Jen Preston
@jpreso.bsky.social
Passionate about #PPI #children #child-rights #PhD. Family, food & wine, travel and gardening are my passions. All my views are my own
Reposted by Jen Preston
New systematic review from my brilliant @nihr.bsky.social ACF on Rx options to prevent autoimmune mediated heart block in fetus and baby
tl:dr Several drugs, no good evidence for ANY
#paediatrics @uolchildhealth.bsky.social @liverpooluni.bsky.social @alderhey.nhs.uk
adc.bmj.com/content/earl...
tl:dr Several drugs, no good evidence for ANY
#paediatrics @uolchildhealth.bsky.social @liverpooluni.bsky.social @alderhey.nhs.uk
adc.bmj.com/content/earl...
Treatment options for preventing autoimmune-mediated congenital heart block: a systematic review
Objective Complete congenital heart block (CHB) due to anti-Ro/La antibodies in pregnancy can lead to adverse fetal outcomes and neonatal death. National and international guidelines do not recommend ...
adc.bmj.com
February 5, 2025 at 12:24 PM
New systematic review from my brilliant @nihr.bsky.social ACF on Rx options to prevent autoimmune mediated heart block in fetus and baby
tl:dr Several drugs, no good evidence for ANY
#paediatrics @uolchildhealth.bsky.social @liverpooluni.bsky.social @alderhey.nhs.uk
adc.bmj.com/content/earl...
tl:dr Several drugs, no good evidence for ANY
#paediatrics @uolchildhealth.bsky.social @liverpooluni.bsky.social @alderhey.nhs.uk
adc.bmj.com/content/earl...
Reposted by Jen Preston
If you are not able to understand a study, can you ethically participate in it? Information sheets for young people don't explain studies in a way that is understandable for the audience, with commercial studies even harder than academic ones. This follows work similar work on parents information!
We know that parent information leaflets are not easy to understand (link in next post). So are the patient information sheets in paediatric studies, with commercial studies harder then academic ones! Improvements needed
@liverpooluni.bsky.social @alderhey.nhs.uk
www.nature.com/articles/s41...
@liverpooluni.bsky.social @alderhey.nhs.uk
www.nature.com/articles/s41...
Readability of paediatric participant information leaflets in research studies - Pediatric Research
Pediatric Research - Readability of paediatric participant information leaflets in research studies
www.nature.com
February 23, 2025 at 11:59 AM
If you are not able to understand a study, can you ethically participate in it? Information sheets for young people don't explain studies in a way that is understandable for the audience, with commercial studies even harder than academic ones. This follows work similar work on parents information!
Reposted by Jen Preston
🧵 Earlier this month, the LifeArc-KRUK Centre for Rare Diseases held a successful international workshop at the Child Health Institute in the Park campus to design a clinical trial for patients with the inflammatory disease, IgA vasculitis (1/2)
February 24, 2025 at 3:22 PM
🧵 Earlier this month, the LifeArc-KRUK Centre for Rare Diseases held a successful international workshop at the Child Health Institute in the Park campus to design a clinical trial for patients with the inflammatory disease, IgA vasculitis (1/2)
Reposted by Jen Preston
HTs 🎩 to @jpreso.bsky.social, young people & colleagues for A* organising + presenters name-checked in blog post incl @simonrstones.bsky.social, Sophie @raiiseuk.bsky.social, @neuro-observant.bsky.social & her amazing #InvolveYoungPeople research cycle & @joshharsant.bsky.social @barnardos.org.uk 👏👏
We had a brilliant day in Birmingham on Saturday at the 'Making Connections' event for #GenR YPAGs. Check out our blog post: generationr.org.uk/hertsypag_ma...
February 3, 2025 at 2:18 PM
HTs 🎩 to @jpreso.bsky.social, young people & colleagues for A* organising + presenters name-checked in blog post incl @simonrstones.bsky.social, Sophie @raiiseuk.bsky.social, @neuro-observant.bsky.social & her amazing #InvolveYoungPeople research cycle & @joshharsant.bsky.social @barnardos.org.uk 👏👏
Reposted by Jen Preston
We had a brilliant day in Birmingham on Saturday at the 'Making Connections' event for #GenR YPAGs. Check out our blog post: generationr.org.uk/hertsypag_ma...
February 3, 2025 at 2:14 PM
We had a brilliant day in Birmingham on Saturday at the 'Making Connections' event for #GenR YPAGs. Check out our blog post: generationr.org.uk/hertsypag_ma...
Thank you Herts YPAG for attending & contributing to the event, what a great day! Thank you for reflecting on the day in this fantastic blog, watch out for the full report and next steps. Thanks again for joining us to raise the importance of involving young people in health research
We had a brilliant day in Birmingham on Saturday at the 'Making Connections' event for #GenR YPAGs. Check out our blog post: generationr.org.uk/hertsypag_ma...
February 3, 2025 at 2:25 PM
Thank you Herts YPAG for attending & contributing to the event, what a great day! Thank you for reflecting on the day in this fantastic blog, watch out for the full report and next steps. Thanks again for joining us to raise the importance of involving young people in health research
Reposted by Jen Preston
Herts YPAG on tour!
On our way to Birmingham with @louca-mai.bsky.social and @helenabnett.bsky.social for an @nihr.bsky.social #GenerationR #MakingConnections event with YPAGs from across the country
On our way to Birmingham with @louca-mai.bsky.social and @helenabnett.bsky.social for an @nihr.bsky.social #GenerationR #MakingConnections event with YPAGs from across the country
February 1, 2025 at 10:07 AM
Reposted by Jen Preston
16/ Huge thanks to all the team including @emmatj.bsky.social, @ceumateus.bsky.social @cawaldrom.bsky.social @kerryhood.bsky.social @saulfaust.bsky.social @jpreso.bsky.social and others not on here. Funded by @nihr.bsky.social
January 9, 2025 at 6:59 AM
16/ Huge thanks to all the team including @emmatj.bsky.social, @ceumateus.bsky.social @cawaldrom.bsky.social @kerryhood.bsky.social @saulfaust.bsky.social @jpreso.bsky.social and others not on here. Funded by @nihr.bsky.social
Reposted by Jen Preston
1/ Delighted to report the results of the Procalcitonin-guided duration of antibiotic treatment in children hospitalised with confirmed or suspected bacterial infection in the UK (BATCH) trial in @LancetChildAdol
authors.elsevier.com/sd/article/S...
ScienceDirect.com | Science, health and medical journals, full text articles and books.
authors.elsevier.com
January 9, 2025 at 6:46 AM
1/ Delighted to report the results of the Procalcitonin-guided duration of antibiotic treatment in children hospitalised with confirmed or suspected bacterial infection in the UK (BATCH) trial in @LancetChildAdol
authors.elsevier.com/sd/article/S...
Looking forward to delivering a masterclass on young people’s involvement in health research decision-making as part of this programme
New banner has arrived @alderhey to promote the clinical researcher development programme !
November 23, 2024 at 7:36 AM
Looking forward to delivering a masterclass on young people’s involvement in health research decision-making as part of this programme
Reposted by Jen Preston
Good to see our @nhsconfed.bsky.social report on investing in women’s health cited in this article. Suspect it will be referenced for some time given the salience of the issue. Download it here www.nhsconfed.org/publications...
November 18, 2024 at 11:57 PM
Good to see our @nhsconfed.bsky.social report on investing in women’s health cited in this article. Suspect it will be referenced for some time given the salience of the issue. Download it here www.nhsconfed.org/publications...