judithpaa.bsky.social
@judithpaa.bsky.social
1/ Autism CARES has been sent to the president for signature. We are excited that the bill includes language that promotes inclusion and progress for people with profound autism.
December 24, 2024 at 3:17 PM
Reposted
Investigators assumed Sandra Birchmore took her own life. What did they miss?

This is the second of a two-part story.
What did investigators miss in the Sandra Birchmore case?
Sandra Birchmore’s family spent years trying to make someone look more closely at the circumstances of her death.
apps.bostonglobe.com
December 19, 2024 at 5:43 PM
Hit the Hill one last time in 2024 with my favorite advocacy partner. Also got to grab dinner with one of my best friends. 💚🇺🇸💪
December 19, 2024 at 4:21 PM
Presence Means Progress - mailchi.mp/profoundauti...
Learn more about what the passage of Autism CARES means to our community.
December 17, 2024 at 2:36 PM
Reposted
Every story needs to be told. We are grateful that Jack's has been told in such a beautiful way. We hope you'll take time to watch this and share it with others:

🔗https://www.youtube.com/watch?v=CFtzk3G3NIw&t=4s
December 5, 2024 at 7:43 PM
Congress is considering legislation that will recognize Direct Support Professionals (DSPs), helping to lead to better data collection and workforce development. People with profound autism depend on DSPs for support. Please take quick action at the provided link.

🔗https://ow.ly/M0Pj50UmNWZ
December 6, 2024 at 11:29 PM
Every story needs to be told. We are grateful that Jack's has been told in such a beautiful way. We hope you'll take time to watch this and share it with others:

🔗https://www.youtube.com/watch?v=CFtzk3G3NIw&t=4s
December 5, 2024 at 7:43 PM
We had a busy Washington Wednesday today advocating for the profound autism community with the US Senate! Presence and positivity matter. Learn more about our federal advocacy efforts here www.profoundautism.org/advocacy/fed...
December 4, 2024 at 9:13 PM
Hello world. It's Giving Tuesday. If you are fortunate enough to have funds to share, I hope you'll consider donating to the Profound Autism Alliance: www.profoundautism.org?form=2024Giv...
December 3, 2024 at 3:16 PM
Neither rain nor shine nor the Thanksgiving holiday will keep us from going to the store. Thank you to the employees who are working. Jack was very happy to keep his routine.
November 28, 2024 at 6:01 PM
Sometimes, it's hard to have an attitude of gratitude when exhaustion and laundry and the need for sameness win the day. We hope moments of peace surprise those of you who need them today.
November 28, 2024 at 2:54 PM
Reposted
Since starting my survey in 2022, I have learned so much. 2.7k voices!

Including- about 1 in 4 autistic folks have profound autism

Yet, only SIX(!)% of all autism studies include profound autism in their studies.

Here are some parent responses

More bit.ly/Aut2ask

#autism #AutRes
November 24, 2024 at 12:36 AM
People with profound autism and their caregivers frequently feel isolated, particularly during the holidays. Connections mean a lot and don't have to be overly complicated.
November 24, 2024 at 7:21 PM
Great news! Autism CARES (HR 7213) has passed the U.S. Senate and returns to the House for consideration after Thanksgiving recess. Stay tuned for updates. Thanks for your positive, effective advocacy!

Register for advocacy alerts here: 🔗 www.votervoice.net/mobile/Profo...
November 22, 2024 at 12:08 AM
Reposted
Among the government-funded academic inventors on US drug patents, the majority were senior researchers at prestigious institutions.

https://ja.ma/48YWpKB
November 21, 2024 at 5:00 PM
Recent recommendations promote fewer treatment hours and more caregiver-mediated intervention. Sounds good, right? But are the realities of those with profound autism contemplated in these recommendations?

Read about this here: 🔗 ow.ly/bGip50UbFhx
November 21, 2024 at 2:49 PM
Reposted
Tune in for our free webinar on December 4th and learn about self-regulation strategies for self-injurious behavior. autism.org/self-regulat...
November 20, 2024 at 11:02 PM