Julia Maués
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itsnotpink.bsky.social
Julia Maués
@itsnotpink.bsky.social
850 followers 320 following 45 posts
She/Her. Living w #MBC since '13 & advocating for people w MBC to LIVE. #AntiRacist #InclusionPledge. Co-founder of @graspcancer.bsky.social & @therightdose.bsky.social. 🇧🇷🇺🇸🇩🇪
Posts Replies Media Videos
itsnotpink.bsky.social
What an honor to join the Executive Board of @bigxresearch.bsky.social! As someone living w metastatic breast cancer & connected to many other patients, I’m excited to support research that reflects what truly matters to people dealing with this disease.
🔗 bigagainstbreastcancer.org/about-big/go...
Governance
BIG is dedicated to supporting all research stakeholders and facilitating ethically sound human research for breast cancer.
bigagainstbreastcancer.org
June 30, 2025 at 8:27 PM
Reposted by Julia Maués
icosociety.bsky.social
On this episode of #HeartToHeart, we're joined by @itsnotpink.bsky.social ‬of @graspcancer.bsky.social.

Julia shares her treatment journey with IC-OS President @susandent.bsky.social and treating physician Ana Barac, MD.

Tune In: tinyurl.com/bpju4ec4
May 19, 2025 at 4:48 PM
Reposted by Julia Maués
fumikochino.bsky.social
🎙️It was my pleasure to speak with Dr. Erin Roesch & phenomenal patient advocate @itsnotpink.bsky.social about pregnancy associated cancer with a focus on #breastcancer, the most common cancer dx during pregnancy. #bcsm @ascocancer.bsky.social @oncoalert.bsky.social

ascopubs.org/do/pregnancy...
Pregnancy and Breast Cancer | Podcast | ASCO Publications
Dr. Chino talks with Dr. Erin Roesch and patient advocate Julia Maues about pregnancy associated cancer with a focus on breast cancer, the most common cancer diagnosed during pregnancy. This discussio...
ascopubs.org
May 19, 2025 at 6:27 PM
Reposted by Julia Maués
fumikochino.bsky.social
With ⬆️ outcomes, pts with #breastcancer have prolonged survivorship often lasting decades but may carry chronic toxicities; both ongoing tx of #MBC & long-term surveillance can add to the cumulative #financialtoxicity for #bcsm pts & families. @ascocancer.bsky.social
@oncoalert.bsky.social
#ASCO25 📖
Financial Toxicity and Breast Cancer: Why Does It Matter, Who Is at Risk, and How Do We Intervene?
Financial toxicity, or the financial burden patients experience because of medical costs, can lead to negative patient effects including lower quality of life, compromised clinical care, and worse hea...
ascopubs.org
May 6, 2025 at 2:39 PM
itsnotpink.bsky.social
“I have tried to live in a world that does not see color but have only succeeded in living in a world that does not see me.”

www.statnews.com/2025/01/13/k...
‘My life’s purpose’: A neuroscientist wants to rewire mental illness treatment and remake the field he loves
Duke neuroscientist Kafui Dzirasa wants nothing less than to reengineer the brain’s electrical patterns to treat anxiety, depression, bipolar disorder, and schizophrenia.
www.statnews.com
May 6, 2025 at 2:43 PM
Reposted by Julia Maués
ourmbclife.bsky.social
Patient Advocate @itsnotpink.bsky.social discusses how @therightdose.bsky.social empowers patients in their treatment decision-making & how patients can use this information to communicate with their doctors.
🎧 Listen (all channels) or 🔗 buff.ly/1o6hJNe
#PCDI #MBC #dosing #CanSky #BCSM
May 5, 2025 at 6:33 PM
itsnotpink.bsky.social
58 years of life with metastatic breast cancer in this photo—made possible by public investment in cancer research.

Now we’re tossing future progress down the drain with federal research cuts. 😢

#NBCCSummit #NBCConTheHill
#BecauseScience
May 5, 2025 at 8:09 PM
Reposted by Julia Maués
darcyburbage.bsky.social
First session of #ONSCongress on antibody drug conjugates presented by #ResearchToPractice! #ONS50 #oncsky
April 9, 2025 at 11:04 PM
Reposted by Julia Maués
lizszabo.bsky.social
How FDA layoffs may impact food safety
www.wbur.org/hereandnow/2...
How FDA layoffs may impact food safety
Layoffs at the Food and Drug Administration are expected to reduce the FDA's workforce by 20%.
www.wbur.org
April 9, 2025 at 11:32 PM
Reposted by Julia Maués
mtmdphd.bsky.social
Continuing to Broaden Eligibility Criteria to Make #ClinicalTrials More Representative and Inclusive: ASCO–Friends of Cancer Research Joint Research Statement [Feb 9, 2021] @DrEdKim et al. @rschilsky @ASCO @CancerResrch @CCR_AACR ow.ly/jmPM50DvH0M #ctsm @FDAOncology
April 9, 2025 at 2:54 PM
Reposted by Julia Maués
npr.org
Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.
Painter Amy Sherald asks: What is American?
Amy Sherald, who painted former First Lady Michelle Obama's portrait in 2018, has a major survey of her work opening this week at the Whitney Museum of American Art in New York.
www.npr.org
April 9, 2025 at 4:19 PM
Reposted by Julia Maués
latinamd.bsky.social
Florida @ASCO Delegation at Capitol Hill this morning for #ASCOAdvocacySummit @RManochakian @atperez_md @DevikaDasMD @Sonampuri
April 8, 2025 at 2:45 PM
Reposted by Julia Maués
drsgraff.bsky.social
I am joining over 150 oncologists this week at the #ASCOAdvocacySummit in Washington, D.C. to urge Congress to help address existing #drugshortages and prevent future shortages of lifesaving and life-prolonging cancer drugs. @ascocancer.bsky.social
April 8, 2025 at 6:15 PM
Reposted by Julia Maués
jrgralow.bsky.social
Great @ascocancer.bsky.social Day on the Hill today - advocating for funding for cancer care and research. Favorite meeting was with Bad Bunny, Lucy, and @repemilyrandall.bsky.social from Washington State - great supporter of access to health care for all!
April 8, 2025 at 9:32 PM
Reposted by Julia Maués
drsgraff.bsky.social
An honor to meet w/ #RepGabeAmo this AM w/Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a
Comprehensive Solution to End Drug Shortages. @ascocancer.bsky.social
April 8, 2025 at 5:51 PM
Reposted by Julia Maués
drsgraff.bsky.social
Want to join us in our efforts? Visit asco.org/actnetwork to contact your Members of Congress about the issues that matter most to you! Advocates are also on the Hill to fix #PriorAuth and protect #CancerResearch funding. #ASCOAdvocacy @ascocancer.bsky.social
Engage in ASCO's Advocacy Efforts
Write a letter to your lawmaker today!
asco.org
April 8, 2025 at 6:23 PM
Reposted by Julia Maués
drsgraff.bsky.social
An honor to meet w/Rep.Magaziner staff, Raisa Majid with Drs. Mega & Strenger to discuss key #ASCOAdvocacySummit asks including consistent funding for the NIH, NCI, and ARPA-H; the Improving Seniors' Timely Access to Care Act; partnering on a Solution to End Drug
Shortages. @ascocancer.bsky.social
April 8, 2025 at 7:43 PM
Reposted by Julia Maués
fumikochino.bsky.social
🇺🇸 #ASCOAdvocacySummit with my @ascocancer.bsky.social Leadership Development Program friend Dr Shilpa Gupta. We spoke to our elected officials about issues that directly impact patients: research funding, #priorAuth, & drug shortages.

Join today w/ the ACT Network:
asco.quorum.us/action_center/
Two woman in front of the capital on a windy day
April 8, 2025 at 10:16 PM
Reposted by Julia Maués
doublewhammied.bsky.social
"Why would a #metastatic #cancer patient need any more stress? Why slow down the research when cancer rates are on the rise, particularly with young people under 50?” 🤦

Great questions!
#CanSky #MedSky #ScienceSky #crcsm #colorectalcancer

www.washingtonpost.com/science/2025...
NIH scientists have a cancer breakthrough. Layoffs are delaying it.
A big step forward in cancer therapy has been slowed by layoffs and new restrictions at the National Institutes of Health, where it was developed.
www.washingtonpost.com
April 7, 2025 at 5:16 PM
Reposted by Julia Maués
infinitembc.bsky.social
"Metastatic breast cancer is the worst club with the best people." is truly a saying that resonates for so many. Watch the full video, plus all of the other presentations from our 2025 MBC Conference here: www.infinitestrength.org/blog/metasta...
April 3, 2025 at 11:00 PM
Reposted by Julia Maués
ibcradiation.bsky.social
www.wired.com/story/doctor...
Doctor Behind Award-Winning Parkinson’s Research Among Scientists Purged From NIH
Leading scientists at the National Institutes of Health, the US’s leading medical research agency, were swept up Tuesday in the Trump administration’s latest firing blitz.
www.wired.com
April 3, 2025 at 12:14 AM
itsnotpink.bsky.social
“In 2023, Healio reported results of a systematic review that showed abstracts of randomized phase 3 clinical trials in gastrointestinal oncology frequently use subjective minimizing language to characterize serious toxicities.”
marthacarlson.bsky.social Martha Carlson @marthacarlson.bsky.social · Apr 3
Once at cancer mtg where a drug was called “tolerable” from the stage w/high low-grade SE % & at least 1 grade 5, which a more experienced patient told me meant death. Also fwiw, pls partner with patients themselves, who are not mentioned as sources of knowledge here #cansky #language #patients
April 3, 2025 at 1:39 PM
Reposted by Julia Maués
marthacarlson.bsky.social
Once at cancer mtg where a drug was called “tolerable” from the stage w/high low-grade SE % & at least 1 grade 5, which a more experienced patient told me meant death. Also fwiw, pls partner with patients themselves, who are not mentioned as sources of knowledge here #cansky #language #patients
Article quote about the serious consequences on quality of life of continuous low-grade side effects A list of possible collaborators for improving adherence to guidelines of treatment toxicity reporting, which does not specifically name patients themselves nor their nonprofit representatives
April 3, 2025 at 1:01 PM
Reposted by Julia Maués
dfcibreastonc.bsky.social
Watch recordings from the 2024 Breast Cancer in Young Adults Forum! 🎥

💬 Young & Strong Panel: 5 young adults share their journeys.
🎙️ Keynote: Prof. Dame Lesley Fallowfield on better doctor-patient communication.

Watch here ⬇️ youtube.com/playlist?lis...

#YoungAdultCancerAwarenessWeek
April 3, 2025 at 1:05 PM
Reposted by Julia Maués
dfcibreastonc.bsky.social
Dr. Jennifer Ligibel, a @danafarber.bsky.social breast cancer oncologist, who specializes in #ExerciseResearch, discusses how strength training can help prevent #lymphedema.
April 2, 2025 at 7:29 PM