of summer.
IMPORTANT!
The deadline for submitting abstracts for the GCOM 2026 is coming soon!
The deadline is the 1st of November 2025!
More information on the GCOM website.
Link: gcom.imyos.org/abstract-sub...
#gcom #globalconferenceonmyositis #myositis
The deadline for submitting abstracts for the GCOM 2026 is coming soon!
The deadline is the 1st of November 2025!
More information on the GCOM website.
Link: gcom.imyos.org/abstract-sub...
#gcom #globalconferenceonmyositis #myositis
October 28, 2025 at 1:34 PM
IMPORTANT!
The deadline for submitting abstracts for the GCOM 2026 is coming soon!
The deadline is the 1st of November 2025!
More information on the GCOM website.
Link: gcom.imyos.org/abstract-sub...
#gcom #globalconferenceonmyositis #myositis
The deadline for submitting abstracts for the GCOM 2026 is coming soon!
The deadline is the 1st of November 2025!
More information on the GCOM website.
Link: gcom.imyos.org/abstract-sub...
#gcom #globalconferenceonmyositis #myositis
Lundberg: "After having the diagnosis of myositis it is particularly higher risk of having oral cancer, pharynx cancer, ovarian cancer."
#honorisLundbergUAB @ki.se
#honorisLundbergUAB @ki.se
March 24, 2025 at 12:04 PM
Lundberg: "After having the diagnosis of myositis it is particularly higher risk of having oral cancer, pharynx cancer, ovarian cancer."
#honorisLundbergUAB @ki.se
#honorisLundbergUAB @ki.se
PhIP-Seq study of serum from patients positive for anti-MDA5 and anti-SRP autoantibodies characterized viral antibody responses. Increased enteroviral antibody response in MDA5+ patients suggests a potential environmental trigger of MDA5 myositis
In ACR Open Rheumatology
acr.tw/4fxPSsy
🩺🧪
In ACR Open Rheumatology
acr.tw/4fxPSsy
🩺🧪
November 12, 2024 at 1:46 PM
PhIP-Seq study of serum from patients positive for anti-MDA5 and anti-SRP autoantibodies characterized viral antibody responses. Increased enteroviral antibody response in MDA5+ patients suggests a potential environmental trigger of MDA5 myositis
In ACR Open Rheumatology
acr.tw/4fxPSsy
🩺🧪
In ACR Open Rheumatology
acr.tw/4fxPSsy
🩺🧪
In this weeks blog post, Dr Kiel reviews Myositis Ossificans, a benign and self limiting soft tissue ossification found in skeletal muscle
Read: www.sportsmedreview.com/blog/myositi...
Watch/Listen: www.youtube.com/watch?v=5hL9...
#sportsmed #sportsmedicine #ebm #medicine #sports #foamSM #MedEd
Read: www.sportsmedreview.com/blog/myositi...
Watch/Listen: www.youtube.com/watch?v=5hL9...
#sportsmed #sportsmedicine #ebm #medicine #sports #foamSM #MedEd
June 23, 2025 at 12:24 AM
In this weeks blog post, Dr Kiel reviews Myositis Ossificans, a benign and self limiting soft tissue ossification found in skeletal muscle
Read: www.sportsmedreview.com/blog/myositi...
Watch/Listen: www.youtube.com/watch?v=5hL9...
#sportsmed #sportsmedicine #ebm #medicine #sports #foamSM #MedEd
Read: www.sportsmedreview.com/blog/myositi...
Watch/Listen: www.youtube.com/watch?v=5hL9...
#sportsmed #sportsmedicine #ebm #medicine #sports #foamSM #MedEd
Well this study shows that pain is common among people with myositis (IIM) who are contributing info to the FORWARD registry
May 16, 2025 at 11:06 PM
Well this study shows that pain is common among people with myositis (IIM) who are contributing info to the FORWARD registry
Updates on All Things Myositis – Part 2
YouTube video by Neurology Journal
www.youtube.com
September 10, 2025 at 7:14 PM
Managing Myositis: A Practical Guide (2020) by Rohit Aggarwal PDF
Author: Rohit Aggarwal
File Type: PDF
Download at unitedvrg.com/2025/02/01/m...
#Rheumatology, #RohitAggarwal
Author: Rohit Aggarwal
File Type: PDF
Download at unitedvrg.com/2025/02/01/m...
#Rheumatology, #RohitAggarwal
October 9, 2025 at 12:32 PM
Managing Myositis: A Practical Guide (2020) by Rohit Aggarwal PDF
Author: Rohit Aggarwal
File Type: PDF
Download at unitedvrg.com/2025/02/01/m...
#Rheumatology, #RohitAggarwal
Author: Rohit Aggarwal
File Type: PDF
Download at unitedvrg.com/2025/02/01/m...
#Rheumatology, #RohitAggarwal
#CerebralPalsy, #hydrocephalus, #graves, #LichenSclerosus, #StiffPersonsSyndrome, #SpinalCFSLeak, #addisons, #AddisonsDisease, #endometriosis, #endo, #myositis, #FunctionalNeurologicDisorder, #FND, #coccygectomy, #epilepsy
6/6
6/6
December 2, 2024 at 5:10 AM